1
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(chattering)

2
00:01:46,639 --> 00:01:48,914
- Good afternoon, Beth Israel Patient Information.

3
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May I help you? - Room 616.

4
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He's in room 588, take the blue elevators there

5
00:01:54,601 --> 00:01:58,768
to the fifth floor, when you get off, take a left.

6
00:02:08,774 --> 00:02:11,941
(relaxed flute music)

7
00:02:39,718 --> 00:02:42,968
(relaxed guitar music)

8
00:02:53,950 --> 00:02:55,809
- [Nurse] Kim to the cardiac room.

9
00:02:55,809 --> 00:02:57,809
Kim to the cardiac room.

10
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- Maybe just to adjust to get his respiratory

11
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settings changed in such a way that he

12
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doesn't look like he's breathing so hard.

13
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I think it's a little bit disconcerting for

14
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the family to come in here and see him struggling like that.

15
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So that's just an idea, just a passing idea.

16
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- What we should try is if we think

17
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he stands any chance of being estivated,

18
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I'm gonna call his family and tell him that

19
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this is a situation, I'm spoken to 'em before.

20
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They know the situation.

21
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Tell them that it seems as though he's breathing on

22
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his own and we should make an attempt, take out the tube,

23
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leave it in God's hands, see what happens.

24
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- Okay.

25
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I don't know where you're at with that.

26
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He has a heart rate of 140, he's got dependent crackles,

27
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diffused wheezing, he may not fly.

28
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So make sure that you and the family are quite clear

29
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about whether this is sort of a we're gonna stop

30
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ventilating him once and for all or we're gonna

31
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try it and just see but make sure you've

32
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decided before exactly what you're dealing with.

33
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- I want you to understand the situation

34
00:04:08,243 --> 00:04:09,901
and sort of where we stand.

35
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I think what seems to make the most sense

36
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to me at this point is that since his brain,

37
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since he's never gonna wake up,

38
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that it wouldn't make sense to continue on in this state.

39
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Now we could try stopping the ventilator and if he breathes,

40
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then he breathes and if he doesn't,

41
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then it's in God's hands now.

42
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Now I know,

43
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but not knowing really how you felt on this,

44
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I wanted to call and find out and we

45
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hadn't actually spoken in awhile, so.

46
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He is, so he may breathe on his own

47
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and that's certainly a possibility but

48
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it's hard for us to actually know that for sure

49
00:04:55,237 --> 00:04:57,465
and I'm saying if we take it out, we may find out

50
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that he doesn't, in which case he would,

51
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if it were somebody who were alive and well,

52
00:05:04,244 --> 00:05:06,267
we would put the tube back in but I think

53
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given all the situation which you seem to understand,

54
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it wouldn't make much sense to put

55
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the tube back in because his brain is gone.

56
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I know this is a very difficult topic.

57
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- You know what the date is?

58
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What month is it?

59
00:05:34,343 --> 00:05:35,843
Is it winter time?

60
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- [Nurse] I'm gonna just slide you over.

61
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- Ready, one, two, three.

62
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- How you feeling this morning?

63
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What's that?

64
00:06:08,323 --> 00:06:11,906
Can you look over here, look at my fingers?

65
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Can you follow my fingers?

66
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- We'll let you do your work too.

67
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I'm gonna get you weighed Mr. Toomey on a special scale.

68
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Just lifting you up in the air.

69
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- [Nurse] 86.2.

70
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- A special gift for ya.

71
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(chattering)

72
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- [Man] Yeah, I mean whatever.

73
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- I think it's important that everybody

74
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feel comfortable with what we're doing.

75
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I personally think that his antibiotics are,

76
00:07:02,731 --> 00:07:04,231
you know it's like

77
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a pea shooter against an atomic bomb.

78
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I mean the guy is not, if you look at

79
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the natural history of what's happened here

80
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and what his prognosis is and what we know about

81
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the terminal lung cancer, there's not anything

82
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any of us is gonna be able to do and whether

83
00:07:19,648 --> 00:07:22,207
you give him the antibiotics or not I think is

84
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sort of more how you feel personally about it.

85
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I guess the issue that's gonna become

86
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a major issue is that everybody feel

87
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comfortable with sort of withdrawing his care.

88
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I certainly do, I mean I think that on Friday night,

89
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I've never thought that when the guy arrived here

90
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that he had a chance of pulling through but

91
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I do think it's very important for the family

92
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to give them the feeling that we're doing

93
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everything that we can 'til the point that they

94
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come to the realization that, I mean there

95
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are a lot of unresolved issues here.

96
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Never dealt with his feelings with his younger daughter.

97
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A lot of anger on both of their parts evidently

98
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and both, you know he's been married for 34 years.

99
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A lot of other, and I think they all,

100
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they didn't have a chance to say goodbye to him

101
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and that was the thing that was really irking them.

102
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I think they sorta knew intellectually that

103
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he wasn't gonna make it but emotionally on Friday,

104
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they were just not prepared to accept that

105
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and I think now that they've really evolved

106
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to a different stage in their own feelings,

107
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I think that we've gotta sorta take that into account but

108
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always in a situation like this there

109
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are four or five different groups of people here.

110
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The nurses know, knew from the moment he

111
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walked in the door that he wasn't gonna make it

112
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and I think that the family was a bit angry that

113
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they were getting that message from the nurses.

114
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I sorta knew that too but I didn't give 'em the same

115
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message, I sorta said yes, we're gonna do all this stuff.

116
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But everybody's gotta feel comfortable that we're,

117
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before we sort of embark on a course of

118
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action here that we're doing the right thing.

119
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I mean nobody likes to lose.

120
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But this is not something that

121
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we have a lot of control over.

122
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But I think if people feel different about it,

123
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now's the time to say so because I think that we're gonna,

124
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I'm gonna have to talk to the family

125
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sometime today about withdrawing support

126
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and my own personal feeling is that

127
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I don't think that we have, it's just a question

128
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of he's dying today or dying three days from now.

129
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- I mean the acute deterioration on Saturday

130
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is really what turned the family around

131
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and since then they've really, it sounds

132
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like they've just really evolved in

133
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their feelings and in their wishes.

134
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- [Scott] But I was really

135
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asking the question for everybody here.

136
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- Well it was my feeling before he had

137
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this deterioration on Saturday that if he

138
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were to stop bleeding long enough, presumably

139
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he could eventually mobilize that blood,

140
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re-expand and potential come off the vent.

141
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In which case he'd be at XRT and if he

142
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didn't re-bleed, he could have a couple of months.

143
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But now he's showing that he's just

144
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bleeding again back to where he was before.

145
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He's not gonna stand a chance of ever getting off the vents.

146
00:09:56,012 --> 00:09:58,205
- Yeah, as somebody who treats a lot of lung cancer,

147
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I don't think there's anything in the medical

148
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literature that would justify the optimism of the radiation

149
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therapists in terms of what they said even on Friday.

150
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- But the oncologist too.

151
00:10:09,167 --> 00:10:10,944
We've got the oncologist down there.

152
00:10:10,944 --> 00:10:13,156
I mean Annette said "Well, he could've gotten

153
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"three days of XRT by now but now it's too late."

154
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And I said that wouldn't have made any difference.

155
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He bled Saturday morning.

156
00:10:21,370 --> 00:10:22,620
- [Scott] Okay.

157
00:10:24,858 --> 00:10:28,508
Mr. Gavin, he did not report any chest pain yesterday.

158
00:10:28,508 --> 00:10:31,630
His CPK from the previous day is ruled out.

159
00:10:31,630 --> 00:10:34,463
His VEA was at baseline yesterday.

160
00:10:35,971 --> 00:10:38,571
Over the course of the day, he remained on

161
00:10:38,571 --> 00:10:41,204
the drips he was on yesterday, ranged with

162
00:10:41,204 --> 00:10:44,108
dopamine, pyrrobutamine and his nitroprusside

163
00:10:44,108 --> 00:10:46,007
had increased over the course of the day

164
00:10:46,007 --> 00:10:48,623
and tolerated a blood pressure of about 80.

165
00:10:48,623 --> 00:10:53,373
Keep doing that and one dose of diuretics in the morning.

166
00:11:00,097 --> 00:11:01,252
- Hang on.

167
00:11:01,252 --> 00:11:03,865
All right, it's charged.

168
00:11:03,865 --> 00:11:06,698
- [Nurse] Unplug her from the EKG.

169
00:11:08,319 --> 00:11:11,172
Turn it on. - I got it, I got it.

170
00:11:11,172 --> 00:11:15,227
- [Doctor] All right, let's shock, check her blood--

171
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- [Nurse] Wait a second.

172
00:11:19,626 --> 00:11:20,459
Clear.

173
00:11:24,826 --> 00:11:26,409
- There's no pulse.

174
00:11:27,530 --> 00:11:30,011
- [Doctor] Continue with CPR.

175
00:11:30,011 --> 00:11:30,844
- Towel.

176
00:11:32,007 --> 00:11:33,510
- Wait, I need this.

177
00:11:33,510 --> 00:11:35,051
- [Nurse] Is there something disconnected?

178
00:11:35,051 --> 00:11:35,884
- Yes.

179
00:11:47,186 --> 00:11:49,603
- Full CPR for just a second.

180
00:11:54,398 --> 00:11:56,225
All right, that's it.

181
00:11:56,225 --> 00:11:59,085
- Unless anybody has anymore ideas.

182
00:11:59,085 --> 00:12:00,780
- But he has told us that he

183
00:12:00,780 --> 00:12:02,852
does not want to live on the tube.

184
00:12:02,852 --> 00:12:03,724
- Right. - Okay.

185
00:12:03,724 --> 00:12:06,060
That he's made clear to me, he's made clear to you.

186
00:12:06,060 --> 00:12:08,089
That's been his major concern all along.

187
00:12:08,089 --> 00:12:11,908
So that if at some point you're saying

188
00:12:11,908 --> 00:12:14,908
we can't wean him, then I think that

189
00:12:15,750 --> 00:12:16,583
per se is,

190
00:12:20,160 --> 00:12:23,558
to me at least that per se in an indication to stop,

191
00:12:23,558 --> 00:12:25,217
to DC the tube.

192
00:12:25,217 --> 00:12:28,973
What he is saying, what he has indeed said is

193
00:12:28,973 --> 00:12:31,544
"I do not want to live on the tube,

194
00:12:31,544 --> 00:12:34,697
"I don't want the tube if I can't get off the tube."

195
00:12:34,697 --> 00:12:35,607
- Right.

196
00:12:35,607 --> 00:12:39,550
- So if you hit that point, then yes, you DC him.

197
00:12:39,550 --> 00:12:40,954
- They got in touch with her son

198
00:12:40,954 --> 00:12:42,943
who insisted that everything be done.

199
00:12:42,943 --> 00:12:45,149
So they looked for everything but,

200
00:12:45,149 --> 00:12:50,012
I mean everything, a septus and a ruptured viscous

201
00:12:50,012 --> 00:12:54,241
to explain her acidosis, hypotension and decreasing crit

202
00:12:54,241 --> 00:12:56,909
and it became clear as she became

203
00:12:56,909 --> 00:13:00,428
recurrently hypotensive with this distending

204
00:13:00,428 --> 00:13:04,695
abdomen that this was a ruptured aneurism.

205
00:13:04,695 --> 00:13:05,771
The surgeons--

206
00:13:05,771 --> 00:13:07,956
- As far as I know, that's not a medical disease.

207
00:13:07,956 --> 00:13:10,411
- The surgeons evaluated her

208
00:13:10,411 --> 00:13:12,661
and Mark Lanser's note said

209
00:13:16,944 --> 00:13:18,444
a short, you know,

210
00:13:19,972 --> 00:13:22,417
HNP impression, ruptured aneurism.

211
00:13:22,417 --> 00:13:25,828
Operation is futile, 100% mortality.

212
00:13:25,828 --> 00:13:27,995
I have spoken with the son

213
00:13:28,911 --> 00:13:32,176
in charge and explained the situation

214
00:13:32,176 --> 00:13:34,619
and he suggested comfort measures.

215
00:13:34,619 --> 00:13:36,402
- His son? - No.

216
00:13:36,402 --> 00:13:39,611
Mark Lanser, the surgical attending.

217
00:13:39,611 --> 00:13:42,315
Comfort measures and no resuscitative efforts.

218
00:13:42,315 --> 00:13:45,042
The son insisted that everything be done

219
00:13:45,042 --> 00:13:48,042
and the son I think is now flying here

220
00:13:48,042 --> 00:13:49,654
from, I don't know where he lives

221
00:13:49,654 --> 00:13:52,237
but he's apparently in a plane.

222
00:13:53,186 --> 00:13:55,623
I think that there are two more, I think there

223
00:13:55,623 --> 00:14:00,290
are two daughters but they haven't been contacted and so

224
00:14:01,245 --> 00:14:06,245
the EW nurses felt too uncomfortable having her downstairs.

225
00:14:06,488 --> 00:14:10,321
She's in the midst of becoming hypotensive and

226
00:14:12,506 --> 00:14:14,993
distending abdomen, she got intubated

227
00:14:14,993 --> 00:14:18,355
which is why she has to be here and she was put on

228
00:14:18,355 --> 00:14:22,180
lots of depressors, now is on Livo and Neo.

229
00:14:22,180 --> 00:14:24,633
- [Scott] Sounds like we're doing everything we can do.

230
00:14:24,633 --> 00:14:28,075
- So I said why does she even have to come to,

231
00:14:28,075 --> 00:14:30,373
but we won't even get into that.

232
00:14:30,373 --> 00:14:32,943
- That's not worth-- - No, it isn't.

233
00:14:32,943 --> 00:14:34,940
- That's fine, I think it's, because

234
00:14:34,940 --> 00:14:36,800
one of the reasons we're having her here

235
00:14:36,800 --> 00:14:38,668
is that we deal with this better than anybody else.

236
00:14:38,668 --> 00:14:42,841
- See the big issue was because the nurses felt that

237
00:14:42,841 --> 00:14:45,674
when she dies, she has to be coded

238
00:14:46,660 --> 00:14:49,001
because the son insisted everything be done

239
00:14:49,001 --> 00:14:53,918
and so they were preparing to do a code on this poor woman.

240
00:14:55,885 --> 00:14:58,185
- I guess the question is

241
00:14:58,185 --> 00:15:00,793
there are lots of definitions of everything.

242
00:15:00,793 --> 00:15:04,310
- She's also gotten four units of blood

243
00:15:04,310 --> 00:15:06,889
and I assume by carb and stuff because

244
00:15:06,889 --> 00:15:09,281
it looks like her gases got a little better.

245
00:15:09,281 --> 00:15:12,090
Crit seemed to stabilize.

246
00:15:12,090 --> 00:15:14,510
- She hasn't had a gas intrusion today.

247
00:15:14,510 --> 00:15:16,174
- She had one a little bit later.

248
00:15:16,174 --> 00:15:19,046
But I mean the bicarbs on her SMA segment,

249
00:15:19,046 --> 00:15:23,376
there are some bicarbs that's getting better.

250
00:15:23,376 --> 00:15:25,357
I guess I don't see the point in doing

251
00:15:25,357 --> 00:15:27,605
any of that because I agree, this is a surgical

252
00:15:27,605 --> 00:15:29,676
disease and if they're not gonna do surgery,

253
00:15:29,676 --> 00:15:32,926
I don't see the point of prolonging it.

254
00:15:34,974 --> 00:15:37,767
- [Doctor] We'll talk to the son.

255
00:15:37,767 --> 00:15:40,517
- Yeah, I mean again I think that

256
00:15:43,655 --> 00:15:48,574
you know, go ahead and take a quick look at her and

257
00:15:48,574 --> 00:15:49,407
I don't,

258
00:15:52,168 --> 00:15:53,251
I don't know.

259
00:15:54,852 --> 00:15:59,792
What's happened with these, the DNR rules and everything

260
00:15:59,792 --> 00:16:04,075
over the last five years really makes, puts you in

261
00:16:04,075 --> 00:16:07,023
a difficult situation, I think that I would

262
00:16:07,023 --> 00:16:09,630
feel very comfortable in terms of everything,

263
00:16:09,630 --> 00:16:12,721
being everything that we've done already.

264
00:16:12,721 --> 00:16:14,010
- Is she awake now?

265
00:16:14,010 --> 00:16:16,246
- [Doctor] She's awake a little bit now more,

266
00:16:16,246 --> 00:16:18,697
she has a baseline dementia so I don't know what her

267
00:16:18,697 --> 00:16:21,463
understanding is but she is a little bit awake right now.

268
00:16:21,463 --> 00:16:23,568
- What's the son's understanding?

269
00:16:23,568 --> 00:16:25,552
- [Doctor] He understands that

270
00:16:25,552 --> 00:16:28,370
basically it's a surgical problem and they

271
00:16:28,370 --> 00:16:30,992
cannot treat it surgically and medically

272
00:16:30,992 --> 00:16:34,159
there's no further thing we can do and

273
00:16:36,182 --> 00:16:37,513
that you know like I said,

274
00:16:37,513 --> 00:16:40,424
"Please understand that she already died."

275
00:16:40,424 --> 00:16:42,165
- Does he want to make plans to come here at all?

276
00:16:42,165 --> 00:16:43,578
- [Doctor] He's coming here.

277
00:16:43,578 --> 00:16:45,824
He's gonna arrive here around 12:30 in the hospital.

278
00:16:45,824 --> 00:16:48,733
He's planning on coming from Chicago at 11:30.

279
00:16:48,733 --> 00:16:49,805
- Do you think she'll survive 'til then?

280
00:16:49,805 --> 00:16:52,220
- [Doctor] I don't think so and he knows that.

281
00:16:52,220 --> 00:16:53,220
- He does? - Yeah.

282
00:16:53,220 --> 00:16:54,468
But I think it might make him

283
00:16:54,468 --> 00:16:55,840
feel better if I had talked with you.

284
00:16:55,840 --> 00:16:57,568
- I'll put a note in there. - Okay, thank you.

285
00:16:57,568 --> 00:16:58,568
- Okay fine.

286
00:17:07,767 --> 00:17:11,934
Mrs. Winter, this is Rabbi Baird, can you hear me?

287
00:17:13,508 --> 00:17:15,786
Just blink your eyes if you can hear me, okay?

288
00:17:15,786 --> 00:17:19,638
Blink your eyes, this is Rabbi Baird.

289
00:17:19,638 --> 00:17:21,556
Can you hear me at all?

290
00:17:28,660 --> 00:17:30,827
I've come by to say hello.

291
00:17:36,235 --> 00:17:37,887
We understand that your son

292
00:17:37,887 --> 00:17:40,804
is going to be coming from Chicago.

293
00:17:47,283 --> 00:17:48,983
Hopefully he'll be here this morning,

294
00:17:48,983 --> 00:17:51,066
later this morning, okay?

295
00:17:52,718 --> 00:17:56,375
And I wanted you to know that I'm here as well

296
00:17:56,375 --> 00:17:59,375
and we're going to be here with you.

297
00:18:01,377 --> 00:18:03,960
We won't leave you alone, okay?

298
00:18:07,851 --> 00:18:09,518
- [Nurse] Thank you.

299
00:18:10,382 --> 00:18:13,215
- [Nurse Operator] Amy, line four.

300
00:18:45,102 --> 00:18:47,269
- She can't hear anything.

301
00:19:11,535 --> 00:19:14,618
Let's take her off this for a second.

302
00:19:15,966 --> 00:19:19,049
(electronic beeping)

303
00:19:37,585 --> 00:19:39,168
- Okay, she's dead.

304
00:19:40,004 --> 00:19:40,837
10:53.

305
00:19:47,022 --> 00:19:48,638
- She's gonna be here for awhile.

306
00:19:48,638 --> 00:19:51,093
- Basically it's not just his middle lobe that's down.

307
00:19:51,093 --> 00:19:55,593
His lower lobe is completely down and his middle lobe.

308
00:19:57,073 --> 00:19:59,280
My general approach in terms of dealing with

309
00:19:59,280 --> 00:20:01,779
the family about something like this is just that

310
00:20:01,779 --> 00:20:04,527
even if they can't hear it, I think it's important

311
00:20:04,527 --> 00:20:08,369
to tell them exactly what is going on

312
00:20:08,369 --> 00:20:13,369
and if they don't, if they don't get it the first time,

313
00:20:13,452 --> 00:20:15,348
it's not so bad.

314
00:20:15,348 --> 00:20:18,712
If it's so frightening to them that they can't hear it,

315
00:20:18,712 --> 00:20:21,283
then that's okay, I don't think you're gonna do 'em

316
00:20:21,283 --> 00:20:25,644
any harm but I think that it's important to be honest

317
00:20:25,644 --> 00:20:29,574
with them and tell them exactly what's going on because

318
00:20:29,574 --> 00:20:34,382
eventually they will start to hear I think what's going on.

319
00:20:34,382 --> 00:20:36,721
I think probably what I'll say is

320
00:20:36,721 --> 00:20:38,536
similar to what I said this morning.

321
00:20:38,536 --> 00:20:40,521
- It's an interesting challenge because while

322
00:20:40,521 --> 00:20:42,457
you've been talking to the mother saying this,

323
00:20:42,457 --> 00:20:44,974
the daughter will be in the background going

324
00:20:44,974 --> 00:20:48,040
like this, it's a very bizarre situation.

325
00:20:48,040 --> 00:20:51,294
I just went on despite what the daughter was signaling.

326
00:20:51,294 --> 00:20:54,382
I just kept saying it but it's unusual.

327
00:20:54,382 --> 00:20:56,465
- Well again I think that

328
00:20:57,388 --> 00:20:58,995
as we said this morning on rounds,

329
00:20:58,995 --> 00:21:00,490
it's a very difficult situation.

330
00:21:00,490 --> 00:21:02,603
The mother says she doesn't want to hear anything

331
00:21:02,603 --> 00:21:06,028
but these daughters that are all fighting for

332
00:21:06,028 --> 00:21:08,058
control but I don't think that reasonably

333
00:21:08,058 --> 00:21:12,475
you can exclude her from the decision-making process.

334
00:21:28,915 --> 00:21:32,077
- In the scope of one to 10 of your lungs,

335
00:21:32,077 --> 00:21:35,812
10 being good and one being bad, you're on a one.

336
00:21:35,812 --> 00:21:38,895
You have really poor, poor breathing.

337
00:21:41,259 --> 00:21:43,427
- That's the condition I'm in. - Yeah.

338
00:21:43,427 --> 00:21:45,796
- How is it, I could breath yesterday,

339
00:21:45,796 --> 00:21:48,057
the day before yesterday.

340
00:21:48,057 --> 00:21:50,626
- Falling, yeah. - Falling.

341
00:21:50,626 --> 00:21:52,773
- And I went home, no care or nothing.

342
00:21:52,773 --> 00:21:54,522
I went home, they took me home.

343
00:21:54,522 --> 00:21:56,424
- Yeah. - All alone.

344
00:21:56,424 --> 00:21:57,257
- Yeah.

345
00:21:58,959 --> 00:22:02,042
But then it's what happened yesterday

346
00:22:03,144 --> 00:22:04,765
that's made you feel bad.

347
00:22:04,765 --> 00:22:08,015
Why did you go to Dr. Axelrod's office?

348
00:22:08,874 --> 00:22:11,569
- My sons took me there. - Yeah.

349
00:22:11,569 --> 00:22:13,631
Yeah, was that because you

350
00:22:13,631 --> 00:22:15,504
were having a hard time breathing?

351
00:22:15,504 --> 00:22:16,633
- No.

352
00:22:16,633 --> 00:22:18,199
- No?

353
00:22:18,199 --> 00:22:19,567
It turns out you were.

354
00:22:19,567 --> 00:22:22,264
- He's my official doctor. - Right.

355
00:22:22,264 --> 00:22:25,340
I understand that, what I'm asking you is what,

356
00:22:25,340 --> 00:22:27,079
did your sons come over and see that

357
00:22:27,079 --> 00:22:28,598
you were a little bit worse and they said--

358
00:22:28,598 --> 00:22:30,217
- They dropped me off. - Okay.

359
00:22:30,217 --> 00:22:32,398
- My sons dropped me off.

360
00:22:32,398 --> 00:22:36,224
- Did they bring you to Dr. Axelrod's because--

361
00:22:36,224 --> 00:22:38,045
- I told them to. - You told 'em to

362
00:22:38,045 --> 00:22:40,209
because you were feeling bad?

363
00:22:40,209 --> 00:22:41,577
- No, he's my doctor.

364
00:22:41,577 --> 00:22:42,817
- I know, I know.

365
00:22:42,817 --> 00:22:45,680
Was it a regular appointment or were you feeling, oh.

366
00:22:45,680 --> 00:22:49,000
- It was to be this week. - Oh, I see.

367
00:22:49,000 --> 00:22:52,481
- But I got hurt last week, so he says "Bring him up."

368
00:22:52,481 --> 00:22:54,174
Then from there he brought me over here.

369
00:22:54,174 --> 00:22:56,607
- So it wasn't like a new thing that

370
00:22:56,607 --> 00:22:59,216
you were feeling all of a sudden bad and you went

371
00:22:59,216 --> 00:23:01,198
and called him and said "I need an appointment."

372
00:23:01,198 --> 00:23:03,180
It was already scheduled.

373
00:23:03,180 --> 00:23:04,933
Oh, I didn't know that.

374
00:23:04,933 --> 00:23:07,661
- I went to see him. - Yeah.

375
00:23:07,661 --> 00:23:10,393
- I lost my wife here. - I know you did.

376
00:23:10,393 --> 00:23:13,497
- And I was here in '83. - Yeah.

377
00:23:13,497 --> 00:23:14,330
- Myself.

378
00:23:14,330 --> 00:23:17,243
- Do you understand what intubation means?

379
00:23:17,243 --> 00:23:18,908
- Yeah. - Do you understand?

380
00:23:18,908 --> 00:23:20,042
- Raise you up.

381
00:23:20,042 --> 00:23:21,377
- No.

382
00:23:21,377 --> 00:23:23,184
No, that's not what it means.

383
00:23:23,184 --> 00:23:27,878
Intubation means, it's an act of putting a tube

384
00:23:27,878 --> 00:23:31,078
in your mouth and into your lungs

385
00:23:31,078 --> 00:23:34,305
and we attach it to a machine through tubes

386
00:23:34,305 --> 00:23:36,222
and we help you breathe

387
00:23:37,205 --> 00:23:40,499
and we wait for your lungs to get better

388
00:23:40,499 --> 00:23:43,582
and then we take you off the machine.

389
00:23:44,691 --> 00:23:47,332
As you become better, you're allowed,

390
00:23:47,332 --> 00:23:50,749
you're able to breathe better on your own

391
00:23:52,157 --> 00:23:54,877
and the machine does less and less work.

392
00:23:54,877 --> 00:23:56,877
Unfortunately your lungs

393
00:23:58,607 --> 00:24:01,051
aren't gonna get better.

394
00:24:01,051 --> 00:24:04,826
So the act of putting you on the machine

395
00:24:04,826 --> 00:24:07,537
is almost a futile effort.

396
00:24:07,537 --> 00:24:10,009
The machine is there to help you and then when you

397
00:24:10,009 --> 00:24:13,930
get better, we can take the machine away gradually.

398
00:24:13,930 --> 00:24:17,025
What's gonna happen if we put you on the machine is

399
00:24:17,025 --> 00:24:19,710
that you're not gonna get better.

400
00:24:19,710 --> 00:24:23,545
This is you, it's sad and it's frustrating

401
00:24:23,545 --> 00:24:27,037
and it's anger-provoking but your lungs

402
00:24:27,037 --> 00:24:30,531
are about as bad as they can get.

403
00:24:30,531 --> 00:24:32,891
It tells us from your breathing test,

404
00:24:32,891 --> 00:24:34,382
you know the breathing test?

405
00:24:34,382 --> 00:24:35,868
Not the little aerosol thing but

406
00:24:35,868 --> 00:24:38,077
the breathing test on the big machine

407
00:24:38,077 --> 00:24:39,982
and our blood gases that we do,

408
00:24:39,982 --> 00:24:42,482
that tells us what you're like

409
00:24:43,529 --> 00:24:46,222
and what your body is telling us

410
00:24:46,222 --> 00:24:50,029
is that your lungs don't have much left.

411
00:24:50,029 --> 00:24:51,891
They've been working for 81 years

412
00:24:51,891 --> 00:24:54,166
and now they're working overtime.

413
00:24:54,166 --> 00:24:55,999
- 83 years. - Yeah, 83.

414
00:24:56,856 --> 00:24:58,050
- Well--

415
00:24:58,050 --> 00:25:01,077
- I think your decision of saying that

416
00:25:01,077 --> 00:25:04,327
you don't want to be intubated, I just,

417
00:25:06,027 --> 00:25:07,940
I think that's a good decision for you but

418
00:25:07,940 --> 00:25:11,092
I don't think you understood what intubation was.

419
00:25:11,092 --> 00:25:15,122
All right, it's the act of putting that tube in,

420
00:25:15,122 --> 00:25:19,318
into your throat and attaching you to a machine.

421
00:25:19,318 --> 00:25:22,300
Now if anything should happen that,

422
00:25:22,300 --> 00:25:24,667
the only reason we would do that

423
00:25:24,667 --> 00:25:27,157
is if you got worse than you were,

424
00:25:27,157 --> 00:25:29,485
remember how bad you felt yesterday?

425
00:25:29,485 --> 00:25:32,017
If you got worse than you were yesterday,

426
00:25:32,017 --> 00:25:34,668
worse, if you can imagine feeling worse,

427
00:25:34,668 --> 00:25:38,305
we'd think about it very seriously and if we

428
00:25:38,305 --> 00:25:42,026
waited too long or things got even worse,

429
00:25:42,026 --> 00:25:43,776
your heart might stop

430
00:25:45,272 --> 00:25:47,906
because without the oxygen in your heart,

431
00:25:47,906 --> 00:25:49,851
your heart doesn't go.

432
00:25:49,851 --> 00:25:51,295
You know that, without oxygen

433
00:25:51,295 --> 00:25:53,042
in your heart, your heart doesn't go.

434
00:25:53,042 --> 00:25:56,122
If your heart doesn't go, your brain doesn't go

435
00:25:56,122 --> 00:25:58,327
and those are the kind of things that we

436
00:25:58,327 --> 00:26:01,398
have to think about, things to start your heart.

437
00:26:01,398 --> 00:26:04,231
But if we don't have that tube in,

438
00:26:05,296 --> 00:26:07,453
it's not gonna really help us much to have

439
00:26:07,453 --> 00:26:09,236
your heart going because your heart still

440
00:26:09,236 --> 00:26:11,073
isn't getting the oxygen that it needs.

441
00:26:11,073 --> 00:26:13,424
So that's why we talk about the heart,

442
00:26:13,424 --> 00:26:18,424
the shocks and the medicines and the tube at the same time.

443
00:26:18,429 --> 00:26:20,631
One hand washes the other.

444
00:26:20,631 --> 00:26:23,503
You can't have one without the other.

445
00:26:23,503 --> 00:26:26,295
- It's like the old saying, we need each other.

446
00:26:26,295 --> 00:26:27,128
- Right.

447
00:26:27,128 --> 00:26:29,795
- We need each other to survive.

448
00:26:30,952 --> 00:26:33,619
You need help, I have your help.

449
00:26:34,838 --> 00:26:37,005
I should help you. - Right.

450
00:26:38,838 --> 00:26:41,381
But what I wanna do is help you.

451
00:26:41,381 --> 00:26:43,650
I want to help you.

452
00:26:43,650 --> 00:26:46,463
But I only want to help you

453
00:26:46,463 --> 00:26:48,854
in the manner that you want to be helped.

454
00:26:48,854 --> 00:26:51,001
I don't want to do too much for you.

455
00:26:51,001 --> 00:26:52,570
- That's the problem.

456
00:26:52,570 --> 00:26:55,987
- I don't want to do more than you want me to do.

457
00:26:55,987 --> 00:26:59,633
I don't want to keep you alive unless you like living.

458
00:26:59,633 --> 00:27:02,019
- That's fine. - Okay?

459
00:27:02,019 --> 00:27:03,602
That's what I want.

460
00:27:07,046 --> 00:27:11,151
- This isn't your body, this isn't your body.

461
00:27:11,151 --> 00:27:12,717
- Right.

462
00:27:12,717 --> 00:27:14,634
- [Patient] Your favor.

463
00:27:16,621 --> 00:27:20,527
- We're asking you, we're telling you what we know.

464
00:27:20,527 --> 00:27:24,047
We're educating you about we know about your body

465
00:27:24,047 --> 00:27:27,186
and asking you to make a decision,

466
00:27:27,186 --> 00:27:28,769
taking how you feel

467
00:27:30,072 --> 00:27:32,491
and what we inform you about

468
00:27:32,491 --> 00:27:35,158
what's going on with your lungs.

469
00:27:36,156 --> 00:27:37,942
I would think it'd be wrong to tell you

470
00:27:37,942 --> 00:27:39,807
that we would put you on the ventilator

471
00:27:39,807 --> 00:27:41,823
and then be able to take you off

472
00:27:41,823 --> 00:27:43,789
because I don't think that's gonna happen.

473
00:27:43,789 --> 00:27:46,206
It may but it probably won't.

474
00:27:47,073 --> 00:27:50,342
The history of people like you

475
00:27:50,342 --> 00:27:52,238
tells us that it won't be easy

476
00:27:52,238 --> 00:27:55,905
if ever able to take you off the ventilator.

477
00:28:00,726 --> 00:28:02,734
- I have two grandchildren.

478
00:28:02,734 --> 00:28:05,020
Two of my eldest ones,

479
00:28:05,020 --> 00:28:08,270
they'll be in Chicago, they're doctors.

480
00:28:09,610 --> 00:28:13,527
Chick Dawes and Mark Dawes, John Stuart's boys.

481
00:28:18,445 --> 00:28:22,849
We just met his sister, the older sister, I saw her

482
00:28:22,849 --> 00:28:25,297
and they were there and they said

483
00:28:25,297 --> 00:28:28,269
we'd see if the physics get better.

484
00:28:28,269 --> 00:28:31,570
I says "I hope so." - That's right.

485
00:28:31,570 --> 00:28:33,843
That's why I think it's good.

486
00:28:33,843 --> 00:28:36,266
I mean you have to talk about this with your family.

487
00:28:36,266 --> 00:28:38,432
It's something you owe them and they owe you.

488
00:28:38,432 --> 00:28:42,021
To listen to you talk about how you feel and how you

489
00:28:42,021 --> 00:28:44,718
want the rest of your days to be.

490
00:28:44,718 --> 00:28:47,955
- I want to be with 'em. - All right.

491
00:28:47,955 --> 00:28:51,331
Do you want any more explanation about what happens?

492
00:28:51,331 --> 00:28:53,639
- No, no. - You know.

493
00:28:53,639 --> 00:28:55,503
- I'm not gonna bore them with that information.

494
00:28:55,503 --> 00:28:59,336
- If they want to speak to anybody, Dr. Jones,

495
00:29:00,652 --> 00:29:04,204
Dr. Taylor and myself, we're all here.

496
00:29:04,204 --> 00:29:06,341
So if you need any explanation or if they

497
00:29:06,341 --> 00:29:08,697
don't understand something, have them talk to us.

498
00:29:08,697 --> 00:29:10,103
- You work in the hospital?

499
00:29:10,103 --> 00:29:13,695
- Yeah I work here, I'll be here 'til seven.

500
00:29:13,695 --> 00:29:14,731
Okay?

501
00:29:14,731 --> 00:29:18,107
All right, it's a hard thing to swallow, you think about it.

502
00:29:18,107 --> 00:29:18,940
Okay?

503
00:29:19,840 --> 00:29:20,960
Okay.

504
00:29:20,960 --> 00:29:22,043
- Mr. Festal.

505
00:29:23,594 --> 00:29:25,003
- [Nurse] Sometimes spontaneously

506
00:29:25,003 --> 00:29:26,816
he will open and close his eyes.

507
00:29:26,816 --> 00:29:29,053
- But not in relation to-- - No response.

508
00:29:29,053 --> 00:29:30,456
- We're gonna take a look in your eyes.

509
00:29:30,456 --> 00:29:33,629
- That's not an uncommon thing, you see that.

510
00:29:33,629 --> 00:29:37,628
- [Nurse] And they roll back and forth sometimes.

511
00:29:37,628 --> 00:29:40,371
- [Doctor] He's responsive, small but responsive.

512
00:29:40,371 --> 00:29:42,038
- [Doctor] Yeah, it's sluggish but responsive

513
00:29:42,038 --> 00:29:43,437
but he doesn't have a corneal stimuli.

514
00:29:43,437 --> 00:29:46,440
- [Doctor] So he has brain stem.

515
00:29:46,440 --> 00:29:49,201
- [Scott] Which is why I say that--

516
00:29:49,201 --> 00:29:54,013
- [Doctor] I'm gonna turn your head there, Mr. Festal.

517
00:29:54,013 --> 00:29:55,296
- [Doctor] See how they move back to midline?

518
00:29:55,296 --> 00:29:57,296
- Yeah. - When they turn.

519
00:29:58,742 --> 00:30:02,242
That's doll's eyes. - Positive doll's eyes.

520
00:30:04,297 --> 00:30:07,040
- Mrs. Paulette, good morning.

521
00:30:07,040 --> 00:30:10,207
Mrs. Paulette, how are you doing dear?

522
00:30:12,638 --> 00:30:14,388
- Spontaneous cleave.

523
00:30:18,122 --> 00:30:18,955
Posturing.

524
00:30:20,122 --> 00:30:22,955
(patient moaning)

525
00:30:27,380 --> 00:30:31,880
- Good morning, can you open your eyes and look at us?

526
00:30:34,106 --> 00:30:35,106
That better?

527
00:30:42,255 --> 00:30:45,168
She may not be long for this world.

528
00:30:45,168 --> 00:30:46,413
Mrs. Paulette, we're gonna take

529
00:30:46,413 --> 00:30:49,580
a listen to your heart and your lungs.

530
00:30:54,181 --> 00:30:55,945
- The sense I got from the family was that

531
00:30:55,945 --> 00:30:59,052
they appreciate the fact that he is not gonna survive.

532
00:30:59,052 --> 00:31:03,420
They want us to continue to support him aggressively but

533
00:31:03,420 --> 00:31:06,745
they want to make sure that he's comfortable.

534
00:31:06,745 --> 00:31:10,569
So I think you have to temper whatever you do with that.

535
00:31:10,569 --> 00:31:12,896
I think that a lot of what we're doing now is more giving

536
00:31:12,896 --> 00:31:16,454
them another day or two to cope with what's happening.

537
00:31:16,454 --> 00:31:19,322
- What they said when they left yesterday was

538
00:31:19,322 --> 00:31:22,603
"Please try to save him but don't let him suffer."

539
00:31:22,603 --> 00:31:26,290
And that's why I said reversibility is

540
00:31:26,290 --> 00:31:30,533
I think the only indication for any pressures.

541
00:31:30,533 --> 00:31:31,855
- It's just the fact that today we

542
00:31:31,855 --> 00:31:33,461
don't feel any of this is reversible

543
00:31:33,461 --> 00:31:36,084
but they're not quite ready to say it.

544
00:31:36,084 --> 00:31:38,344
- They also, just to pass on this information,

545
00:31:38,344 --> 00:31:41,821
do not want to be called if he deteriorates in any way.

546
00:31:41,821 --> 00:31:43,646
They can't handle that anymore.

547
00:31:43,646 --> 00:31:46,896
They only want to be called if he dies.

548
00:31:57,720 --> 00:32:00,163
- Spoke with him and he was alert and with her.

549
00:32:00,163 --> 00:32:02,156
- He's alert and with her now

550
00:32:02,156 --> 00:32:04,256
and I think he still wants to go ahead.

551
00:32:04,256 --> 00:32:09,065
It's just that I, I just have the feeling we're not--

552
00:32:09,065 --> 00:32:11,679
- Doing him a favor. - Well,

553
00:32:11,679 --> 00:32:15,477
I mean we can keep doing this but I think that

554
00:32:15,477 --> 00:32:20,006
we'll probably be able to drag it on for a couple weeks.

555
00:32:20,006 --> 00:32:21,510
But that's all right, I think if that's

556
00:32:21,510 --> 00:32:23,427
what he wants, I don't have any problem with it.

557
00:32:23,427 --> 00:32:26,865
It's just that I want to be sure that that's

558
00:32:26,865 --> 00:32:29,260
what we want and I also want to be sure that

559
00:32:29,260 --> 00:32:31,633
we get the cardiologist here and make sure that

560
00:32:31,633 --> 00:32:33,941
we really are doing everything that we can do.

561
00:32:33,941 --> 00:32:38,185
- [Bill] They know him from recent admissions,

562
00:32:38,185 --> 00:32:39,838
so any one on the crew would be fine.

563
00:32:39,838 --> 00:32:42,239
- 10 of 'em appear to tell us we've done everything.

564
00:32:42,239 --> 00:32:43,859
All right, thanks Bill.

565
00:32:43,859 --> 00:32:44,776
- Med care.

566
00:32:45,716 --> 00:32:47,626
Yes, this is her.

567
00:32:47,626 --> 00:32:49,999
- How you doing? - Oh good.

568
00:32:49,999 --> 00:32:51,450
- Tory? - No, this is Susanne.

569
00:32:51,450 --> 00:32:53,117
Mary's coming along.

570
00:33:02,809 --> 00:33:05,603
- Time for this situation here.

571
00:33:05,603 --> 00:33:08,139
- We're killing him I think.

572
00:33:08,139 --> 00:33:09,923
We're kidding ourselves if we think

573
00:33:09,923 --> 00:33:11,420
that these meds are helping him.

574
00:33:11,420 --> 00:33:13,249
The guy would be just the same if he wasn't on 'em.

575
00:33:13,249 --> 00:33:15,234
- He'd be just the same.

576
00:33:15,234 --> 00:33:17,202
But he's not getting better? - He really would, no.

577
00:33:17,202 --> 00:33:18,926
- No matter what. - I'm not seeing he is.

578
00:33:18,926 --> 00:33:20,860
- Kinda be better to get him out of the hospital.

579
00:33:20,860 --> 00:33:22,399
- Exactly. - Get him out--

580
00:33:22,399 --> 00:33:24,236
- We are not doing one, I bet if we put

581
00:33:24,236 --> 00:33:26,143
a swan in and checked all his numbers,

582
00:33:26,143 --> 00:33:28,919
they'd be exactly the same as when they were--

583
00:33:28,919 --> 00:33:30,745
- A week ago. - Without anything.

584
00:33:30,745 --> 00:33:32,078
- Yeah, I agree.

585
00:33:33,214 --> 00:33:35,118
- It's really funny, I haven't been here

586
00:33:35,118 --> 00:33:37,783
since we put the swan in Friday night and it's

587
00:33:37,783 --> 00:33:42,063
unbelievable because you have such an objective,

588
00:33:42,063 --> 00:33:45,149
you come here and you say what has been done?

589
00:33:45,149 --> 00:33:48,566
And we've come full circle with this guy.

590
00:33:49,406 --> 00:33:52,785
Like I mean when we put the swan in,

591
00:33:52,785 --> 00:33:54,975
it was because he had a fever and it's like

592
00:33:54,975 --> 00:33:58,727
nobody ever mentioned anything about the fever.

593
00:33:58,727 --> 00:34:00,473
What happened to that?

594
00:34:00,473 --> 00:34:02,687
- The fever's gone, not an issue.

595
00:34:02,687 --> 00:34:04,346
- No sepsis.

596
00:34:04,346 --> 00:34:06,220
- The thing is he's one of these guys with

597
00:34:06,220 --> 00:34:08,768
end-stage cardiomyopathy, you can't do anything.

598
00:34:08,768 --> 00:34:12,333
You might as well get him out of the ICU.

599
00:34:12,333 --> 00:34:13,605
Take him off all these drips

600
00:34:13,605 --> 00:34:15,096
before something's gonna happen.

601
00:34:15,096 --> 00:34:17,641
- I think we're being really mean.

602
00:34:17,641 --> 00:34:19,922
- Did he keep going into failure at home?

603
00:34:19,922 --> 00:34:21,670
- He had only been home for two weeks.

604
00:34:21,670 --> 00:34:24,492
He had been at the grade two rehab for

605
00:34:24,492 --> 00:34:28,039
most of the summer after all his heart surgery

606
00:34:28,039 --> 00:34:32,264
and so he had a little bit of dietary indiscretion at home.

607
00:34:32,264 --> 00:34:35,304
He had a field day with Kentucky Fried Chicken and pasta.

608
00:34:35,304 --> 00:34:38,246
- Oh gee, poor guy. - I know.

609
00:34:38,246 --> 00:34:39,746
He's very brittle.

610
00:34:42,650 --> 00:34:44,811
I bet he wishes he'd never done that.

611
00:34:44,811 --> 00:34:46,893
- Had the chicken. - Yeah.

612
00:34:53,170 --> 00:34:54,907
- [Scott] Can we listen to your heart and your lungs?

613
00:34:54,907 --> 00:34:56,157
- Go on. - Good.

614
00:34:58,159 --> 00:35:00,217
- [Scott] Just under this, we're gonna listen

615
00:35:00,217 --> 00:35:03,278
to your heart first and then we'll sit you up.

616
00:35:03,278 --> 00:35:05,716
- [Mr. Gavin] Scratch my back a little bit.

617
00:35:05,716 --> 00:35:06,891
- [Scott] You want us to scratch

618
00:35:06,891 --> 00:35:08,172
your back, where do you itch?

619
00:35:08,172 --> 00:35:11,529
- [Mr. Gavin] Just up top there and in between.

620
00:35:11,529 --> 00:35:14,213
In between, over a little more, that's it, yeah.

621
00:35:14,213 --> 00:35:16,380
- Good. - That's wonderful.

622
00:35:17,407 --> 00:35:18,936
Get the doctor to scratch my

623
00:35:18,936 --> 00:35:22,331
back the first thing in the morning.

624
00:35:22,331 --> 00:35:23,748
- What can I say?

625
00:35:26,028 --> 00:35:29,528
Let's just take a listen here. - All right.

626
00:35:39,129 --> 00:35:42,629
- [Doctor] What's the long term goal here?

627
00:35:43,961 --> 00:35:47,622
- Well I mean the long term goal is he might get better,

628
00:35:47,622 --> 00:35:49,861
he might get worse, he might stay the same.

629
00:35:49,861 --> 00:35:52,695
He sounds like he's slowly getting worse.

630
00:35:52,695 --> 00:35:54,981
- That seems to be. - Yeah.

631
00:35:54,981 --> 00:35:56,872
- [Doctor] It's my opinion too, I just wondered

632
00:35:56,872 --> 00:35:59,783
how long he's gonna stay on all these drips and everything.

633
00:35:59,783 --> 00:36:02,143
Because it seems like he has end-stage heart disease.

634
00:36:02,143 --> 00:36:02,976
- Yeah.

635
00:36:04,005 --> 00:36:05,467
What I'd do is I'd stop most of it

636
00:36:05,467 --> 00:36:08,077
and give him morphine at this point.

637
00:36:08,077 --> 00:36:11,502
- [Nurse] I don't think he would be any different.

638
00:36:11,502 --> 00:36:14,580
- I hate to say it but I don't think he would either.

639
00:36:14,580 --> 00:36:18,791
I don't think we can do anything for him.

640
00:36:18,791 --> 00:36:20,849
But I think he's dying, I think he's dying

641
00:36:20,849 --> 00:36:24,195
and I mean I don't know how long it's gonna take but,

642
00:36:24,195 --> 00:36:26,730
it could take two days or it could take two weeks but

643
00:36:26,730 --> 00:36:29,322
we have nothing to offer him. - I think at this point

644
00:36:29,322 --> 00:36:31,134
the best thing we can do is be as aggressive

645
00:36:31,134 --> 00:36:32,911
as we can be about getting him outta here

646
00:36:32,911 --> 00:36:34,683
because let's face it, the man was home

647
00:36:34,683 --> 00:36:37,009
for two weeks in the last six months.

648
00:36:37,009 --> 00:36:38,634
- [Scott] We're not gonna get him outta here.

649
00:36:38,634 --> 00:36:40,086
- [Nurse] Let's get him so that

650
00:36:40,086 --> 00:36:42,170
he's not hooked up to all this stuff.

651
00:36:42,170 --> 00:36:44,250
- I think what I probably would've done

652
00:36:44,250 --> 00:36:46,038
in the middle of the night last night with

653
00:36:46,038 --> 00:36:48,035
the chest pain is I just would've pushed

654
00:36:48,035 --> 00:36:49,778
the morphine until the pain went away.

655
00:36:49,778 --> 00:36:51,774
His pressure would have bottomed out and that

656
00:36:51,774 --> 00:36:54,183
would've been it but look, we've done everything

657
00:36:54,183 --> 00:36:55,801
humanly possible that you can do here.

658
00:36:55,801 --> 00:36:57,633
We've given him every kind of--

659
00:36:57,633 --> 00:36:59,038
- [Nurse] Every drug known.

660
00:36:59,038 --> 00:37:00,621
- And we know that,

661
00:37:02,298 --> 00:37:04,633
I mean we take a step backwards every day.

662
00:37:04,633 --> 00:37:09,368
The guy hasn't had diuresis over the past week.

663
00:37:09,368 --> 00:37:13,409
So I mean I think we oughta talk to Bill Taylor

664
00:37:13,409 --> 00:37:17,228
and maybe talk to Mr. Gavin about some of this stuff and

665
00:37:17,228 --> 00:37:20,621
I mean I just, I really don't think things are gonna change.

666
00:37:20,621 --> 00:37:23,677
I think if we give him the morphine,

667
00:37:23,677 --> 00:37:25,918
and it may be that he wants us to keep going.

668
00:37:25,918 --> 00:37:27,450
It may be that he wants to sorta keep up

669
00:37:27,450 --> 00:37:28,990
with this because he certainly did before.

670
00:37:28,990 --> 00:37:30,406
He had this near-death experience in

671
00:37:30,406 --> 00:37:32,934
the sick queue where he was in there for two months

672
00:37:32,934 --> 00:37:36,972
and he finally got home for a week and a half.

673
00:37:36,972 --> 00:37:39,657
He may want to keep going.

674
00:37:39,657 --> 00:37:41,920
- When I talked to him in the past, he does.

675
00:37:41,920 --> 00:37:43,652
So I mean I have a hard time

676
00:37:43,652 --> 00:37:45,147
just stopping everything right now.

677
00:37:45,147 --> 00:37:46,919
What I would do is talk to him and the next time

678
00:37:46,919 --> 00:37:49,821
he has that amount of chest pain, just stop everything.

679
00:37:49,821 --> 00:37:52,770
Assuming that the dobutamine and amerno is making it worse.

680
00:37:52,770 --> 00:37:54,587
- [Scott] Just give him morphine for the pain.

681
00:37:54,587 --> 00:37:56,473
- [Doctor] Once you've talked to him about it first.

682
00:37:56,473 --> 00:37:58,229
- [Scott] Oh no, we gotta talk to him.

683
00:37:58,229 --> 00:37:59,471
- But it's also,

684
00:37:59,471 --> 00:38:01,049
there's a medical decision to be made.

685
00:38:01,049 --> 00:38:03,535
Someone can't live forever on amerno and dopamine,

686
00:38:03,535 --> 00:38:05,733
dobutamine, et cetera so you can sort of,

687
00:38:05,733 --> 00:38:07,961
even if he still wants everything done,

688
00:38:07,961 --> 00:38:11,198
you can't live forever on those drugs.

689
00:38:11,198 --> 00:38:13,388
You can sort of start withdrawing one

690
00:38:13,388 --> 00:38:15,123
and then another and then another

691
00:38:15,123 --> 00:38:16,996
and see what difference if any it makes.

692
00:38:16,996 --> 00:38:18,859
It probably is not gonna make that much difference.

693
00:38:18,859 --> 00:38:22,524
- That's the irony of it all is that

694
00:38:22,524 --> 00:38:24,393
you know, he's at the point where

695
00:38:24,393 --> 00:38:27,317
the extra fluid that we give him from these medicines,

696
00:38:27,317 --> 00:38:29,792
it counteracts the effects of any of the medicines.

697
00:38:29,792 --> 00:38:31,740
So you could make a medical argument that

698
00:38:31,740 --> 00:38:34,990
he's better off on none of 'em and just

699
00:38:36,118 --> 00:38:38,035
get a daily Lasix dose.

700
00:38:39,401 --> 00:38:40,808
Well I think we gotta talk to him

701
00:38:40,808 --> 00:38:43,058
and we gotta talk to Billy.

702
00:38:44,173 --> 00:38:49,173
He is DNR, so I think that there's any urgent issues here.

703
00:38:49,690 --> 00:38:51,210
I think he knows, you know,

704
00:38:51,210 --> 00:38:52,909
I don't know if you got a look at him when we walked

705
00:38:52,909 --> 00:38:55,987
in the room this morning but he looked cadaverous.

706
00:38:55,987 --> 00:38:58,516
- Mr. Gavin, what happened last night?

707
00:38:58,516 --> 00:38:59,349
- Well,

708
00:39:00,757 --> 00:39:03,090
I was watching the ball game

709
00:39:04,066 --> 00:39:04,899
and

710
00:39:05,933 --> 00:39:06,766
my

711
00:39:08,302 --> 00:39:11,219
chest started to give me some pains

712
00:39:12,142 --> 00:39:12,975
and

713
00:39:14,835 --> 00:39:15,835
they came in

714
00:39:17,246 --> 00:39:18,079
and

715
00:39:19,535 --> 00:39:23,535
I don't know, they gave me all kinds of medicine

716
00:39:25,476 --> 00:39:29,143
and finally about two o'clock, they left me.

717
00:39:30,615 --> 00:39:32,115
The pain had left.

718
00:39:33,492 --> 00:39:36,579
Now I don't know whether it was angina pain

719
00:39:36,579 --> 00:39:39,079
or what kind of a pain it was.

720
00:39:40,467 --> 00:39:43,204
- [Bill] Can you tell me a little about what it felt like?

721
00:39:43,204 --> 00:39:44,981
- Well it felt,

722
00:39:44,981 --> 00:39:48,082
it seemed to be centralized more

723
00:39:48,082 --> 00:39:50,165
right here in the center.

724
00:39:56,033 --> 00:39:57,700
It was quite severe.

725
00:40:02,312 --> 00:40:06,479
Matter of fact, there was about four doctors here.

726
00:40:09,766 --> 00:40:12,766
- [Bill] What was that like for you?

727
00:40:13,759 --> 00:40:18,509
- It was like the pain when I first came in the hospital.

728
00:40:20,849 --> 00:40:22,961
- [Bill] You mean when you came in a few months ago?

729
00:40:22,961 --> 00:40:25,128
- No. - You mean this time?

730
00:40:26,022 --> 00:40:26,855
- Last

731
00:40:28,232 --> 00:40:29,649
Tuesday. - Uh-huh.

732
00:40:31,500 --> 00:40:33,000
- It was just like

733
00:40:34,419 --> 00:40:36,086
last Tuesday's pain.

734
00:40:40,188 --> 00:40:41,021
So,

735
00:40:42,933 --> 00:40:45,854
they left about two o'clock

736
00:40:45,854 --> 00:40:46,687
and

737
00:40:47,824 --> 00:40:48,657
I

738
00:40:49,653 --> 00:40:52,775
never moved the rest of the night.

739
00:40:52,775 --> 00:40:56,192
I laid perfectly still, the nurse made me

740
00:40:57,214 --> 00:41:00,464
stay still the rest of the night and...

741
00:41:05,835 --> 00:41:07,826
It went away then.

742
00:41:07,826 --> 00:41:09,482
- [Bill] Are you having any of it now?

743
00:41:09,482 --> 00:41:10,315
- No.

744
00:41:12,484 --> 00:41:14,734
I'm pretty good now. - Good.

745
00:41:16,146 --> 00:41:17,229
- There's no,

746
00:41:18,269 --> 00:41:19,852
no pain whatsoever.

747
00:41:22,304 --> 00:41:26,471
- Mr. Gavin, what's your sense of what's going on?

748
00:41:28,621 --> 00:41:30,454
- I really don't know.

749
00:41:32,636 --> 00:41:35,824
Nobody tells you too much. - Uh-huh.

750
00:41:35,824 --> 00:41:38,102
- You know what I mean? - I sure do

751
00:41:38,102 --> 00:41:40,295
and there's a lot of action around here all the time.

752
00:41:40,295 --> 00:41:41,212
- Yes, yes.

753
00:41:43,401 --> 00:41:46,267
- I suspect you have your own sense of it though.

754
00:41:46,267 --> 00:41:50,376
Would you be comfortable letting me hear a little of that?

755
00:41:50,376 --> 00:41:51,876
- I wouldn't mind.

756
00:41:52,908 --> 00:41:54,487
I would like to hear--

757
00:41:54,487 --> 00:41:56,318
- You'd like to hear from me.

758
00:41:56,318 --> 00:41:58,818
- From you or somebody. - Yeah.

759
00:42:00,604 --> 00:42:02,650
Do you have a sense of it yourself in terms

760
00:42:02,650 --> 00:42:06,198
of what your understanding is of what's happening?

761
00:42:06,198 --> 00:42:07,031
- Well,

762
00:42:09,956 --> 00:42:12,373
from what the doctors tell me

763
00:42:14,148 --> 00:42:15,231
now and then,

764
00:42:16,519 --> 00:42:18,352
I'm on the borderline.

765
00:42:20,463 --> 00:42:23,546
I could pass away or I could survive.

766
00:42:27,070 --> 00:42:30,987
They never told me directly one way or another.

767
00:42:32,139 --> 00:42:35,583
- Well part of that I think is 'cause we don't know.

768
00:42:35,583 --> 00:42:38,489
- Well it could be, that's right.

769
00:42:38,489 --> 00:42:40,383
- We have all these sophisticated

770
00:42:40,383 --> 00:42:42,956
machines and equipment and everything

771
00:42:42,956 --> 00:42:45,433
and we can make our educated guesses but

772
00:42:45,433 --> 00:42:48,100
ultimately we don't know. - Yeah.

773
00:42:49,071 --> 00:42:51,852
- One thing we do know over the last few months

774
00:42:51,852 --> 00:42:53,969
with what you've been through with the heart

775
00:42:53,969 --> 00:42:56,468
attacks that you've had and the damage

776
00:42:56,468 --> 00:42:59,085
that your heart has suffered with the surgery

777
00:42:59,085 --> 00:43:02,731
that you had and the complications after that,

778
00:43:02,731 --> 00:43:05,627
that the result of all that is to put you on this,

779
00:43:05,627 --> 00:43:08,087
what you described as the borderline

780
00:43:08,087 --> 00:43:10,830
and with episodes like the one that brought you into

781
00:43:10,830 --> 00:43:15,208
the hospital and ones like the one that happened last night,

782
00:43:15,208 --> 00:43:20,208
it makes us concerned about the possibilities for recovery

783
00:43:20,469 --> 00:43:25,249
and we're not sure, as you said, how it's gonna go.

784
00:43:25,249 --> 00:43:26,573
- Yeah.

785
00:43:26,573 --> 00:43:28,317
- You've given us some directions

786
00:43:28,317 --> 00:43:30,653
about how you want things handled.

787
00:43:30,653 --> 00:43:33,929
Initially when we spoke in the emergency room,

788
00:43:33,929 --> 00:43:36,940
you told me as you had before that you wanted

789
00:43:36,940 --> 00:43:39,599
everything done that possibly could be

790
00:43:39,599 --> 00:43:42,162
and then when we spoke a few days later,

791
00:43:42,162 --> 00:43:44,490
you reconsidered that and spoke with

792
00:43:44,490 --> 00:43:47,407
your wife and your family and so on

793
00:43:48,569 --> 00:43:50,533
and you gave me a different set of directions,

794
00:43:50,533 --> 00:43:53,426
that you didn't want us to do certain things.

795
00:43:53,426 --> 00:43:55,635
You didn't want the tube put back in your throat.

796
00:43:55,635 --> 00:43:58,123
You didn't want to be put back on those

797
00:43:58,123 --> 00:44:00,818
life-supporting machines that you had been on in the past.

798
00:44:00,818 --> 00:44:02,901
- That's right, yes, yes.

799
00:44:03,995 --> 00:44:08,995
I've already signed an agreement with a lawyer on that.

800
00:44:09,091 --> 00:44:11,741
- [Bill] I heard, the so-called living will.

801
00:44:11,741 --> 00:44:13,276
- Yes. - Yeah.

802
00:44:13,276 --> 00:44:16,932
Well you told me about that and your wife did too.

803
00:44:16,932 --> 00:44:20,299
- I think my wife is on the same things as me.

804
00:44:20,299 --> 00:44:23,578
We both went to this lawyer and

805
00:44:23,578 --> 00:44:27,550
that was one of the questions he asked us

806
00:44:27,550 --> 00:44:28,383
about

807
00:44:30,321 --> 00:44:32,141
what do you call it, living?

808
00:44:32,141 --> 00:44:33,782
- [Bill] I've heard it called a living will.

809
00:44:33,782 --> 00:44:35,184
- Living will, yeah.

810
00:44:35,184 --> 00:44:37,090
- That's important but people

811
00:44:37,090 --> 00:44:38,832
are entitled to change their mind.

812
00:44:38,832 --> 00:44:40,900
So the most important thing to hear

813
00:44:40,900 --> 00:44:42,683
is the instructions that you give now.

814
00:44:42,683 --> 00:44:43,988
- [Mr. Gavin] Yes.

815
00:44:43,988 --> 00:44:48,437
He told me at that time that I could change my mind.

816
00:44:48,437 --> 00:44:49,270
- Right.

817
00:44:50,224 --> 00:44:52,180
- So it is possible. - Yeah.

818
00:44:52,180 --> 00:44:54,043
Well you know there are very few people

819
00:44:54,043 --> 00:44:56,804
who could make as informed a judgment as

820
00:44:56,804 --> 00:44:59,899
you can with everything that you've been through.

821
00:44:59,899 --> 00:45:03,208
You know firsthand all the things that happened.

822
00:45:03,208 --> 00:45:05,103
- [Mr. Gavin] That's right.

823
00:45:05,103 --> 00:45:06,583
- So there isn't much question that

824
00:45:06,583 --> 00:45:08,658
when you make a judgment about what to do,

825
00:45:08,658 --> 00:45:12,991
that it's an informed one because you've been there.

826
00:45:16,983 --> 00:45:19,292
It seems, Mr. Gavin, that we're reaching another

827
00:45:19,292 --> 00:45:22,169
point of decision now, particularly with what

828
00:45:22,169 --> 00:45:24,490
you went through last night and with what you're

829
00:45:24,490 --> 00:45:27,476
going through with all these different medications

830
00:45:27,476 --> 00:45:29,896
because it looks like the medications

831
00:45:29,896 --> 00:45:32,694
don't seem to be contributing a great deal

832
00:45:32,694 --> 00:45:35,720
to be helping your heart to function more efficiently.

833
00:45:35,720 --> 00:45:37,033
- [Mr. Gavin] Yeah.

834
00:45:37,033 --> 00:45:39,216
- It's also clear that you can't stay on

835
00:45:39,216 --> 00:45:41,611
medications like this and in this Intensive

836
00:45:41,611 --> 00:45:45,923
Care Unit for an indefinite period of time.

837
00:45:45,923 --> 00:45:48,535
The clear hope and the plan would be that

838
00:45:48,535 --> 00:45:51,441
if we could withdraw some of these, we could see

839
00:45:51,441 --> 00:45:53,771
if you're capable of moving from the Intensive

840
00:45:53,771 --> 00:45:56,039
Care Unit and doing okay in a regular part

841
00:45:56,039 --> 00:45:59,554
of the hospital with a hope toward moving

842
00:45:59,554 --> 00:46:01,837
toward a discharge--

843
00:46:01,837 --> 00:46:05,716
- [Mr. Gavin] Experiment a little bit with the medicine.

844
00:46:05,716 --> 00:46:07,958
- We shy away from the word experiment because

845
00:46:07,958 --> 00:46:11,444
it sounds like we're treating you like a guinea pig.

846
00:46:11,444 --> 00:46:14,027
But I think that we need to see

847
00:46:15,162 --> 00:46:17,901
how you could do without having some of these

848
00:46:17,901 --> 00:46:21,793
powerful medications running into you all the time

849
00:46:21,793 --> 00:46:23,618
and one of the things to consider is

850
00:46:23,618 --> 00:46:25,882
whether the goal is to give you all

851
00:46:25,882 --> 00:46:28,047
the medications and see what that can do

852
00:46:28,047 --> 00:46:30,577
for the heart or to look at the whole picture

853
00:46:30,577 --> 00:46:33,935
and try to think toward what happens.

854
00:46:33,935 --> 00:46:35,974
Can you leave this part of the hospital,

855
00:46:35,974 --> 00:46:37,707
the Intensive Care Unit?

856
00:46:37,707 --> 00:46:39,491
Can we safely move you to another part

857
00:46:39,491 --> 00:46:41,767
of the hospital in the next few days

858
00:46:41,767 --> 00:46:43,829
and can we think about eventually having

859
00:46:43,829 --> 00:46:46,668
you leave the hospital if things go well?

860
00:46:46,668 --> 00:46:49,813
What are the goals for your treatment?

861
00:46:49,813 --> 00:46:51,713
And we have to face the possibility that

862
00:46:51,713 --> 00:46:54,275
you brought up about being on the borderline.

863
00:46:54,275 --> 00:46:56,381
We would hope that things would go well

864
00:46:56,381 --> 00:46:58,041
and that you could be able to leave this

865
00:46:58,041 --> 00:46:59,919
part of the hospital and hopefully that you

866
00:46:59,919 --> 00:47:02,387
could eventually go home, as you were for

867
00:47:02,387 --> 00:47:05,245
a few days before you came back in this time.

868
00:47:05,245 --> 00:47:07,368
But we don't know.

869
00:47:07,368 --> 00:47:09,149
And in the midst of dealing with all that,

870
00:47:09,149 --> 00:47:11,488
we have to have some idea of what

871
00:47:11,488 --> 00:47:14,060
the ultimate goal is for what we're doing

872
00:47:14,060 --> 00:47:16,522
and what I heard from you and your wife

873
00:47:16,522 --> 00:47:19,673
when we spoke the other day was that your goal

874
00:47:19,673 --> 00:47:23,978
was not to necessarily have every available

875
00:47:23,978 --> 00:47:27,579
test, medication and machine but that we needed to

876
00:47:27,579 --> 00:47:30,109
maybe get a little more reasonable about that.

877
00:47:30,109 --> 00:47:33,629
Devote our attention to something maybe more realistic.

878
00:47:33,629 --> 00:47:36,387
One thing that is realistic is your comfort.

879
00:47:36,387 --> 00:47:39,417
We can always keep you comfortable

880
00:47:39,417 --> 00:47:42,188
and we're never gonna forget about that.

881
00:47:42,188 --> 00:47:44,932
Last night in the midst of your pain,

882
00:47:44,932 --> 00:47:47,527
they were walking a tightrope with balancing

883
00:47:47,527 --> 00:47:50,843
the different medications and trying to get rid of the pain.

884
00:47:50,843 --> 00:47:53,721
We do have medications to get rid of pain though

885
00:47:53,721 --> 00:47:55,501
and one of the ways that we could decide

886
00:47:55,501 --> 00:47:57,973
to go depending on how it sounds to you

887
00:47:57,973 --> 00:48:01,460
is to make your comfort our number one priority

888
00:48:01,460 --> 00:48:03,522
and to do things for your comfort,

889
00:48:03,522 --> 00:48:06,133
even if it may mean withholding some of

890
00:48:06,133 --> 00:48:08,449
the medications that we're currently giving you

891
00:48:08,449 --> 00:48:11,787
with all these intravenous drips and so on

892
00:48:11,787 --> 00:48:15,250
that can only be given here in the Intensive Care Unit.

893
00:48:15,250 --> 00:48:18,022
How you feel about that is really key.

894
00:48:18,022 --> 00:48:21,093
- It's kind of expensive too, isn't it?

895
00:48:21,093 --> 00:48:23,534
- Yeah but fortunately we're in a situation where

896
00:48:23,534 --> 00:48:25,930
that's not really something that we have to deal with.

897
00:48:25,930 --> 00:48:27,253
- Yeah.

898
00:48:27,253 --> 00:48:29,665
Is that right, you don't have to deal with that?

899
00:48:29,665 --> 00:48:30,999
- No.

900
00:48:30,999 --> 00:48:34,523
That doesn't enter into the decision-making at all.

901
00:48:34,523 --> 00:48:35,356
- Yeah.

902
00:48:37,723 --> 00:48:40,212
- Is that something that's of concern to you?

903
00:48:40,212 --> 00:48:43,576
- Well naturally it would be, sure.

904
00:48:43,576 --> 00:48:44,905
- Your situation with your--

905
00:48:44,905 --> 00:48:48,306
- This thing ain't gonna go on forever you know what I mean?

906
00:48:48,306 --> 00:48:50,166
- What do you mean by that, Mr. Gavin?

907
00:48:50,166 --> 00:48:54,083
- I don't mean forever, I mean you know for any

908
00:48:55,270 --> 00:48:59,194
real length of time and I'm fortunate enough

909
00:48:59,194 --> 00:49:03,651
as it is now to have the Blue Cross and Blue Shield

910
00:49:03,651 --> 00:49:08,532
taking care of these bills, otherwise I'd be cleaned out.

911
00:49:08,532 --> 00:49:10,312
- Yeah, anybody would be cleaned out

912
00:49:10,312 --> 00:49:13,145
with the bill that gets generated.

913
00:49:14,847 --> 00:49:16,747
But I think fortunately that's something

914
00:49:16,747 --> 00:49:18,612
that we don't have to take into account

915
00:49:18,612 --> 00:49:21,529
right here in making this decision.

916
00:49:23,002 --> 00:49:25,002
- Well that's good then.

917
00:49:26,240 --> 00:49:27,650
- Could you share with me what

918
00:49:27,650 --> 00:49:28,946
thoughts you're having about all this?

919
00:49:28,946 --> 00:49:29,779
- Hmm?

920
00:49:29,779 --> 00:49:31,469
- I said could you share with me what thoughts

921
00:49:31,469 --> 00:49:33,382
you're having about all this as we talk?

922
00:49:33,382 --> 00:49:36,549
- There's different cases in the paper

923
00:49:38,123 --> 00:49:38,956
locally

924
00:49:40,564 --> 00:49:41,397
and

925
00:49:43,206 --> 00:49:46,373
the people are nothing but vegetables,

926
00:49:47,798 --> 00:49:49,849
if you follow what I mean, you know?

927
00:49:49,849 --> 00:49:51,580
They're just

928
00:49:51,580 --> 00:49:52,413
kept

929
00:49:53,438 --> 00:49:55,605
alive through machines and

930
00:49:57,265 --> 00:49:58,098
so forth.

931
00:49:59,821 --> 00:50:02,930
I wouldn't want to be like that.

932
00:50:02,930 --> 00:50:05,903
In other words, I wouldn't want to

933
00:50:05,903 --> 00:50:09,320
not recognize you or my wife or my family

934
00:50:12,287 --> 00:50:13,120
and

935
00:50:14,813 --> 00:50:16,470
that's about,

936
00:50:16,470 --> 00:50:19,270
that's what I consider a vegetable.

937
00:50:19,270 --> 00:50:21,216
- Well the decision that you and your wife

938
00:50:21,216 --> 00:50:23,712
gave me a few days ago, that you didn't want

939
00:50:23,712 --> 00:50:26,406
the machines and tubes and so on is a way

940
00:50:26,406 --> 00:50:28,836
that we can promise you that we can

941
00:50:28,836 --> 00:50:31,866
do everything we can to avoid that.

942
00:50:31,866 --> 00:50:34,778
But that situation usually happens when we use

943
00:50:34,778 --> 00:50:38,309
all those machines for artificial life support.

944
00:50:38,309 --> 00:50:40,976
- Some people, what was it that,

945
00:50:43,064 --> 00:50:45,231
that woman that was on the

946
00:50:49,439 --> 00:50:51,772
diabetes there, her husband.

947
00:50:53,711 --> 00:50:56,278
The case just a couple of years ago.

948
00:50:56,278 --> 00:50:58,564
- [Bill] I know who you mean.

949
00:50:58,564 --> 00:51:00,504
- I forgot what their name-- - Von Bulow.

950
00:51:00,504 --> 00:51:01,669
- What? - Von Bulow.

951
00:51:01,669 --> 00:51:03,451
- Bulow, yeah.

952
00:51:03,451 --> 00:51:06,272
You wouldn't want to be like that, you know?

953
00:51:06,272 --> 00:51:07,391
- [Bill] Yeah.

954
00:51:07,391 --> 00:51:10,224
- And that's what I'm considering.

955
00:51:13,285 --> 00:51:16,938
Because you always pick the worst case first.

956
00:51:16,938 --> 00:51:18,800
- [Bill] Yeah, I understand.

957
00:51:18,800 --> 00:51:22,420
And fortunately those worst cases are pretty unusual.

958
00:51:22,420 --> 00:51:23,284
- Yeah.

959
00:51:23,284 --> 00:51:24,766
- But it's not that unusual in

960
00:51:24,766 --> 00:51:26,620
a hospital like this to have some cases

961
00:51:26,620 --> 00:51:28,562
that may not be that extreme but that are

962
00:51:28,562 --> 00:51:30,998
also very difficult and situations that

963
00:51:30,998 --> 00:51:33,230
I think some people wish they hadn't

964
00:51:33,230 --> 00:51:35,261
gotten into by the time they were in it.

965
00:51:35,261 --> 00:51:37,649
Not only the people but their families and so on.

966
00:51:37,649 --> 00:51:38,514
- Yeah.

967
00:51:38,514 --> 00:51:41,298
- So that I think although it may be difficult,

968
00:51:41,298 --> 00:51:43,761
having this kind of conversation ahead of time

969
00:51:43,761 --> 00:51:46,080
when you're capable of having it will help

970
00:51:46,080 --> 00:51:49,264
do everything you can to prevent that kind of situation.

971
00:51:49,264 --> 00:51:52,988
- Well in a case like that, Doctor,

972
00:51:52,988 --> 00:51:56,321
it would depend upon the case, you know?

973
00:51:59,482 --> 00:52:00,982
Maybe we were too,

974
00:52:02,252 --> 00:52:03,085
too...

975
00:52:08,125 --> 00:52:11,958
Too quick in making a decision on that,

976
00:52:11,958 --> 00:52:15,079
on something like that, you know?

977
00:52:15,079 --> 00:52:17,780
Because we made it down in Florida.

978
00:52:17,780 --> 00:52:20,732
We drew the will up down in Florida.

979
00:52:20,732 --> 00:52:23,220
- Well one of the things that I mentioned to you

980
00:52:23,220 --> 00:52:25,326
a couple days ago when you gave me your decision

981
00:52:25,326 --> 00:52:28,010
then is that these things can always be changed.

982
00:52:28,010 --> 00:52:29,327
- Oh, I know that.

983
00:52:29,327 --> 00:52:30,691
- So you think about it as you

984
00:52:30,691 --> 00:52:32,798
talk to your wife and your kids.

985
00:52:32,798 --> 00:52:34,415
What you said a couple days ago

986
00:52:34,415 --> 00:52:36,841
doesn't have to be what you say today

987
00:52:36,841 --> 00:52:38,736
and whatever instructions you give to me

988
00:52:38,736 --> 00:52:41,860
and the rest of us here are the ones we'll follow.

989
00:52:41,860 --> 00:52:42,693
- Yeah.

990
00:52:46,696 --> 00:52:50,415
In other words, do I have to give you a decision today?

991
00:52:50,415 --> 00:52:52,646
- Not necessarily but I think that we need

992
00:52:52,646 --> 00:52:55,138
to continue this conversation because the current

993
00:52:55,138 --> 00:52:58,307
situation with all these powerful medications

994
00:52:58,307 --> 00:53:01,169
that can only be given here in the Intensive Care Unit

995
00:53:01,169 --> 00:53:04,121
is not something that can go on and on and on.

996
00:53:04,121 --> 00:53:06,836
I think one of the decisions that we're facing

997
00:53:06,836 --> 00:53:10,904
is do we see how you would do on fewer of these medications?

998
00:53:10,904 --> 00:53:11,737
- Sure.

999
00:53:11,737 --> 00:53:13,897
- And to do that might mean really making

1000
00:53:13,897 --> 00:53:17,621
a new goal for your treatment and the goal might be

1001
00:53:17,621 --> 00:53:19,401
that we're gonna try to have you on as few

1002
00:53:19,401 --> 00:53:22,061
medications as possible so that we can think

1003
00:53:22,061 --> 00:53:25,049
toward getting you out of the Intensive Care Unit

1004
00:53:25,049 --> 00:53:29,226
and we're gonna maximize your comfort above all else

1005
00:53:29,226 --> 00:53:32,006
and if we do that, we have to understand that we're

1006
00:53:32,006 --> 00:53:34,743
taking a risk because it's possible that some of

1007
00:53:34,743 --> 00:53:37,383
these medications may be doing something to improve

1008
00:53:37,383 --> 00:53:40,113
the functioning of your heart and that without them,

1009
00:53:40,113 --> 00:53:41,851
it may be more dangerous.

1010
00:53:41,851 --> 00:53:44,290
You talked about being in that borderline situation

1011
00:53:44,290 --> 00:53:47,194
where we weren't sure whether you were gonna survive or not.

1012
00:53:47,194 --> 00:53:49,091
It's possible that withdrawing some of

1013
00:53:49,091 --> 00:53:53,552
the medications could jeopardize your survival.

1014
00:53:53,552 --> 00:53:55,449
It's not something,

1015
00:53:55,449 --> 00:53:58,699
it's not a step to think about lightly.

1016
00:54:06,579 --> 00:54:09,185
- I really don't know what to

1017
00:54:09,185 --> 00:54:11,736
tell you right here, not here and now.

1018
00:54:11,736 --> 00:54:14,998
- In the past when we've talked about things like this,

1019
00:54:14,998 --> 00:54:17,176
you've wanted to talk it over with

1020
00:54:17,176 --> 00:54:19,072
your wife and have us talk together.

1021
00:54:19,072 --> 00:54:22,972
- Oh yeah because it's a big decision to make.

1022
00:54:22,972 --> 00:54:25,462
- She's gonna be in a little bit later.

1023
00:54:25,462 --> 00:54:27,082
Would you prefer to have me come back

1024
00:54:27,082 --> 00:54:28,759
and we can talk when she's here?

1025
00:54:28,759 --> 00:54:29,636
- Beautiful.

1026
00:54:29,636 --> 00:54:31,249
- All righty, let's do that.

1027
00:54:31,249 --> 00:54:33,947
- Because maybe what she can't think of, I can.

1028
00:54:33,947 --> 00:54:34,780
- Yeah.

1029
00:54:34,780 --> 00:54:37,215
- Or I can't think of, she can.

1030
00:54:37,215 --> 00:54:39,286
Which is mostly that.

1031
00:54:39,286 --> 00:54:42,569
- I think it works both ways, Mr. Gavin.

1032
00:54:42,569 --> 00:54:44,799
All right, well I asked her to give me a call when she

1033
00:54:44,799 --> 00:54:47,908
comes in, so I'll come back and we'll all talk together.

1034
00:54:47,908 --> 00:54:49,388
- Okay. - All righty.

1035
00:54:49,388 --> 00:54:51,126
It's good to see you. - Fair enough.

1036
00:54:51,126 --> 00:54:53,248
- [Bill] I'll be back later to see you.

1037
00:54:53,248 --> 00:54:55,523
- [Mr. Gavin] Okay.

1038
00:54:55,523 --> 00:54:57,261
- The issue is how intensively should

1039
00:54:57,261 --> 00:54:59,967
he be involved in the decision-making

1040
00:54:59,967 --> 00:55:02,468
and if something's a medical issue like he's not

1041
00:55:02,468 --> 00:55:06,550
responding well to anatropic meds that he's on,

1042
00:55:06,550 --> 00:55:10,109
isn't it a medical judgment that they're not working well?

1043
00:55:10,109 --> 00:55:12,364
- And should it be presented to him that way?

1044
00:55:12,364 --> 00:55:13,853
This is what's happened, you've been

1045
00:55:13,853 --> 00:55:15,553
on these meds for such-and-such number

1046
00:55:15,553 --> 00:55:18,345
of days and they're not working and I think

1047
00:55:18,345 --> 00:55:21,359
we need to talk about, I mean I don't

1048
00:55:21,359 --> 00:55:23,333
need to tell you how to present it to him.

1049
00:55:23,333 --> 00:55:25,750
But there's a fine line about

1050
00:55:27,945 --> 00:55:31,794
where his responsibility ends. - Yeah, absolutely.

1051
00:55:31,794 --> 00:55:34,535
- And our responsibility becomes more.

1052
00:55:34,535 --> 00:55:38,647
- And even in this case, it's gonna be more us.

1053
00:55:38,647 --> 00:55:40,127
- It certainly is. - Yeah.

1054
00:55:40,127 --> 00:55:43,352
- The angina is gonna worsen his heart function

1055
00:55:43,352 --> 00:55:45,925
and cause him pain, worsen his heart function

1056
00:55:45,925 --> 00:55:48,439
and make him have more pulmonary edema.

1057
00:55:48,439 --> 00:55:50,175
- I think just by virtue of the fact of

1058
00:55:50,175 --> 00:55:52,085
the amount of IV fluid that he's getting

1059
00:55:52,085 --> 00:55:55,253
with all these different drugs is making him worse.

1060
00:55:55,253 --> 00:55:58,633
I mean if he weren't getting all of this IV fluid,

1061
00:55:58,633 --> 00:56:00,528
I think that we would be able to stay on top

1062
00:56:00,528 --> 00:56:02,860
of his diuresis a little bit better than we are.

1063
00:56:02,860 --> 00:56:04,478
- I don't think there's any question.

1064
00:56:04,478 --> 00:56:06,436
He doesn't have to participate in the medical

1065
00:56:06,436 --> 00:56:08,817
judgment about how we're gonna minimize

1066
00:56:08,817 --> 00:56:11,675
his angina and maximize his cardiac output.

1067
00:56:11,675 --> 00:56:13,587
But it is a fundamental reorganization

1068
00:56:13,587 --> 00:56:16,846
or reorientation of what we're doing if we say that

1069
00:56:16,846 --> 00:56:19,135
comfort above all else is the criteria by which

1070
00:56:19,135 --> 00:56:22,324
we judge everything and I think it would be

1071
00:56:22,324 --> 00:56:25,779
fair to have him and his wife involved in that.

1072
00:56:25,779 --> 00:56:27,473
But he would've been treated differently

1073
00:56:27,473 --> 00:56:30,289
last night if that had been the goal.

1074
00:56:30,289 --> 00:56:33,013
He could conceivably be treated differently today

1075
00:56:33,013 --> 00:56:36,680
if that's the change that were made I think.

1076
00:56:38,206 --> 00:56:41,934
- [Doctor] So where is he at this point?

1077
00:56:41,934 --> 00:56:44,453
- He wants to mull over what we just talked about

1078
00:56:44,453 --> 00:56:46,727
which is this sorta stuff and he wants to wait 'til his

1079
00:56:46,727 --> 00:56:49,462
wife comes in and we'll talk some more a little later.

1080
00:56:49,462 --> 00:56:51,501
I actually spoke to her a few minutes ago

1081
00:56:51,501 --> 00:56:54,870
and she said she's coming in soon.

1082
00:56:54,870 --> 00:56:56,620
We'll pursue it then.

1083
00:56:57,483 --> 00:57:00,300
- So as it stand now, we'll just continue everything?

1084
00:57:00,300 --> 00:57:01,165
Okay.

1085
00:57:01,165 --> 00:57:03,107
- Well, not necessarily.

1086
00:57:03,107 --> 00:57:04,916
- [Doctor] Start taking off some off the inotropes?

1087
00:57:04,916 --> 00:57:06,418
- Yeah, I think that you know--

1088
00:57:06,418 --> 00:57:07,822
- You think that's reasonable to do?

1089
00:57:07,822 --> 00:57:09,684
- If it's clear to everybody that they're not

1090
00:57:09,684 --> 00:57:11,481
doing any good, that they're potential harmful,

1091
00:57:11,481 --> 00:57:13,300
then we oughta move, I don't think,

1092
00:57:13,300 --> 00:57:15,539
as you said, he doesn't need to make that medical call.

1093
00:57:15,539 --> 00:57:17,898
But in the meantime we'll treat him,

1094
00:57:17,898 --> 00:57:20,392
focused on his cardiac output and his ischemia.

1095
00:57:20,392 --> 00:57:22,208
- [Female Doctor] Until maybe he comes to terms

1096
00:57:22,208 --> 00:57:24,082
with the fact that comfort is the way to go,

1097
00:57:24,082 --> 00:57:26,240
I guess we could put him to back where he was.

1098
00:57:26,240 --> 00:57:27,893
- [Doctor] Yeah, I think so.

1099
00:57:27,893 --> 00:57:30,430
- I wouldn't go above this. - No, absolutely.

1100
00:57:30,430 --> 00:57:32,336
And he's said that, he doesn't want to be intubated,

1101
00:57:32,336 --> 00:57:33,902
he doesn't want to be back on a respirator.

1102
00:57:33,902 --> 00:57:36,309
He doesn't want to be reconsidered for surgery.

1103
00:57:36,309 --> 00:57:40,124
So all that helps in terms of the degree of

1104
00:57:40,124 --> 00:57:44,706
invasiveness that we're gonna subject him to.

1105
00:57:44,706 --> 00:57:46,813
- Okay. - All righty.

1106
00:57:46,813 --> 00:57:48,146
To be continued.

1107
00:57:59,610 --> 00:58:01,652
- Dr. Morgan, answer page on line five.

1108
00:58:01,652 --> 00:58:03,652
Dr. Morgan on line five.

1109
00:58:09,592 --> 00:58:12,009
(chattering)

1110
00:58:15,104 --> 00:58:17,437
- [Nurse] X-ray, room seven.

1111
00:58:25,949 --> 00:58:27,764
- [Nurse] Gonna give you a little more John, okay?

1112
00:58:27,764 --> 00:58:28,764
- All right.

1113
00:58:30,040 --> 00:58:32,270
- Give you some, we'll wait a few minutes

1114
00:58:32,270 --> 00:58:35,447
and then I'll give you some more

1115
00:58:35,447 --> 00:58:38,183
until you're feeling a little better, okay?

1116
00:58:38,183 --> 00:58:39,266
A lot better.

1117
00:59:19,413 --> 00:59:22,064
- Mr. Gavin, it's gonna be a few minutes for that medication

1118
00:59:22,064 --> 00:59:25,628
to take effect and for you to feel some of the pain relief.

1119
00:59:25,628 --> 00:59:27,163
I'm gonna step out and talk to your wife

1120
00:59:27,163 --> 00:59:28,858
for a couple of minutes and then come back in.

1121
00:59:28,858 --> 00:59:29,691
- All right.

1122
00:59:29,691 --> 00:59:31,381
- Hopefully you'll be feeling better soon.

1123
00:59:31,381 --> 00:59:32,214
- Okay.

1124
00:59:38,242 --> 00:59:42,663
- None of this is good news with all that's going on.

1125
00:59:42,663 --> 00:59:45,366
Last night was more bad news with

1126
00:59:45,366 --> 00:59:48,449
the long episode of pain he had then.

1127
00:59:50,131 --> 00:59:52,727
It looks like all the medication that he's

1128
00:59:52,727 --> 00:59:57,227
getting is really doing very little to improve things.

1129
00:59:58,439 --> 01:00:00,093
- He's got that shot of morphine,

1130
01:00:00,093 --> 01:00:01,539
you don't wanna fall asleep.

1131
01:00:01,539 --> 01:00:04,086
- Yeah. - He seems to be fighting.

1132
01:00:04,086 --> 01:00:05,753
- Well also I think,

1133
01:00:06,789 --> 01:00:09,518
what's your sense of things?

1134
01:00:09,518 --> 01:00:11,101
- Oh, I don't know.

1135
01:00:12,284 --> 01:00:16,223
I've been just hoping that something would break and

1136
01:00:16,223 --> 01:00:20,791
everything would be fine, it don't seem to be today.

1137
01:00:20,791 --> 01:00:22,067
- [Bill] No, it doesn't seem to be.

1138
01:00:22,067 --> 01:00:25,090
- Yesterday I thought I had a little hope.

1139
01:00:25,090 --> 01:00:29,473
But today again, it don't seem to be any better.

1140
01:00:29,473 --> 01:00:32,163
- I share some of that, it is discouraging.

1141
01:00:32,163 --> 01:00:33,665
There's always reason to hope.

1142
01:00:33,665 --> 01:00:36,647
We never can predict the future for sure but

1143
01:00:36,647 --> 01:00:41,397
it's looking worse and worse as more of this is going on.

1144
01:00:42,255 --> 01:00:44,456
I'm coming to the opinion and I think the doctors

1145
01:00:44,456 --> 01:00:47,461
here are sharing it with me that a lot of the medications

1146
01:00:47,461 --> 01:00:50,515
we're giving him are really not accomplishing much

1147
01:00:50,515 --> 01:00:54,559
in terms of improving the functioning of his heart

1148
01:00:54,559 --> 01:00:57,458
and I think that if he is gonna be able to manage,

1149
01:00:57,458 --> 01:01:00,024
he's gonna have to manage without those medications since

1150
01:01:00,024 --> 01:01:03,474
those can only be given here in the Intensive Care Unit.

1151
01:01:03,474 --> 01:01:06,118
My sense and the sense of the other doctors here

1152
01:01:06,118 --> 01:01:08,777
I think is that the thing that makes sense is

1153
01:01:08,777 --> 01:01:11,725
for us to withdraw some of those medications

1154
01:01:11,725 --> 01:01:14,728
and do everything we can for him,

1155
01:01:14,728 --> 01:01:17,561
especially devoted to his comfort.

1156
01:01:18,495 --> 01:01:22,352
- [Mrs. Gavin] You don't think that he will come around?

1157
01:01:22,352 --> 01:01:24,554
- I don't know, I think that--

1158
01:01:24,554 --> 01:01:26,982
- [Mrs. Gavin] You're just hoping, we're all hoping.

1159
01:01:26,982 --> 01:01:28,922
- We're hoping and we'll see.

1160
01:01:28,922 --> 01:01:30,170
I mean he's got a lot of strength,

1161
01:01:30,170 --> 01:01:31,530
he's fooled us in the past.

1162
01:01:31,530 --> 01:01:33,757
He's come through things that we never thought he would.

1163
01:01:33,757 --> 01:01:34,590
- Yes.

1164
01:01:34,590 --> 01:01:36,526
- But I think more and more of these episodes

1165
01:01:36,526 --> 01:01:40,124
make it less and less likely that that's gonna happen.

1166
01:01:40,124 --> 01:01:41,451
But I think it's important to

1167
01:01:41,451 --> 01:01:44,227
realize we don't know for sure.

1168
01:01:44,227 --> 01:01:47,948
- You think now he's going downhill?

1169
01:01:47,948 --> 01:01:50,281
- That's what it looks like.

1170
01:01:51,212 --> 01:01:54,129
- It's sad because he has his mind.

1171
01:01:59,394 --> 01:02:02,506
I don't know what'll save him.

1172
01:02:02,506 --> 01:02:03,339
Just hope.

1173
01:02:04,294 --> 01:02:06,202
- We'll do that together.

1174
01:02:06,202 --> 01:02:07,202
- All right.

1175
01:02:11,297 --> 01:02:15,137
- When he's feeling a little more comfortable,

1176
01:02:15,137 --> 01:02:18,486
we'll talk with him about this.

1177
01:02:18,486 --> 01:02:22,569
Are you going this way? - No, I'll just stay here.

1178
01:02:23,908 --> 01:02:26,908
I feel terrible. - I understand that.

1179
01:02:27,805 --> 01:02:29,472
- Because this last,

1180
01:02:30,340 --> 01:02:33,537
well he's been, it was good the cardiologist was

1181
01:02:33,537 --> 01:02:37,395
right here on the floor when he had that other attack.

1182
01:02:37,395 --> 01:02:41,355
It was kind of, you know, they came right in.

1183
01:02:41,355 --> 01:02:44,550
I know they're doing everything they can but

1184
01:02:44,550 --> 01:02:47,883
it just don't seem to be enough for him.

1185
01:02:49,479 --> 01:02:50,312
Well,

1186
01:02:51,550 --> 01:02:56,286
do you think he'll go to sleep or shall I stay here?

1187
01:02:56,286 --> 01:02:59,505
- I think it's good for him to have you nearby.

1188
01:02:59,505 --> 01:03:01,032
What do you think?

1189
01:03:01,032 --> 01:03:05,124
- The boys are here too, they're downstairs.

1190
01:03:05,124 --> 01:03:07,979
- When they come back up, maybe we could talk as well.

1191
01:03:07,979 --> 01:03:12,812
- All right, I'd like you to talk to them, I really would.

1192
01:03:14,611 --> 01:03:17,098
I don't know what else to do.

1193
01:03:17,098 --> 01:03:20,663
Just hope and say a prayer for him.

1194
01:03:20,663 --> 01:03:22,733
He's gone through

1195
01:03:22,733 --> 01:03:24,983
an awful lot. - He sure has.

1196
01:03:27,827 --> 01:03:31,160
- It's gonna come to an end I think now.

1197
01:03:36,298 --> 01:03:39,298
- Have you and he talked about that?

1198
01:03:40,214 --> 01:03:41,706
- [Mrs. Gavin] No, he didn't say

1199
01:03:41,706 --> 01:03:43,728
anything today when I came in.

1200
01:03:43,728 --> 01:03:44,886
I said "Did you talk?"

1201
01:03:44,886 --> 01:03:47,398
And he says "Yeah, I was talking about,

1202
01:03:47,398 --> 01:03:50,014
"Dr. Taylor was talking about keeping

1203
01:03:50,014 --> 01:03:52,681
"me alive on machines," he said.

1204
01:03:54,183 --> 01:03:55,837
- How do you think it would be for him

1205
01:03:55,837 --> 01:03:58,538
if you and he talked about the possibilities,

1206
01:03:58,538 --> 01:04:02,569
including the possibility that he might not make it?

1207
01:04:02,569 --> 01:04:06,486
- I always feel that he is going to, up to now.

1208
01:04:08,671 --> 01:04:10,079
What do you think?

1209
01:04:10,079 --> 01:04:11,823
- Well I have the sense that it's on

1210
01:04:11,823 --> 01:04:13,587
both of your minds and that it might be better

1211
01:04:13,587 --> 01:04:15,856
for both of you if you could share that,

1212
01:04:15,856 --> 01:04:18,588
but it depends on what you're comfortable with.

1213
01:04:18,588 --> 01:04:23,305
- Yeah, I don't want to talk about it, I really don't.

1214
01:04:23,305 --> 01:04:25,290
- Would it be something-- - I don't know when,

1215
01:04:25,290 --> 01:04:27,248
he wouldn't either.

1216
01:04:27,248 --> 01:04:29,166
- Would you want me to bring it up when you're there

1217
01:04:29,166 --> 01:04:30,907
and see if he wants to talk about it with us all together?

1218
01:04:30,907 --> 01:04:31,740
- Sure.

1219
01:04:32,646 --> 01:04:35,313
But I don't want to bring it up.

1220
01:04:36,249 --> 01:04:39,143
You know, it's a touchy subject too.

1221
01:04:39,143 --> 01:04:41,964
- It sure is. - It's a touchy one.

1222
01:04:41,964 --> 01:04:44,413
When the boys come up, maybe we can talk.

1223
01:04:44,413 --> 01:04:48,676
- Okay, let's see if he gets a little more comfortable.

1224
01:04:48,676 --> 01:04:51,084
- Would he be asleep with that morphine?

1225
01:04:51,084 --> 01:04:52,861
- We don't know. - You don't know.

1226
01:04:52,861 --> 01:04:53,694
All right.

1227
01:04:56,848 --> 01:05:01,321
I don't know what else you can do, it's up to you.

1228
01:05:01,321 --> 01:05:04,888
- You know you're doing a lot too by being there with him.

1229
01:05:04,888 --> 01:05:07,805
I'm gonna go help them. - All right.

1230
01:05:13,746 --> 01:05:16,185
- [Bill] The Coordinator will call you when

1231
01:05:16,185 --> 01:05:19,081
your sons come back and I'll come back and we'll talk.

1232
01:05:19,081 --> 01:05:21,699
- Okay, they're only gone down for coffee.

1233
01:05:21,699 --> 01:05:25,121
- You let me know when and I'll be back.

1234
01:05:25,121 --> 01:05:26,954
- I'll be here. - Good.

1235
01:05:29,646 --> 01:05:31,063
- Bye guys. - Bye.

1236
01:05:47,135 --> 01:05:49,968
(electronic beep)

1237
01:06:02,663 --> 01:06:04,277
- All the medications that we've been giving

1238
01:06:04,277 --> 01:06:07,008
in this Intensive Care Unit, kinda doses

1239
01:06:07,008 --> 01:06:11,425
have not been improving the functioning of his heart.

1240
01:06:12,491 --> 01:06:14,968
So that I think, you know we never can predict

1241
01:06:14,968 --> 01:06:18,238
the future for sure but he said it to me this morning,

1242
01:06:18,238 --> 01:06:22,016
he said he's on the borderline between surviving and not

1243
01:06:22,016 --> 01:06:25,327
and each one of these episodes that he has I think

1244
01:06:25,327 --> 01:06:29,827
makes it a little less likely that he's gonna survive.

1245
01:06:32,721 --> 01:06:34,973
He's a very strong man though.

1246
01:06:34,973 --> 01:06:37,579
- He's been through a lot, he's been through a lot.

1247
01:06:37,579 --> 01:06:39,699
- And he's fooled us in the past too

1248
01:06:39,699 --> 01:06:41,854
when we didn't think he was gonna make it.

1249
01:06:41,854 --> 01:06:44,819
So I think we have to be humble about our ability to

1250
01:06:44,819 --> 01:06:46,402
predict the future.

1251
01:06:47,830 --> 01:06:49,727
But one of the things that I wondered and I

1252
01:06:49,727 --> 01:06:53,208
spoke with Mrs. Gavin about it a few minutes ago is that

1253
01:06:53,208 --> 01:06:56,576
sometimes when everybody's aware of the issues about

1254
01:06:56,576 --> 01:06:59,788
is he gonna survive, isn't he,

1255
01:06:59,788 --> 01:07:04,788
that it might help to take away some of the barriers between

1256
01:07:06,482 --> 01:07:09,778
you folks if that's talked about in the open.

1257
01:07:09,778 --> 01:07:10,984
Different people are different.

1258
01:07:10,984 --> 01:07:12,435
Some people would rather not do that,

1259
01:07:12,435 --> 01:07:14,794
some people would see it as throwing in

1260
01:07:14,794 --> 01:07:17,163
the towel and giving up, which we're not doing.

1261
01:07:17,163 --> 01:07:18,774
We don't want to give him the wrong message.

1262
01:07:18,774 --> 01:07:21,388
But on the other hand, it's on your minds, it's on

1263
01:07:21,388 --> 01:07:26,221
his mind and if it would allow you folks to talk about it,

1264
01:07:27,100 --> 01:07:29,001
I think it would probably be good for people

1265
01:07:29,001 --> 01:07:31,791
to be able to share their concerns because

1266
01:07:31,791 --> 01:07:35,230
I think he might feel that support.

1267
01:07:35,230 --> 01:07:37,520
If he knows you're thinking about it and he is,

1268
01:07:37,520 --> 01:07:39,476
maybe to be able to talk about it together

1269
01:07:39,476 --> 01:07:43,226
would be something that he'd feel good about.

1270
01:07:45,311 --> 01:07:48,095
If he's more comfortable after the effects of the morphine.

1271
01:07:48,095 --> 01:07:49,632
- Yeah.

1272
01:07:49,632 --> 01:07:51,632
- [Bill] Take your time.

1273
01:07:53,710 --> 01:07:54,543
- Gosh.

1274
01:07:55,997 --> 01:07:58,576
I don't know what we will do.

1275
01:07:58,576 --> 01:08:00,051
- [Son] The life support.

1276
01:08:00,051 --> 01:08:02,948
- Would it go as far as that? - A life-support system?

1277
01:08:02,948 --> 01:08:05,942
- He's already given us very clear instructions about that,

1278
01:08:05,942 --> 01:08:08,636
that he didn't want life-support systems

1279
01:08:08,636 --> 01:08:11,213
in terms of tubes and machines and so on.

1280
01:08:11,213 --> 01:08:13,716
He doesn't want his heart restarted if it stops.

1281
01:08:13,716 --> 01:08:16,910
He doesn't want a tube put in to breathe for him

1282
01:08:16,910 --> 01:08:19,910
if he's unable to breathe on his own

1283
01:08:21,519 --> 01:08:24,234
and I think frankly that that's a wise decision

1284
01:08:24,234 --> 01:08:26,688
because if it reaches that point where his heart does

1285
01:08:26,688 --> 01:08:30,448
stop as it has in the past or if he's unable to breathe,

1286
01:08:30,448 --> 01:08:32,794
I think the likelihood of him being able to have

1287
01:08:32,794 --> 01:08:35,907
a meaningful recovery after that is so small--

1288
01:08:35,907 --> 01:08:38,749
- Next to nothing. - Yeah and it really would be.

1289
01:08:38,749 --> 01:08:40,943
- What are you doing now Doctor as far as reviving

1290
01:08:40,943 --> 01:08:45,404
when he's having these pains and everything else?

1291
01:08:45,404 --> 01:08:47,094
- [Son] Do you just stimulate him enough

1292
01:08:47,094 --> 01:08:48,591
to get him going again?

1293
01:08:48,591 --> 01:08:50,084
- We're actually not stimulating.

1294
01:08:50,084 --> 01:08:51,906
We're giving him morphine.

1295
01:08:51,906 --> 01:08:54,761
The primary action of that is to relieve his pain.

1296
01:08:54,761 --> 01:08:56,466
But there is some reason to think that it

1297
01:08:56,466 --> 01:08:58,957
also helps his heart to function more effectively.

1298
01:08:58,957 --> 01:09:00,857
So if we can get some more effect that way,

1299
01:09:00,857 --> 01:09:02,684
we're delighted to have it but we're

1300
01:09:02,684 --> 01:09:05,145
focusing our attention on his comfort.

1301
01:09:05,145 --> 01:09:08,952
One thing we can do is prevent him from being uncomfortable

1302
01:09:08,952 --> 01:09:11,332
and the morphine is the best way when he's

1303
01:09:11,332 --> 01:09:13,868
having the pain that we can accomplish that

1304
01:09:13,868 --> 01:09:16,938
and if it has other benefits, so much the better.

1305
01:09:16,938 --> 01:09:20,082
But I think our primary goal at this point is to

1306
01:09:20,082 --> 01:09:23,832
do everything we can to keep him comfortable.

1307
01:09:26,527 --> 01:09:28,776
- But he did say he didn't want to be on anything.

1308
01:09:28,776 --> 01:09:32,172
- He's been pretty specific. - On several occasions,

1309
01:09:32,172 --> 01:09:33,532
he has said this in the past.

1310
01:09:33,532 --> 01:09:36,879
- [Son] And there really wouldn't be much point to it,

1311
01:09:36,879 --> 01:09:39,796
his condition the way it is. - That's right.

1312
01:09:39,796 --> 01:09:42,366
- He's made it pretty clear, he doesn't--

1313
01:09:42,366 --> 01:09:44,486
- We all feel pretty much the same way really.

1314
01:09:44,486 --> 01:09:46,926
- And he hasn't walked for over a year and he said

1315
01:09:46,926 --> 01:09:49,813
"I don't think I'm gonna be able to walk anymore."

1316
01:09:49,813 --> 01:09:52,362
He says "With this heart condition the way it is,"

1317
01:09:52,362 --> 01:09:56,862
he says "I'm just gonna be in a chair and that is it."

1318
01:09:58,066 --> 01:10:00,115
I said "Oh, don't feel like that."

1319
01:10:00,115 --> 01:10:02,317
I says "You're liable to

1320
01:10:02,317 --> 01:10:06,108
"come around and start walking, you never know.

1321
01:10:06,108 --> 01:10:07,525
I don't know, so.

1322
01:10:09,452 --> 01:10:12,314
He's got to the point where he feels

1323
01:10:12,314 --> 01:10:15,725
that he isn't gonna get up again.

1324
01:10:15,725 --> 01:10:17,620
- [Son] He knows his condition.

1325
01:10:17,620 --> 01:10:21,370
- That's why I wanted to boys to talk to you.

1326
01:10:23,118 --> 01:10:24,903
- When he is more comfortable, do you want to speak

1327
01:10:24,903 --> 01:10:27,856
with him alone or would you like me to go in with you?

1328
01:10:27,856 --> 01:10:28,689
- Yeah.

1329
01:10:30,507 --> 01:10:33,228
He'll be asleep awhile now but they can page you.

1330
01:10:33,228 --> 01:10:34,514
- [Son] Would you like to wait?

1331
01:10:34,514 --> 01:10:35,865
How long you gonna be here, Doctor?

1332
01:10:35,865 --> 01:10:37,094
- I'll be around for a little bit.

1333
01:10:37,094 --> 01:10:39,834
- [Son] Would you want to wait until Jack comes in?

1334
01:10:39,834 --> 01:10:41,834
- Yeah, I think-- - Yeah.

1335
01:10:43,174 --> 01:10:45,179
- Why don't we do that? - Yeah.

1336
01:10:45,179 --> 01:10:48,159
About what time will you be here 'til?

1337
01:10:48,159 --> 01:10:50,779
- Until about six. - Oh, he'll be here.

1338
01:10:50,779 --> 01:10:54,243
- He'll be here probably 4:30, five o'clock.

1339
01:10:54,243 --> 01:10:56,381
- [Mrs. Gavin] So we'll wait around and we'll talk to you.

1340
01:10:56,381 --> 01:10:57,918
- We'll let dad sleep for a little while.

1341
01:10:57,918 --> 01:10:58,751
- Okay. - All right?

1342
01:10:58,751 --> 01:10:59,770
- [Mrs. Gavin] All right.

1343
01:10:59,770 --> 01:11:02,628
- And we'll wait for Jack to come in and then we can talk.

1344
01:11:02,628 --> 01:11:05,318
- When he comes, would you like us to page you?

1345
01:11:05,318 --> 01:11:07,318
- It's up to you. - Sure.

1346
01:11:08,448 --> 01:11:11,492
I'd prefer to have you talk to him also.

1347
01:11:11,492 --> 01:11:14,976
- He knows the ramifications, he knows everything--

1348
01:11:14,976 --> 01:11:16,606
- He knows everything firsthand.

1349
01:11:16,606 --> 01:11:17,639
- [Bill] I misunderstood,

1350
01:11:17,639 --> 01:11:19,046
I would like to get to talk with him.

1351
01:11:19,046 --> 01:11:20,647
Whether you want me to be in the room when you

1352
01:11:20,647 --> 01:11:22,728
speak with your dad or not would be up to you.

1353
01:11:22,728 --> 01:11:25,215
- Sure, that's fine. - That's fine.

1354
01:11:25,215 --> 01:11:26,619
- [Bill] All righty, so I'll be around

1355
01:11:26,619 --> 01:11:28,107
and you give me a buzz when he arrives.

1356
01:11:28,107 --> 01:11:30,103
- [Son] All right.

1357
01:11:30,103 --> 01:11:34,020
- All right, thanks Doctor. - Thank you, Doctor.

1358
01:11:43,568 --> 01:11:45,889
- [Doctor] The problem is if they lose bowels,

1359
01:11:45,889 --> 01:11:49,722
the main bladder, they lose function all over.

1360
01:11:57,799 --> 01:11:59,049
- [Nurse] Okay.

1361
01:12:05,519 --> 01:12:08,976
- Well that's probably what it is.

1362
01:12:08,976 --> 01:12:10,226
She told me to,

1363
01:12:12,238 --> 01:12:15,206
I don't know, it seems like

1364
01:12:15,206 --> 01:12:18,163
when I talk a little too much, you know?

1365
01:12:18,163 --> 01:12:20,936
- Yeah, even the exertion from that probably is a lot.

1366
01:12:20,936 --> 01:12:21,769
- Yeah.

1367
01:12:25,001 --> 01:12:26,999
- He says "Am I talking too much,

1368
01:12:26,999 --> 01:12:30,257
"that's causing all this exertion?"

1369
01:12:30,257 --> 01:12:31,674
But I don't know.

1370
01:12:34,829 --> 01:12:35,662
- Well,

1371
01:12:38,006 --> 01:12:39,089
looks like an

1372
01:12:40,309 --> 01:12:41,226
experiment.

1373
01:12:43,793 --> 01:12:46,876
When my boy Jackie was in last night,

1374
01:12:48,431 --> 01:12:49,598
after he left,

1375
01:12:51,113 --> 01:12:52,863
that's when I had the

1376
01:12:55,115 --> 01:12:57,532
little attack again. - Uh-huh.

1377
01:12:58,786 --> 01:12:59,619
- And

1378
01:13:01,524 --> 01:13:02,607
it seems that

1379
01:13:04,373 --> 01:13:07,075
that's what it was I think.

1380
01:13:07,075 --> 01:13:08,658
I believe that was,

1381
01:13:10,738 --> 01:13:12,238
He left about 7:30

1382
01:13:14,775 --> 01:13:15,608
or eight.

1383
01:13:17,512 --> 01:13:18,345
You know?

1384
01:13:20,657 --> 01:13:23,180
- Would that exertion do it?

1385
01:13:23,180 --> 01:13:26,029
- [Bill] Well it's hard to say.

1386
01:13:26,029 --> 01:13:30,279
We'd have to wonder if, but it seems to be related.

1387
01:13:32,773 --> 01:13:35,308
I think it's possible that it's not related though.

1388
01:13:35,308 --> 01:13:39,994
It may be that these things just happen and we look for--

1389
01:13:39,994 --> 01:13:41,077
- I know. - Reasons to try to figure

1390
01:13:41,077 --> 01:13:43,691
it out and sometimes we hit on them

1391
01:13:43,691 --> 01:13:46,426
and sometimes it's just a coincidence.

1392
01:13:46,426 --> 01:13:49,017
We don't really know, I guess that's

1393
01:13:49,017 --> 01:13:52,765
one of the main messages is how little we end up knowing.

1394
01:13:52,765 --> 01:13:53,598
- Yeah.

1395
01:13:57,198 --> 01:13:58,031
Because

1396
01:14:02,309 --> 01:14:03,142
you see,

1397
01:14:06,473 --> 01:14:11,106
well you and Tommy were in the room around when,

1398
01:14:11,106 --> 01:14:14,622
around noontime wasn't it? - Just about noontime, yeah.

1399
01:14:14,622 --> 01:14:15,789
- Yeah. - Yeah.

1400
01:14:17,130 --> 01:14:18,946
- It seems that--

1401
01:14:18,946 --> 01:14:20,735
- [Son] Shortly after that you had another one?

1402
01:14:20,735 --> 01:14:22,985
- Shortly after that, yeah.

1403
01:14:24,338 --> 01:14:25,671
So I don't know.

1404
01:14:27,137 --> 01:14:30,472
- [Mrs. Gavin] I don't think they talk that much.

1405
01:14:30,472 --> 01:14:34,278
- It's hard to pin it down. - Yeah, it is.

1406
01:14:34,278 --> 01:14:35,776
I suspect that some of the talking

1407
01:14:35,776 --> 01:14:38,276
is probably very good for you.

1408
01:14:41,366 --> 01:14:44,147
- Stretch those vocal chords.

1409
01:14:44,147 --> 01:14:46,291
- [Son] Do some yelling.

1410
01:14:46,291 --> 01:14:47,541
- There was awhile there you

1411
01:14:47,541 --> 01:14:50,124
couldn't talk at all, remember?

1412
01:14:52,140 --> 01:14:54,014
- Also to get some of the positive stuff

1413
01:14:54,014 --> 01:14:58,097
that comes from having your family here with you.

1414
01:15:02,665 --> 01:15:05,373
- So you were gonna ask him

1415
01:15:05,373 --> 01:15:07,605
about the machines and everything.

1416
01:15:07,605 --> 01:15:09,384
- Yeah, I think we've been through that.

1417
01:15:09,384 --> 01:15:11,497
I understand pretty well I think, Mr. Gavin,

1418
01:15:11,497 --> 01:15:14,587
your instructions about what you wish

1419
01:15:14,587 --> 01:15:17,247
for us to do if things are to get worse.

1420
01:15:17,247 --> 01:15:19,627
If your heart should stop, if your breathing should stop,

1421
01:15:19,627 --> 01:15:23,312
you've given pretty clear instructions that you don't want

1422
01:15:23,312 --> 01:15:26,591
tubes and machines and all the things that you went

1423
01:15:26,591 --> 01:15:31,424
through a few months ago when you experienced all of that.

1424
01:15:32,496 --> 01:15:33,329
- Yeah.

1425
01:15:34,266 --> 01:15:37,001
- I don't know that we need to bring it up again

1426
01:15:37,001 --> 01:15:39,521
beyond that unless you feel that there's something

1427
01:15:39,521 --> 01:15:42,263
different or that you've changed your mind about things

1428
01:15:42,263 --> 01:15:45,272
and if you ever do-- - Oh no, it's just that

1429
01:15:45,272 --> 01:15:47,022
I thought once it was

1430
01:15:51,652 --> 01:15:54,478
pinned down, this thing, you know

1431
01:15:54,478 --> 01:15:56,145
with the lawyer that

1432
01:15:57,135 --> 01:16:00,004
that means I have to go along with it.

1433
01:16:00,004 --> 01:16:01,777
- That's not true.

1434
01:16:01,777 --> 01:16:03,635
- Well you've,

1435
01:16:03,635 --> 01:16:06,779
you've changed my mind on that then.

1436
01:16:06,779 --> 01:16:10,409
- You can always change your mind.

1437
01:16:10,409 --> 01:16:13,559
We'll go by whatever you tell us, even if it's

1438
01:16:13,559 --> 01:16:16,873
something different today from what it was yesterday.

1439
01:16:16,873 --> 01:16:19,249
Even if it's different from what you thought

1440
01:16:19,249 --> 01:16:23,943
when you signed that living will with the lawyer.

1441
01:16:23,943 --> 01:16:26,326
Whatever you tell us is what we'll go by

1442
01:16:26,326 --> 01:16:28,897
and you're entitled to change your opinion,

1443
01:16:28,897 --> 01:16:31,241
change your instructions to us and whatever you tell us,

1444
01:16:31,241 --> 01:16:35,408
we'll listen to that and follow your instructions.

1445
01:16:39,713 --> 01:16:41,447
Have you thought about changing your mind, Mr. Gavin?

1446
01:16:41,447 --> 01:16:44,397
- Have you thought of anything?

1447
01:16:44,397 --> 01:16:46,394
- Have I thought of anything?

1448
01:16:46,394 --> 01:16:48,881
- Have you thought about changing your mind?

1449
01:16:48,881 --> 01:16:50,622
You just said you want Dr. Taylor

1450
01:16:50,622 --> 01:16:52,877
to do whatever he thinks is best.

1451
01:16:52,877 --> 01:16:57,294
- Well no, the way I was explaining it to Dr. Taylor,

1452
01:16:58,223 --> 01:16:59,390
because I took

1453
01:17:00,919 --> 01:17:02,752
the most severe cases.

1454
01:17:04,246 --> 01:17:05,329
You know, the

1455
01:17:06,411 --> 01:17:07,744
Von Bulow and...

1456
01:17:10,478 --> 01:17:11,311
And

1457
01:17:12,887 --> 01:17:16,387
well there was a couple more too that were

1458
01:17:17,897 --> 01:17:19,314
not quite so big.

1459
01:17:21,415 --> 01:17:22,248
But

1460
01:17:26,863 --> 01:17:29,280
I just assumed all along that

1461
01:17:32,260 --> 01:17:35,260
because the other ones, they were...

1462
01:17:36,359 --> 01:17:37,192
But

1463
01:17:39,298 --> 01:17:40,715
we don't have to,

1464
01:17:43,749 --> 01:17:45,717
don't have to take the severest ones.

1465
01:17:45,717 --> 01:17:46,550
- No.

1466
01:17:48,704 --> 01:17:50,434
You feel like you want Dr. Taylor

1467
01:17:50,434 --> 01:17:52,978
to do what he thinks is best for you.

1468
01:17:52,978 --> 01:17:55,645
- What you think is best for me,

1469
01:17:56,624 --> 01:17:59,124
I'll go along with you Doctor.

1470
01:18:01,123 --> 01:18:02,916
- Well I think at this point Mr. Gavin,

1471
01:18:02,916 --> 01:18:05,331
given all that you've been through,

1472
01:18:05,331 --> 01:18:07,727
given the episodes of pain that you had last night

1473
01:18:07,727 --> 01:18:12,196
and today and given the failure of the medications that

1474
01:18:12,196 --> 01:18:16,789
we've used to try to improve the functioning of your heart,

1475
01:18:16,789 --> 01:18:19,122
that what's best is probably

1476
01:18:20,204 --> 01:18:21,287
to try to see

1477
01:18:22,509 --> 01:18:25,591
how you will do without some of these powerful medications

1478
01:18:25,591 --> 01:18:29,496
that are making some of their own complications

1479
01:18:29,496 --> 01:18:32,183
and in the midst of the changes as we

1480
01:18:32,183 --> 01:18:34,775
try to see if we can turn down or even

1481
01:18:34,775 --> 01:18:37,902
turn off some of these powerful medications,

1482
01:18:37,902 --> 01:18:40,581
to do everything we can above all else

1483
01:18:40,581 --> 01:18:43,947
to make sure that we keep you comfortable.

1484
01:18:43,947 --> 01:18:45,893
- Well that's the main thing.

1485
01:18:45,893 --> 01:18:49,057
- We don't mean to be puttin' it all in your hands.

1486
01:18:49,057 --> 01:18:52,029
- [Bill] It's fair for us to share it, I think.

1487
01:18:52,029 --> 01:18:53,029
- All right.

1488
01:19:01,401 --> 01:19:05,503
But you know Dr. Taylor will do what he can for you.

1489
01:19:05,503 --> 01:19:09,271
You know Dr. Taylor will do what he can for you.

1490
01:19:09,271 --> 01:19:12,548
- [Mr. Gavin] Oh, I know that.

1491
01:19:12,548 --> 01:19:16,648
Definitely. - That's a vote of confidence.

1492
01:19:16,648 --> 01:19:19,800
- [Bill] We've been through a lot together, Mr. Gavin.

1493
01:19:19,800 --> 01:19:20,707
- Yeah.

1494
01:19:20,707 --> 01:19:24,374
- [Bill] It's been a very long haul for you.

1495
01:19:25,843 --> 01:19:27,753
- [Mrs. Gavin] Well you never know,

1496
01:19:27,753 --> 01:19:30,543
he might be up and around before you know it.

1497
01:19:30,543 --> 01:19:32,492
- [Bill] We don't know how to predict the future.

1498
01:19:32,492 --> 01:19:33,992
- [Mrs. Gavin] No.

1499
01:19:35,339 --> 01:19:36,747
- [Bill] And we've been,

1500
01:19:36,747 --> 01:19:38,778
we talked about that earlier, I talked about that

1501
01:19:38,778 --> 01:19:41,055
with your family, we've been surprised before.

1502
01:19:41,055 --> 01:19:42,672
You've come back from situations that

1503
01:19:42,672 --> 01:19:44,372
nobody ever thought that you could.

1504
01:19:44,372 --> 01:19:47,026
So we have to be humble about predicting the future,

1505
01:19:47,026 --> 01:19:50,022
as we talked about before.

1506
01:19:50,022 --> 01:19:52,726
But as you said to me this morning,

1507
01:19:52,726 --> 01:19:56,040
you're sort of in a borderline situation now

1508
01:19:56,040 --> 01:19:59,155
between surviving and not surviving

1509
01:19:59,155 --> 01:20:01,523
and I think that your bringing that up

1510
01:20:01,523 --> 01:20:04,062
is something that we shouldn't run away from.

1511
01:20:04,062 --> 01:20:06,897
At the same time that we acknowledge that

1512
01:20:06,897 --> 01:20:10,030
we don't know what's gonna happen and that we

1513
01:20:10,030 --> 01:20:12,471
point out that you're a man of great strength

1514
01:20:12,471 --> 01:20:14,709
and that you've fooled us before in terms of

1515
01:20:14,709 --> 01:20:17,273
your ability to come back from situations

1516
01:20:17,273 --> 01:20:20,885
that we didn't think it was possible.

1517
01:20:20,885 --> 01:20:23,671
I think it's important that we acknowledge

1518
01:20:23,671 --> 01:20:25,638
what all of us are afraid of too

1519
01:20:25,638 --> 01:20:28,875
and what we're all thinking of as a possibility.

1520
01:20:28,875 --> 01:20:30,939
Because sometimes if we don't acknowledge

1521
01:20:30,939 --> 01:20:33,568
the possibility that you mentioned this morning,

1522
01:20:33,568 --> 01:20:36,006
not only the one that you might survive and be up

1523
01:20:36,006 --> 01:20:40,483
and around but also the possibility that you might not,

1524
01:20:40,483 --> 01:20:43,628
sometimes that can be a barrier between people.

1525
01:20:43,628 --> 01:20:46,074
Even between people who love each other a lot.

1526
01:20:46,074 --> 01:20:47,928
If you're having a thought about what might happen

1527
01:20:47,928 --> 01:20:51,126
if you don't make it and your wife's having that thought,

1528
01:20:51,126 --> 01:20:52,696
sometimes it's too bad if people

1529
01:20:52,696 --> 01:20:54,517
can't talk to each other about it.

1530
01:20:54,517 --> 01:20:56,100
- Well that's true.

1531
01:20:57,262 --> 01:20:58,262
That's true.

1532
01:21:03,927 --> 01:21:06,344
Of course you know as you say

1533
01:21:07,343 --> 01:21:08,343
Doctor, this

1534
01:21:09,865 --> 01:21:12,698
living will fools a lot of people.

1535
01:21:14,812 --> 01:21:16,851
- How so? - Especially

1536
01:21:16,851 --> 01:21:17,851
people that,

1537
01:21:19,119 --> 01:21:21,536
in a category like us, I mean

1538
01:21:22,603 --> 01:21:25,762
we don't know too much about it really.

1539
01:21:25,762 --> 01:21:27,512
I don't, I know that.

1540
01:21:28,477 --> 01:21:30,249
- Well it's interesting for you to say that,

1541
01:21:30,249 --> 01:21:32,157
Mr. Gavin because I don't know many people who know

1542
01:21:32,157 --> 01:21:34,388
more about it than you do with what you've been through.

1543
01:21:34,388 --> 01:21:36,193
You know firsthand what-- - That's true, yeah.

1544
01:21:36,193 --> 01:21:40,062
- All those things are like in a way that most of us never

1545
01:21:40,062 --> 01:21:42,954
experience until we're in the midst of it.

1546
01:21:42,954 --> 01:21:45,046
You've already been there. - Yeah.

1547
01:21:45,046 --> 01:21:49,713
- So you know very much what those different things are.

1548
01:21:52,862 --> 01:21:56,695
- Just hope and pray everything shall be fine.

1549
01:21:58,208 --> 01:22:01,862
We won't have to worry about those things maybe.

1550
01:22:01,862 --> 01:22:04,279
- Well that's just one of the

1551
01:22:07,613 --> 01:22:11,280
things that might run in a way I don't want.

1552
01:22:12,262 --> 01:22:13,679
- I hope I don't.

1553
01:22:15,212 --> 01:22:17,531
- [Bill] I hope you don't too but I have a sense

1554
01:22:17,531 --> 01:22:20,009
that the two of you and actually maybe all of you

1555
01:22:20,009 --> 01:22:23,169
have some things to talk about that if you wish to.

1556
01:22:23,169 --> 01:22:25,336
- Yeah. - That's up to you.

1557
01:22:26,971 --> 01:22:28,968
Because I have a sense that there are some things

1558
01:22:28,968 --> 01:22:31,868
on your mind not only about the hopeful things

1559
01:22:31,868 --> 01:22:35,023
because we all have hope but also some of the concerns

1560
01:22:35,023 --> 01:22:38,941
we have if what we're hoping for doesn't happen

1561
01:22:40,749 --> 01:22:42,823
and one of my hopes is that you folks

1562
01:22:42,823 --> 01:22:46,929
get a chance to talk about that with each other.

1563
01:22:46,929 --> 01:22:49,032
- [Mrs. Gavin] Okay, we will.

1564
01:22:49,032 --> 01:22:51,115
- You'll do what's right.

1565
01:22:53,059 --> 01:22:55,126
Mr. Gavin, I'm gonna go now and leave you with

1566
01:22:55,126 --> 01:22:57,936
your family together but I'm gonna be back in the morning

1567
01:22:57,936 --> 01:23:00,610
and in the meantime folks here know how to reach me.

1568
01:23:00,610 --> 01:23:02,777
- Yes. - All right, Doctor.

1569
01:23:03,806 --> 01:23:06,306
Bye bye now. - Good to see you.

1570
01:23:11,540 --> 01:23:14,030
- [Nurse] Do you need anything?

1571
01:23:14,030 --> 01:23:16,863
I'll be outside, okay? - All right.

1572
01:23:18,523 --> 01:23:20,940
(chattering)

1573
01:23:25,794 --> 01:23:30,022
- [Scott] Anyway he's, he's looking good.

1574
01:23:30,022 --> 01:23:32,105
- So there's, this is it.

1575
01:23:33,347 --> 01:23:35,138
- Oh yeah. - Yeah I mean, we're not--

1576
01:23:35,138 --> 01:23:39,599
- He's DNR, I mean he understands what the situation is.

1577
01:23:39,599 --> 01:23:41,250
Why don't you just come right out and say it?

1578
01:23:41,250 --> 01:23:42,215
- No, I just assumed.

1579
01:23:42,215 --> 01:23:44,415
- He's talked to him about it and Bill's talked to him

1580
01:23:44,415 --> 01:23:48,082
and he's pretty, I think he understands that

1581
01:23:49,380 --> 01:23:50,511
everything has been done.

1582
01:23:50,511 --> 01:23:51,921
I think the goal is to see if we can get

1583
01:23:51,921 --> 01:23:54,857
him out of here and maybe get him home for,

1584
01:23:54,857 --> 01:23:57,023
I mean he's been home for,

1585
01:23:58,201 --> 01:23:59,934
what did he get, two weeks?

1586
01:23:59,934 --> 01:24:01,260
I guess he didn't even get two weeks.

1587
01:24:01,260 --> 01:24:03,338
Two weeks out of the hospital in a rehab hospital.

1588
01:24:03,338 --> 01:24:05,959
He's never been home since he had to operation.

1589
01:24:05,959 --> 01:24:08,700
If we could get him home at all, it would be a victory.

1590
01:24:08,700 --> 01:24:10,227
- Is he,

1591
01:24:10,227 --> 01:24:13,836
he's on procaine, can he use IV antiarrythmics or

1592
01:24:13,836 --> 01:24:15,770
how DNR is DNR?

1593
01:24:15,770 --> 01:24:17,675
- Well yeah, no I mean anything

1594
01:24:17,675 --> 01:24:21,537
pharmacologically you wanna play around with is fine.

1595
01:24:21,537 --> 01:24:22,370
- Okay.

1596
01:24:22,370 --> 01:24:23,772
- But I mean I don't think,

1597
01:24:23,772 --> 01:24:26,209
his activity has not been a problem.

1598
01:24:26,209 --> 01:24:27,943
- [Doctor] No.

1599
01:24:27,943 --> 01:24:29,394
- Power failure. - Power failure.

1600
01:24:29,394 --> 01:24:32,295
- Power failure has been the problem.

1601
01:24:32,295 --> 01:24:34,068
- And chest pain. - And chest pain.

1602
01:24:34,068 --> 01:24:35,485
But he, you know,

1603
01:24:36,592 --> 01:24:39,032
I think basically what we've decided to do is respond

1604
01:24:39,032 --> 01:24:43,532
to the chest pain with morphine and nitro rather than,

1605
01:24:45,743 --> 01:24:48,245
and at this point I wouldn't put him back on IV nitro.

1606
01:24:48,245 --> 01:24:51,995
I would just give him morphine and the paste.

1607
01:24:53,541 --> 01:24:57,350
We're not gonna escalate this thing again.

1608
01:24:57,350 --> 01:25:00,639
The guy's been through enough.

1609
01:25:00,639 --> 01:25:03,825
But that's not gonna be an issue today, he's looking good.

1610
01:25:03,825 --> 01:25:06,299
We may get him to the floor.

1611
01:25:06,299 --> 01:25:08,913
- [Nurse] I'll come back and get all that stuff.

1612
01:25:08,913 --> 01:25:11,325
- My glasses are over there anyways.

1613
01:25:11,325 --> 01:25:14,046
- [Nurse] Yeah, do you want them to come with you now, or?

1614
01:25:14,046 --> 01:25:17,282
- [Mr. Gavin] No, I should have them with me

1615
01:25:17,282 --> 01:25:22,093
at all times because I'm as blind as a bat without them.

1616
01:25:22,093 --> 01:25:25,652
- [Mrs. Gavin] Do you wanna take your applesauce with ya?

1617
01:25:25,652 --> 01:25:29,786
- I do not want that stuff. - No applesauce.

1618
01:25:29,786 --> 01:25:31,440
- [Nurse] Absolutely not.

1619
01:25:31,440 --> 01:25:34,112
- [Mr. Gavin] I did not order the applesauce

1620
01:25:34,112 --> 01:25:38,695
and whoever took my dinner did not want the applesauce.

1621
01:25:39,975 --> 01:25:42,915
- I did. - You took my dinner?

1622
01:25:42,915 --> 01:25:44,951
- [Nurse] No, she wants your applesauce.

1623
01:25:44,951 --> 01:25:47,201
- I ordered the applesauce.

1624
01:25:48,190 --> 01:25:51,266
- [Nurse] Why don't you take the applesauce?

1625
01:25:51,266 --> 01:25:53,177
- I don't want it. (laughs)

1626
01:25:53,177 --> 01:25:57,010
No way, I just thought maybe he would have it.

1627
01:25:58,032 --> 01:26:00,562
- I'd love you to have it. - I bet when we get down there

1628
01:26:00,562 --> 01:26:02,291
he's gonna be calling me up on

1629
01:26:02,291 --> 01:26:04,996
the phone looking for his applesauce.

1630
01:26:04,996 --> 01:26:06,359
Okay?

1631
01:26:06,359 --> 01:26:07,746
- Yep.

1632
01:26:07,746 --> 01:26:10,526
We're all set, gimme that too.

1633
01:26:10,526 --> 01:26:12,402
- Can you hold your chart for me?

1634
01:26:12,402 --> 01:26:15,818
- Yes, put it right in there. - All right.

1635
01:26:16,809 --> 01:26:17,842
- How's that?

1636
01:26:17,842 --> 01:26:20,297
- Is my handkerchief around here?

1637
01:26:20,297 --> 01:26:22,036
- Yeah, I threw it in your bag

1638
01:26:22,036 --> 01:26:25,119
because it kept landing on the floor.

1639
01:26:31,040 --> 01:26:31,873
That's it.

1640
01:26:34,943 --> 01:26:36,943
- [Nurse] See you later.

1641
01:26:40,808 --> 01:26:43,891
(electronic beeping)

1642
01:26:48,398 --> 01:26:50,054
- The same problem that we had with

1643
01:26:50,054 --> 01:26:53,335
the Wong family and this person was brain dead.

1644
01:26:53,335 --> 01:26:55,541
- He's not brain dead though. - I know he isn't but--

1645
01:26:55,541 --> 01:26:56,705
- [Nurse] If he's legally brain dead,

1646
01:26:56,705 --> 01:26:57,940
the tube comes out and that's it.

1647
01:26:57,940 --> 01:26:59,517
- Well that wasn't with the Wong family.

1648
01:26:59,517 --> 01:27:01,800
The patient was legally brain dead

1649
01:27:01,800 --> 01:27:04,540
by all criteria, by all the Harvard criteria

1650
01:27:04,540 --> 01:27:07,157
and we kept the patient on a machine,

1651
01:27:07,157 --> 01:27:10,055
basically kept the heart breathing for three days

1652
01:27:10,055 --> 01:27:12,237
until the family could deal with it and even

1653
01:27:12,237 --> 01:27:14,349
after three days, they couldn't deal with it

1654
01:27:14,349 --> 01:27:17,786
and when the two did come out, they blamed me.

1655
01:27:17,786 --> 01:27:20,472
I was the culprit, I killed their mother.

1656
01:27:20,472 --> 01:27:21,970
- [Nurse] They said that to you?

1657
01:27:21,970 --> 01:27:24,001
- Not directly to me but because I was

1658
01:27:24,001 --> 01:27:27,621
the most visible person and you know, it' hard.

1659
01:27:27,621 --> 01:27:30,125
It really is hard when people try to blame it

1660
01:27:30,125 --> 01:27:33,692
on you because you know, the inevitable happens.

1661
01:27:33,692 --> 01:27:36,969
We have no control over the fact that their mother is brain

1662
01:27:36,969 --> 01:27:39,712
dead and I guess it's all in the way you look at death.

1663
01:27:39,712 --> 01:27:42,018
Whether you look at it legally or emotionally.

1664
01:27:42,018 --> 01:27:44,421
- That's a very hard concept I think to understand,

1665
01:27:44,421 --> 01:27:47,021
brain dead, I think that's-- - It is.

1666
01:27:47,021 --> 01:27:49,446
- That's where you get into the problem of

1667
01:27:49,446 --> 01:27:54,019
providing too much information to families and like I said,

1668
01:27:54,019 --> 01:27:56,375
it's just a difficult concept. - We shouldn't say brain dead.

1669
01:27:56,375 --> 01:27:58,773
What we should say is that your family member

1670
01:27:58,773 --> 01:28:01,654
has passed away and the only reason you see

1671
01:28:01,654 --> 01:28:03,975
a heartbeat is because we're artificially

1672
01:28:03,975 --> 01:28:06,308
keeping the body essentially

1673
01:28:07,665 --> 01:28:10,861
going, keeping the heartbeat going because of oxygen.

1674
01:28:10,861 --> 01:28:12,891
Because the longer that we procrastinate

1675
01:28:12,891 --> 01:28:16,903
in that particular instance, the longer that we keep

1676
01:28:16,903 --> 01:28:20,643
the person's heart beating, the more confused

1677
01:28:20,643 --> 01:28:22,674
the family is gonna become and if you tell

1678
01:28:22,674 --> 01:28:26,288
the family on a Monday that your mother is brain dead

1679
01:28:26,288 --> 01:28:28,919
and three days later, they're still quote

1680
01:28:28,919 --> 01:28:31,251
alive in the bed as far as they're concerned,

1681
01:28:31,251 --> 01:28:35,156
then obviously they have hope and they start to question

1682
01:28:35,156 --> 01:28:39,887
whether it is in fact true that she is brain dead.

1683
01:28:39,887 --> 01:28:42,579
- Why do, just to talk about this and then

1684
01:28:42,579 --> 01:28:44,791
to get back also to this situation which

1685
01:28:44,791 --> 01:28:46,612
you're gonna have to live through this weekend,

1686
01:28:46,612 --> 01:28:48,270
I mean that's the other piece of this

1687
01:28:48,270 --> 01:28:50,353
and what does that feel like to live through this?

1688
01:28:50,353 --> 01:28:53,370
But why do we get into saying that anyway to families?

1689
01:28:53,370 --> 01:28:56,269
That's really the issue, why do we do it?

1690
01:28:56,269 --> 01:28:58,127
- I think to protect them, I think to make it

1691
01:28:58,127 --> 01:29:01,023
easier for them I guess is kind of the, it's difficult--

1692
01:29:01,023 --> 01:29:02,140
- [Nurse] To make it easier for them

1693
01:29:02,140 --> 01:29:04,032
or to make it easier for us? - Maybe for us.

1694
01:29:04,032 --> 01:29:06,083
It's difficult to say to someone,

1695
01:29:06,083 --> 01:29:10,416
I mean maybe it gets into how you really look at death.

1696
01:29:10,416 --> 01:29:12,762
Is the person, I mean you're in there

1697
01:29:12,762 --> 01:29:14,985
turning the person from side to side.

1698
01:29:14,985 --> 01:29:18,878
You're doing AM care but yet the person is supposedly dead.

1699
01:29:18,878 --> 01:29:20,751
- I think also to get everyone in

1700
01:29:20,751 --> 01:29:22,925
agreement that that is in fact the case

1701
01:29:22,925 --> 01:29:27,239
that someone's dead is another difficult thing.

1702
01:29:27,239 --> 01:29:29,639
My understanding is neurology

1703
01:29:29,639 --> 01:29:31,757
wanted to correct the sodium.

1704
01:29:31,757 --> 01:29:33,122
- [Nurse] Yeah.

1705
01:29:33,122 --> 01:29:34,282
And actually--

1706
01:29:34,282 --> 01:29:36,887
- But then you start getting various--

1707
01:29:36,887 --> 01:29:40,532
- That was to supply criteria though.

1708
01:29:40,532 --> 01:29:41,947
You know, they wanted to supply

1709
01:29:41,947 --> 01:29:45,061
the criteria for brain death, you know?

1710
01:29:45,061 --> 01:29:47,815
Not febrile, da da da da da, not hypothermic

1711
01:29:47,815 --> 01:29:49,713
and he wanted, evidently it was a case

1712
01:29:49,713 --> 01:29:52,460
of electrolytes being not in balance.

1713
01:29:52,460 --> 01:29:54,414
- [Nurse] But even after they were, the family

1714
01:29:54,414 --> 01:29:57,193
still didn't accept it, they wanted a fourth concept.

1715
01:29:57,193 --> 01:30:00,731
- But don't we tell, should we tell families that?

1716
01:30:00,731 --> 01:30:03,724
Because we involve families in the whole decision-

1717
01:30:03,724 --> 01:30:07,961
making process and the whole plan and from my experience,

1718
01:30:07,961 --> 01:30:10,955
they're involved much, much more

1719
01:30:10,955 --> 01:30:13,335
here than anywhere else I've worked.

1720
01:30:13,335 --> 01:30:15,063
I'm not sure more than they should

1721
01:30:15,063 --> 01:30:17,145
but for sure it's more than most.

1722
01:30:17,145 --> 01:30:18,548
- In some cases, it's more than they should.

1723
01:30:18,548 --> 01:30:20,915
We're giving them, we're allowing them to make

1724
01:30:20,915 --> 01:30:24,553
a decision that is not, that they know nothing about

1725
01:30:24,553 --> 01:30:28,818
and we're not informing them of what exactly is going on.

1726
01:30:28,818 --> 01:30:31,052
- Well I think they are being informed but it's

1727
01:30:31,052 --> 01:30:34,620
what they can process, I mean all the terminology.

1728
01:30:34,620 --> 01:30:37,028
We went to school four years for us to understand this.

1729
01:30:37,028 --> 01:30:38,854
I had a hard time when I first came here with brain dead,

1730
01:30:38,854 --> 01:30:40,805
I'm like yeah but the heart's beating.

1731
01:30:40,805 --> 01:30:43,113
Well wait a minute, but they're really dead?

1732
01:30:43,113 --> 01:30:44,976
And then when I learned about the Harvard criteria,

1733
01:30:44,976 --> 01:30:47,199
I even had a hard time and I'm a nurse

1734
01:30:47,199 --> 01:30:50,287
and I'm sure the families have a hard time

1735
01:30:50,287 --> 01:30:53,684
in a one hour conversation with the docs just saying "Yeah,

1736
01:30:53,684 --> 01:30:56,541
"he's dead and we're gonna take the tube out and that's it."

1737
01:30:56,541 --> 01:30:58,236
But like, wait a minute.

1738
01:30:58,236 --> 01:31:00,646
- I can understand that completely and that night

1739
01:31:00,646 --> 01:31:02,965
logically I could understand all the steps that

1740
01:31:02,965 --> 01:31:05,786
they were going through but it's very difficult

1741
01:31:05,786 --> 01:31:08,291
when you give that much energy to have basically

1742
01:31:08,291 --> 01:31:12,402
a family member put the blame on you essentially.

1743
01:31:12,402 --> 01:31:15,139
To say to you, "How could you possibly want

1744
01:31:15,139 --> 01:31:19,581
"to take that tube out, what's your motive here?"

1745
01:31:19,581 --> 01:31:22,062
I mean he went to the extent of "Is your motive

1746
01:31:22,062 --> 01:31:24,838
"that you need a bed in the Intensive Care Unit?"

1747
01:31:24,838 --> 01:31:26,730
- They said that? - Yes, I mean--

1748
01:31:26,730 --> 01:31:28,830
- That's awful. - Because they,

1749
01:31:28,830 --> 01:31:32,100
but they didn't truly believe that, I understand that.

1750
01:31:32,100 --> 01:31:33,972
They really, truly didn't believe that.

1751
01:31:33,972 --> 01:31:37,434
The problem was is that they were under so much stress,

1752
01:31:37,434 --> 01:31:40,257
they didn't know which way to turn.

1753
01:31:40,257 --> 01:31:42,912
It was like oh my god, the day has finally come,

1754
01:31:42,912 --> 01:31:44,996
this is the end and I was the most,

1755
01:31:44,996 --> 01:31:47,243
as the nurse you're the most visible person.

1756
01:31:47,243 --> 01:31:49,646
You're there consistently throughout the whole evening,

1757
01:31:49,646 --> 01:31:52,341
I was there, neurologists come and they go

1758
01:31:52,341 --> 01:31:54,877
and I was the person that this particular son

1759
01:31:54,877 --> 01:31:58,379
decided was the person that he needed to vent his anger at.

1760
01:31:58,379 --> 01:32:00,995
- [Nurse] You were also taking care of the patient

1761
01:32:00,995 --> 01:32:04,806
who was dead but alive, I mean you were--

1762
01:32:04,806 --> 01:32:06,575
- And that's hard to do.

1763
01:32:06,575 --> 01:32:08,577
- Adding to the anxiety. - Exactly.

1764
01:32:08,577 --> 01:32:11,679
- You somehow add to the confusion when you continue

1765
01:32:11,679 --> 01:32:16,163
to take care of someone who they understand is dead.

1766
01:32:16,163 --> 01:32:19,413
I think that you're gonna get the heat.

1767
01:32:20,306 --> 01:32:21,929
You're gonna get a tremendous amount of rage.

1768
01:32:21,929 --> 01:32:24,516
I mean you took care of them, they're dead

1769
01:32:24,516 --> 01:32:27,253
but they're alive and now you're gonna end their life.

1770
01:32:27,253 --> 01:32:29,860
I mean how do you-- - Right.

1771
01:32:29,860 --> 01:32:31,771
- I mean we could talk about it here, it sounds kind of--

1772
01:32:31,771 --> 01:32:33,529
- [Nurse] It's not who it's more logical to put blame on.

1773
01:32:33,529 --> 01:32:35,192
- Well-- - It's confusing.

1774
01:32:35,192 --> 01:32:37,891
- It's confusing, it is confusing but I guess

1775
01:32:37,891 --> 01:32:41,407
the question is that we do tell them that way

1776
01:32:41,407 --> 01:32:43,431
to give 'em time. - Right.

1777
01:32:43,431 --> 01:32:45,391
- We were attempting to make it easier

1778
01:32:45,391 --> 01:32:48,263
on the family by allowing them, we essentially

1779
01:32:48,263 --> 01:32:50,788
controlled when we let the person go.

1780
01:32:50,788 --> 01:32:53,393
They came in on a Sunday and they were brain dead on

1781
01:32:53,393 --> 01:32:57,707
a Sunday and we manipulated it by adding stuff, depressors,

1782
01:32:57,707 --> 01:33:01,394
she was on Neo-Synephrine to keep her blood pressure up.

1783
01:33:01,394 --> 01:33:04,954
Everything was manipulated to keep her going so that

1784
01:33:04,954 --> 01:33:08,432
the family could get the consults in and could deal with it.

1785
01:33:08,432 --> 01:33:10,863
Now do we make it any easier for that family?

1786
01:33:10,863 --> 01:33:13,784
Not as far as I'm concerned because when the end

1787
01:33:13,784 --> 01:33:17,175
finally came for them, it was no easier on the Wednesday

1788
01:33:17,175 --> 01:33:20,827
than it was if they had dealt with it right then and there.

1789
01:33:20,827 --> 01:33:24,945
Go right in and say "We have all the criteria."

1790
01:33:24,945 --> 01:33:28,021
We do a CAT Scan, it shows a huge bleed.

1791
01:33:28,021 --> 01:33:30,297
We do a flow study to the brain

1792
01:33:30,297 --> 01:33:32,790
that shows absolutely no flow to the brain.

1793
01:33:32,790 --> 01:33:34,438
We do all the studies that indicate

1794
01:33:34,438 --> 01:33:37,114
whether the person is brain dead.

1795
01:33:37,114 --> 01:33:39,558
If it's true on a Sunday, then

1796
01:33:39,558 --> 01:33:41,743
I mean we didn't make it any easier.

1797
01:33:41,743 --> 01:33:43,276
- [Nurse] Did you do all that in one day

1798
01:33:43,276 --> 01:33:44,945
but they still wanted a second consult?

1799
01:33:44,945 --> 01:33:47,777
- They kept adding consults. - In response to the family?

1800
01:33:47,777 --> 01:33:48,610
- Yeah.

1801
01:33:48,610 --> 01:33:50,050
- [Nurse] You're not gonna change

1802
01:33:50,050 --> 01:33:51,954
the fact by just kinda softening it a bit.

1803
01:33:51,954 --> 01:33:53,478
You're not gonna change it.

1804
01:33:53,478 --> 01:33:56,559
- For some families you need to look at a framework.

1805
01:33:56,559 --> 01:34:00,142
You have to look at the medical assessment,

1806
01:34:01,920 --> 01:34:04,838
the Massachusetts State Law, what the criteria are

1807
01:34:04,838 --> 01:34:07,564
and I think professionals have to take a look

1808
01:34:07,564 --> 01:34:10,186
at their own morals and values before they

1809
01:34:10,186 --> 01:34:13,464
enter into each individual situation and you should

1810
01:34:13,464 --> 01:34:16,645
try and separate yourself a little bit in that respect

1811
01:34:16,645 --> 01:34:19,537
and I think the treatment for the family should be

1812
01:34:19,537 --> 01:34:21,850
Social Service and more of an emotional support

1813
01:34:21,850 --> 01:34:25,017
rather than basing their loved one's--

1814
01:34:26,898 --> 01:34:27,764
- Destiny.

1815
01:34:27,764 --> 01:34:29,664
- Destiny, their treatment in

1816
01:34:29,664 --> 01:34:32,607
the hospital on the family's emotion.

1817
01:34:32,607 --> 01:34:34,602
I mean we're focusing on the family's emotion

1818
01:34:34,602 --> 01:34:36,807
and we're basing the patient's treatment on

1819
01:34:36,807 --> 01:34:38,675
the family's emotion and now we're talking

1820
01:34:38,675 --> 01:34:40,538
about holidays and I don't think that's the issue.

1821
01:34:40,538 --> 01:34:42,421
- We give them too much control.

1822
01:34:42,421 --> 01:34:44,580
How many times have we talked about,

1823
01:34:44,580 --> 01:34:46,653
I mean they go out and ask the family,

1824
01:34:46,653 --> 01:34:48,907
I mean a family that doesn't know anything about

1825
01:34:48,907 --> 01:34:51,449
medicine at all, "Do you want your family member

1826
01:34:51,449 --> 01:34:53,980
"to be put on pressers if they should beat it?"

1827
01:34:53,980 --> 01:34:57,221
Now I mean if I was a family member, I would be like my god,

1828
01:34:57,221 --> 01:34:59,684
and what you're asking them is to tell you

1829
01:34:59,684 --> 01:35:01,585
to deny their family member something that

1830
01:35:01,585 --> 01:35:04,701
might keep them going or alive or save them.

1831
01:35:04,701 --> 01:35:07,270
- Why are you doing that? - I think it's passing

1832
01:35:07,270 --> 01:35:09,697
the buck about who's gonna make the decision.

1833
01:35:09,697 --> 01:35:11,894
Nobody is comfortable with the decision.

1834
01:35:11,894 --> 01:35:14,023
- [Nurse] It's because you or whoever is involved

1835
01:35:14,023 --> 01:35:17,035
is supposed to know the feelings of uncomfortableness.

1836
01:35:17,035 --> 01:35:18,731
- If I was in that position,

1837
01:35:18,731 --> 01:35:21,362
I would examine my own morals and my values.

1838
01:35:21,362 --> 01:35:23,505
- [Nurse] It's the responsibility we have.

1839
01:35:23,505 --> 01:35:25,302
- [Nurse] That's not the case in 100% of the times.

1840
01:35:25,302 --> 01:35:28,281
- That has everyone zero in on that because I never

1841
01:35:28,281 --> 01:35:33,077
saw the kind of involvement with family at other places.

1842
01:35:33,077 --> 01:35:35,755
So someone from up above-- - Is it good or bad?

1843
01:35:35,755 --> 01:35:39,654
- Is giving this philosophy down to everybody.

1844
01:35:39,654 --> 01:35:42,482
That you have to include the family in the decision-making.

1845
01:35:42,482 --> 01:35:44,761
- Include them but not let them make the decision.

1846
01:35:44,761 --> 01:35:47,324
- I think we need to study and look at how do families

1847
01:35:47,324 --> 01:35:50,312
feel who've been through making this decision afterwards,

1848
01:35:50,312 --> 01:35:52,213
a few months, a few years after.

1849
01:35:52,213 --> 01:35:54,028
I think a lot of times if they don't

1850
01:35:54,028 --> 01:35:55,974
have any medical background, we really

1851
01:35:55,974 --> 01:35:58,718
put way too much responsibility on them.

1852
01:35:58,718 --> 01:36:01,521
- But the thing is that when a physician presents this

1853
01:36:01,521 --> 01:36:04,921
to the family, a physician has a very powerful perspective

1854
01:36:04,921 --> 01:36:07,477
and I really believe that he can manipulate

1855
01:36:07,477 --> 01:36:10,564
any family to believe what he wants to do

1856
01:36:10,564 --> 01:36:13,341
and it's the art of experience.

1857
01:36:13,341 --> 01:36:15,714
- By his values and what's morally right to him

1858
01:36:15,714 --> 01:36:18,022
and where he's comfortable with the whole issue.

1859
01:36:18,022 --> 01:36:20,106
- And it's only, let's be honest,

1860
01:36:20,106 --> 01:36:22,221
it's only once the decision is

1861
01:36:22,221 --> 01:36:24,452
that this person is probably going to die.

1862
01:36:24,452 --> 01:36:26,195
Before that point, they don't go out,

1863
01:36:26,195 --> 01:36:28,353
I mean that's really when we start,

1864
01:36:28,353 --> 01:36:30,225
that's when we go out and say to the family,

1865
01:36:30,225 --> 01:36:32,234
"How do you want us to do it, how should we do it?"

1866
01:36:32,234 --> 01:36:34,385
- [Nurse] Until then no one has any troublemaking decisions.

1867
01:36:34,385 --> 01:36:36,661
- No, we excuse people from the room.

1868
01:36:36,661 --> 01:36:38,315
We're involved in something with, you know, with the

1869
01:36:38,315 --> 01:36:41,048
person that you gave birth to and we'll see you in an hour.

1870
01:36:41,048 --> 01:36:42,956
We don't have then in there.

1871
01:36:42,956 --> 01:36:47,053
But it is when they're dying that we do that and I think--

1872
01:36:47,053 --> 01:36:48,621
- [Nurse] Nobody's comfortable with it.

1873
01:36:48,621 --> 01:36:50,323
- And sometimes we're not present, we're not there

1874
01:36:50,323 --> 01:36:52,267
on the phone when the whole talking to the family,

1875
01:36:52,267 --> 01:36:54,571
we'd like to put our two cents in but, you know

1876
01:36:54,571 --> 01:36:57,347
and it's up to them how they use their choice of words.

1877
01:36:57,347 --> 01:36:59,083
- But I've been in a situation where

1878
01:36:59,083 --> 01:37:01,677
they've talked to the family, "What would you like us to do?

1879
01:37:01,677 --> 01:37:03,083
And the family said "Oh, we'd like

1880
01:37:03,083 --> 01:37:05,422
"everything done but we want him comfortable."

1881
01:37:05,422 --> 01:37:09,237
So they took that as oh, he's full code.

1882
01:37:09,237 --> 01:37:11,912
So I started talking, it was Cindy Frusi and I,

1883
01:37:11,912 --> 01:37:14,577
Cindy Frusi and I said well you know, when he--

1884
01:37:14,577 --> 01:37:15,532
- [Nurse] Who are you talking about?

1885
01:37:15,532 --> 01:37:17,108
- This is a guy a couple years ago.

1886
01:37:17,108 --> 01:37:19,400
Cindy Frusi and I basically got a DNR status

1887
01:37:19,400 --> 01:37:22,091
on this guy at one o'clock in the morning.

1888
01:37:22,091 --> 01:37:25,027
I mean it was just, well do you realize that if he dies,

1889
01:37:25,027 --> 01:37:28,932
if he stops breathing, we will shove a tube down his throat,

1890
01:37:28,932 --> 01:37:31,173
we will press on his chest,

1891
01:37:31,173 --> 01:37:34,121
put big lines in his neck, et cetera, et cetera.

1892
01:37:34,121 --> 01:37:35,568
"Oh no, we don't want that."

1893
01:37:35,568 --> 01:37:38,047
I said "Well that's what they're asking you to decide.

1894
01:37:38,047 --> 01:37:43,047
"When you say you want everything done, that's everything."

1895
01:37:43,639 --> 01:37:45,242
So they said "Oh no,

1896
01:37:45,242 --> 01:37:46,789
"we don't want that, we want him comfortable,"

1897
01:37:46,789 --> 01:37:49,021
I said "Well then that's what you have to tell us.

1898
01:37:49,021 --> 01:37:51,213
"You have to tell us that you don't want drastic

1899
01:37:51,213 --> 01:37:54,366
"measures taken and those are the big drastic measures.

1900
01:37:54,366 --> 01:37:56,536
"Those are things that you don't want to see

1901
01:37:56,536 --> 01:37:58,932
"and that you don't want to see him go through."

1902
01:37:58,932 --> 01:38:01,708
And we basically said, I basically said,

1903
01:38:01,708 --> 01:38:03,646
I forget who it was, I said "Come here,

1904
01:38:03,646 --> 01:38:05,678
"please, the family has something to tell you."

1905
01:38:05,678 --> 01:38:07,130
Da da da, "They don't want this done."

1906
01:38:07,130 --> 01:38:09,803
Okay, we have a DNR order.

1907
01:38:09,803 --> 01:38:11,924
- You were there. - One o'clock in the morning.

1908
01:38:11,924 --> 01:38:14,330
- [Nurse] Did you call the family back, Jane?

1909
01:38:14,330 --> 01:38:17,268
- They were there, they stayed through the night

1910
01:38:17,268 --> 01:38:19,344
and we put him on a morphine drip

1911
01:38:19,344 --> 01:38:22,017
and he got very short, he was a guy with

1912
01:38:22,017 --> 01:38:24,636
lung cancer or something and he was at home

1913
01:38:24,636 --> 01:38:26,455
for six months, eight months and they'd taken

1914
01:38:26,455 --> 01:38:28,976
care of him and they realized this was the end.

1915
01:38:28,976 --> 01:38:32,047
But he was in the ICU because the decision hadn't been made.

1916
01:38:32,047 --> 01:38:34,484
He was like this, being intubated

1917
01:38:34,484 --> 01:38:36,901
and we basically coordinated.

1918
01:38:38,751 --> 01:38:41,483
They physicians weren't listening to what the family

1919
01:38:41,483 --> 01:38:45,018
was saying and as you spent more time with the family,

1920
01:38:45,018 --> 01:38:47,797
as you spent more time with the family,

1921
01:38:47,797 --> 01:38:50,004
you got an idea of where they were sitting

1922
01:38:50,004 --> 01:38:52,454
and the physicians were busy.

1923
01:38:52,454 --> 01:38:54,644
So that's, I mean that's the role we play.

1924
01:38:54,644 --> 01:38:57,127
It was a true patient advocate situation,

1925
01:38:57,127 --> 01:38:59,669
patient-family advocate situation including the family,

1926
01:38:59,669 --> 01:39:01,834
you know, what really do you want to happen?

1927
01:39:01,834 --> 01:39:04,212
You don't come here without dealing with it first.

1928
01:39:04,212 --> 01:39:06,163
I mean my first month here was,

1929
01:39:06,163 --> 01:39:08,688
I mean I was an emotional wreck

1930
01:39:08,688 --> 01:39:10,928
because all my patients died.

1931
01:39:10,928 --> 01:39:13,416
I was like what was I doing?

1932
01:39:13,416 --> 01:39:15,438
It was very frustrating but then you solve it

1933
01:39:15,438 --> 01:39:18,559
and you say these people are better off dead.

1934
01:39:18,559 --> 01:39:19,891
They're more at peace,

1935
01:39:19,891 --> 01:39:21,972
but it also is the way I deal with it.

1936
01:39:21,972 --> 01:39:24,127
My religion, my morals, what I do,

1937
01:39:24,127 --> 01:39:26,702
how I live my life, my philosophy, da da da da

1938
01:39:26,702 --> 01:39:28,644
and everybody has to do that within themselves

1939
01:39:28,644 --> 01:39:30,473
and that's why everybody deals with it

1940
01:39:30,473 --> 01:39:33,973
individually and presents it individually.

1941
01:40:25,130 --> 01:40:28,048
(patient coughing)

1942
01:40:32,759 --> 01:40:35,516
- [Nurse] You need your pillow?

1943
01:40:35,516 --> 01:40:36,683
Are you there?

1944
01:40:37,798 --> 01:40:39,215
What's too tight?

1945
01:41:31,744 --> 01:41:36,161
You were a little better than what you tested before.

1946
01:41:43,327 --> 01:41:45,867
- [Doctor] Because we've all agreed that since her

1947
01:41:45,867 --> 01:41:48,596
troubles were transient, that intubation was an appropriate

1948
01:41:48,596 --> 01:41:51,957
form of therapy in spite of the fact that overall

1949
01:41:51,957 --> 01:41:55,925
in the event of death, she's not to be resuscitated.

1950
01:41:55,925 --> 01:41:57,832
- Right but I guess my concern is that

1951
01:41:57,832 --> 01:42:01,217
she's been intubated five times in six months.

1952
01:42:01,217 --> 01:42:04,443
- Yeah but each time with a reversible phenomenon.

1953
01:42:04,443 --> 01:42:06,103
Look how much better she is now.

1954
01:42:06,103 --> 01:42:07,260
- No, I agree.

1955
01:42:07,260 --> 01:42:08,618
- So I think that would still be an

1956
01:42:08,618 --> 01:42:11,400
appropriate part of regular care as opposed to--

1957
01:42:11,400 --> 01:42:13,466
- So with any type of--

1958
01:42:13,466 --> 01:42:18,135
- If we extubate her and then she has a VF arrest,

1959
01:42:18,135 --> 01:42:21,302
she's to go but if as part of hypoxia,

1960
01:42:22,456 --> 01:42:24,614
we decide to re-intubate her, we'll do it again.

1961
01:42:24,614 --> 01:42:26,353
I wouldn't hesitate to do that.

1962
01:42:26,353 --> 01:42:29,202
She just has marginal lungs and complicates with either

1963
01:42:29,202 --> 01:42:33,159
failure or pneumonia but those are both reversible.

1964
01:42:33,159 --> 01:42:35,975
- True but in the broad spectrum of the picture,

1965
01:42:35,975 --> 01:42:39,280
she has COPD to begin with, she's now immobile.

1966
01:42:39,280 --> 01:42:42,210
She has very poor airway clearance to begin with.

1967
01:42:42,210 --> 01:42:44,654
Aren't we talking about a chronic situation?

1968
01:42:44,654 --> 01:42:46,102
- We are because she's going to go to

1969
01:42:46,102 --> 01:42:47,679
a chronic hospital from here but still

1970
01:42:47,679 --> 01:42:49,406
she's entitled to life if she can get it.

1971
01:42:49,406 --> 01:42:52,442
- For sure, I guess what I'm actually bringing up is

1972
01:42:52,442 --> 01:42:56,883
is there any concern about perhaps traching this lady?

1973
01:42:56,883 --> 01:42:59,246
- Oh yes, depending on how reversible it is--

1974
01:42:59,246 --> 01:43:00,486
- I guess that's what I'm asking.

1975
01:43:00,486 --> 01:43:02,779
I mean is that the only way to protect her airway?

1976
01:43:02,779 --> 01:43:04,520
- Well we're not sure that that'll protect it

1977
01:43:04,520 --> 01:43:07,083
because even a trach doesn't prevent you from aspiration.

1978
01:43:07,083 --> 01:43:09,704
- [Anne-Louise] Surely, surely but

1979
01:43:09,704 --> 01:43:12,050
and knowing how he's dealing with things,

1980
01:43:12,050 --> 01:43:13,833
if that has to end up-- - We in fact have

1981
01:43:13,833 --> 01:43:15,587
sort of started to explore that with him.

1982
01:43:15,587 --> 01:43:16,638
- You have, oh okay.

1983
01:43:16,638 --> 01:43:18,008
- What his reaction would be I don't know yet

1984
01:43:18,008 --> 01:43:19,541
because we haven't come down to the moment

1985
01:43:19,541 --> 01:43:21,162
where we've said "Well, now you must make a choice."

1986
01:43:21,162 --> 01:43:22,486
- Yes.

1987
01:43:22,486 --> 01:43:25,968
So at this point then for any respiratory compromise,

1988
01:43:25,968 --> 01:43:27,705
you would want her re-intubated.

1989
01:43:27,705 --> 01:43:29,035
- Yeah. - Okay.

1990
01:43:29,035 --> 01:43:32,202
All right, thank you very much Doctor.

1991
01:43:33,902 --> 01:43:37,068
(metallic clattering)

1992
01:43:38,967 --> 01:43:41,175
- Which we did do yesterday. - Let's do this then.

1993
01:43:41,175 --> 01:43:44,155
Let's put her on 30%, let's bring her down to four,

1994
01:43:44,155 --> 01:43:46,231
let's get a gas on four, see how she's doing and then

1995
01:43:46,231 --> 01:43:49,202
we can watch her for awhile and see how she does.

1996
01:43:49,202 --> 01:43:51,492
- The problem with her is that she really feels

1997
01:43:51,492 --> 01:43:53,642
a difference between six and four and she'll tell you

1998
01:43:53,642 --> 01:43:56,205
she's short of breath but her rate actually is

1999
01:43:56,205 --> 01:44:00,187
no faster than what it is when she's extubated.

2000
01:44:00,187 --> 01:44:04,114
Easier said than done, I mean that's how she breathes.

2001
01:44:04,114 --> 01:44:06,773
- What are the plans in terms of re-intubation?

2002
01:44:06,773 --> 01:44:09,431
- I'm glad you brought that up because I just had a

2003
01:44:09,431 --> 01:44:13,346
talk with Dr. Kerlind about that and his feeling is that,

2004
01:44:13,346 --> 01:44:16,840
he just left, if again she has any type of

2005
01:44:16,840 --> 01:44:20,349
respiratory compromise unassociated with a V-tach

2006
01:44:20,349 --> 01:44:22,867
or V-fib arrest that she is to be re-intubated.

2007
01:44:22,867 --> 01:44:27,255
So I said but she's been intubated five times in six months,

2008
01:44:27,255 --> 01:44:29,905
are we talking about something more chronic

2009
01:44:29,905 --> 01:44:31,895
in terms of protecting her airway?

2010
01:44:31,895 --> 01:44:33,773
Because she's always gonna be,

2011
01:44:33,773 --> 01:44:35,870
have a poor airway clearance.

2012
01:44:35,870 --> 01:44:38,612
She does have COPD, she does have failure.

2013
01:44:38,612 --> 01:44:41,228
And he said well he has thought about

2014
01:44:41,228 --> 01:44:43,934
the discussion of a trach with Dr. Factor

2015
01:44:43,934 --> 01:44:45,639
but hasn't yet brought it up.

2016
01:44:45,639 --> 01:44:47,387
But as it stands right now, he would want her

2017
01:44:47,387 --> 01:44:51,054
re-intubated for any respiratory compromise.

2018
01:44:54,462 --> 01:44:55,379
So-- - Okay.

2019
01:44:56,835 --> 01:44:59,418
- That's where we're at. - Okay.

2020
01:45:00,281 --> 01:45:02,648
- [Scott] Well but it sounds like we have a plan though.

2021
01:45:02,648 --> 01:45:04,991
What George is saying that you know,

2022
01:45:04,991 --> 01:45:06,527
we get her off the ventilator,

2023
01:45:06,527 --> 01:45:10,120
if she fails again, then we do a trach.

2024
01:45:10,120 --> 01:45:12,864
- He said re-intubated, yeah we have to think about a trach.

2025
01:45:12,864 --> 01:45:15,607
He's still putting the trach in a very futuristic light.

2026
01:45:15,607 --> 01:45:18,264
- [Scott] But I mean that would be the next step.

2027
01:45:18,264 --> 01:45:20,031
- Right but I'd rather hit him with it

2028
01:45:20,031 --> 01:45:22,261
before she actually gets extubated this time,

2029
01:45:22,261 --> 01:45:23,867
being that she may need to be re-intubated

2030
01:45:23,867 --> 01:45:25,433
during the night when no one's around

2031
01:45:25,433 --> 01:45:26,923
other than those of us that care for her.

2032
01:45:26,923 --> 01:45:28,419
- [Scott] But you wouldn't do a trach in the middle of--

2033
01:45:28,419 --> 01:45:29,909
- No but that's what I'm saying.

2034
01:45:29,909 --> 01:45:31,469
She would get re-intubated and then we'd be

2035
01:45:31,469 --> 01:45:34,353
back to having this discussion again without any--

2036
01:45:34,353 --> 01:45:36,232
- Plan. - Longer-term plan.

2037
01:45:36,232 --> 01:45:38,443
That's all I'm trying to say is that

2038
01:45:38,443 --> 01:45:40,008
there's a very good chance of that happening again.

2039
01:45:40,008 --> 01:45:41,620
She's doing fine and I think we will

2040
01:45:41,620 --> 01:45:43,327
get it dissipated by the end of the week.

2041
01:45:43,327 --> 01:45:44,862
- [Scott] It's gonna happen again, whether it'll

2042
01:45:44,862 --> 01:45:46,958
happen a month from now or two weeks from now or--

2043
01:45:46,958 --> 01:45:48,701
- I think it's kinda cruel to keep putting this little

2044
01:45:48,701 --> 01:45:52,061
old lady through being re-intubated all the time too.

2045
01:45:52,061 --> 01:45:53,644
I mean that's not a

2046
01:45:54,707 --> 01:45:55,540
simple

2047
01:45:56,567 --> 01:45:58,094
procedure.

2048
01:45:58,094 --> 01:45:59,428
- [Scott] Right.

2049
01:46:01,570 --> 01:46:03,438
I don't know, maybe--

2050
01:46:03,438 --> 01:46:04,770
- I don't know what his reasoning is.

2051
01:46:04,770 --> 01:46:06,054
- [Scott] Maybe he can't make up

2052
01:46:06,054 --> 01:46:09,943
his mind whether he wants to, you know,

2053
01:46:09,943 --> 01:46:13,312
whether he wants to just call it a day and

2054
01:46:13,312 --> 01:46:14,145
not

2055
01:46:16,706 --> 01:46:18,236
re-intubate her.

2056
01:46:18,236 --> 01:46:19,736
I don't know, I'll talk to him some more about it.

2057
01:46:19,736 --> 01:46:20,568
- Okay.

2058
01:46:36,037 --> 01:46:39,270
- [Nurse] So I just sense it's really difficult.

2059
01:46:39,270 --> 01:46:40,841
I get this old man and he

2060
01:46:40,841 --> 01:46:44,008
shows up with these cookies every day.

2061
01:46:45,109 --> 01:46:48,210
- You have a call, line five.

2062
01:46:48,210 --> 01:46:53,127
Dr. Factor, you can go in and see your wife if you want to.

2063
01:47:05,068 --> 01:47:06,577
- [Scott] The thing to do would be to do

2064
01:47:06,577 --> 01:47:10,327
a trach if you want to keep pressing on here.

2065
01:47:11,225 --> 01:47:14,267
- It's a terribly difficult case, her husband

2066
01:47:14,267 --> 01:47:15,517
as you know has

2067
01:47:17,300 --> 01:47:21,148
agreed that it would make no sense to do

2068
01:47:21,148 --> 01:47:24,262
a resuscitative procedure, on the other hand,

2069
01:47:24,262 --> 01:47:26,178
to keep preventing exactly this kind of

2070
01:47:26,178 --> 01:47:28,080
thing which is going on while she's alive,

2071
01:47:28,080 --> 01:47:30,057
I think it might be worth considering.

2072
01:47:30,057 --> 01:47:31,827
But she was the strong member of the family.

2073
01:47:31,827 --> 01:47:33,405
She'll have an opinion herself about whether

2074
01:47:33,405 --> 01:47:35,550
she wants to do this and she is--

2075
01:47:35,550 --> 01:47:36,797
- I think we should talk to her about it

2076
01:47:36,797 --> 01:47:39,305
because I think that the pattern over

2077
01:47:39,305 --> 01:47:42,491
the last couple of months is pretty clear that she's,

2078
01:47:42,491 --> 01:47:45,612
I mean she's aspirated two or three times.

2079
01:47:45,612 --> 01:47:47,520
With the stroke, she's just not,

2080
01:47:47,520 --> 01:47:49,990
I suppose even with a gastrostomy

2081
01:47:49,990 --> 01:47:52,937
which was supposed to be the other thing--

2082
01:47:52,937 --> 01:47:54,300
- She already has feeding,

2083
01:47:54,300 --> 01:47:56,349
doesn't she have a feeding gastrostomy already?

2084
01:47:56,349 --> 01:47:58,255
That just doesn't protect you.

2085
01:47:58,255 --> 01:48:00,090
- She can't handle her secretions.

2086
01:48:00,090 --> 01:48:04,007
She has no bulbar muscle, so I mean it's gonna,

2087
01:48:04,959 --> 01:48:07,370
it may be two weeks

2088
01:48:07,370 --> 01:48:08,985
but it's gonna be,

2089
01:48:08,985 --> 01:48:10,478
I think we should probably talk to her

2090
01:48:10,478 --> 01:48:11,952
about it now that she's got the tube out.

2091
01:48:11,952 --> 01:48:13,589
- [George] Well we'll discuss it with him first but

2092
01:48:13,589 --> 01:48:16,380
then I think the ultimate decision has to be made by her.

2093
01:48:16,380 --> 01:48:17,214
- Right.

2094
01:49:28,615 --> 01:49:29,865
All right, well

2095
01:49:31,594 --> 01:49:33,048
I think there are a couple of issues.

2096
01:49:33,048 --> 01:49:34,965
One is that she failed,

2097
01:49:39,976 --> 01:49:43,976
admittedly the long term problem is gonna recur.

2098
01:49:45,050 --> 01:49:46,638
Eventually she's gonna re-aspirate,

2099
01:49:46,638 --> 01:49:48,636
she's gonna get another pneumophonia

2100
01:49:48,636 --> 01:49:51,699
and if she has a trach, then you can treat this.

2101
01:49:51,699 --> 01:49:54,518
On the other hand, she may not want a trach.

2102
01:49:54,518 --> 01:49:56,712
So I mean I think that

2103
01:49:56,712 --> 01:50:00,202
I'll talk to her about a trach right now.

2104
01:50:00,202 --> 01:50:02,333
I'd like to get her opinion sort of when George

2105
01:50:02,333 --> 01:50:06,041
isn't here and sort of see what, how she feels about it

2106
01:50:06,041 --> 01:50:07,985
when her husband isn't here because he's pretty fragile.

2107
01:50:07,985 --> 01:50:10,652
So I'd like to talk to her myself about that.

2108
01:50:10,652 --> 01:50:12,109
- Nobody ever tells her what's going on,

2109
01:50:12,109 --> 01:50:14,442
certainly her husband doesn't, we don't

2110
01:50:14,442 --> 01:50:16,307
and George doesn't and she expressed that

2111
01:50:16,307 --> 01:50:20,224
frustration yesterday to Sue after George left.

2112
01:50:21,116 --> 01:50:23,052
- [Scott] Well George is never gonna either.

2113
01:50:23,052 --> 01:50:24,641
- She didn't say anything, she just rolled

2114
01:50:24,641 --> 01:50:27,463
her eyes after he had been very chipper in

2115
01:50:27,463 --> 01:50:29,198
how good she was doing and all this stuff

2116
01:50:29,198 --> 01:50:31,092
and she clearly was disgusted and frustrated.

2117
01:50:31,092 --> 01:50:32,800
- [Scott] Now and then I'll catch up with you guys.

2118
01:50:32,800 --> 01:50:35,011
- In terms of the plan for the day then,

2119
01:50:35,011 --> 01:50:37,202
we're gonna try to extubate again today?

2120
01:50:37,202 --> 01:50:38,478
- No. - No.

2121
01:50:38,478 --> 01:50:40,663
- We just buff her gases though.

2122
01:50:40,663 --> 01:50:43,527
She likes, IMVF6 seems to be a good place for her.

2123
01:50:43,527 --> 01:50:46,048
- Let me talk to her first to see how she feels.

2124
01:50:46,048 --> 01:50:48,216
Let me talk to her first and see how she feels.

2125
01:50:48,216 --> 01:50:50,609
My own personal feeling would be that

2126
01:50:50,609 --> 01:50:52,437
I would try to get her gases buffed and try

2127
01:50:52,437 --> 01:50:54,868
again tomorrow but I would do it a different way.

2128
01:50:54,868 --> 01:50:57,695
I would TP wean her and give her some diuretic

2129
01:50:57,695 --> 01:50:58,903
and see if she could--

2130
01:50:58,903 --> 01:51:00,304
- [Anne-Louise] In the past she's always TP wean,

2131
01:51:00,304 --> 01:51:02,187
she's never been cold turkey.

2132
01:51:02,187 --> 01:51:04,476
- I think we've pulled things in a little,

2133
01:51:04,476 --> 01:51:07,195
we were a bit abrupt yesterday and that

2134
01:51:07,195 --> 01:51:11,398
she went into pulmonary edema in part because of that.

2135
01:51:11,398 --> 01:51:13,921
My inclination would be to sort of get her

2136
01:51:13,921 --> 01:51:16,045
buffed up today, give her some diuretic

2137
01:51:16,045 --> 01:51:18,689
early tomorrow morning, you know,

2138
01:51:18,689 --> 01:51:21,337
when she's on sort of four breaths and then--

2139
01:51:21,337 --> 01:51:24,760
- [Anne-Louise] Right, we've done on IMP04 and that usually

2140
01:51:24,760 --> 01:51:28,166
pulls her longer than an hour once you TP and extubate her.

2141
01:51:28,166 --> 01:51:30,680
- Exactly and my feeling would be depending

2142
01:51:30,680 --> 01:51:33,887
on what she says today, either

2143
01:51:33,887 --> 01:51:37,996
she comes off the ventilator tomorrow and she does okay

2144
01:51:37,996 --> 01:51:41,831
and we don't re-intubate her or she doesn't

2145
01:51:41,831 --> 01:51:44,459
come off the ventilator tomorrow and she

2146
01:51:44,459 --> 01:51:49,018
ends up going for a trach if that's what she wants.

2147
01:51:49,018 --> 01:51:52,702
Is anybody else, I mean I think you know,

2148
01:51:52,702 --> 01:51:54,945
the thing that makes this case tougher than

2149
01:51:54,945 --> 01:51:58,553
some other ones is that George is not free-flowing

2150
01:51:58,553 --> 01:52:00,835
with his feelings and he really likes to keep control

2151
01:52:00,835 --> 01:52:03,636
of the case himself so that it's much more difficult

2152
01:52:03,636 --> 01:52:07,209
to sort of deal with him and say well, you know.

2153
01:52:07,209 --> 01:52:10,055
He's not inclined to sort of really open up to her

2154
01:52:10,055 --> 01:52:13,094
and tell her, he's more the kind of doctor who's

2155
01:52:13,094 --> 01:52:16,246
gonna just sorta do what he thinks needs to be done.

2156
01:52:16,246 --> 01:52:18,909
He's gonna go ahead and say "You need a trach."

2157
01:52:18,909 --> 01:52:21,129
Rather than "These are your choices."

2158
01:52:21,129 --> 01:52:23,089
- [Anne-Louise] I think you just have to take into account

2159
01:52:23,089 --> 01:52:24,993
before you speak to her that most therapies

2160
01:52:24,993 --> 01:52:27,362
she refuses from chest PT to Albuterol,

2161
01:52:27,362 --> 01:52:30,087
I mean everything is no, so you have to think

2162
01:52:30,087 --> 01:52:31,865
about that when you're asking her for her

2163
01:52:31,865 --> 01:52:34,210
honest opinion of how she feels about the trach.

2164
01:52:34,210 --> 01:52:36,068
She doesn't want to do what we do to her

2165
01:52:36,068 --> 01:52:38,710
on a day to day basis if you just went by that.

2166
01:52:38,710 --> 01:52:41,103
- If that's true-- - A really significant fact.

2167
01:52:41,103 --> 01:52:44,368
- Of course it is. - Nobody has ever asked her,

2168
01:52:44,368 --> 01:52:46,736
this isn't fair then.

2169
01:52:46,736 --> 01:52:48,555
- Who are we doing this for? - Exactly.

2170
01:52:48,555 --> 01:52:51,972
- George or her? - That's what I'm saying.

2171
01:52:53,126 --> 01:52:55,331
Clearly and with all her admissions,

2172
01:52:55,331 --> 01:52:58,081
she's said no to most everything.

2173
01:52:58,973 --> 01:53:01,536
But we don't usually give her the choice.

2174
01:53:01,536 --> 01:53:05,764
- Clearly she should be able to make the decision

2175
01:53:05,764 --> 01:53:08,207
and that's the hospital policy, right?

2176
01:53:08,207 --> 01:53:09,407
- [Scott] Right.

2177
01:53:09,407 --> 01:53:11,672
- She's certainly with it, I mean she's almost

2178
01:53:11,672 --> 01:53:15,288
always with it enough to make those decisions.

2179
01:53:15,288 --> 01:53:18,904
- [Anne-Louise] This is not her best time of the day either.

2180
01:53:18,904 --> 01:53:20,835
Around 11 or 12 o'clock, no really,

2181
01:53:20,835 --> 01:53:23,698
quite frankly it takes a long time to wake her up.

2182
01:53:23,698 --> 01:53:25,110
- I'm trying to be a little proactive here.

2183
01:53:25,110 --> 01:53:27,103
I'd like to get in there before Kerlind comes by.

2184
01:53:27,103 --> 01:53:31,170
He's doing rounds, he's not gonna be up here until 10:30.

2185
01:53:31,170 --> 01:53:33,696
So if I can talk to her now and then say to him

2186
01:53:33,696 --> 01:53:37,209
"Listen George, she doesn't want a trach."

2187
01:53:37,209 --> 01:53:41,175
Then I can take, I'm gonna have to take him on

2188
01:53:41,175 --> 01:53:44,434
because he's gonna, he'll give me a lot of crap

2189
01:53:44,434 --> 01:53:47,050
about how dare I talk to his patient,

2190
01:53:47,050 --> 01:53:49,058
you know and all the rest of this.

2191
01:53:49,058 --> 01:53:50,716
- Blame it on the husband. - What?

2192
01:53:50,716 --> 01:53:52,661
- Blame it on the husband. - No.

2193
01:53:52,661 --> 01:53:56,271
I'm a big boy, I can take care of myself.

2194
01:53:56,271 --> 01:53:57,298
- [Nurse] Are you bigger than he is?

2195
01:53:57,298 --> 01:53:58,544
- If she doesn't want the trach,

2196
01:53:58,544 --> 01:53:59,952
she has to know that the option is

2197
01:53:59,952 --> 01:54:02,943
not to be re-intubated every week

2198
01:54:02,943 --> 01:54:05,026
and that she's gonna die.

2199
01:54:06,040 --> 01:54:07,900
- I can make it clear to her what the options are,

2200
01:54:07,900 --> 01:54:10,666
I think I know what the options are.

2201
01:54:10,666 --> 01:54:12,558
But I think the thing that jacks up everyone's

2202
01:54:12,558 --> 01:54:15,827
anxiety in a case like this is that you know,

2203
01:54:15,827 --> 01:54:19,509
got an attending physician who's...

2204
01:54:19,509 --> 01:54:21,943
- [Anne-Louise] Who may not agree with her wishes.

2205
01:54:21,943 --> 01:54:24,686
- Yeah I mean you know, everything here is

2206
01:54:24,686 --> 01:54:28,339
sorta build on Quaker concept of consensus, you know?

2207
01:54:28,339 --> 01:54:30,206
So what the patient wants, the house staff wants,

2208
01:54:30,206 --> 01:54:35,070
the nurses want, the doctors want and what the family wants

2209
01:54:35,070 --> 01:54:38,993
and every time you have difficulty, it's because one of

2210
01:54:38,993 --> 01:54:43,993
those elements is out of sync and that's what we got here.

2211
01:54:44,264 --> 01:54:46,579
Not from the family, not from the patient I don't think.

2212
01:54:46,579 --> 01:54:47,939
Not from the nurses and not from

2213
01:54:47,939 --> 01:54:50,210
the staffing unit but from the doctor.

2214
01:54:50,210 --> 01:54:51,526
So let me talk to her.

2215
01:54:51,526 --> 01:54:54,109
- Still when we, she clearly is

2216
01:54:55,353 --> 01:54:56,186
agreeing.

2217
01:54:57,684 --> 01:54:59,620
- And as a matter of fact when you pushed

2218
01:54:59,620 --> 01:55:02,156
the DNR when she looked like she was going down the tubes--

2219
01:55:02,156 --> 01:55:04,673
- I hardly pushed, all I did was ask

2220
01:55:04,673 --> 01:55:06,709
and her husband said "Oh, that's ridiculous.

2221
01:55:06,709 --> 01:55:08,755
"I wouldn't have wanted you to do that in any case."

2222
01:55:08,755 --> 01:55:11,552
But then when I presented that to Kerlind, he said fine.

2223
01:55:11,552 --> 01:55:13,414
- [Doctor] I think maybe George will be

2224
01:55:13,414 --> 01:55:14,950
relieved if we do it for him. - Yeah.

2225
01:55:14,950 --> 01:55:16,395
- [Anne-Louise] Well the one other thing you have

2226
01:55:16,395 --> 01:55:18,254
to know in terms of the doctor factor is yes,

2227
01:55:18,254 --> 01:55:19,871
he can say "Oh no, I wouldn't want

2228
01:55:19,871 --> 01:55:21,784
"you to shock her and pump on her chest."

2229
01:55:21,784 --> 01:55:23,438
And he was surprised that it took so long for us

2230
01:55:23,438 --> 01:55:25,276
to even bring it up, that's what he said to me.

2231
01:55:25,276 --> 01:55:27,680
However when she is short of breath,

2232
01:55:27,680 --> 01:55:29,258
his anxiety goes like this.

2233
01:55:29,258 --> 01:55:31,646
He drags me in there, whether it's on

2234
01:55:31,646 --> 01:55:34,348
the vent or it's extubated and I don't know--

2235
01:55:34,348 --> 01:55:36,299
- Right but a morphine drip takes care of that.

2236
01:55:36,299 --> 01:55:38,966
- [Anne-Louise] Right, I mean...

2237
01:55:41,737 --> 01:55:44,114
- Okay. - Thank you.

2238
01:55:44,114 --> 01:55:47,364
Medical Intensive Care, can I help you?

2239
01:56:02,215 --> 01:56:03,776
- [Anne-Louise] I think all concentration

2240
01:56:03,776 --> 01:56:05,693
is taking the next breath.

2241
01:56:05,693 --> 01:56:07,559
I don't think it was anger or something.

2242
01:56:07,559 --> 01:56:09,254
- She understood everything in there.

2243
01:56:09,254 --> 01:56:10,587
- Oh, absolutely. - Definitely.

2244
01:56:10,587 --> 01:56:12,330
And I think it's great. - And Scott was good with him.

2245
01:56:12,330 --> 01:56:15,314
He really, he went over everything he talked about

2246
01:56:15,314 --> 01:56:18,388
with her and wanted me to see what she was saying

2247
01:56:18,388 --> 01:56:21,177
and it sounds to me and it looks to me like she

2248
01:56:21,177 --> 01:56:23,866
was in complete understanding of the options

2249
01:56:23,866 --> 01:56:26,441
and I did ask her, I said "All the other times, this is

2250
01:56:26,441 --> 01:56:28,730
"the sixth time that you've been put on the breathing

2251
01:56:28,730 --> 01:56:32,210
"machine, did you want us to do it all these times?"

2252
01:56:32,210 --> 01:56:33,866
- I know, I knew how she felt.

2253
01:56:33,866 --> 01:56:35,684
- [Anne-Louise] That's why I felt like I had to apologize

2254
01:56:35,684 --> 01:56:38,710
to her because I said sometimes we just get overtaken

2255
01:56:38,710 --> 01:56:41,037
with treating the fact that you're not breathing well

2256
01:56:41,037 --> 01:56:43,940
and we need to do something about that.

2257
01:56:43,940 --> 01:56:47,982
- Sometimes he'll go in there and like once she reaches for

2258
01:56:47,982 --> 01:56:51,096
the tube or whatever and she looks right at him and it's

2259
01:56:51,096 --> 01:56:55,128
like, she just looks at him as if to say what are you doing?

2260
01:56:55,128 --> 01:56:57,421
She's trying in her own way to subtly

2261
01:56:57,421 --> 01:57:00,233
indicate to him because it's obvious she's

2262
01:57:00,233 --> 01:57:03,291
been the strong one and is trying to help him.

2263
01:57:03,291 --> 01:57:04,851
- Right. - She's trying to help him

2264
01:57:04,851 --> 01:57:06,698
deal with her death, it's amazing.

2265
01:57:06,698 --> 01:57:09,193
- And that is the dynamics of their relationship.

2266
01:57:09,193 --> 01:57:11,895
I mean that she really has always been strong

2267
01:57:11,895 --> 01:57:13,754
and that he is absolutely so devoted

2268
01:57:13,754 --> 01:57:16,687
and at a loss without her and to have her

2269
01:57:16,687 --> 01:57:19,460
even be like this, to come to see her,

2270
01:57:19,460 --> 01:57:21,285
to at least have her be alive is

2271
01:57:21,285 --> 01:57:23,082
better to him than anything else.

2272
01:57:23,082 --> 01:57:24,208
- I agree, I agree.

2273
01:57:24,208 --> 01:57:25,739
- And that's where the problem is gonna lie,

2274
01:57:25,739 --> 01:57:27,648
especially if she crumps once she gets

2275
01:57:27,648 --> 01:57:30,059
extubated and the choice is made not to re-intubate.

2276
01:57:30,059 --> 01:57:31,682
- When she takes a turn for the worse,

2277
01:57:31,682 --> 01:57:33,800
I mean is he accepting death when he's running

2278
01:57:33,800 --> 01:57:36,977
to grab a stethoscope to listen or the blood pressure

2279
01:57:36,977 --> 01:57:40,368
dampened out on the thing, oh my god, her blood pressure and

2280
01:57:40,368 --> 01:57:42,853
it's like he wants somebody in there to fix it right away.

2281
01:57:42,853 --> 01:57:44,753
- [Anne-Louise] Meanwhile,

2282
01:57:44,753 --> 01:57:46,778
he hasn't come to terms with the words,

2283
01:57:46,778 --> 01:57:48,687
that he said no, I don't want her resuscitated.

2284
01:57:48,687 --> 01:57:51,112
But the event of a cardiac arrest

2285
01:57:51,112 --> 01:57:52,844
for Bernice is so minimal.

2286
01:57:52,844 --> 01:57:54,748
- That's why he could do it. - Right.

2287
01:57:54,748 --> 01:57:57,482
And that's why we got half of what I call a code status.

2288
01:57:57,482 --> 01:58:01,543
- But denying somebody a tube is a lot different from

2289
01:58:01,543 --> 01:58:04,789
defibrillating them once they've stopped breathing

2290
01:58:04,789 --> 01:58:07,183
or their heart has stopped it's totally different.

2291
01:58:07,183 --> 01:58:10,063
Especially since he's a physician and he realizes

2292
01:58:10,063 --> 01:58:13,156
to his own extent the difference between the two things.

2293
01:58:13,156 --> 01:58:14,362
- [Anne-Louise] Correct.

2294
01:58:14,362 --> 01:58:17,166
- But I'm glad you said something, that was wonderful.

2295
01:58:17,166 --> 01:58:20,137
- Well thanks Sue, I appreciate it.

2296
01:58:20,137 --> 01:58:23,782
- I spoke with Mrs. Factor and I've written a note here.

2297
01:58:23,782 --> 01:58:25,562
I had a long discussion with Mrs. Factor which

2298
01:58:25,562 --> 01:58:27,936
revolved around two areas, tracheostomy and re-intubation.

2299
01:58:27,936 --> 01:58:29,755
Mrs. Factor feels quite strongly that she does not want

2300
01:58:29,755 --> 01:58:31,573
to have a tracheostomy even though she realizes she will

2301
01:58:31,573 --> 01:58:34,061
die if she comes off the ventilator and is not re-intubated.

2302
01:58:34,061 --> 01:58:36,002
She's been re-intubated five times in the past two months

2303
01:58:36,002 --> 01:58:38,307
and feels that she has been through too much already.

2304
01:58:38,307 --> 01:58:39,841
She would also prefer not to have been

2305
01:58:39,841 --> 01:58:41,795
intubated at all the last two times

2306
01:58:41,795 --> 01:58:43,383
that I have seen her this month.

2307
01:58:43,383 --> 01:58:45,529
Given her wishes and the hopelessness of the situation,

2308
01:58:45,529 --> 01:58:47,313
I think her wishes are reasonable and will

2309
01:58:47,313 --> 01:58:49,058
discuss this with Dr. Kerlind to develop

2310
01:58:49,058 --> 01:58:51,968
a plan that incorporates Mrs. Factor's wishes.

2311
01:58:51,968 --> 01:58:55,111
She made it pretty clear that she,

2312
01:58:55,111 --> 01:58:58,611
as she put it, she thinks George is crazy.

2313
01:58:59,724 --> 01:59:01,250
- Is that what she said?

2314
01:59:01,250 --> 01:59:02,707
How did she communicate that to you?

2315
01:59:02,707 --> 01:59:04,112
I'm just curious.

2316
01:59:04,112 --> 01:59:06,112
- She mouthed the words.

2317
01:59:07,652 --> 01:59:10,145
I almost cried in there, I tell ya.

2318
01:59:10,145 --> 01:59:12,290
I think she's more difficult for me

2319
01:59:12,290 --> 01:59:15,046
than this lady, this lady's dead already.

2320
01:59:15,046 --> 01:59:18,702
You guys are flogging yourself but just she's gone.

2321
01:59:18,702 --> 01:59:21,370
Bernice is a lot harder problem.

2322
01:59:24,221 --> 01:59:27,545
A lot harder to walk into somebody's room who's

2323
01:59:27,545 --> 01:59:31,441
awake and alert and say "These are the options.

2324
01:59:31,441 --> 01:59:33,057
"Life in an institution with a tube in

2325
01:59:33,057 --> 01:59:37,307
"your throat on a machine or you can die tomorrow."

2326
01:59:39,061 --> 01:59:41,302
She had it much easier.

2327
01:59:41,302 --> 01:59:42,585
She didn't have to make the choice.

2328
01:59:42,585 --> 01:59:44,930
It happened real quick, she was out.

2329
01:59:44,930 --> 01:59:49,477
Just do it and be gone, it's a much better way to go.

2330
01:59:49,477 --> 01:59:50,660
I mean look what's happened to her.

2331
01:59:50,660 --> 01:59:51,942
She's been around for two months,

2332
01:59:51,942 --> 01:59:53,179
the doctor hasn't told her what's going on.

2333
01:59:53,179 --> 01:59:55,080
She's been intubated five times.

2334
01:59:55,080 --> 01:59:58,163
(electronic beeping)

2335
02:00:06,212 --> 02:00:08,638
I had a conversation with Mrs. Factor this morning.

2336
02:00:08,638 --> 02:00:10,212
- [George] Yeah.

2337
02:00:10,212 --> 02:00:13,333
- She is adamant about she wants that

2338
02:00:13,333 --> 02:00:16,730
tube out and she does not want a tracheostomy.

2339
02:00:16,730 --> 02:00:18,093
- [George] All right.

2340
02:00:18,093 --> 02:00:19,169
Well that's her privilege.

2341
02:00:19,169 --> 02:00:22,149
I rather thought that that's what she would say.

2342
02:00:22,149 --> 02:00:24,399
- [Scott] She is quite,

2343
02:00:24,399 --> 02:00:27,004
you have to know she said that she's,

2344
02:00:27,004 --> 02:00:28,326
I think when we re-intubated her

2345
02:00:28,326 --> 02:00:30,579
yesterday, she was really furious.

2346
02:00:30,579 --> 02:00:33,945
- Before she entered the hospital,

2347
02:00:33,945 --> 02:00:37,112
she set very rigid limits to her care.

2348
02:00:38,400 --> 02:00:41,673
Limits which were not in her own best interest.

2349
02:00:41,673 --> 02:00:43,422
- [Scott] I'm sure that's probably true.

2350
02:00:43,422 --> 02:00:47,244
- Always bargaining to accept the lesser

2351
02:00:47,244 --> 02:00:49,235
of two therapies and in part that's one

2352
02:00:49,235 --> 02:00:52,508
of the reasons that she has been so ill.

2353
02:00:52,508 --> 02:00:55,856
Not her stroke, which is major but with regard

2354
02:00:55,856 --> 02:00:58,260
to other aspects, both her heart failure

2355
02:00:58,260 --> 02:01:01,444
and her chronic lung disease, her overweight,

2356
02:01:01,444 --> 02:01:04,013
her obesity and hypertension, always accepting

2357
02:01:04,013 --> 02:01:06,798
the minimal amount of therapy and that only

2358
02:01:06,798 --> 02:01:10,772
after pushing and compromising and as you know,

2359
02:01:10,772 --> 02:01:14,054
her husband or physician was never able to

2360
02:01:14,054 --> 02:01:16,711
get her to agree with more than she wanted to

2361
02:01:16,711 --> 02:01:20,526
because she was the dominant member of the family.

2362
02:01:20,526 --> 02:01:22,059
- Well you know,

2363
02:01:22,059 --> 02:01:25,263
I mean I have to say looking at her situation now,

2364
02:01:25,263 --> 02:01:28,274
it's probably not unreasonable, you never know what

2365
02:01:28,274 --> 02:01:30,550
you'd do in that situation, it's really hard to say.

2366
02:01:30,550 --> 02:01:33,395
We'll try again to wean her tomorrow.

2367
02:01:33,395 --> 02:01:34,746
- [George] That's the last crack at it.

2368
02:01:34,746 --> 02:01:36,820
- Well no, I think you know,

2369
02:01:36,820 --> 02:01:38,994
see I'm not so pessimistic in the short term.

2370
02:01:38,994 --> 02:01:41,616
I always get 'em off but I mean

2371
02:01:41,616 --> 02:01:44,013
I don't know, I can't guarantee that she's not

2372
02:01:44,013 --> 02:01:47,290
gonna have, that she's gonna last for along time.

2373
02:01:47,290 --> 02:01:48,572
- [George] See the problem is that

2374
02:01:48,572 --> 02:01:50,312
she's gonna be left with the stiff ventricle.

2375
02:01:50,312 --> 02:01:51,489
- Right, right.

2376
02:01:51,489 --> 02:01:53,780
But I'd give her some diuretic before

2377
02:01:53,780 --> 02:01:55,514
and if she doesn't want it back in, fine.

2378
02:01:55,514 --> 02:01:57,057
- [George] No I mean in terms

2379
02:01:57,057 --> 02:01:58,828
of what's likely to happen under there.

2380
02:01:58,828 --> 02:02:00,439
- Well I mean it's, you know,

2381
02:02:00,439 --> 02:02:05,190
we're talking days, at the best days to you know, weeks.

2382
02:02:05,190 --> 02:02:08,912
Because she's gonna re-aspirate too.

2383
02:02:08,912 --> 02:02:11,718
I mean I think she made it very clear that

2384
02:02:11,718 --> 02:02:14,443
she knew that this meant that she was gonna die.

2385
02:02:14,443 --> 02:02:16,343
- And I think she does. - Yeah.

2386
02:02:16,343 --> 02:02:18,373
She understood that very clear when I

2387
02:02:18,373 --> 02:02:20,727
told it to her and I asked her, I said

2388
02:02:20,727 --> 02:02:23,503
"How do you think your husband will feel about this?"

2389
02:02:23,503 --> 02:02:24,503
And she said

2390
02:02:25,614 --> 02:02:27,114
"He'll accept it."

2391
02:02:29,881 --> 02:02:33,668
- But he's having a very hard time living with this.

2392
02:02:33,668 --> 02:02:36,961
He came over to my office yesterday afternoon

2393
02:02:36,961 --> 02:02:39,274
and he didn't have an appointment,

2394
02:02:39,274 --> 02:02:41,377
I said "What are you doing here?"

2395
02:02:41,377 --> 02:02:44,236
And I indicated that I knew what was going on and he

2396
02:02:44,236 --> 02:02:47,340
says "Well I just wanted to talk to you for a minute."

2397
02:02:47,340 --> 02:02:49,073
But I think what he really wanted to know was

2398
02:02:49,073 --> 02:02:50,983
did I really know and understand everything that

2399
02:02:50,983 --> 02:02:54,139
was going on and I think also he just wanted somebody

2400
02:02:54,139 --> 02:02:58,740
to talk to, to feel that somebody knew how he felt.

2401
02:02:58,740 --> 02:03:01,101
- [Scott] I think that probably the way to deal with

2402
02:03:01,101 --> 02:03:04,261
him is to just say look you know, we talked to her

2403
02:03:04,261 --> 02:03:06,203
and this is what she wants, this is what we can do.

2404
02:03:06,203 --> 02:03:08,461
We've done everything we can and--

2405
02:03:08,461 --> 02:03:09,953
- It'll be, he understands it.

2406
02:03:09,953 --> 02:03:12,653
- No, I think he's ready. - He's ready for that.

2407
02:03:12,653 --> 02:03:13,855
- Hi.

2408
02:03:13,855 --> 02:03:15,934
- As is the family of this man.

2409
02:03:15,934 --> 02:03:18,872
- Okay well I don't know him well enough.

2410
02:03:18,872 --> 02:03:21,687
Maybe we'll get him off, what do you think?

2411
02:03:21,687 --> 02:03:24,585
- The last two days he had been going

2412
02:03:24,585 --> 02:03:28,091
so steadily downhill on maximum therapy.

2413
02:03:28,091 --> 02:03:31,758
He's been on 60 milligrams of prednisone, on

2414
02:03:33,676 --> 02:03:34,843
large doses of

2415
02:03:36,004 --> 02:03:37,993
bronchodilators,

2416
02:03:37,993 --> 02:03:40,621
adrenergic stimulators.

2417
02:03:40,621 --> 02:03:42,750
This has been going on such a long time

2418
02:03:42,750 --> 02:03:44,692
and it's like her, a combination of

2419
02:03:44,692 --> 02:03:47,331
cardiac failure and chronic lung disease

2420
02:03:47,331 --> 02:03:48,941
that I am very pessimistic--

2421
02:03:48,941 --> 02:03:50,361
- It sounds like the family,

2422
02:03:50,361 --> 02:03:51,895
his family have made it pretty clear that they

2423
02:03:51,895 --> 02:03:56,448
did not want super aggressive things done for him.

2424
02:03:56,448 --> 02:03:58,360
- Again, there are strong

2425
02:03:58,360 --> 02:04:00,723
resemblances between the two cases.

2426
02:04:00,723 --> 02:04:03,724
He himself is the strong member of the family.

2427
02:04:03,724 --> 02:04:06,252
He runs it and there's a good deal of

2428
02:04:06,252 --> 02:04:08,899
resentment among others about the amount

2429
02:04:08,899 --> 02:04:13,244
of care and attention that he has required,

2430
02:04:13,244 --> 02:04:15,886
particularly with people not blood relatives but to whom

2431
02:04:15,886 --> 02:04:20,143
a lot of the responsibility has fallen and it's not easy.

2432
02:04:20,143 --> 02:04:21,393
- [Scott] Okay.

2433
02:04:41,819 --> 02:04:44,632
- I know how unhappy you are

2434
02:04:44,632 --> 02:04:47,799
that the tube had to go back in again.

2435
02:04:49,655 --> 02:04:51,238
But I was concerned

2436
02:04:52,936 --> 02:04:56,269
that you were getting so tired yesterday

2437
02:04:57,914 --> 02:04:58,747
that even

2438
02:05:00,108 --> 02:05:03,856
though we could expect good results,

2439
02:05:03,856 --> 02:05:06,851
you couldn't do it by yourself.

2440
02:05:06,851 --> 02:05:11,851
I also know that this is against your long term wishes

2441
02:05:12,009 --> 02:05:14,660
and Dr. Weiss and I have had a chat

2442
02:05:14,660 --> 02:05:19,660
about tracheostomy and I've explained to him that you

2443
02:05:19,666 --> 02:05:24,166
are a very intelligent and strong woman who has always

2444
02:05:25,108 --> 02:05:28,214
known what she wanted to do about her own health

2445
02:05:28,214 --> 02:05:29,881
and that your wishes

2446
02:05:30,733 --> 02:05:33,654
would be exactly what we would live by

2447
02:05:33,654 --> 02:05:35,966
and would be our guidelines.

2448
02:05:35,966 --> 02:05:38,549
That's what you want, isn't it?

2449
02:05:39,861 --> 02:05:40,694
Okay.

2450
02:05:45,418 --> 02:05:46,418
I anticipate

2451
02:05:47,889 --> 02:05:50,964
that we will be able to get this tube out

2452
02:05:50,964 --> 02:05:52,997
and that you will be able to

2453
02:05:52,997 --> 02:05:55,747
breathe the next time without it.

2454
02:05:56,734 --> 02:05:58,567
You just got congested

2455
02:05:59,873 --> 02:06:03,725
fairly quickly after it was taken out last time.

2456
02:06:03,725 --> 02:06:05,865
I think we will do better next time

2457
02:06:05,865 --> 02:06:08,198
and you will breathe easier.

2458
02:06:09,920 --> 02:06:13,699
Do I understand correctly however that if you should

2459
02:06:13,699 --> 02:06:17,741
tire a lot, then you don't want us to put it back in again?

2460
02:06:17,741 --> 02:06:19,074
Is that correct?

2461
02:06:23,118 --> 02:06:26,287
Do you understand what I'm saying?

2462
02:06:26,287 --> 02:06:28,287
Okay, if you should tire

2463
02:06:29,752 --> 02:06:32,335
after we take it out next time,

2464
02:06:33,724 --> 02:06:35,641
we'll have two choices.

2465
02:06:36,994 --> 02:06:39,161
We can either leave it out

2466
02:06:40,635 --> 02:06:43,192
or if we think you would benefit by it,

2467
02:06:43,192 --> 02:06:45,192
we could put it back in.

2468
02:06:46,125 --> 02:06:47,571
All right?

2469
02:06:47,571 --> 02:06:48,895
Okay.

2470
02:06:48,895 --> 02:06:52,361
Would you want us to put it back in again

2471
02:06:52,361 --> 02:06:55,028
if you start to tire without it?

2472
02:06:58,215 --> 02:06:59,584
Would you like to think about it

2473
02:06:59,584 --> 02:07:02,179
first before we make a final decision?

2474
02:07:02,179 --> 02:07:04,085
We've known each other a long time and you can

2475
02:07:04,085 --> 02:07:07,344
be perfectly honest in telling me what you want

2476
02:07:07,344 --> 02:07:10,011
and I will abide by your wishes.

2477
02:07:11,373 --> 02:07:12,206
Okay?

2478
02:07:13,763 --> 02:07:17,596
All right, you think about it and let me know.

2479
02:07:27,319 --> 02:07:30,013
Let's see if you can breathe against the machine.

2480
02:07:30,013 --> 02:07:31,263
All the way in.

2481
02:07:32,244 --> 02:07:33,984
All the way in.

2482
02:07:33,984 --> 02:07:34,817
Good.

2483
02:07:36,721 --> 02:07:39,096
I'll come back later, you think about it and we'll

2484
02:07:39,096 --> 02:07:41,876
talk again before we make the final effort to

2485
02:07:41,876 --> 02:07:45,415
take it out so we'll understand each other completely.

2486
02:07:45,415 --> 02:07:46,248
All right?

2487
02:07:47,365 --> 02:07:49,191
Are you tired now?

2488
02:07:49,191 --> 02:07:50,684
All right, then doze off and I'll

2489
02:07:50,684 --> 02:07:54,259
come back and we'll talk again later.

2490
02:07:54,259 --> 02:07:56,342
- Thank you, Dr. Kerlind.

2491
02:08:14,074 --> 02:08:15,678
I just want to make sure that you

2492
02:08:15,678 --> 02:08:18,069
understand what the options are

2493
02:08:18,069 --> 02:08:21,728
and Dr. Kerlind explained them to you very nicely.

2494
02:08:21,728 --> 02:08:25,267
If in fact we're able to take this tube out

2495
02:08:25,267 --> 02:08:28,463
and take you off of the breathing machine,

2496
02:08:28,463 --> 02:08:31,622
would it be your wish to not go back onto it

2497
02:08:31,622 --> 02:08:35,426
if in fact you were becoming tired and needing,

2498
02:08:35,426 --> 02:08:38,325
needing the support of a respirator?

2499
02:08:38,325 --> 02:08:41,242
Okay, that's the question.

2500
02:08:41,242 --> 02:08:44,032
Now you've been on it quite a few times so far.

2501
02:08:44,032 --> 02:08:47,722
So it's not that you don't know what it's like.

2502
02:08:47,722 --> 02:08:50,051
But it's very important that we understand what

2503
02:08:50,051 --> 02:08:54,384
you want so that we can abide and go by your wishes.

2504
02:08:55,778 --> 02:08:58,734
Being that we're working on trying to get,

2505
02:08:58,734 --> 02:09:00,672
are you paying attention to me?

2506
02:09:00,672 --> 02:09:04,543
Being that we're trying to understand what you want,

2507
02:09:04,543 --> 02:09:07,943
it's so important for what's going to be with you.

2508
02:09:07,943 --> 02:09:09,839
I know it seems like everyone keeps asking you

2509
02:09:09,839 --> 02:09:12,052
the same questions and hoe many times do we need

2510
02:09:12,052 --> 02:09:17,052
to hear it but that's what we do, we like to hear it

2511
02:09:17,166 --> 02:09:21,269
to make sure that if you change your mind again,

2512
02:09:21,269 --> 02:09:23,356
that we know about it.

2513
02:09:23,356 --> 02:09:24,425
Okay?

2514
02:09:24,425 --> 02:09:26,793
So I'll let it rest for now.

2515
02:09:26,793 --> 02:09:27,626
Okay.

2516
02:09:28,989 --> 02:09:31,056
Ask me anytime you want to.

2517
02:09:31,056 --> 02:09:34,932
I can understand you pretty well most of the time.

2518
02:09:34,932 --> 02:09:36,544
All right?

2519
02:09:36,544 --> 02:09:37,377
Okay.

2520
02:09:43,514 --> 02:09:45,931
(chattering)

2521
02:09:51,104 --> 02:09:53,351
Dr. Kerlind talked to her again.

2522
02:09:53,351 --> 02:09:56,627
He couldn't quite get her to have the same

2523
02:09:56,627 --> 02:09:59,992
blatant yes-no response to things and he left it

2524
02:09:59,992 --> 02:10:01,995
with her that he would get back with her later

2525
02:10:01,995 --> 02:10:03,931
in the day and that she oughta think about it.

2526
02:10:03,931 --> 02:10:04,894
- Okay.

2527
02:10:04,894 --> 02:10:05,760
So... - Okay.

2528
02:10:05,760 --> 02:10:08,287
- And I went over it again with her and she's

2529
02:10:08,287 --> 02:10:10,604
kind of irritated that I keep doing that.

2530
02:10:10,604 --> 02:10:12,176
So I said I'm gonna leave it alone but

2531
02:10:12,176 --> 02:10:14,484
I want you to stop us at any time if

2532
02:10:14,484 --> 02:10:16,191
there's something you want to know about

2533
02:10:16,191 --> 02:10:17,727
or you want to discuss it and we keep

2534
02:10:17,727 --> 02:10:19,587
asking you because we want to make sure

2535
02:10:19,587 --> 02:10:21,417
because you always have the option to change your mind.

2536
02:10:21,417 --> 02:10:22,256
- Right.

2537
02:10:22,256 --> 02:10:24,543
- So that's where we're at.

2538
02:10:24,543 --> 02:10:25,376
- Okay.

2539
02:10:43,845 --> 02:10:46,428
- In lieu of yesterday's events

2540
02:10:47,653 --> 02:10:52,190
and after minor discussion with Scott in which he really

2541
02:10:52,190 --> 02:10:55,293
felt that the reason she failed was because of failure

2542
02:10:55,293 --> 02:10:58,298
only and my feeling was that from Sue and from

2543
02:10:58,298 --> 02:11:00,205
what I looked at at the flow sheet that it was

2544
02:11:00,205 --> 02:11:02,747
a combination of increased sputum production

2545
02:11:02,747 --> 02:11:06,208
as well as failure and it wasn't water from failure.

2546
02:11:06,208 --> 02:11:08,184
She has had increased sputum production

2547
02:11:08,184 --> 02:11:10,635
at least 24 hours prior to that when I

2548
02:11:10,635 --> 02:11:12,750
was here on Tuesday, acutely.

2549
02:11:12,750 --> 02:11:14,119
- [Nurse] When Katie heard that she

2550
02:11:14,119 --> 02:11:16,595
got x-rayed last night, she was like...

2551
02:11:16,595 --> 02:11:19,512
- Forget it, well anyway to make a long story short,

2552
02:11:19,512 --> 02:11:23,787
after evaluating her and having had the word trach

2553
02:11:23,787 --> 02:11:26,906
was mentioned yesterday both by Scott as well

2554
02:11:26,906 --> 02:11:31,258
as it showed up in Dr. Kerlind's note as well,

2555
02:11:31,258 --> 02:11:33,181
Scott said "Why haven't we ever

2556
02:11:33,181 --> 02:11:35,822
"asked Bernice what she wants?"

2557
02:11:35,822 --> 02:11:37,681
And we all kinda looked at each other

2558
02:11:37,681 --> 02:11:40,627
and said "Well, why don't we?"

2559
02:11:40,627 --> 02:11:43,687
My feeling in asking her what she wanted was a few things.

2560
02:11:43,687 --> 02:11:45,474
Number one, eight o'clock, nine o'clock

2561
02:11:45,474 --> 02:11:47,639
in the morning is not her best hour.

2562
02:11:47,639 --> 02:11:49,004
I said 11 would be better,

2563
02:11:49,004 --> 02:11:51,133
she tends to take a slow day waking up.

2564
02:11:51,133 --> 02:11:53,128
The mechanics never are great in the morning,

2565
02:11:53,128 --> 02:11:56,478
not that they're ever great but you don't get a good effort.

2566
02:11:56,478 --> 02:11:59,616
My other feeling was like okay, so what if she's

2567
02:11:59,616 --> 02:12:02,436
able to articulate in whatever form that she can

2568
02:12:02,436 --> 02:12:05,362
that she isn't willing to be trached and would

2569
02:12:05,362 --> 02:12:08,747
like to be extubated and not re-intubated for instance?

2570
02:12:08,747 --> 02:12:11,096
What gives us the feeling that number one,

2571
02:12:11,096 --> 02:12:12,959
Dr. Kerlind would also feel like that's

2572
02:12:12,959 --> 02:12:16,941
a good idea and want to go along with the situation

2573
02:12:16,941 --> 02:12:20,269
as well as her husband and at that point I felt

2574
02:12:20,269 --> 02:12:22,522
like it was a great idea to ask her but once

2575
02:12:22,522 --> 02:12:25,500
we had asked her and got a good idea from her,

2576
02:12:25,500 --> 02:12:28,098
then everything had to be focused through Dr. Kerlind.

2577
02:12:28,098 --> 02:12:30,257
I don't think that by any of us that

2578
02:12:30,257 --> 02:12:33,157
Dr. Factor needs to be approached by house staff,

2579
02:12:33,157 --> 02:12:36,824
nursing, even Scott unless George Kerlind gives Scott the--

2580
02:12:36,824 --> 02:12:39,386
- It was only appropriate-- - In that one setting because

2581
02:12:39,386 --> 02:12:42,361
we were talking about a very acute demise

2582
02:12:42,361 --> 02:12:44,409
and I just said for the sake of all of us

2583
02:12:44,409 --> 02:12:47,192
that have to care for her daily, for us to be

2584
02:12:47,192 --> 02:12:49,139
the one to go to him with something that he

2585
02:12:49,139 --> 02:12:51,585
has encouraged from George Kerlind would not

2586
02:12:51,585 --> 02:12:54,293
be beneficial to the situation as a whole.

2587
02:12:54,293 --> 02:12:56,657
To make a long story short, Scott went in after rounds,

2588
02:12:56,657 --> 02:12:59,140
talked with her, called me into the room.

2589
02:12:59,140 --> 02:13:03,745
He wanted me to sort of interpret and watch him talk

2590
02:13:03,745 --> 02:13:06,172
and I will tell you, I've never seen Bernice

2591
02:13:06,172 --> 02:13:10,089
be quite so definite and it was as clear as day

2592
02:13:10,934 --> 02:13:12,964
her answers to all these questions and Scott

2593
02:13:12,964 --> 02:13:15,602
went through the gamut by saying that

2594
02:13:15,602 --> 02:13:18,044
these are the choices, we're finding that

2595
02:13:18,044 --> 02:13:20,361
you're having problems with your heart

2596
02:13:20,361 --> 02:13:22,175
in terms of going into some congestive

2597
02:13:22,175 --> 02:13:24,053
heart failure and having your lungs fill up.

2598
02:13:24,053 --> 02:13:26,016
We also find that because of the fact that

2599
02:13:26,016 --> 02:13:28,538
you've had a stroke and your cough isn't good

2600
02:13:28,538 --> 02:13:31,267
that you have problems with pneumonia and that

2601
02:13:31,267 --> 02:13:33,580
these are problems that you probably will

2602
02:13:33,580 --> 02:13:36,236
have throughout the duration of your life.

2603
02:13:36,236 --> 02:13:38,511
These are the choices we want to present to you

2604
02:13:38,511 --> 02:13:40,901
and we want to know how you really feel about these

2605
02:13:40,901 --> 02:13:44,994
choices so that we can better help negotiate your care.

2606
02:13:44,994 --> 02:13:47,370
When explained about the trach, the answer was

2607
02:13:47,370 --> 02:13:51,918
definitely no with a shake of the head, with--

2608
02:13:51,918 --> 02:13:53,656
- The hand. - With the hand.

2609
02:13:53,656 --> 02:13:57,889
Saying the word operation, the fact that there would

2610
02:13:57,889 --> 02:14:00,423
be an airway in her neck and if we needed to put her

2611
02:14:00,423 --> 02:14:03,166
on a ventilator as we needed, that there would be

2612
02:14:03,166 --> 02:14:07,666
a way to do that without putting a tube down into her.

2613
02:14:08,561 --> 02:14:11,528
Then the other choice was that we would try our best

2614
02:14:11,528 --> 02:14:14,746
at this particular point to improve her pneumonia

2615
02:14:14,746 --> 02:14:17,604
and then be able to take her off the tube

2616
02:14:17,604 --> 02:14:20,323
and make her comfortable so that her breathing

2617
02:14:20,323 --> 02:14:23,673
should be easy enough that she would be comfortable

2618
02:14:23,673 --> 02:14:26,461
but that if in fact she tired and seemed to need

2619
02:14:26,461 --> 02:14:30,487
the tube back, that we wouldn't put it back if she

2620
02:14:30,487 --> 02:14:34,431
didn't want it back but we wanted to talk about it now.

2621
02:14:34,431 --> 02:14:36,638
- What'd she say to that? - We had to break that up

2622
02:14:36,638 --> 02:14:39,120
because that was kind of a long story.

2623
02:14:39,120 --> 02:14:41,239
First I started by saying to her,

2624
02:14:41,239 --> 02:14:43,687
"All the times that we've put you on the breathing machine,

2625
02:14:43,687 --> 02:14:45,257
"have you wanted to be on it?

2626
02:14:45,257 --> 02:14:47,120
"Have you wanted to be on it any of the times?"

2627
02:14:47,120 --> 02:14:48,114
No.

2628
02:14:48,114 --> 02:14:49,655
I did say to her, "Do you realize that

2629
02:14:49,655 --> 02:14:53,062
"you've been on it six times already?"

2630
02:14:53,062 --> 02:14:53,895
Yes.

2631
02:14:54,882 --> 02:14:58,725
Then we went on to say "Do you realize that even

2632
02:14:58,725 --> 02:15:01,671
"if we make you comfortable off of the breathing machine,

2633
02:15:01,671 --> 02:15:03,832
"that if you need it back and we don't give it

2634
02:15:03,832 --> 02:15:06,074
"back to you because you don't want it back,

2635
02:15:06,074 --> 02:15:07,729
"that you probably will die?"

2636
02:15:07,729 --> 02:15:09,109
Yes.

2637
02:15:09,109 --> 02:15:12,928
Is that acceptable to you knowing that

2638
02:15:12,928 --> 02:15:16,134
you probably will die if you need it back and we--

2639
02:15:16,134 --> 02:15:17,498
- Don't give it to you. - Don't give it back.

2640
02:15:17,498 --> 02:15:19,225
- Because you don't want it. - Yes, do you want it?

2641
02:15:19,225 --> 02:15:20,058
- No.

2642
02:15:20,058 --> 02:15:22,459
So I felt like we broke up the concepts

2643
02:15:22,459 --> 02:15:25,192
in four or five different ways so that she could,

2644
02:15:25,192 --> 02:15:26,557
we'd be able to decipher--

2645
02:15:26,557 --> 02:15:27,961
- [Nurse] You applied it in different situations

2646
02:15:27,961 --> 02:15:29,159
and she said no to all, she was consistent.

2647
02:15:29,159 --> 02:15:30,564
- She was consistent.

2648
02:15:30,564 --> 02:15:33,421
We told her that we would do our best

2649
02:15:33,421 --> 02:15:36,111
to make Dr. Kerlind aware of her wishes

2650
02:15:36,111 --> 02:15:38,433
and that we would go to bat for her in terms

2651
02:15:38,433 --> 02:15:41,059
of Dr. Kerlind as well as with her husband

2652
02:15:41,059 --> 02:15:43,290
and then I did say to her, "Do you think

2653
02:15:43,290 --> 02:15:45,615
"that your husband will be able to

2654
02:15:45,615 --> 02:15:47,573
"support you in your decision?"

2655
02:15:47,573 --> 02:15:49,789
And she said "Yes."

2656
02:15:49,789 --> 02:15:52,105
And we left it at that.

2657
02:15:52,105 --> 02:15:54,143
Dr. Kerlind came in later on,

2658
02:15:54,143 --> 02:15:58,226
had a similar discussion with her and she wasn't,

2659
02:15:59,399 --> 02:16:02,103
she wasn't able to give quite as snappy of

2660
02:16:02,103 --> 02:16:05,182
a yes or no answer to what he was asking her,

2661
02:16:05,182 --> 02:16:06,644
which was the same things that

2662
02:16:06,644 --> 02:16:08,931
Scott and I had talked to her about.

2663
02:16:08,931 --> 02:16:11,373
She wasn't given a lot of time either.

2664
02:16:11,373 --> 02:16:12,945
You know Bernice, she's not real quick

2665
02:16:12,945 --> 02:16:14,843
with her answers unless there's a definite,

2666
02:16:14,843 --> 02:16:16,709
right, you have to be patient to sort of

2667
02:16:16,709 --> 02:16:19,211
give her the time so that she can make the effort

2668
02:16:19,211 --> 02:16:22,271
and because she wasn't real snappy with her decision,

2669
02:16:22,271 --> 02:16:25,434
Dr. Kerlind did say to her that he understood

2670
02:16:25,434 --> 02:16:27,706
how she was feeling and that he really thinks

2671
02:16:27,706 --> 02:16:29,793
it's an important decision and that she give it

2672
02:16:29,793 --> 02:16:31,853
some more thought and that he would be back

2673
02:16:31,853 --> 02:16:35,326
later in the day to discuss it with her again.

2674
02:16:35,326 --> 02:16:38,503
Later in the afternoon, the plan as it stands

2675
02:16:38,503 --> 02:16:42,395
right now is that if we don't see Dr. Kerlind

2676
02:16:42,395 --> 02:16:46,012
by around this time, that Karen Ballen would call him

2677
02:16:46,012 --> 02:16:48,967
and say that we would really like to take the time

2678
02:16:48,967 --> 02:16:52,629
to get together with Dr. Factor while his son is

2679
02:16:52,629 --> 02:16:55,505
going to be here through Sunday and also because

2680
02:16:55,505 --> 02:16:59,834
we plan to continue the weaning process as her pneumonia

2681
02:16:59,834 --> 02:17:02,412
improves but we need to sit down and talk with them now.

2682
02:17:02,412 --> 02:17:04,789
If it's something that he doesn't have time

2683
02:17:04,789 --> 02:17:06,768
to get into or he doesn't have a chance to speak

2684
02:17:06,768 --> 02:17:09,519
to them, being that he's been rounding all day,

2685
02:17:09,519 --> 02:17:12,609
that he needs to let us know that and Scott

2686
02:17:12,609 --> 02:17:14,652
is gonna be up later in the evening and would

2687
02:17:14,652 --> 02:17:17,556
be glad to be involved in actually holding

2688
02:17:17,556 --> 02:17:20,406
the meeting or be there when Dr. Kerlind speaks

2689
02:17:20,406 --> 02:17:22,754
with them but that we need to all sit down.

2690
02:17:22,754 --> 02:17:24,907
So a sort of impromptu family meeting,

2691
02:17:24,907 --> 02:17:27,112
whether it's today or tomorrow but we feel like we

2692
02:17:27,112 --> 02:17:31,862
need to get the ball in motion and that's where we're at.

2693
02:17:32,829 --> 02:17:34,529
- [Doctor] I guess there are just sort of a lot of issues

2694
02:17:34,529 --> 02:17:38,054
about what are we gonna do, should we try to take the tube

2695
02:17:38,054 --> 02:17:41,402
out tomorrow and see if she flies, if she doesn't fly--

2696
02:17:41,402 --> 02:17:43,009
- As long as it is-- - Put it back in, or?

2697
02:17:43,009 --> 02:17:44,625
- Well that is something that I agreed

2698
02:17:44,625 --> 02:17:46,946
I would re-discuss with her because although

2699
02:17:46,946 --> 02:17:49,559
she apparently, Scott got the impression that

2700
02:17:49,559 --> 02:17:52,502
she said to him enough, I don't want to be re-intubated

2701
02:17:52,502 --> 02:17:55,419
but when I went in and took it up with her this morning,

2702
02:17:55,419 --> 02:17:59,116
I was by no means convinced that it was clear in her

2703
02:17:59,116 --> 02:18:01,599
mind that that's what she wanted to do and I left it

2704
02:18:01,599 --> 02:18:04,048
with her to cogitate it a little bit and then decide.

2705
02:18:04,048 --> 02:18:06,708
So I think that that'll be something that we'll

2706
02:18:06,708 --> 02:18:08,338
take up with her again.

2707
02:18:08,338 --> 02:18:11,563
In any event, I hope that if we get her dry enough in

2708
02:18:11,563 --> 02:18:15,155
advance, that we will at least get it out with impunity.

2709
02:18:15,155 --> 02:18:16,937
Then the issue of putting it

2710
02:18:16,937 --> 02:18:19,445
back in again will be another matter.

2711
02:18:19,445 --> 02:18:20,352
- Okay.

2712
02:18:20,352 --> 02:18:22,974
Because I guess the son is only gonna be here 'til Sunday,

2713
02:18:22,974 --> 02:18:27,119
so it would be nice if we could have him--

2714
02:18:27,119 --> 02:18:30,036
- Get her as dry as we can and then

2715
02:18:31,424 --> 02:18:33,342
bite the bullet. - Okay.

2716
02:18:39,144 --> 02:18:42,178
- [Doctor] We need to talk to you and find out what you'd

2717
02:18:42,178 --> 02:18:46,678
like us to do about the tube okay, the breathing tube.

2718
02:18:50,486 --> 02:18:54,153
- [Scott] Are you tired of talking about it?

2719
02:18:56,778 --> 02:18:59,165
- [Doctor] We want to find out what you want to do, okay?

2720
02:18:59,165 --> 02:19:00,498
You're the boss.

2721
02:19:02,547 --> 02:19:03,964
- You don't know?

2722
02:19:05,153 --> 02:19:06,978
You're not sure what, remember I told you

2723
02:19:06,978 --> 02:19:09,602
yesterday what the two choices were.

2724
02:19:09,602 --> 02:19:12,840
I think that we can try to take the tube out

2725
02:19:12,840 --> 02:19:16,035
and not put it back in the way we did this last time.

2726
02:19:16,035 --> 02:19:18,182
But there's a good chance that if we do that,

2727
02:19:18,182 --> 02:19:19,514
that you may die

2728
02:19:20,728 --> 02:19:22,839
and I think the other possibility

2729
02:19:22,839 --> 02:19:26,476
is to do an operation and to put a hole here

2730
02:19:26,476 --> 02:19:30,437
and put a permanent tube in here, okay?

2731
02:19:30,437 --> 02:19:32,688
Do what's called a tracheostomy

2732
02:19:32,688 --> 02:19:36,130
and when Anne-Louise and I, your nurse right over there.

2733
02:19:36,130 --> 02:19:39,074
- She knows me. - When we talked yesterday,

2734
02:19:39,074 --> 02:19:41,375
I got the impression that what you wanted to do

2735
02:19:41,375 --> 02:19:45,887
was to have the tube out and not have it put back in.

2736
02:19:45,887 --> 02:19:48,302
But it's important for me to know what you want

2737
02:19:48,302 --> 02:19:50,875
because Dr. Kerlind's gonna come back here today

2738
02:19:50,875 --> 02:19:53,542
and he's gonna want to know too.

2739
02:19:57,865 --> 02:19:59,115
You don't know.

2740
02:19:59,984 --> 02:20:03,234
It's hard for you to make up your mind.

2741
02:20:04,305 --> 02:20:05,972
It's a tough choice.

2742
02:20:07,086 --> 02:20:09,191
It's a pretty tough choice, you're right.

2743
02:20:09,191 --> 02:20:11,108
It's not a good choice.

2744
02:20:13,028 --> 02:20:14,028
I think that

2745
02:20:16,875 --> 02:20:18,929
it's very important for us to do

2746
02:20:18,929 --> 02:20:21,755
what you want and I think that knowing,

2747
02:20:21,755 --> 02:20:24,505
even knowing those choices, okay,

2748
02:20:25,449 --> 02:20:27,782
it's hard for somebody who's

2749
02:20:29,041 --> 02:20:30,708
not a doctor to know

2750
02:20:32,823 --> 02:20:35,155
what's the right thing to do

2751
02:20:36,442 --> 02:20:38,967
and I think a lot of it has to do with how you

2752
02:20:38,967 --> 02:20:43,722
feel about what's happened so far in the hospital.

2753
02:20:43,722 --> 02:20:45,889
My sense of things is that

2754
02:20:52,681 --> 02:20:55,289
if you really want to go on

2755
02:20:55,289 --> 02:20:58,569
and you want to live and you want to keep going,

2756
02:20:58,569 --> 02:21:01,319
the tube here is the thing to do.

2757
02:21:02,173 --> 02:21:04,090
To do the tracheostomy.

2758
02:21:13,083 --> 02:21:15,570
I'm sorry, I didn't catch that.

2759
02:21:15,570 --> 02:21:17,430
- Are you saying that you still

2760
02:21:17,430 --> 02:21:20,418
can't decide between the two, Bernice?

2761
02:21:20,418 --> 02:21:22,288
Is that what you're saying, okay.

2762
02:21:22,288 --> 02:21:25,195
Do you need more time to think about it?

2763
02:21:25,195 --> 02:21:26,890
- All right, that's all right. - That's all right.

2764
02:21:26,890 --> 02:21:29,334
You got as much time as you want.

2765
02:21:29,334 --> 02:21:31,616
- Is there something that we can answer about

2766
02:21:31,616 --> 02:21:34,733
either of the options more clearly for you?

2767
02:21:34,733 --> 02:21:36,449
- [Scott] Is there anybody that you would like to

2768
02:21:36,449 --> 02:21:40,449
talk to about this that would be helpful to you?

2769
02:21:45,246 --> 02:21:46,233
- No?

2770
02:21:46,233 --> 02:21:48,885
- What are your worries about it?

2771
02:21:48,885 --> 02:21:50,218
Don't wanna die?

2772
02:21:51,776 --> 02:21:53,693
Not worried about that.

2773
02:21:54,564 --> 02:21:56,754
Worried about your husband?

2774
02:21:56,754 --> 02:21:58,254
How he'll take it?

2775
02:22:00,069 --> 02:22:02,158
I mean whether he'll get upset

2776
02:22:02,158 --> 02:22:06,075
and have a heart attack or something like that?

2777
02:22:09,127 --> 02:22:12,294
Well that's a possibility I think.

2778
02:22:12,294 --> 02:22:16,469
It's possible that he won't take it very well.

2779
02:22:16,469 --> 02:22:18,363
It's hard to know, you know?

2780
02:22:18,363 --> 02:22:20,233
I think that that's a real possibility,

2781
02:22:20,233 --> 02:22:23,018
that he won't take it very well.

2782
02:22:23,018 --> 02:22:25,390
I think that there may be things that we can do to,

2783
02:22:25,390 --> 02:22:27,795
you mean either way, either doing the tracheostomy

2784
02:22:27,795 --> 02:22:31,818
or doing it, he won't take either one very well or that he

2785
02:22:31,818 --> 02:22:36,568
particularly wouldn't take your wanting to call it quits,

2786
02:22:38,933 --> 02:22:39,766
which one?

2787
02:22:40,887 --> 02:22:43,014
- Is it calling it quits that would upset him,

2788
02:22:43,014 --> 02:22:46,347
Bernice, more than having the operation?

2789
02:22:48,128 --> 02:22:49,903
- Either one. - Either one.

2790
02:22:49,903 --> 02:22:51,071
- It's gonna upset him.

2791
02:22:51,071 --> 02:22:54,238
- Either one is gonna upset him, yeah.

2792
02:23:00,827 --> 02:23:04,918
Well there's not a lot of good answers here.

2793
02:23:04,918 --> 02:23:06,694
Unfortunately.

2794
02:23:06,694 --> 02:23:08,980
- [Nurse] Dr. Ballind, you have a call line four.

2795
02:23:08,980 --> 02:23:11,012
- But I think that if you want to go ahead

2796
02:23:11,012 --> 02:23:15,096
and have this tracheostomy, that's not, you know,

2797
02:23:17,008 --> 02:23:18,753
an end of the world kind of a thing.

2798
02:23:18,753 --> 02:23:21,669
It's a small operation, it's not a big operation

2799
02:23:21,669 --> 02:23:24,852
but it would mean that there would be a permanent tube here.

2800
02:23:24,852 --> 02:23:28,043
All that this will do, this operation,

2801
02:23:28,043 --> 02:23:30,756
will make it easier to put you on the machine,

2802
02:23:30,756 --> 02:23:34,199
make it easier for you to go on the machine

2803
02:23:34,199 --> 02:23:36,266
if you have to go on the machine.

2804
02:23:36,266 --> 02:23:38,387
That's what it'll do.

2805
02:23:38,387 --> 02:23:40,290
It's not gonna change anything with the stroke

2806
02:23:40,290 --> 02:23:41,957
or with the breathing because those are problems

2807
02:23:41,957 --> 02:23:44,766
we can't really do much about, they're sorta there

2808
02:23:44,766 --> 02:23:46,466
and they're gonna either get better on their own

2809
02:23:46,466 --> 02:23:50,242
or not get better on their own as the case may be.

2810
02:23:50,242 --> 02:23:51,242
You with me?

2811
02:23:57,260 --> 02:24:01,448
Are you with me there, did you understand that?

2812
02:24:01,448 --> 02:24:04,762
You don't understand that, you do understand that?

2813
02:24:04,762 --> 02:24:07,753
- Are you telling us enough?

2814
02:24:07,753 --> 02:24:09,038
Yeah, okay.

2815
02:24:09,038 --> 02:24:11,539
You just wanna think about it?

2816
02:24:11,539 --> 02:24:13,652
- [Scott] Just wanna think about it for awhile.

2817
02:24:13,652 --> 02:24:16,008
Okay, we can't wait too long though because

2818
02:24:16,008 --> 02:24:18,030
eventually we're gonna have to do something

2819
02:24:18,030 --> 02:24:22,017
about this because it's been in for a long time.

2820
02:24:22,017 --> 02:24:22,924
- Okay?

2821
02:24:22,924 --> 02:24:25,065
- The feeling that I'm getting from you is

2822
02:24:25,065 --> 02:24:27,290
that you're not sure whether you want to

2823
02:24:27,290 --> 02:24:30,623
have the tube out or have the operation.

2824
02:24:33,270 --> 02:24:35,687
I don't know what that means.

2825
02:24:37,714 --> 02:24:39,414
You don't want to have the tube out

2826
02:24:39,414 --> 02:24:42,553
or you don't wanna have the operation?

2827
02:24:42,553 --> 02:24:43,833
No.

2828
02:24:43,833 --> 02:24:46,102
You want the tube out?

2829
02:24:46,102 --> 02:24:46,935
You want,

2830
02:24:48,165 --> 02:24:50,372
do you want the operation?

2831
02:24:50,372 --> 02:24:52,955
Yes, you do want the operation.

2832
02:24:53,943 --> 02:24:56,079
- Is that what you're saying, Bernice?

2833
02:24:56,079 --> 02:24:57,474
- You don't know. - You don't know.

2834
02:24:57,474 --> 02:24:59,419
- Okay, so you wanna think about it.

2835
02:24:59,419 --> 02:25:01,920
You want some time to think about it.

2836
02:25:01,920 --> 02:25:03,206
- Go away. - Go away.

2837
02:25:03,206 --> 02:25:04,705
- All right. - Don't feel bad, I get that.

2838
02:25:04,705 --> 02:25:08,145
- Let me take a listen to you before we go, okay?

2839
02:25:08,145 --> 02:25:10,124
- You've got time to think about it.

2840
02:25:10,124 --> 02:25:11,837
- [Anne-Louise] They're gonna listen to your lungs, Bernice.

2841
02:25:11,837 --> 02:25:14,530
- Exactly the answer that I got from her yesterday,

2842
02:25:14,530 --> 02:25:15,769
that she was uncertain.

2843
02:25:15,769 --> 02:25:17,635
I came in after my conversation with you

2844
02:25:17,635 --> 02:25:19,711
and thought well, she's made up her mind.

2845
02:25:19,711 --> 02:25:23,029
But after I discussed it-- - She hasn't made up her mind.

2846
02:25:23,029 --> 02:25:24,559
- No, she has not made up her mind.

2847
02:25:24,559 --> 02:25:27,603
- I think she's mostly worried about her husband,

2848
02:25:27,603 --> 02:25:29,736
that's what it sounds like when you talk to her.

2849
02:25:29,736 --> 02:25:33,135
I think she's got ambivalent feelings herself about the--

2850
02:25:33,135 --> 02:25:34,887
- I have to admit, if I were there, I'm not so

2851
02:25:34,887 --> 02:25:36,744
sure how certain I would be about what I wanted.

2852
02:25:36,744 --> 02:25:38,195
- God only knows, yep.

2853
02:25:38,195 --> 02:25:39,278
Okay, well...

2854
02:25:41,127 --> 02:25:43,294
Richard's on this weekend.

2855
02:25:59,336 --> 02:26:00,941
- [George] Other people go off duty

2856
02:26:00,941 --> 02:26:03,000
but your old friend is always around.

2857
02:26:03,000 --> 02:26:08,000
So you and I can peacefully discuss this at some length.

2858
02:26:08,153 --> 02:26:11,937
My understanding yesterday is that you weren't

2859
02:26:11,937 --> 02:26:15,806
quite sure what you wanted to do about this business.

2860
02:26:15,806 --> 02:26:17,332
Is that right?

2861
02:26:17,332 --> 02:26:18,907
Okay.

2862
02:26:18,907 --> 02:26:21,407
You take all the time you need

2863
02:26:22,931 --> 02:26:25,882
and I must say that whatever we do,

2864
02:26:25,882 --> 02:26:27,701
we can undo it if we have to too.

2865
02:26:27,701 --> 02:26:29,991
These are not decisions that are

2866
02:26:29,991 --> 02:26:33,074
cast in cement and cannot be changed.

2867
02:26:34,220 --> 02:26:37,034
But on a nice day when the sun is shining,

2868
02:26:37,034 --> 02:26:41,451
it seems pretty good to be around and Harry's around.

2869
02:26:42,413 --> 02:26:44,582
I spoke with him yesterday afternoon.

2870
02:26:44,582 --> 02:26:49,236
He wanted to be sure that I understood exactly

2871
02:26:49,236 --> 02:26:51,403
what his feelings were and

2872
02:26:52,454 --> 02:26:55,450
what he thought yours were too.

2873
02:26:55,450 --> 02:26:58,325
You just be confident that your

2874
02:26:58,325 --> 02:27:01,825
interests come first with everybody, okay?

2875
02:27:06,287 --> 02:27:08,980
- We need to get her sort of

2876
02:27:08,980 --> 02:27:09,813
maximally

2877
02:27:11,382 --> 02:27:12,965
set up here so that

2878
02:27:14,372 --> 02:27:15,658
if she makes a decision,

2879
02:27:15,658 --> 02:27:18,685
she either goes for a trach on Monday

2880
02:27:18,685 --> 02:27:21,264
at the beginning part of the week

2881
02:27:21,264 --> 02:27:24,368
or we extubate her Saturday or Sunday

2882
02:27:24,368 --> 02:27:27,666
and see if she flies on her own

2883
02:27:27,666 --> 02:27:30,617
and I can understand her ambivalence about it.

2884
02:27:30,617 --> 02:27:32,784
It's a difficult decision.

2885
02:27:34,405 --> 02:27:35,337
Hard to know.

2886
02:27:35,337 --> 02:27:37,567
- [Nurse] There should be a decision beforehand.

2887
02:27:37,567 --> 02:27:38,874
- Oh absolutely, absolutely.

2888
02:27:38,874 --> 02:27:40,166
- [Nurse] I would not extubate her

2889
02:27:40,166 --> 02:27:42,705
until we knew what we were gonna do after.

2890
02:27:42,705 --> 02:27:44,304
- Yes, I don't think there's any question about that.

2891
02:27:44,304 --> 02:27:46,468
- [Nurse] Especially with her past track record.

2892
02:27:46,468 --> 02:27:47,962
It's important.

2893
02:27:47,962 --> 02:27:51,382
- Okay, so that's that. - Any other thoughts, George?

2894
02:27:51,382 --> 02:27:54,282
- My thought is that as she feels better,

2895
02:27:54,282 --> 02:27:57,736
she is not quite sure that she wants to let go.

2896
02:27:57,736 --> 02:28:00,408
Today she sorta has a certain spontaneity

2897
02:28:00,408 --> 02:28:03,417
and a certain smile to her face which she

2898
02:28:03,417 --> 02:28:07,261
had a little bit of yesterday and zero the day before

2899
02:28:07,261 --> 02:28:10,481
and so maybe what she really is trying to

2900
02:28:10,481 --> 02:28:12,849
say to us now is that I'm not giving up.

2901
02:28:12,849 --> 02:28:15,429
- [Scott] What about getting Prikslow here bout a trach?

2902
02:28:15,429 --> 02:28:18,146
- [George] I think we ought to have him at least

2903
02:28:18,146 --> 02:28:23,146
look at the issue and be prepared to go ahead and I'll--

2904
02:28:23,177 --> 02:28:25,930
- [Scott] She'll make her decision on the weekend.

2905
02:28:25,930 --> 02:28:29,818
- And I will, Dr. Factor came up to my office yesterday.

2906
02:28:29,818 --> 02:28:31,809
Hard to understand what he was trying to say to me.

2907
02:28:31,809 --> 02:28:33,963
He just came and he just sorta wanted to hold my hand

2908
02:28:33,963 --> 02:28:36,869
for a minute so he was able to get some feeling somebody

2909
02:28:36,869 --> 02:28:41,714
really knows what's going on and knows that I'm suffering

2910
02:28:41,714 --> 02:28:44,297
and that's literally all I did.

2911
02:28:45,847 --> 02:28:48,494
So I think that he, rather than lose her

2912
02:28:48,494 --> 02:28:52,224
would certainly go for doing a procedure.

2913
02:28:52,224 --> 02:28:54,057
- Okay. - Okay, thanks.

2914
02:28:56,921 --> 02:28:59,179
- She's clearly, I mean she's clearly giving us

2915
02:28:59,179 --> 02:29:01,127
a different message than she gave yesterday.

2916
02:29:01,127 --> 02:29:03,412
She said a totally different thing

2917
02:29:03,412 --> 02:29:05,547
to us today than she did before.

2918
02:29:05,547 --> 02:29:07,342
- It's hard.

2919
02:29:07,342 --> 02:29:11,092
- Well but I, you know I mean as George said,

2920
02:29:12,990 --> 02:29:14,072
if that was me in that bed,

2921
02:29:14,072 --> 02:29:16,989
I don't know what the hell I'd say.

2922
02:29:32,242 --> 02:29:34,567
- He's pulling temper tantrums in the room that aren't

2923
02:29:34,567 --> 02:29:37,527
based on anything because he doesn't know anything.

2924
02:29:37,527 --> 02:29:40,024
He's teary-eyed, he's getting frustrated.

2925
02:29:40,024 --> 02:29:42,635
He started yelling and her arm,

2926
02:29:42,635 --> 02:29:44,290
he was hold her hand and she was

2927
02:29:44,290 --> 02:29:46,127
pulling him back and getting her upset.

2928
02:29:46,127 --> 02:29:47,665
I can't have that happen in the room.

2929
02:29:47,665 --> 02:29:49,128
- [Scott] He can't go in there then.

2930
02:29:49,128 --> 02:29:52,007
- But he, his son said to him "Dad, control yourself."

2931
02:29:52,007 --> 02:29:54,237
And my feeling is I told George Kerlind that

2932
02:29:54,237 --> 02:29:56,843
the behavior needs to be addressed and the longer

2933
02:29:56,843 --> 02:29:59,946
we keep Dr. Factor in the dark about all these

2934
02:29:59,946 --> 02:30:01,823
decisions that are being made, the worse

2935
02:30:01,823 --> 02:30:04,022
this is gonna be and I can't take care of him

2936
02:30:04,022 --> 02:30:05,891
and take care of her at the same time.

2937
02:30:05,891 --> 02:30:08,458
- [Scott] Karen and I can talk to him.

2938
02:30:08,458 --> 02:30:10,071
- [Nurse] But why don't you kick him out?

2939
02:30:10,071 --> 02:30:12,102
- I did, he left because she was pulling him

2940
02:30:12,102 --> 02:30:14,301
back and I said "Bernice, he has to leave."

2941
02:30:14,301 --> 02:30:16,559
I don't want to fight with him because

2942
02:30:16,559 --> 02:30:18,918
I am her caretaker, that's my concern.

2943
02:30:18,918 --> 02:30:21,198
She's already ostracized one

2944
02:30:21,198 --> 02:30:23,544
caretaker and that's why I had

2945
02:30:23,544 --> 02:30:25,546
to speak to George Kerlind about this.

2946
02:30:25,546 --> 02:30:28,260
- [Scott] I think that I'd like to talk to the son anyway

2947
02:30:28,260 --> 02:30:32,341
and Karen and I will talk to the son, I haven't met him.

2948
02:30:32,341 --> 02:30:35,856
- Okay well sooner than later 'cause the father has

2949
02:30:35,856 --> 02:30:38,642
probably gone up to OBGYN to have his coffee up there.

2950
02:30:38,642 --> 02:30:41,121
That's where his escape area is.

2951
02:30:41,121 --> 02:30:43,652
So anytime, the son is here and in the room with

2952
02:30:43,652 --> 02:30:45,754
the mother and I'm sure he would be glad to talk.

2953
02:30:45,754 --> 02:30:47,210
- [Scott] Did you talk to him at all

2954
02:30:47,210 --> 02:30:50,148
about the discussions we had yesterday?

2955
02:30:50,148 --> 02:30:52,096
- I asked Dr. Factor when he went up to

2956
02:30:52,096 --> 02:30:55,480
visit Dr. Kerlind yesterday what was said

2957
02:30:55,480 --> 02:30:58,505
and he said as George Kerlind did basically

2958
02:30:58,505 --> 02:31:00,795
I just needed a friend, I needed to let him

2959
02:31:00,795 --> 02:31:02,821
know how upset I am that my son is leaving

2960
02:31:02,821 --> 02:31:04,934
and that I'm gonna be alone again

2961
02:31:04,934 --> 02:31:07,434
and that the situation is too real.

2962
02:31:07,434 --> 02:31:08,869
Those are his words.

2963
02:31:08,869 --> 02:31:12,434
No discussions about anything concerning the tube.

2964
02:31:12,434 --> 02:31:15,012
When he came into the room just now,

2965
02:31:15,012 --> 02:31:17,834
Bernice and I were talking and I asked her

2966
02:31:17,834 --> 02:31:20,167
about this morning and whether she'd given it any thought.

2967
02:31:20,167 --> 02:31:21,000
No.

2968
02:31:21,000 --> 02:31:22,320
I said are you going to give it some thought?

2969
02:31:22,320 --> 02:31:23,153
Yes.

2970
02:31:23,153 --> 02:31:24,269
I said would you like me to go over

2971
02:31:24,269 --> 02:31:25,470
the things that you're giving thought to?

2972
02:31:25,470 --> 02:31:26,303
Yes.

2973
02:31:26,303 --> 02:31:27,835
I mentioned the options.

2974
02:31:27,835 --> 02:31:30,586
He walked in and said to me, "Oh,

2975
02:31:30,586 --> 02:31:32,771
"what is it that Bernice wanted to talk to you about?"

2976
02:31:32,771 --> 02:31:35,069
I said "Oh, the tube."

2977
02:31:35,069 --> 02:31:37,419
And that was it and he didn't get into it anymore.

2978
02:31:37,419 --> 02:31:39,344
- Then he went bananas. - Then he held her hand

2979
02:31:39,344 --> 02:31:41,157
and then he went bananas.

2980
02:31:41,157 --> 02:31:45,282
I think his anxiety is escalating and...

2981
02:31:45,282 --> 02:31:46,567
- [Karen] All right, well we can

2982
02:31:46,567 --> 02:31:47,996
talk to the son in like 10 minutes.

2983
02:31:47,996 --> 02:31:49,380
- [Scott] I'd like to talk to the son anyway

2984
02:31:49,380 --> 02:31:50,650
just because I'd be interested to--

2985
02:31:50,650 --> 02:31:52,222
- You need to meet him. - Well--

2986
02:31:52,222 --> 02:31:53,866
- In terms of-- - I'd be interested, yeah.

2987
02:31:53,866 --> 02:31:55,227
I think somebody should meet him and then

2988
02:31:55,227 --> 02:31:57,969
I can tell him that, who's the visit next month?

2989
02:31:57,969 --> 02:31:59,715
- I don't know.

2990
02:31:59,715 --> 02:32:02,462
- Have to find out who the attending is next month but

2991
02:32:02,462 --> 02:32:03,865
I can at least tell Schwartstein

2992
02:32:03,865 --> 02:32:07,292
who's on for the weekend sort of what,

2993
02:32:07,292 --> 02:32:09,909
it's a really difficult situation.

2994
02:32:09,909 --> 02:32:11,678
- [Anne-Louise] It's very difficult and he's in

2995
02:32:11,678 --> 02:32:13,363
a difficult position because he hates to leave

2996
02:32:13,363 --> 02:32:15,508
his father knowing his father is decompensating.

2997
02:32:15,508 --> 02:32:16,415
- Right.

2998
02:32:16,415 --> 02:32:19,121
- But you have to take care-- - Yeah and I can't--

2999
02:32:19,121 --> 02:32:21,411
- Of her and if you have to kick him out, then I mean--

3000
02:32:21,411 --> 02:32:23,589
- [Anne-Louise] But just understand that the last time

3001
02:32:23,589 --> 02:32:26,027
this all happened is because of kicking him out.

3002
02:32:26,027 --> 02:32:28,229
- Right but he has to be-- - What happened?

3003
02:32:28,229 --> 02:32:30,011
- He basically went to war with the nurse

3004
02:32:30,011 --> 02:32:32,627
taking care of her when the patient was on

3005
02:32:32,627 --> 02:32:34,761
her head getting dopamine, not doing well

3006
02:32:34,761 --> 02:32:36,998
and Colleen was pulled in two different directions

3007
02:32:36,998 --> 02:32:39,400
and he thinks he has dismissed her from the case

3008
02:32:39,400 --> 02:32:42,173
and I have told Dr. Kerlind as well as Dr. Factor

3009
02:32:42,173 --> 02:32:44,530
that nobody dismisses nursing from the case.

3010
02:32:44,530 --> 02:32:46,543
Nursing can dismiss themselves if they don't think

3011
02:32:46,543 --> 02:32:49,366
they're in the best interests of the family or the patient

3012
02:32:49,366 --> 02:32:51,508
and that's the case but he can't continue

3013
02:32:51,508 --> 02:32:54,617
to behave this way and decide how things

3014
02:32:54,617 --> 02:32:57,641
are gonna be handled in terms of care, that's all.

3015
02:32:57,641 --> 02:32:59,547
- [Scott] That's the problem, he can't go in there

3016
02:32:59,547 --> 02:33:03,552
if he's gonna abuse the nurse, it's ridiculous.

3017
02:33:03,552 --> 02:33:05,560
- Okay, thank you. - Okay, thanks Anne-Louise.

3018
02:33:05,560 --> 02:33:09,129
- Great. (chuckles)

3019
02:33:09,129 --> 02:33:11,286
- What happened was basically that was the night

3020
02:33:11,286 --> 02:33:13,702
she was doing really bad and she was on pressers

3021
02:33:13,702 --> 02:33:16,966
and he would not leave the room.

3022
02:33:16,966 --> 02:33:20,533
He was just you know, just being a nuisance

3023
02:33:20,533 --> 02:33:23,136
and Colleen just had to kick him out and you know,

3024
02:33:23,136 --> 02:33:25,394
we all said he had to leave and then we were like

3025
02:33:25,394 --> 02:33:27,891
ready to call security to get him out, you know?

3026
02:33:27,891 --> 02:33:29,507
- He was running down the hall like

3027
02:33:29,507 --> 02:33:30,915
this with his hands over his ears,

3028
02:33:30,915 --> 02:33:32,744
"I'm not gonna listen to you, I'm not gonna listen to you.

3029
02:33:32,744 --> 02:33:35,069
"Just go away, leave me alone."

3030
02:33:35,069 --> 02:33:37,273
- It was just a very bad situation.

3031
02:33:37,273 --> 02:33:39,698
- Well you know what Freud said,

3032
02:33:39,698 --> 02:33:42,865
neurosis is no excuse for bad manners.

3033
02:33:48,387 --> 02:33:51,744
- You want me to fix this hand?

3034
02:33:51,744 --> 02:33:53,827
Do you want me to fix it?

3035
02:33:59,237 --> 02:34:00,479
Oh.

3036
02:34:00,479 --> 02:34:03,470
Yeah, it's a little swollen

3037
02:34:03,470 --> 02:34:06,053
but that will be taken care of.

3038
02:34:07,188 --> 02:34:09,355
No need to worry about it.

3039
02:34:10,793 --> 02:34:13,153
It's part of the sickness that

3040
02:34:13,153 --> 02:34:16,351
you can't move the muscles yet.

3041
02:34:16,351 --> 02:34:19,269
That means more healing time, dear.

3042
02:34:20,155 --> 02:34:21,655
More healing time.

3043
02:34:22,845 --> 02:34:24,345
More healing time.

3044
02:34:27,597 --> 02:34:29,097
More healing time.

3045
02:34:53,907 --> 02:34:55,519
- I knew her when she came in

3046
02:34:55,519 --> 02:34:59,355
the first time with her stroke and aspiration.

3047
02:34:59,355 --> 02:35:01,509
I thought at that point that she

3048
02:35:01,509 --> 02:35:05,622
and the husband didn't want this sort of long course.

3049
02:35:05,622 --> 02:35:07,792
So what happened in the meantime?

3050
02:35:07,792 --> 02:35:12,792
- There's been a large debate about this and currently

3051
02:35:12,924 --> 02:35:16,621
she and her family are considering whether to get trached

3052
02:35:16,621 --> 02:35:20,903
or just to bag it and the husband wants her to get

3053
02:35:20,903 --> 02:35:24,313
trached and she hasn't decide yet what she wants to do.

3054
02:35:24,313 --> 02:35:27,190
- She's been addressed in the past three days--

3055
02:35:27,190 --> 02:35:28,593
- Exactly the most up-to-date.

3056
02:35:28,593 --> 02:35:33,343
- She was a pretty convincing no to Scott and Anne-Louise

3057
02:35:34,201 --> 02:35:36,351
and-- - Two days ago.

3058
02:35:36,351 --> 02:35:39,205
- Two days ago and yesterday Anne-Louise did say she

3059
02:35:39,205 --> 02:35:42,315
was more ambivalent after thinking it over for a day.

3060
02:35:42,315 --> 02:35:44,815
When she talks to Dr. Kerlind,

3061
02:35:46,912 --> 02:35:49,750
it's, he's not as convinced but

3062
02:35:49,750 --> 02:35:53,158
you know an hour after Scott and Anne-Louise

3063
02:35:53,158 --> 02:35:55,025
talked to her, Dr. Kerlind talked to her

3064
02:35:55,025 --> 02:35:59,113
and still wasn't convinced of her wishes.

3065
02:35:59,113 --> 02:36:02,030
It was uncertain whether she was as

3066
02:36:03,538 --> 02:36:06,359
convincing to him as she was to Scott or whether

3067
02:36:06,359 --> 02:36:08,390
his interpretation of it wasn't,

3068
02:36:08,390 --> 02:36:11,544
whether he didn't let her answer, you know?

3069
02:36:11,544 --> 02:36:14,544
It's been a debate and it's ongoing.

3070
02:36:16,362 --> 02:36:18,718
The thing is that the son will be here until tomorrow

3071
02:36:18,718 --> 02:36:21,235
and will help Dr. Factor cope with exactly what's going on.

3072
02:36:21,235 --> 02:36:23,010
So hopefully we'll have--

3073
02:36:23,010 --> 02:36:25,471
- [Doctor] She's been intubated for how long now?

3074
02:36:25,471 --> 02:36:26,633
- 14 days.

3075
02:36:26,633 --> 02:36:28,869
- [Nurse] Seven times in the last two months.

3076
02:36:28,869 --> 02:36:30,407
- [Doctor] What about this most recent?

3077
02:36:30,407 --> 02:36:32,612
- 14 days. - Active discussion really

3078
02:36:32,612 --> 02:36:36,011
about tracheostomy versus no intubation has

3079
02:36:36,011 --> 02:36:38,576
been going on about four days now where

3080
02:36:38,576 --> 02:36:40,439
it's really been pushed on on all fronts.

3081
02:36:40,439 --> 02:36:42,524
- Are you pushing to do a trach in the next couple of days?

3082
02:36:42,524 --> 02:36:45,117
- No, I mean, no I think we can--

3083
02:36:45,117 --> 02:36:47,688
- A week or 10 days. - In the next week.

3084
02:36:47,688 --> 02:36:50,267
I mean this is sort of silly to keep on--

3085
02:36:50,267 --> 02:36:51,470
- She's basically been in

3086
02:36:51,470 --> 02:36:54,440
the hospital for the last four months now.

3087
02:36:54,440 --> 02:36:57,011
- She actually looks,

3088
02:36:57,011 --> 02:36:59,628
in the next 24 or 36 hours I think it would be

3089
02:36:59,628 --> 02:37:02,043
optimal to extubate her to give her a fair chance.

3090
02:37:02,043 --> 02:37:04,451
I think Wednesday she wasn't given a fair chance.

3091
02:37:04,451 --> 02:37:06,025
She was being suctioned every hour,

3092
02:37:06,025 --> 02:37:08,169
she was still two kilos too wet.

3093
02:37:08,169 --> 02:37:09,951
Now her weight's down to 63,

3094
02:37:09,951 --> 02:37:11,280
which is what we were aiming for.

3095
02:37:11,280 --> 02:37:14,973
Secretions are down to suction every four hours or so.

3096
02:37:14,973 --> 02:37:17,618
To give her a fair chance at extubation

3097
02:37:17,618 --> 02:37:21,512
but I don't think long term our options are changing.

3098
02:37:21,512 --> 02:37:23,376
- I think when we extubate her,

3099
02:37:23,376 --> 02:37:26,544
we have to have a plan about what we're gonna do.

3100
02:37:26,544 --> 02:37:28,065
- It's not fair to her. - The other issue for

3101
02:37:28,065 --> 02:37:30,092
the long term management of her is that maybe

3102
02:37:30,092 --> 02:37:33,421
she needs a trach for bronchopulmonary hygiene--

3103
02:37:33,421 --> 02:37:35,155
- I think she does. - And for her aspiration.

3104
02:37:35,155 --> 02:37:37,319
- I think it should be done.

3105
02:37:37,319 --> 02:37:38,931
- Even if she's not ventilated.

3106
02:37:38,931 --> 02:37:41,368
- Right, I agree, right.

3107
02:37:41,368 --> 02:37:43,732
- But I think she should have that option

3108
02:37:43,732 --> 02:37:46,144
and not Dr. Factor and that's what was stressed

3109
02:37:46,144 --> 02:37:49,846
yesterday was that she was our primary concern.

3110
02:37:49,846 --> 02:37:52,791
Not that he wasn't but she was our primary concern.

3111
02:37:52,791 --> 02:37:55,172
- But she has a lot of ambivalence about--

3112
02:37:55,172 --> 02:37:57,172
- I believe, yes. - Yeah.

3113
02:37:58,804 --> 02:38:01,092
- But I don't think, I think she has a lot of

3114
02:38:01,092 --> 02:38:03,946
ambivalence about being re-intubated, I agree with that.

3115
02:38:03,946 --> 02:38:05,942
But I think that tracheostomy should be

3116
02:38:05,942 --> 02:38:09,259
explained to her fully and completely.

3117
02:38:09,259 --> 02:38:11,244
To say that number one, it's not a cure.

3118
02:38:11,244 --> 02:38:13,593
Number two, she's gonna stay just like this

3119
02:38:13,593 --> 02:38:15,868
but easier to put her on and off the machine.

3120
02:38:15,868 --> 02:38:18,262
Now if she wants that for the remaining of her days,

3121
02:38:18,262 --> 02:38:19,958
that's her decision but I think

3122
02:38:19,958 --> 02:38:21,452
that has to be explained to her.

3123
02:38:21,452 --> 02:38:22,860
It's not like she's gonna get,

3124
02:38:22,860 --> 02:38:24,642
her paresis is gonna resolve because--

3125
02:38:24,642 --> 02:38:26,223
- Right. - Which,

3126
02:38:26,223 --> 02:38:28,081
I mean she's not a stupid woman either

3127
02:38:28,081 --> 02:38:29,766
and I think that could be very--

3128
02:38:29,766 --> 02:38:32,306
- [Doctor] She's the leader of the family.

3129
02:38:32,306 --> 02:38:35,496
- [Doctor] I just think let's address what's important.

3130
02:38:35,496 --> 02:38:37,693
- All right, well I'll talk to Dr. Kerlind again.

3131
02:38:37,693 --> 02:38:39,973
- [George] The good things are that you're

3132
02:38:39,973 --> 02:38:42,578
breathing better and your lungs are clear

3133
02:38:42,578 --> 02:38:46,890
and your heart is breathing slowly and regularly

3134
02:38:46,890 --> 02:38:48,172
and the bad thing from your point

3135
02:38:48,172 --> 02:38:50,369
of view is that tube is still there.

3136
02:38:50,369 --> 02:38:53,322
But after we get enough water off

3137
02:38:53,322 --> 02:38:56,711
and you've had a couple of really good days,

3138
02:38:56,711 --> 02:38:59,898
we'll try pulling it out and see how you do without it.

3139
02:38:59,898 --> 02:39:00,815
Okay? Good.

3140
02:39:13,180 --> 02:39:15,427
- [Nurse] I told her, so that I'm answering,

3141
02:39:15,427 --> 02:39:17,015
hey this is right, Karen wanted to do it.

3142
02:39:17,015 --> 02:39:18,951
- Jane talked to her yesterday about

3143
02:39:18,951 --> 02:39:21,726
sort of her wishes and her plans for the future

3144
02:39:21,726 --> 02:39:24,792
and she expressed a desire to be trached

3145
02:39:24,792 --> 02:39:26,402
even if it meant that she would be

3146
02:39:26,402 --> 02:39:28,255
institutionalized for the rest of her life,

3147
02:39:28,255 --> 02:39:29,945
that it would mean an institutional existence

3148
02:39:29,945 --> 02:39:32,487
in a nursing home or a hospital or something.

3149
02:39:32,487 --> 02:39:36,270
- Never going home, being in a chronic facility,

3150
02:39:36,270 --> 02:39:38,365
living out the rest of her days as she is,

3151
02:39:38,365 --> 02:39:42,365
not getting any better and she said that's okay.

3152
02:39:43,917 --> 02:39:45,859
We have consensus and I think Doctor--

3153
02:39:45,859 --> 02:39:49,306
- You thought she was pretty-- - She was pretty clear.

3154
02:39:49,306 --> 02:39:51,546
- Awake yesterday. - Yeah, she was pretty clear.

3155
02:39:51,546 --> 02:39:54,902
- But I don't think that this sort of question needs to be

3156
02:39:54,902 --> 02:39:58,038
re-addressed then every 24 hours.

3157
02:39:58,038 --> 02:39:59,904
If she's at a time when she's--

3158
02:39:59,904 --> 02:40:01,822
- But she was originally addressed on Thursday

3159
02:40:01,822 --> 02:40:03,772
and she's been thinking about it and her thing

3160
02:40:03,772 --> 02:40:06,149
has changed and I think it's good to clarify.

3161
02:40:06,149 --> 02:40:07,500
- [Doctor] We have consensus

3162
02:40:07,500 --> 02:40:09,362
and the son's gonna leave today, right?

3163
02:40:09,362 --> 02:40:11,244
- [Nurse] I assume so, I don't know for a fact.

3164
02:40:11,244 --> 02:40:12,984
- Then we can talk with her tomorrow.

3165
02:40:12,984 --> 02:40:14,661
- Good because then it becomes obviously

3166
02:40:14,661 --> 02:40:17,438
trivial to wean at that point once you have the trach.

3167
02:40:17,438 --> 02:40:19,336
- That leads to my next point which is we were

3168
02:40:19,336 --> 02:40:21,765
talking about trying to wean and maybe extubate,

3169
02:40:21,765 --> 02:40:24,250
try to extubate this weekend but we didn't want to extubate

3170
02:40:24,250 --> 02:40:26,440
her until we had a plan about what was gonna happen.

3171
02:40:26,440 --> 02:40:28,437
But now I think it's silly and we should just

3172
02:40:28,437 --> 02:40:30,921
wait until she gets trached and then try to wean her.

3173
02:40:30,921 --> 02:40:32,533
- That sounds good. - So, she can either,

3174
02:40:32,533 --> 02:40:35,759
I guess we could still put her on brigs and exercise

3175
02:40:35,759 --> 02:40:39,777
or give her some, that sorta thing but in terms of being

3176
02:40:39,777 --> 02:40:41,978
really vigorous in trying to get her off the ventilator,

3177
02:40:41,978 --> 02:40:43,421
I don't think that's appropriate because

3178
02:40:43,421 --> 02:40:47,754
she's gonna have to be on the vent to get her trach.

3179
02:40:49,839 --> 02:40:52,634
- How are you this morning?

3180
02:40:52,634 --> 02:40:56,051
You look a little worried there, are you?

3181
02:41:04,704 --> 02:41:08,075
Are you frightened about something?

3182
02:41:08,075 --> 02:41:09,944
About this procedure that they talked

3183
02:41:09,944 --> 02:41:13,774
to you about, is that what's worrying you?

3184
02:41:13,774 --> 02:41:16,940
Let me explain it to you a little bit.

3185
02:41:18,672 --> 02:41:20,505
Two or three times now

3186
02:41:22,061 --> 02:41:26,657
when your breathing has suddenly become very difficult,

3187
02:41:26,657 --> 02:41:28,238
we've had to put that tube down

3188
02:41:28,238 --> 02:41:31,405
your throat to help you breath, right?

3189
02:41:32,907 --> 02:41:33,740
Okay.

3190
02:41:36,039 --> 02:41:39,194
We're about to take it out again

3191
02:41:39,194 --> 02:41:42,612
because you've done well after the last episode

3192
02:41:42,612 --> 02:41:44,195
but we're concerned

3193
02:41:45,299 --> 02:41:47,949
that if we do and we have to do it again,

3194
02:41:47,949 --> 02:41:49,805
it will just irritate your throat

3195
02:41:49,805 --> 02:41:52,472
a great deal in going in and out

3196
02:41:53,369 --> 02:41:57,791
and so the lung people, the pulmonary consultants

3197
02:41:57,791 --> 02:42:02,432
have suggested that we do what's called a tracheostomy

3198
02:42:02,432 --> 02:42:06,932
by making an opening here which will give us an access

3199
02:42:08,790 --> 02:42:13,273
to your airway so that we can suction it out

3200
02:42:13,273 --> 02:42:16,106
so that the breathing can be easy.

3201
02:42:17,012 --> 02:42:20,471
This does not have to be anything permanent.

3202
02:42:20,471 --> 02:42:25,310
In the past we have closed these over with some people.

3203
02:42:25,310 --> 02:42:28,076
Is everything that I've said clear so far?

3204
02:42:28,076 --> 02:42:28,909
Okay.

3205
02:42:29,892 --> 02:42:33,839
Now, I think the important thing is that nobody

3206
02:42:33,839 --> 02:42:37,839
will do anything to you without your permission.

3207
02:42:39,400 --> 02:42:42,043
So what you have to tell me is does this

3208
02:42:42,043 --> 02:42:45,543
make sense to you to go ahead and do this?

3209
02:42:48,192 --> 02:42:49,692
What do you think?

3210
02:42:51,658 --> 02:42:56,325
You're not sure, okay, do you want me to decide for you?

3211
02:42:57,671 --> 02:42:58,869
Okay.

3212
02:42:58,869 --> 02:43:03,369
I think we will because Dr. Schwartstein whom you know

3213
02:43:04,343 --> 02:43:07,731
is a lung consultant and Dr. Weiss who is the senior

3214
02:43:07,731 --> 02:43:12,510
lung consultant and was on this Board for a whole month

3215
02:43:12,510 --> 02:43:16,326
both think it's to your best interests and will provide

3216
02:43:16,326 --> 02:43:21,043
more comfort for you and ease in taking care of you

3217
02:43:21,043 --> 02:43:24,993
compared to having this tube in your nose and down

3218
02:43:24,993 --> 02:43:28,825
into your airway or down your throat into your airway.

3219
02:43:28,825 --> 02:43:32,939
These tubes will come out after the procedure.

3220
02:43:32,939 --> 02:43:36,355
So there'll be some payoff for you in doing it.

3221
02:43:36,355 --> 02:43:38,417
Is everything I've said clear to you?

3222
02:43:38,417 --> 02:43:41,012
These are our options at this time.

3223
02:43:41,012 --> 02:43:43,873
We'll talk and in the meantime,

3224
02:43:43,873 --> 02:43:46,231
we'll try and arrange time in case we all

3225
02:43:46,231 --> 02:43:49,981
agree that that's the right procedure for us.

3226
02:43:55,491 --> 02:43:57,074
I'll see you later.

3227
02:43:59,377 --> 02:44:03,619
- [Scott] He's always on the side of letting 'em live.

3228
02:44:03,619 --> 02:44:06,612
- Well if it's not-- - Doing everything possible.

3229
02:44:06,612 --> 02:44:08,398
- I think he also is ageist,

3230
02:44:08,398 --> 02:44:10,010
it's hard not to be when you're young.

3231
02:44:10,010 --> 02:44:11,790
- [Scott] But look, he's a layperson.

3232
02:44:11,790 --> 02:44:13,643
- But that's the point.

3233
02:44:13,643 --> 02:44:15,050
- You would not,

3234
02:44:15,050 --> 02:44:17,740
I mean you're supposed to know your business.

3235
02:44:17,740 --> 02:44:19,225
What does he do, he's a lawyer?

3236
02:44:19,225 --> 02:44:20,705
- He's a lawyer. - He's a lawyer, right?

3237
02:44:20,705 --> 02:44:21,788
If it came to

3238
02:44:23,731 --> 02:44:26,451
a tort case or whatever and he said Rachel,

3239
02:44:26,451 --> 02:44:28,646
we have to do this, this and this,

3240
02:44:28,646 --> 02:44:29,927
you would ask him some questions

3241
02:44:29,927 --> 02:44:32,002
about it but he's the professional, not you.

3242
02:44:32,002 --> 02:44:34,262
- I know, I would trust him. - Whereas your job

3243
02:44:34,262 --> 02:44:36,246
is to interpret all of this stuff.

3244
02:44:36,246 --> 02:44:39,583
- See if I came home and I said I have this clinic patient,

3245
02:44:39,583 --> 02:44:43,047
she has this hopeless tumor, there's like one in a million.

3246
02:44:43,047 --> 02:44:45,835
She's 35 years old, she just had baby

3247
02:44:45,835 --> 02:44:50,835
and I can't see putting her through the torture of chemo,

3248
02:44:50,976 --> 02:44:52,509
his response would be that's

3249
02:44:52,509 --> 02:44:55,622
not your choice, that's her choice.

3250
02:44:55,622 --> 02:44:58,071
- Well I think that that's partly right

3251
02:44:58,071 --> 02:44:59,646
in the sense of saying that--

3252
02:44:59,646 --> 02:45:03,309
- He would probably feel that she should choose the chemo.

3253
02:45:03,309 --> 02:45:05,812
- Well but she should have the choice of understanding,

3254
02:45:05,812 --> 02:45:07,635
making an informed decision about,

3255
02:45:07,635 --> 02:45:10,632
I mean this gets into not the question of DNR

3256
02:45:10,632 --> 02:45:14,196
but sort of what is the physician's responsibility?

3257
02:45:14,196 --> 02:45:18,279
What is an informed choice and what is, you know?

3258
02:45:19,434 --> 02:45:21,851
The problem is that you know,

3259
02:45:24,694 --> 02:45:27,004
it's always informed in quotes, you know?

3260
02:45:27,004 --> 02:45:29,445
It's yes, we can cure your leukemia but you're gonna

3261
02:45:29,445 --> 02:45:31,640
have to spend the next year in the hospital and people

3262
02:45:31,640 --> 02:45:35,954
are gonna stick needles in your body every day and

3263
02:45:35,954 --> 02:45:38,323
you know, horrible things and you'll be tortured

3264
02:45:38,323 --> 02:45:42,139
in ways you never dreamed could possibly occur.

3265
02:45:42,139 --> 02:45:43,639
But you will live.

3266
02:45:44,702 --> 02:45:46,029
Some people would say well,

3267
02:45:46,029 --> 02:45:48,946
that's the definition of Purgatory.

3268
02:45:49,790 --> 02:45:51,769
And some people would say no,

3269
02:45:51,769 --> 02:45:53,973
I take my chances, I'm going right to heaven.

3270
02:45:53,973 --> 02:45:56,973
Do not pass Go, do not collect $200.

3271
02:45:57,905 --> 02:45:59,238
I mean you know,

3272
02:46:02,153 --> 02:46:05,012
the question is what is informed--

3273
02:46:05,012 --> 02:46:06,460
- Well that's the thing.

3274
02:46:06,460 --> 02:46:09,000
It just strikes me how as this layperson who's

3275
02:46:09,000 --> 02:46:12,080
sort of lived with me through medical school and all,

3276
02:46:12,080 --> 02:46:14,568
he still always comes down on the side of

3277
02:46:14,568 --> 02:46:17,590
the hope and the chance even though you know,

3278
02:46:17,590 --> 02:46:20,002
he's heard quite graphic descriptions

3279
02:46:20,002 --> 02:46:24,083
of the chi chi that goes on and so then when I say,

3280
02:46:24,083 --> 02:46:27,891
he says it should be her choice and I say yes but you know,

3281
02:46:27,891 --> 02:46:30,504
who's giving her the information to make that choice?

3282
02:46:30,504 --> 02:46:32,736
It's me and I cannot help,

3283
02:46:32,736 --> 02:46:37,736
my bias must come through, I'm human, I'm not a computer.

3284
02:46:37,957 --> 02:46:42,790
- Well right, I guess I think as long as you realize that,

3285
02:46:43,908 --> 02:46:48,655
I think as much as doctors try to be objective--

3286
02:46:48,655 --> 02:46:52,618
- It's impossible. - Nobody is totally objective.

3287
02:46:52,618 --> 02:46:54,472
We slant the news and sorta say look,

3288
02:46:54,472 --> 02:46:57,044
I think you should do this and this and this.

3289
02:46:57,044 --> 02:47:01,515
I am quite nihilistic about what actually happens.

3290
02:47:01,515 --> 02:47:02,515
I think that

3291
02:47:08,061 --> 02:47:10,894
from a personal point of view, I think you do

3292
02:47:10,894 --> 02:47:14,193
real well with the infectious diseases and if you can

3293
02:47:14,193 --> 02:47:16,184
exercise, keep your weight down, don't smoke--

3294
02:47:16,184 --> 02:47:17,511
- [Doctor] That's easy.

3295
02:47:17,511 --> 02:47:21,556
- Then you've done pretty much what you can but you know,

3296
02:47:21,556 --> 02:47:25,721
a lot of this stuff that goes on is just not

3297
02:47:25,721 --> 02:47:29,399
really relevant to making quality of life

3298
02:47:29,399 --> 02:47:32,649
or length of life all that much better.

3299
02:47:33,534 --> 02:47:35,856
- To give people quality of life,

3300
02:47:35,856 --> 02:47:38,655
you could like be a furniture salesman or something.

3301
02:47:38,655 --> 02:47:40,739
(laughs)

3302
02:47:42,136 --> 02:47:45,065
It's easy to fix things that are fixable.

3303
02:47:45,065 --> 02:47:48,458
- Well it's really rolling the rock up the hill

3304
02:47:48,458 --> 02:47:51,375
and having it come back down again.

3305
02:47:53,268 --> 02:47:55,685
That's a lot of what this is.

3306
02:48:04,982 --> 02:48:07,345
- The instances when it's important to

3307
02:48:07,345 --> 02:48:10,012
start raising the question about

3308
02:48:11,817 --> 02:48:15,900
withdrawing or withholding or stopping treatment,

3309
02:48:17,391 --> 02:48:21,248
I'm gonna use the phrase raise the question a lot

3310
02:48:21,248 --> 02:48:24,655
because at no point in this discussion,

3311
02:48:24,655 --> 02:48:27,310
because this is all theoretical and hypothetical,

3312
02:48:27,310 --> 02:48:30,137
am I advocating in any of the instances I'm going

3313
02:48:30,137 --> 02:48:33,291
to talk about that it's absolutely the right thing to do.

3314
02:48:33,291 --> 02:48:36,290
There is never an absolute in these situations because

3315
02:48:36,290 --> 02:48:40,805
the clinical contingencies as well as people's moral

3316
02:48:40,805 --> 02:48:44,294
and religious feelings have as much to do with

3317
02:48:44,294 --> 02:48:47,413
these kinds of decisions as any theoretical basis.

3318
02:48:47,413 --> 02:48:50,413
So having said that, let me proceed.

3319
02:48:51,269 --> 02:48:54,350
There are probably four instances,

3320
02:48:54,350 --> 02:48:57,098
kind of general situations that we confront

3321
02:48:57,098 --> 02:49:00,871
particularly in critical care settings but throughout

3322
02:49:00,871 --> 02:49:04,470
interdisciplinary clinical practice where it's appropriate

3323
02:49:04,470 --> 02:49:08,793
to raise the question about stopping treatment.

3324
02:49:08,793 --> 02:49:11,762
The first of those is very easy and it has

3325
02:49:11,762 --> 02:49:14,784
to do with what we talked about last week.

3326
02:49:14,784 --> 02:49:18,425
When the clinical diagnosis of brain death has been made,

3327
02:49:18,425 --> 02:49:23,020
any of the support therapies that have been initiated

3328
02:49:23,020 --> 02:49:25,902
can and should be stopped.

3329
02:49:25,902 --> 02:49:29,069
That seems fairly obvious and probably

3330
02:49:30,232 --> 02:49:34,475
is fairly obvious but we've all been in the situation where

3331
02:49:34,475 --> 02:49:37,839
we find ourselves or we are working with

3332
02:49:37,839 --> 02:49:41,734
physician colleagues who ask families permission

3333
02:49:41,734 --> 02:49:43,848
to turn off life-support systems in

3334
02:49:43,848 --> 02:49:46,619
the event of a brain death diagnosis.

3335
02:49:46,619 --> 02:49:49,856
I think a combination of things result in

3336
02:49:49,856 --> 02:49:53,860
those awful situations where patients' families

3337
02:49:53,860 --> 02:49:55,929
either can't digest or can't accept or can't

3338
02:49:55,929 --> 02:49:59,027
understand the clinical diagnosis of brain death

3339
02:49:59,027 --> 02:50:01,443
and therefore have a difficult time going along

3340
02:50:01,443 --> 02:50:03,811
with the termination of life-support systems.

3341
02:50:03,811 --> 02:50:07,499
For one thing, we as clinicians have to accept

3342
02:50:07,499 --> 02:50:10,528
a lot of the blame ourselves, as we said last week,

3343
02:50:10,528 --> 02:50:13,797
we tend when we go out to talk to patients' families,

3344
02:50:13,797 --> 02:50:15,879
sometimes to soften the blow

3345
02:50:15,879 --> 02:50:19,922
with euphemisms that only confuse the issue.

3346
02:50:19,922 --> 02:50:23,248
Even saying brain death as opposed to death

3347
02:50:23,248 --> 02:50:26,801
sometimes confuses the issue because we imply that

3348
02:50:26,801 --> 02:50:30,582
the person isn't really dead and while the diagnosis

3349
02:50:30,582 --> 02:50:33,330
of brain death is made differently and there's

3350
02:50:33,330 --> 02:50:36,742
a different clinical picture than physiological

3351
02:50:36,742 --> 02:50:39,473
death as the distinction has been made,

3352
02:50:39,473 --> 02:50:42,894
dead is dead and as hard as that is,

3353
02:50:42,894 --> 02:50:45,927
it's more compassionate if we kind of give all

3354
02:50:45,927 --> 02:50:48,168
the bad news at once and then rally all of our

3355
02:50:48,168 --> 02:50:52,232
resources to support these patients' families

3356
02:50:52,232 --> 02:50:55,806
through this horrendous news rather than thinking

3357
02:50:55,806 --> 02:50:58,916
that we're buffering them from the ultimate hurt

3358
02:50:58,916 --> 02:51:01,329
and really confusing the issue and either giving them false

3359
02:51:01,329 --> 02:51:06,162
hope or presenting them with options that are not options.

3360
02:52:37,072 --> 02:52:39,435
- How are you holding up? - I'm fine.

3361
02:52:39,435 --> 02:52:41,622
- You doing all right? - I try.

3362
02:52:41,622 --> 02:52:43,604
Yeah, it's hard but--

3363
02:52:43,604 --> 02:52:45,889
- Okay, is there anything I can do for you?

3364
02:52:45,889 --> 02:52:47,083
- No, not now.

3365
02:52:47,083 --> 02:52:48,494
- Have you been using the medicines at all?

3366
02:52:48,494 --> 02:52:49,896
- No. - Okay.

3367
02:52:49,896 --> 02:52:52,833
Well if things get to you, you can use them.

3368
02:52:52,833 --> 02:52:57,833
Did Al give them to you? - No, he's waiting you know.

3369
02:52:57,994 --> 02:52:59,828
But I tried to be calm

3370
02:53:03,655 --> 02:53:06,151
and I wanna feel everything right now.

3371
02:53:06,151 --> 02:53:09,234
I don't wanna take something and feel

3372
02:53:10,241 --> 02:53:14,324
something different, I wanna feel whatever comes.

3373
02:53:15,525 --> 02:53:17,025
- Okay, all right.

3374
02:53:17,929 --> 02:53:20,140
Okay, anything else? - No.

3375
02:53:20,140 --> 02:53:21,915
- Okay, I'll see you tomorrow then okay?

3376
02:53:21,915 --> 02:53:23,582
- Thank you, Doctor.

3377
02:53:35,095 --> 02:53:37,825
- We're just listening to your lungs.

3378
02:53:37,825 --> 02:53:40,408
- Mr. Cabra, how are you doing?

3379
02:53:41,253 --> 02:53:42,086
Any pain?

3380
02:53:43,654 --> 02:53:45,487
- No, good. - No, good.

3381
02:53:47,444 --> 02:53:50,694
He's still got that flush in his mouth.

3382
02:53:53,900 --> 02:53:55,183
- [Sue] I'm just gonna test this

3383
02:53:55,183 --> 02:53:58,016
and make sure it doesn't look bad.

3384
02:54:03,961 --> 02:54:06,434
- [Doctor] I plugged his morphine and his saline line, Sue.

3385
02:54:06,434 --> 02:54:07,267
- [Sue] Excuse me?

3386
02:54:07,267 --> 02:54:09,161
- [Doctor] I plugged his morphine and his saline line.

3387
02:54:09,161 --> 02:54:11,947
- [Sue] Fine, that's fine.

3388
02:54:11,947 --> 02:54:15,136
- Since last night, he's had really

3389
02:54:15,136 --> 02:54:18,741
a deterioration, we're not sure exactly what's going on.

3390
02:54:18,741 --> 02:54:20,396
He continues to have episodes

3391
02:54:20,396 --> 02:54:22,396
where his blood pressure drops.

3392
02:54:22,396 --> 02:54:24,507
- That's the first time that happened today, right?

3393
02:54:24,507 --> 02:54:26,908
- Pardon me. - This happened before?

3394
02:54:26,908 --> 02:54:28,978
- It's happened since last night, just today,

3395
02:54:28,978 --> 02:54:31,840
since early this morning some time during the night.

3396
02:54:31,840 --> 02:54:34,453
He's had episodes where his blood pressure drops

3397
02:54:34,453 --> 02:54:37,812
and where sometimes his heart rate drops as well

3398
02:54:37,812 --> 02:54:39,956
and the amount of oxygen he's getting

3399
02:54:39,956 --> 02:54:43,011
into his bloodstream is less than usual

3400
02:54:43,011 --> 02:54:46,547
and you know that it's already not very much.

3401
02:54:46,547 --> 02:54:47,910
Are you his wife? - Yes.

3402
02:54:47,910 --> 02:54:49,374
- That's what I thought.

3403
02:54:49,374 --> 02:54:52,952
It's already not, he doesn't get enough oxygen

3404
02:54:52,952 --> 02:54:56,473
into his bloodstream but these new episodes

3405
02:54:56,473 --> 02:54:59,413
where his heart rate and his blood pressure change,

3406
02:54:59,413 --> 02:55:01,315
we're not sure what's causing those.

3407
02:55:01,315 --> 02:55:03,827
It may be an effect of having

3408
02:55:03,827 --> 02:55:07,052
prolonged periods without enough oxygen.

3409
02:55:07,052 --> 02:55:10,573
It may be something else going on but we're not sure.

3410
02:55:10,573 --> 02:55:13,768
It's not surprising that a really prolonged course

3411
02:55:13,768 --> 02:55:16,603
like he's had in which he's been critically ill for

3412
02:55:16,603 --> 02:55:20,464
a long period of time that he should now become unstable.

3413
02:55:20,464 --> 02:55:23,425
But that's not surprising and that's really

3414
02:55:23,425 --> 02:55:26,778
what he's doing now and he's never had problems

3415
02:55:26,778 --> 02:55:29,356
with his heart before and I think the problems with

3416
02:55:29,356 --> 02:55:34,249
his heart really reflect what's going on with his lungs.

3417
02:55:34,249 --> 02:55:36,984
- So what's gonna happen now? - Well,

3418
02:55:36,984 --> 02:55:39,586
I don't think I can tell you what's going to happen to him.

3419
02:55:39,586 --> 02:55:41,994
We're trying to find out exactly what's wrong.

3420
02:55:41,994 --> 02:55:44,297
We're gonna get another chest x-ray.

3421
02:55:44,297 --> 02:55:46,872
We've gotten EKGs and we're sending off

3422
02:55:46,872 --> 02:55:49,200
blood cultures to see if there's an infection.

3423
02:55:49,200 --> 02:55:52,373
But so far those have been unrevealing.

3424
02:55:52,373 --> 02:55:55,706
- Let me know anything with the results.

3425
02:55:57,019 --> 02:56:00,851
- Okay, I know you understand that his overall

3426
02:56:01,838 --> 02:56:04,747
prognosis is not very good.

3427
02:56:04,747 --> 02:56:06,369
- Yeah, I know. - In fact it's very poor.

3428
02:56:06,369 --> 02:56:08,276
- They told me everything and I want

3429
02:56:08,276 --> 02:56:10,796
you to be straight, tell me whatever it is.

3430
02:56:10,796 --> 02:56:12,647
- Okay. - Okay, I can handle it.

3431
02:56:12,647 --> 02:56:15,570
- I think we can expect given what's happened to him

3432
02:56:15,570 --> 02:56:18,321
so far and what the course of his disease has been,

3433
02:56:18,321 --> 02:56:21,486
I think we can expect him to continue to get worse

3434
02:56:21,486 --> 02:56:26,261
and this may be the beginning of a more rapid decline.

3435
02:56:26,261 --> 02:56:29,160
We can still look for treatable causes and try

3436
02:56:29,160 --> 02:56:33,667
to reverse it but it may not be anything reversible.

3437
02:56:33,667 --> 02:56:38,231
There may be very little that we can do in this situation.

3438
02:56:38,231 --> 02:56:40,719
As I said, we'll keep trying

3439
02:56:40,719 --> 02:56:43,335
and above all we're trying to

3440
02:56:43,335 --> 02:56:46,752
keep him as comfortable as possible also.

3441
02:56:49,110 --> 02:56:52,766
I know that the doctors that you know a little

3442
02:56:52,766 --> 02:56:55,556
bit better have brought up the issue of whether

3443
02:56:55,556 --> 02:56:59,473
he should be resuscitated should his heart stop

3444
02:57:00,450 --> 02:57:02,593
and that's something that the family needs to

3445
02:57:02,593 --> 02:57:04,753
think about again because now he's starting

3446
02:57:04,753 --> 02:57:08,892
to show signs of his heart having problems.

3447
02:57:08,892 --> 02:57:12,044
If that gets worse, it may come to the fact

3448
02:57:12,044 --> 02:57:15,740
that his heart will stop and that there's

3449
02:57:15,740 --> 02:57:19,345
very little that we can do except to try,

3450
02:57:19,345 --> 02:57:22,145
we can try to restart his heart with very

3451
02:57:22,145 --> 02:57:25,504
heroic measures like using electric shocks

3452
02:57:25,504 --> 02:57:28,724
and pounding on his chest but in his case,

3453
02:57:28,724 --> 02:57:32,251
that's not going to change the overall picture

3454
02:57:32,251 --> 02:57:36,902
at all and it's not likely to be too successful but

3455
02:57:36,902 --> 02:57:39,675
it's something that we need to bring up with you again.

3456
02:57:39,675 --> 02:57:41,583
I know we've brought that up before

3457
02:57:41,583 --> 02:57:44,524
and you may want to talk about it and then

3458
02:57:44,524 --> 02:57:46,690
talk to us about it again.

3459
02:57:50,646 --> 02:57:53,841
It's a very hard thing to bring up.

3460
02:57:53,841 --> 02:57:55,174
- I know. - Yeah.

3461
02:57:56,968 --> 02:57:58,916
Why don't you talk with the rest of the family and we'll

3462
02:57:58,916 --> 02:58:01,738
continue trying to get his blood pressure stabilized now.

3463
02:58:01,738 --> 02:58:02,775
- Okay. - Okay?

3464
02:58:02,775 --> 02:58:03,724
- Okay, thank you.

3465
02:58:03,724 --> 02:58:06,349
- We're doing all that we can for him now, as I said.

3466
02:58:06,349 --> 02:58:07,839
We're trying to find the cause

3467
02:58:07,839 --> 02:58:10,422
of this and trying to treat it.

3468
02:58:11,369 --> 02:58:14,601
It just may be the end of his disease

3469
02:58:14,601 --> 02:58:17,305
and it may not be something treatable

3470
02:58:17,305 --> 02:58:19,612
and I want you to know that and we're not giving up

3471
02:58:19,612 --> 02:58:24,243
on him or anything but I think you need to understand that.

3472
02:58:24,243 --> 02:58:25,401
Okay? - Thank you.

3473
02:58:25,401 --> 02:58:29,318
- We'll let you know when you can come back in.

3474
02:58:39,339 --> 02:58:40,922
- The only think that I really can think of

3475
02:58:40,922 --> 02:58:43,731
is that he's got some autonomic dysfunction

3476
02:58:43,731 --> 02:58:45,674
just 'cause of nerve irritation.

3477
02:58:45,674 --> 02:58:47,556
No other explanation really fits very well.

3478
02:58:47,556 --> 02:58:48,764
- [Dr. Brisol] I know.

3479
02:58:48,764 --> 02:58:50,443
That's the problem, nothing really fits.

3480
02:58:50,443 --> 02:58:53,009
There's definitely a change and I don't know what it is.

3481
02:58:53,009 --> 02:58:54,946
His mental status is different also.

3482
02:58:54,946 --> 02:58:56,642
- He's much less responsive. - He's not responsive.

3483
02:58:56,642 --> 02:58:58,623
- He was less responsive this morning.

3484
02:58:58,623 --> 02:59:00,576
- [Dr. Brisol] And they keep backing off, backing off,

3485
02:59:00,576 --> 02:59:04,420
backing off on the sedation and he's still not responding.

3486
02:59:04,420 --> 02:59:07,170
In fact becoming less responsive.

3487
02:59:09,012 --> 02:59:12,509
- I think from a practical point of view basically

3488
02:59:12,509 --> 02:59:15,715
our options are to give him fluids

3489
02:59:15,715 --> 02:59:18,705
and then use pressers if he needs it.

3490
02:59:18,705 --> 02:59:21,723
The last couple days, his weight's not

3491
02:59:21,723 --> 02:59:24,366
changed a great deal, he's been sort of even.

3492
02:59:24,366 --> 02:59:26,767
He probably has some sense of a loss

3493
02:59:26,767 --> 02:59:28,634
in addition to what they're measuring.

3494
02:59:28,634 --> 02:59:31,000
So you may be just a touch behind.

3495
02:59:31,000 --> 02:59:32,948
- [Dr. Brisol] We just gave him a unit of blood

3496
02:59:32,948 --> 02:59:36,887
in addition to fluids and he did this after that.

3497
02:59:36,887 --> 02:59:38,630
We can keep pushing on that.

3498
02:59:38,630 --> 02:59:42,720
- It took us a few liters to catch up the other day.

3499
02:59:42,720 --> 02:59:44,914
- I have a feeling that's not gonna be it.

3500
02:59:44,914 --> 02:59:47,848
I saw the family and they have actually

3501
02:59:47,848 --> 02:59:49,708
been in the room when this happened,

3502
02:59:49,708 --> 02:59:52,200
the wife was in the room and I just

3503
02:59:52,200 --> 02:59:54,686
told her that he was deteriorating somewhat,

3504
02:59:54,686 --> 02:59:57,297
that he was becoming a little bit unstable

3505
02:59:57,297 --> 02:59:59,902
in terms of his heart and that it may,

3506
02:59:59,902 --> 03:00:01,813
it might be something we could fix but it

3507
03:00:01,813 --> 03:00:04,346
might be just sort of the end-stage of everything

3508
03:00:04,346 --> 03:00:06,666
that's gone on and the result of the disease

3509
03:00:06,666 --> 03:00:09,749
in his lungs and she understood that.

3510
03:00:11,364 --> 03:00:12,981
- I've tried to prepare her for the fact

3511
03:00:12,981 --> 03:00:16,282
that he's on the edge and even very small

3512
03:00:16,282 --> 03:00:20,387
changes are gonna make a big difference.

3513
03:00:20,387 --> 03:00:22,291
I think that deep in her heart she understands that,

3514
03:00:22,291 --> 03:00:24,065
though I'm not sure she really wants to believe it.

3515
03:00:24,065 --> 03:00:27,559
- Yeah, it seemed like she understood that.

3516
03:00:27,559 --> 03:00:30,420
- I know you talked with Dr. Brisol

3517
03:00:30,420 --> 03:00:33,157
inside and she called me and I came by

3518
03:00:33,157 --> 03:00:35,855
to just have a brief look and talk with her.

3519
03:00:35,855 --> 03:00:38,807
He did this same sort of thing about three days ago

3520
03:00:38,807 --> 03:00:42,148
but only for a couple of hours and then it went away.

3521
03:00:42,148 --> 03:00:45,511
His blood pressure dropped and his pulse dropped

3522
03:00:45,511 --> 03:00:47,172
and then it went away very quickly

3523
03:00:47,172 --> 03:00:50,005
and we never knew why it happened.

3524
03:00:51,008 --> 03:00:55,497
But this has been going on off and on for most of the day.

3525
03:00:55,497 --> 03:00:57,140
It's had times when it's been better

3526
03:00:57,140 --> 03:01:00,228
and times when it's been worse and we

3527
03:01:00,228 --> 03:01:03,229
don't really have a good explanation for it.

3528
03:01:03,229 --> 03:01:05,092
We've given him some blood,

3529
03:01:05,092 --> 03:01:08,543
we were giving him some intravenous fluids,

3530
03:01:08,543 --> 03:01:12,519
none of that so far has made a very big difference.

3531
03:01:12,519 --> 03:01:14,599
He may be a little bit better,

3532
03:01:14,599 --> 03:01:16,814
his blood pressure is up a little bit right now but

3533
03:01:16,814 --> 03:01:20,019
I'm not sure that it's really been any substantial change.

3534
03:01:20,019 --> 03:01:21,960
- Do you know for how long?

3535
03:01:21,960 --> 03:01:26,085
Because maybe because of the transfusion?

3536
03:01:26,085 --> 03:01:27,984
- Well, I don't know if he's gotten

3537
03:01:27,984 --> 03:01:30,783
better because of the transfusion or not.

3538
03:01:30,783 --> 03:01:32,679
He hasn't gotten substantially better.

3539
03:01:32,679 --> 03:01:36,535
I think the point really is that he's not

3540
03:01:36,535 --> 03:01:38,886
as well as he was let's say yesterday.

3541
03:01:38,886 --> 03:01:42,085
I don't understand why there's been this change.

3542
03:01:42,085 --> 03:01:45,032
His oxygen levels in his blood are basically

3543
03:01:45,032 --> 03:01:47,766
the same but for some reason or another,

3544
03:01:47,766 --> 03:01:49,640
his heart just slows down and it pumps

3545
03:01:49,640 --> 03:01:52,491
less hard and his blood pressure goes down

3546
03:01:52,491 --> 03:01:55,034
and it's a worrisome type of thing and it's

3547
03:01:55,034 --> 03:01:57,119
worrisome in particular when we don't have

3548
03:01:57,119 --> 03:02:00,709
an explanation for it, when we don't understand it.

3549
03:02:00,709 --> 03:02:03,065
Because then we don't know specifically

3550
03:02:03,065 --> 03:02:05,482
what to do to make it better.

3551
03:02:06,897 --> 03:02:11,422
From a practical point of view, what we will do is

3552
03:02:11,422 --> 03:02:14,663
give him the fluids and give him the blood.

3553
03:02:14,663 --> 03:02:15,496
All right.

3554
03:02:17,065 --> 03:02:19,337
And if necessary we will give him

3555
03:02:19,337 --> 03:02:23,315
some medicine to help stimulate his heart.

3556
03:02:23,315 --> 03:02:26,030
Those medicines have their own problems,

3557
03:02:26,030 --> 03:02:28,795
they carry their own risks and dangers.

3558
03:02:28,795 --> 03:02:32,982
Our concern is that if we can't find an explanation

3559
03:02:32,982 --> 03:02:37,280
for this and the medicines and the fluids don't help him,

3560
03:02:37,280 --> 03:02:41,280
that we may run out of things to do to help him.

3561
03:02:42,652 --> 03:02:46,420
I just want you to understand that he's really very

3562
03:02:46,420 --> 03:02:51,087
much on the edge, that he doesn't have a lot of reserve.

3563
03:02:53,313 --> 03:02:57,400
But as we've talked about before, we'll do what we can.

3564
03:02:57,400 --> 03:03:00,480
You just need to understand that it's obviously a very

3565
03:03:00,480 --> 03:03:02,882
critical situation. - Yes, I understand

3566
03:03:02,882 --> 03:03:05,751
and I'm aware of everything and I want you

3567
03:03:05,751 --> 03:03:08,668
to tell me straight whatever it is.

3568
03:03:10,314 --> 03:03:13,672
- So, I've talked with Dr. Brisol and we have

3569
03:03:13,672 --> 03:03:17,681
a plan for the evening and we'll just try that.

3570
03:03:17,681 --> 03:03:19,627
See how it goes.

3571
03:03:19,627 --> 03:03:21,494
All right? - Okay.

3572
03:03:21,494 --> 03:03:24,991
- Do you have any questions for me or any other thoughts?

3573
03:03:24,991 --> 03:03:28,147
- [Mrs. Cabra] No, just if the medicine,

3574
03:03:28,147 --> 03:03:33,147
whatever you're trying to do, it doesn't work, nothing can--

3575
03:03:33,377 --> 03:03:34,703
- I don't think there's anything

3576
03:03:34,703 --> 03:03:37,096
else we could do to stimulate his heart

3577
03:03:37,096 --> 03:03:40,572
and get it pumping harder than those medicines.

3578
03:03:40,572 --> 03:03:44,439
They're very powerful, potent medicines.

3579
03:03:44,439 --> 03:03:46,679
But I don't think that there would be other tricks

3580
03:03:46,679 --> 03:03:51,153
that we would have that we could use to help him out.

3581
03:03:51,153 --> 03:03:54,359
So these things really have to work for him.

3582
03:03:54,359 --> 03:03:56,393
- [Mrs. Cabra] If the medicine works,

3583
03:03:56,393 --> 03:03:59,426
you have to continue to give him the medicine every day, or?

3584
03:03:59,426 --> 03:04:02,282
- This medicine would be given intravenously

3585
03:04:02,282 --> 03:04:06,146
continuously, it would just go in him

3586
03:04:06,146 --> 03:04:08,186
right around the clock, okay?

3587
03:04:08,186 --> 03:04:09,851
It's not medicine that we would

3588
03:04:09,851 --> 03:04:12,205
give one shot of and see how it did.

3589
03:04:12,205 --> 03:04:13,748
- [Mrs. Cabra] How is he now,

3590
03:04:13,748 --> 03:04:15,389
his blood pressure really high or?

3591
03:04:15,389 --> 03:04:17,776
- It's a tiny bit higher but not very much higher.

3592
03:04:17,776 --> 03:04:20,294
It was 77, it's 82 now but that's not

3593
03:04:20,294 --> 03:04:22,822
really a big difference and I'm not sure

3594
03:04:22,822 --> 03:04:25,671
that's an indication that it's getting better.

3595
03:04:25,671 --> 03:04:27,501
In fact I think it really

3596
03:04:27,501 --> 03:04:30,834
has to be viewed as just being the same.

3597
03:04:33,733 --> 03:04:36,775
We're gonna try more fluids and more blood first

3598
03:04:36,775 --> 03:04:38,942
and see how he does, okay?

3599
03:04:40,734 --> 03:04:43,126
I assume as we've talked about before

3600
03:04:43,126 --> 03:04:46,079
that you'd like us to continue to do what we can to--

3601
03:04:46,079 --> 03:04:48,329
- [Mrs. Cabra] Yes, please.

3602
03:04:49,331 --> 03:04:52,581
She told me about you know, the shocks.

3603
03:04:53,987 --> 03:04:56,497
But I can't make that decision.

3604
03:04:56,497 --> 03:04:57,914
it's hard to say.

3605
03:05:00,023 --> 03:05:02,434
I can't. - I understand.

3606
03:05:02,434 --> 03:05:05,104
- [Mrs. Cabra] So I want everything to help him.

3607
03:05:05,104 --> 03:05:07,379
- Okay, we understand and we don't

3608
03:05:07,379 --> 03:05:09,443
think that that's an unreasonable position.

3609
03:05:09,443 --> 03:05:12,296
We think it's a very difficult decision.

3610
03:05:12,296 --> 03:05:14,879
We have a hard time with it too

3611
03:05:17,762 --> 03:05:20,095
because he's a young man and

3612
03:05:21,116 --> 03:05:23,170
he's otherwise quite healthy

3613
03:05:23,170 --> 03:05:25,320
and we'd like him to pull through.

3614
03:05:25,320 --> 03:05:28,461
We're just concerned about his chances.

3615
03:05:28,461 --> 03:05:31,663
But we will follow your wishes and we will do all that

3616
03:05:31,663 --> 03:05:34,114
and we'll try out best, okay?

3617
03:05:34,114 --> 03:05:38,112
- [Mrs. Cabra] Because I can't make that decision with him.

3618
03:05:38,112 --> 03:05:40,403
- That's fine, okay?

3619
03:05:40,403 --> 03:05:42,828
Your decision is not necessarily a bad one.

3620
03:05:42,828 --> 03:05:47,202
It's a hard one but it's not a bad one, okay?

3621
03:05:47,202 --> 03:05:50,969
- Okay, Doctor. - So we'll just have to see.

3622
03:05:50,969 --> 03:05:52,948
And if there are any major changes,

3623
03:05:52,948 --> 03:05:55,204
Dr. Brisol will call me back.

3624
03:05:55,204 --> 03:05:57,251
- Okay, Doctor. - All right?

3625
03:05:57,251 --> 03:05:59,334
- Okay, thank you. - Okay.

3626
03:06:33,744 --> 03:06:37,988
- [Nurse] Get ya a chair so that you can sit by the edge.

3627
03:06:37,988 --> 03:06:39,655
I can put that down.

3628
03:06:47,522 --> 03:06:48,939
- Today you know,

3629
03:06:50,348 --> 03:06:53,332
his blood count isn't getting higher,

3630
03:06:53,332 --> 03:06:57,311
so they had to put in again more blood.

3631
03:06:57,311 --> 03:06:58,728
He hung in there.

3632
03:06:59,920 --> 03:07:02,474
But nothing's changed, you know?

3633
03:07:02,474 --> 03:07:05,557
I think he's getting worse every day.

3634
03:07:07,861 --> 03:07:09,194
Yes, I think so.

3635
03:07:10,446 --> 03:07:14,368
Yesterday they told me, had to prepare me about

3636
03:07:14,368 --> 03:07:18,701
if they had to use electric shock in case his blood,

3637
03:07:20,904 --> 03:07:22,821
his heart start to stop

3638
03:07:25,227 --> 03:07:28,048
and they tell me I had to make that decision

3639
03:07:28,048 --> 03:07:32,807
if they want to use it or, but I can't, I can't do it.

3640
03:07:32,807 --> 03:07:36,307
I can't make that decision, it's too hard.

3641
03:07:39,974 --> 03:07:42,160
He's too young, you know?

3642
03:07:42,160 --> 03:07:43,993
And I want to give him

3643
03:07:45,752 --> 03:07:47,335
any chance to live,

3644
03:07:48,303 --> 03:07:49,470
I know he's...

3645
03:08:05,634 --> 03:08:08,717
Oh yeah, he's hung in there you know?

3646
03:08:09,938 --> 03:08:12,763
He wants us there to believe because I know,

3647
03:08:12,763 --> 03:08:15,879
I know he, you know, he doesn't,

3648
03:08:15,879 --> 03:08:18,962
he hung in there with all that stuff.

3649
03:08:20,663 --> 03:08:22,746
Yes, yeah he's conscious.

3650
03:08:23,715 --> 03:08:28,215
Yesterday I talked to him and I tried to encourage him

3651
03:08:32,812 --> 03:08:36,229
and I know he was conscious in that time.

3652
03:08:37,472 --> 03:08:39,139
But yesterday night,

3653
03:08:40,900 --> 03:08:41,733
he was

3654
03:08:43,028 --> 03:08:46,643
and this morning when I came, he opened his eyes

3655
03:08:46,643 --> 03:08:49,893
and now he's sedated and he's sleeping.

3656
03:09:30,391 --> 03:09:34,308
(high pitched electronic beep)

3657
03:10:07,337 --> 03:10:09,114
- [Doctor] What's there?

3658
03:10:09,114 --> 03:10:11,780
(phone ringing)

3659
03:10:39,285 --> 03:10:43,013
- The one thing that she has conceded at this point

3660
03:10:43,013 --> 03:10:48,013
is to not shock him if he were to have a cardiac arrest.

3661
03:10:48,491 --> 03:10:50,934
Basically what I told her and what she'd like

3662
03:10:50,934 --> 03:10:55,503
is for us to do everything up to the point of shocking.

3663
03:10:55,503 --> 03:10:58,130
In other words, continue to use pressers

3664
03:10:58,130 --> 03:11:00,500
if he becomes hypertensive, to give him

3665
03:11:00,500 --> 03:11:03,734
fluid resuscitation if he needs it.

3666
03:11:03,734 --> 03:11:06,556
But not to shock him. - Okay.

3667
03:11:06,556 --> 03:11:09,576
- If he were to arrest, I think that's reasonable

3668
03:11:09,576 --> 03:11:12,277
at this point. - Okay, fine.

3669
03:11:12,277 --> 03:11:14,175
- I'll write an order. - He goes for his surgery.

3670
03:11:14,175 --> 03:11:16,419
- Yeah and he needs to have a trach,

3671
03:11:16,419 --> 03:11:19,747
he needs to have a line, send him for those things.

3672
03:11:19,747 --> 03:11:24,299
- [Doctor] If he arrests though, we do CPR, et cetera?

3673
03:11:24,299 --> 03:11:25,132
- No, no.

3674
03:11:26,153 --> 03:11:27,789
If he were to have a cardiac arrest,

3675
03:11:27,789 --> 03:11:30,316
you don't do any CPR or any shock.

3676
03:11:30,316 --> 03:11:32,725
But if he becomes hypotensive,

3677
03:11:32,725 --> 03:11:36,139
give him fluids and give him pressers.

3678
03:11:36,139 --> 03:11:39,398
- [Doctor] All right sounds, yeah that sounds reasonable.

3679
03:11:39,398 --> 03:11:41,306
- Okay, I'll write an order.

3680
03:11:41,306 --> 03:11:45,165
- Okay, all right thanks. - I'll write an order.

3681
03:11:45,165 --> 03:11:46,998
- Thanks a lot. - Yeah.

3682
03:11:52,570 --> 03:11:54,110
- [Scott] The other important thing for everybody to

3683
03:11:54,110 --> 03:11:58,925
note is why don't you tell 'em about Larry and the family?

3684
03:11:58,925 --> 03:12:03,038
- Oh yeah, actually Larry's been on the phone with you.

3685
03:12:03,038 --> 03:12:04,616
Maybe you could tell everybody

3686
03:12:04,616 --> 03:12:06,931
the situation in which it occurred.

3687
03:12:06,931 --> 03:12:07,764
- Yeah.

3688
03:12:08,752 --> 03:12:12,408
Just briefly he spoke with the wife at length

3689
03:12:12,408 --> 03:12:15,075
and she's comfortable having him

3690
03:12:16,600 --> 03:12:19,517
not have cardiac resuscitation done

3691
03:12:20,486 --> 03:12:23,260
should he required that.

3692
03:12:23,260 --> 03:12:26,347
She said no shocking and no CPR,

3693
03:12:26,347 --> 03:12:29,137
although she still would be,

3694
03:12:29,137 --> 03:12:32,333
want us to be very aggressive about

3695
03:12:32,333 --> 03:12:34,843
antibiotic treatment, pressers, et cetera.

3696
03:12:34,843 --> 03:12:37,173
Everything short of CPR.

3697
03:12:37,173 --> 03:12:39,117
- [Scott] This is, I mean it becomes

3698
03:12:39,117 --> 03:12:40,811
a little bit of an academic issue because

3699
03:12:40,811 --> 03:12:42,390
that's not what's gonna happen to this guy.

3700
03:12:42,390 --> 03:12:45,554
That's not the way he's gonna expire if that's what happens.

3701
03:12:45,554 --> 03:12:49,340
He's gonna pop a flip or just get septic--

3702
03:12:49,340 --> 03:12:52,287
Well it could eventually but I think that

3703
03:12:52,287 --> 03:12:55,954
it is important for the people to know that.

3704
03:13:03,779 --> 03:13:06,696
- [Doctor] The pulses, good pulses.

3705
03:13:38,953 --> 03:13:42,703
- [Doctor] He got a chest x-ray this morning.

3706
03:14:05,711 --> 03:14:07,850
- I didn't want to,

3707
03:14:07,850 --> 03:14:11,839
I said to Larry and Fabricio last, yesterday

3708
03:14:11,839 --> 03:14:14,347
in the rounds I said "He ain't gonna make it."

3709
03:14:14,347 --> 03:14:16,044
Even before he came back from

3710
03:14:16,044 --> 03:14:19,185
the Pickman and he looked worse.

3711
03:14:19,185 --> 03:14:22,140
- You haven't been the first one to say that.

3712
03:14:22,140 --> 03:14:23,967
I've been saying it for three weeks.

3713
03:14:23,967 --> 03:14:25,795
- [Dr. Brisol] I think the problem with

3714
03:14:25,795 --> 03:14:27,983
the attending is that it's a chemotherapy complication.

3715
03:14:27,983 --> 03:14:31,429
- The guy has quote "a cure" unquote from his embryonal cell

3716
03:14:31,429 --> 03:14:34,288
carcinoma so now he's dying of iatrogenic complications.

3717
03:14:34,288 --> 03:14:38,871
So everybody feels guilty. - It's a very touchy subject.

3718
03:14:41,795 --> 03:14:43,241
- I know, it's too bad people

3719
03:14:43,241 --> 03:14:45,094
can't deconflict themselves from that.

3720
03:14:45,094 --> 03:14:48,162
They get so invested in the treatment.

3721
03:14:48,162 --> 03:14:50,995
I don't know, young guy, you know?

3722
03:14:52,288 --> 03:14:54,871
But what a horrible way to die.

3723
03:14:59,540 --> 03:15:01,279
Larry's usually pretty reasonable too.

3724
03:15:01,279 --> 03:15:02,602
He's not usually difficult to

3725
03:15:02,602 --> 03:15:04,344
deal with about this kind of stuff.

3726
03:15:04,344 --> 03:15:06,344
He's one of the more, there are some of those

3727
03:15:06,344 --> 03:15:10,817
oncologists who really they border on fantasy--

3728
03:15:10,817 --> 03:15:13,265
- Psychosis. - All the time, yeah.

3729
03:15:13,265 --> 03:15:15,506
- [Doctor] We just dealt with one of them up here.

3730
03:15:15,506 --> 03:15:17,422
- [Dr. Brisol] The other night when he dropped his pressure,

3731
03:15:17,422 --> 03:15:19,958
two nights ago or whenever it was,

3732
03:15:19,958 --> 03:15:21,565
I guess it would be four nights ago,

3733
03:15:21,565 --> 03:15:24,534
I called him and he said "Start him on pressers."

3734
03:15:24,534 --> 03:15:25,951
Do this, do that.

3735
03:15:27,472 --> 03:15:30,662
We didn't reach that point but he clearly wanted it.

3736
03:15:30,662 --> 03:15:33,032
- I have a feeling that there's not,

3737
03:15:33,032 --> 03:15:36,222
when you can't find any place to put a line in the guy

3738
03:15:36,222 --> 03:15:41,222
and he's on gentamycin and then he's gonna get the you know,

3739
03:15:41,404 --> 03:15:43,301
the antibiotic for the Andromeda Strain,

3740
03:15:43,301 --> 03:15:46,465
you're sorta stuck in the last ditch here.

3741
03:15:46,465 --> 03:15:48,660
So I don't think, at least she agreed

3742
03:15:48,660 --> 03:15:52,368
to not having us pound on his chest.

3743
03:15:52,368 --> 03:15:55,868
Some small victory. - Major accomplishment.

3744
03:16:18,375 --> 03:16:20,960
- [Nurse] Dr. Zuma, you have a call on line four.

3745
03:16:20,960 --> 03:16:24,210
Dr. Zuma, you have a call on line four.

3746
03:16:37,800 --> 03:16:41,226
- The wife, I've never met the wife.

3747
03:16:41,226 --> 03:16:42,678
I know

3748
03:16:42,678 --> 03:16:43,511
but

3749
03:16:44,415 --> 03:16:46,608
did she come in and see him? - Yeah, oh yeah.

3750
03:16:46,608 --> 03:16:48,251
- They have kids, how many kids?

3751
03:16:48,251 --> 03:16:49,583
Three kids, how old?

3752
03:16:49,583 --> 03:16:52,953
- Did you see those heartbreaking letters up on the wall?

3753
03:16:52,953 --> 03:16:54,453
- 12. - Nine, five.

3754
03:16:55,432 --> 03:16:56,998
- These letters up on the wall,

3755
03:16:56,998 --> 03:16:58,661
"Dear daddy, I miss you so much.

3756
03:16:58,661 --> 03:17:00,678
"I pray for you to get better every day."

3757
03:17:00,678 --> 03:17:04,009
Things like that, heartbreaking.

3758
03:17:04,009 --> 03:17:07,676
- [Doctor] They had the priest in yesterday.

3759
03:17:13,869 --> 03:17:15,202
- Well you know,

3760
03:17:18,361 --> 03:17:22,720
it's hard to know what to do at this point.

3761
03:17:22,720 --> 03:17:23,637
I wonder...

3762
03:17:27,368 --> 03:17:28,201
Well,

3763
03:17:29,818 --> 03:17:32,068
the longer we keep him out,

3764
03:17:35,414 --> 03:17:40,414
I mean the longer we're sorta guaranteeing he's never gonna,

3765
03:17:41,896 --> 03:17:46,896
if he's got a chance it lies in getting his chest tube out,

3766
03:17:47,301 --> 03:17:50,550
lighting up the mussitation, putting him on a T-piece,

3767
03:17:50,550 --> 03:17:53,604
seeing if he can breathe on his own, all that kinda stuff.

3768
03:17:53,604 --> 03:17:56,090
If we don't do that kinda stuff then

3769
03:17:56,090 --> 03:17:59,007
he's just sittin' there waiting to get infected,

3770
03:17:59,007 --> 03:18:00,257
waiting to die.

3771
03:18:01,419 --> 03:18:04,347
I'm not sure he can tolerate any of that stuff.

3772
03:18:04,347 --> 03:18:06,118
I think we may be at the point here where

3773
03:18:06,118 --> 03:18:09,701
his lungs are so bad that he's not gonna...

3774
03:18:17,135 --> 03:18:19,042
I guess maybe what we oughta do

3775
03:18:19,042 --> 03:18:21,014
is just take some small steps.

3776
03:18:21,014 --> 03:18:22,579
My own feeling is that if the chest

3777
03:18:22,579 --> 03:18:24,407
surgeons feel comfortable taking out his tube,

3778
03:18:24,407 --> 03:18:25,768
I would probably take out his tube.

3779
03:18:25,768 --> 03:18:27,814
The reason I say that is that eventually

3780
03:18:27,814 --> 03:18:30,321
he's gonna get an empyema there, he's gonna get

3781
03:18:30,321 --> 03:18:33,399
an infection in sorta the hole open to the outside.

3782
03:18:33,399 --> 03:18:37,574
So okay, he's been on the ventilator now for three weeks

3783
03:18:37,574 --> 03:18:40,544
and he's not been leaking for over a week.

3784
03:18:40,544 --> 03:18:44,476
So let's take it out and then I think we gotta

3785
03:18:44,476 --> 03:18:47,427
see if we can pump a few more calories into the guy.

3786
03:18:47,427 --> 03:18:50,669
See if we can feed him some more

3787
03:18:50,669 --> 03:18:51,502
and

3788
03:18:53,398 --> 03:18:57,111
then I guess the final thing would be

3789
03:18:57,111 --> 03:18:59,564
once we've sort of got that under control

3790
03:18:59,564 --> 03:19:01,463
would be to lighten up on his sedation and see

3791
03:19:01,463 --> 03:19:04,126
if we can get him to breathe on his own some.

3792
03:19:04,126 --> 03:19:05,783
- It sounds like he is taking breaths.

3793
03:19:05,783 --> 03:19:07,519
- That was what happened the past couple days

3794
03:19:07,519 --> 03:19:10,547
but again the ventilators, he's up to 30 popping off.

3795
03:19:10,547 --> 03:19:14,997
- Listen, when he goes on his own, he's got no lungs there.

3796
03:19:14,997 --> 03:19:16,818
He's gonna be--

3797
03:19:16,818 --> 03:19:19,488
- That's what he's doing now. - Some amount of restriction

3798
03:19:19,488 --> 03:19:23,905
and low lung volume always with him, it's pretty bad.

3799
03:19:25,488 --> 03:19:26,982
- I'm sorry, what? - Could you measure that?

3800
03:19:26,982 --> 03:19:29,054
I mean could his lungs be so restrictive that it would be

3801
03:19:29,054 --> 03:19:33,506
impossible for a human to ventilate those kind of lungs?

3802
03:19:33,506 --> 03:19:36,540
- That's possible, in general--

3803
03:19:36,540 --> 03:19:38,372
- [Doctor] That was my impression of the situation.

3804
03:19:38,372 --> 03:19:39,990
- That may be where we're at.

3805
03:19:39,990 --> 03:19:44,887
I think, that's the terminal stage of pulmonary fibrosis

3806
03:19:44,887 --> 03:19:47,523
which is basically what bleomycin is is a pulmonary

3807
03:19:47,523 --> 03:19:50,951
fibrotic disease and in the terminal stage of any

3808
03:19:50,951 --> 03:19:53,645
sort of fibrotic lung disease, CO2 retention

3809
03:19:53,645 --> 03:19:55,518
is sort of a pre-morbid phenomenon.

3810
03:19:55,518 --> 03:19:58,608
They just, you know they run with a low CO2

3811
03:19:58,608 --> 03:20:00,972
because they've had such tremendous respiratory

3812
03:20:00,972 --> 03:20:03,792
stimulus from the proprioceptive influences of

3813
03:20:03,792 --> 03:20:07,394
the small lung that they breathe, they're

3814
03:20:07,394 --> 03:20:10,337
maximally stimulated and then when they just

3815
03:20:10,337 --> 03:20:13,241
can't do it anymore, then their CO2 rises

3816
03:20:13,241 --> 03:20:16,551
and that may be where he's at, in which case,

3817
03:20:16,551 --> 03:20:18,926
we have a sort of significant problem because

3818
03:20:18,926 --> 03:20:21,221
if we have to keep him sedated to have him

3819
03:20:21,221 --> 03:20:23,255
breathe in the ventilator, then we're never

3820
03:20:23,255 --> 03:20:25,121
gonna be able to feed him and it's just

3821
03:20:25,121 --> 03:20:29,522
a question of weeks to months before he dies.

3822
03:20:29,522 --> 03:20:33,983
I think that overall that's sort of where I see things

3823
03:20:33,983 --> 03:20:37,088
being at, on the other hand,

3824
03:20:37,088 --> 03:20:39,921
we're talking three kids here, so.

3825
03:20:41,427 --> 03:20:43,328
It's hard to,

3826
03:20:43,328 --> 03:20:47,285
I guess what, given that he's as sick as he is,

3827
03:20:47,285 --> 03:20:49,337
we ought not to make a lot of sudden moves.

3828
03:20:49,337 --> 03:20:51,842
We oughta do just one small thing at a time

3829
03:20:51,842 --> 03:20:54,410
and not jump in there and really start

3830
03:20:54,410 --> 03:20:57,919
flailing away with a lot of major league changes.

3831
03:20:57,919 --> 03:20:59,752
I think that you know,

3832
03:21:02,530 --> 03:21:05,846
the kinds of things that you could do would be

3833
03:21:05,846 --> 03:21:07,646
take the chest tube out, see if you can get

3834
03:21:07,646 --> 03:21:10,417
a little more calories into the guy.

3835
03:21:10,417 --> 03:21:13,105
Small stuff and then eventually

3836
03:21:13,105 --> 03:21:14,967
gradually lighten up on his sedation

3837
03:21:14,967 --> 03:21:17,800
and see if we can breathe for him.

3838
03:21:18,997 --> 03:21:21,639
If we can still breathe for him with him getting

3839
03:21:21,639 --> 03:21:25,288
less sedation, I mean at some point you gotta try that.

3840
03:21:25,288 --> 03:21:29,423
- Well that test is what they're trying to do now

3841
03:21:29,423 --> 03:21:32,131
and he has a heart rate of 150 and a respiratory

3842
03:21:32,131 --> 03:21:35,278
rate of 30 and a peak pressure of 60 to 70.

3843
03:21:35,278 --> 03:21:36,931
This is...

3844
03:21:36,931 --> 03:21:39,347
- So then-- - When they lighten him up?

3845
03:21:39,347 --> 03:21:44,286
- They've decreased the morphine over the past 24 hours.

3846
03:21:44,286 --> 03:21:47,272
He hasn't been getting morphine balls, so it's just Valium

3847
03:21:47,272 --> 03:21:49,128
and he still has a heart rate of 130

3848
03:21:49,128 --> 03:21:51,795
and respiratory rate of 24 to 30.

3849
03:21:51,795 --> 03:21:54,084
- [Scott] That's not so bad.

3850
03:21:54,084 --> 03:21:56,673
Young guy, his heart's okay. - What do we wanna

3851
03:21:56,673 --> 03:21:57,999
go with?

3852
03:21:57,999 --> 03:22:00,034
- [Dr. Brisol] He can tolerate a tachycardia

3853
03:22:00,034 --> 03:22:03,341
in the setting of trying to lighten him up.

3854
03:22:03,341 --> 03:22:05,071
- I guess I would try to do,

3855
03:22:05,071 --> 03:22:08,044
I mean maybe the way to do this is to

3856
03:22:08,044 --> 03:22:09,789
take out the chest tube and see if we

3857
03:22:09,789 --> 03:22:11,655
can feed him and get him a little stronger

3858
03:22:11,655 --> 03:22:14,454
and then start doing the stuff with the ventilator

3859
03:22:14,454 --> 03:22:16,948
and to not push too hard on that at the moment

3860
03:22:16,948 --> 03:22:19,434
and to put that off for a few days.

3861
03:22:19,434 --> 03:22:22,494
I guess that's what I'd do.

3862
03:22:22,494 --> 03:22:27,435
- [Doctor] Yeah and it might help his semi-pneumonia too.

3863
03:22:27,435 --> 03:22:29,214
- To the extent that he does have an infection,

3864
03:22:29,214 --> 03:22:32,555
I'm not sure that we want to rip him off the ventilator now.

3865
03:22:32,555 --> 03:22:34,695
I would vote for no sudden moves, you know?

3866
03:22:34,695 --> 03:22:36,431
Small things, take the chest tube out,

3867
03:22:36,431 --> 03:22:38,090
see if we can get some more calories into him.

3868
03:22:38,090 --> 03:22:39,956
Don't lighten him up too much.

3869
03:22:39,956 --> 03:22:42,026
Ventilate him 'til we get him to the point where

3870
03:22:42,026 --> 03:22:44,679
we get the fever totally under control.

3871
03:22:44,679 --> 03:22:46,886
Give him a couple more days of antibiotics and then

3872
03:22:46,886 --> 03:22:49,122
maybe the beginning of the week we'll try to lighten up,

3873
03:22:49,122 --> 03:22:51,485
cut back on the sedation and see

3874
03:22:51,485 --> 03:22:54,199
if we can get him to breathe on his own.

3875
03:22:54,199 --> 03:22:56,607
- Assuming the best possible scenario just for

3876
03:22:56,607 --> 03:22:59,600
my own education, should he come off the vent

3877
03:22:59,600 --> 03:23:04,251
and actually do okay and eventually even go home, what's

3878
03:23:04,251 --> 03:23:08,762
the best he could hope for in terms of his functioning?

3879
03:23:08,762 --> 03:23:10,168
- I can't believe we're looking at

3880
03:23:10,168 --> 03:23:13,206
anything more than months here.

3881
03:23:13,206 --> 03:23:15,695
- Months of survival and at best,

3882
03:23:15,695 --> 03:23:18,133
he would not be able to walk around very much.

3883
03:23:18,133 --> 03:23:19,829
- He's never gonna walk around.

3884
03:23:19,829 --> 03:23:20,662
- Okay.

3885
03:23:22,400 --> 03:23:26,421
- I think the best we can hope for is chronic care.

3886
03:23:26,421 --> 03:23:29,408
I'm not even sure we can get to that.

3887
03:23:29,408 --> 03:23:30,741
That's the best.

3888
03:23:31,722 --> 03:23:35,055
I think that that's maybe one in 10,000.

3889
03:23:36,730 --> 03:23:39,374
Maybe even one in a million, I don't know, it's hard to say.

3890
03:23:39,374 --> 03:23:40,874
But I mean I just,

3891
03:23:42,358 --> 03:23:46,858
based on past experience I think it's pretty hopeless.

3892
03:23:49,557 --> 03:23:50,557
So I mean I,

3893
03:23:51,714 --> 03:23:54,080
I guess I would vote for sorta just more of the same.

3894
03:23:54,080 --> 03:23:57,184
Take the chest tube out, keep him on the medication

3895
03:23:57,184 --> 03:24:00,868
and see if we can get some more calories into the guy.

3896
03:24:00,868 --> 03:24:03,543
Then we'll try at the beginning part of the week to

3897
03:24:03,543 --> 03:24:05,692
see what we can do about the ventilator but I just,

3898
03:24:05,692 --> 03:24:08,914
I don't hold out a lot of hope for that.

3899
03:24:08,914 --> 03:24:10,780
It'd be worth a try, look I've been wrong before.

3900
03:24:10,780 --> 03:24:13,780
You never can tell, you have to try.

3901
03:24:37,617 --> 03:24:40,284
(phone ringing)

3902
03:24:41,299 --> 03:24:43,382
- Medical Intensive Care.

3903
03:25:11,648 --> 03:25:14,731
- [Nurse] No, I got 'em, I'm all set.

3904
03:25:23,507 --> 03:25:27,590
Hi, I got a call from Russ Philips on the biopsy.

3905
03:25:36,415 --> 03:25:39,864
- She wants to play out the string so,

3906
03:25:39,864 --> 03:25:42,702
I think he did too, he's got three little kids.

3907
03:25:42,702 --> 03:25:45,106
We're doing everything we can do.

3908
03:25:45,106 --> 03:25:46,471
It's just not working.

3909
03:25:46,471 --> 03:25:48,157
- I saw Dr. Shuleman this morning,

3910
03:25:48,157 --> 03:25:51,143
just to update everyone on the family.

3911
03:25:51,143 --> 03:25:56,143
He talked to Mrs. Cabra yesterday and sort of kind of

3912
03:25:56,168 --> 03:25:59,739
gave her a very grim picture of how things were going

3913
03:25:59,739 --> 03:26:03,487
and just sort of let her know in no uncertain terms

3914
03:26:03,487 --> 03:26:06,429
that he was taking a turn for the worse and that--

3915
03:26:06,429 --> 03:26:08,798
- [Scott] I think that's important that she know that.

3916
03:26:08,798 --> 03:26:11,867
- She still wants everything short of CPR done for him.

3917
03:26:11,867 --> 03:26:13,859
She still wants all that done. - Fine, not a problem.

3918
03:26:13,859 --> 03:26:15,773
- It's been made very clear to her.

3919
03:26:15,773 --> 03:26:17,773
- [Scott] Not a problem.

3920
03:26:18,749 --> 03:26:20,771
- Has he been on any steroids?

3921
03:26:20,771 --> 03:26:23,000
- Not since he came in.

3922
03:26:23,000 --> 03:26:27,417
- [Doctor] Is there any, would there be any benefit--

3923
03:26:28,840 --> 03:26:31,173
- Then just wait over there.

3924
03:26:32,162 --> 03:26:35,356
Yeah, they told me that too, I checked with the nurse.

3925
03:26:35,356 --> 03:26:38,106
Okay good, thanks a lot, bye-bye.

3926
03:26:41,678 --> 03:26:45,327
- I just came from talking with the wife

3927
03:26:45,327 --> 03:26:47,347
and she doesn't want any of that done.

3928
03:26:47,347 --> 03:26:49,750
Take away the antibiotics, keep him on

3929
03:26:49,750 --> 03:26:53,823
as much morphine and Valium as he needs

3930
03:26:53,823 --> 03:26:58,103
and you know, not deal with his fence sittings.

3931
03:26:58,103 --> 03:26:59,431
- No more gases?

3932
03:26:59,431 --> 03:27:03,215
- I wouldn't do any more gases or any more blood work.

3933
03:27:03,215 --> 03:27:05,288
She's very comfortable with that and I think

3934
03:27:05,288 --> 03:27:06,991
we're all comfortable with the fact that

3935
03:27:06,991 --> 03:27:09,244
he's just not gonna turn around at this point.

3936
03:27:09,244 --> 03:27:11,848
He's been intubated for four and a half weeks

3937
03:27:11,848 --> 03:27:16,691
and he's had his ups and downs but it's basically been down.

3938
03:27:16,691 --> 03:27:19,510
It's really pretty inconceivable to me

3939
03:27:19,510 --> 03:27:22,541
that he's gonna get any better.

3940
03:27:22,541 --> 03:27:24,624
And inconceivable to her.

3941
03:27:26,196 --> 03:27:28,363
- Has she gone out? - Yeah.

3942
03:27:29,545 --> 03:27:32,359
Yeah, she's out in the waiting area.

3943
03:27:32,359 --> 03:27:34,012
- That's good.

3944
03:27:34,012 --> 03:27:35,012
- All right?

3945
03:27:36,194 --> 03:27:38,046
So I'll write a brief note

3946
03:27:38,046 --> 03:27:39,723
and I'll talk to whoever's around.

3947
03:27:39,723 --> 03:27:40,997
- Okay.

3948
03:27:40,997 --> 03:27:43,065
- Okay, do you have any objections

3949
03:27:43,065 --> 03:27:46,456
or any problems with that? - Not at all.

3950
03:27:46,456 --> 03:27:49,023
- [Doctor] You did a good job helping her, I'll tell you.

3951
03:27:49,023 --> 03:27:50,640
Because she's come a long way.

3952
03:27:50,640 --> 03:27:52,346
- Yeah, well you guys did a good job too.

3953
03:27:52,346 --> 03:27:54,583
I know you spent a lot of time with her.

3954
03:27:54,583 --> 03:27:56,239
She appreciates it. - She's so wonderful.

3955
03:27:56,239 --> 03:27:58,734
- Yeah, she really is.

3956
03:27:58,734 --> 03:28:02,487
She really is and she's comfortable with the decision.

3957
03:28:02,487 --> 03:28:04,739
She doesn't feel like she's been pushed at all.

3958
03:28:04,739 --> 03:28:07,434
- [Doctor] That's good.

3959
03:28:07,434 --> 03:28:08,880
All right.

3960
03:28:08,880 --> 03:28:11,968
So maybe I could just borrow this for one second.

3961
03:28:11,968 --> 03:28:13,702
- Thank you.

3962
03:28:13,702 --> 03:28:15,869
- All right, so that's it.

3963
03:28:21,709 --> 03:28:23,959
(chattering)

3964
03:28:23,959 --> 03:28:26,545
- DC antibiotics? - Why don't we--

3965
03:28:26,545 --> 03:28:30,521
- [Doctor] Yeah, DC antibiotics, no procedures.

3966
03:28:30,521 --> 03:28:32,354
- Well obviously, wow.

3967
03:28:34,006 --> 03:28:36,182
What, how'd that come about?

3968
03:28:36,182 --> 03:28:38,835
- I think that it's just,

3969
03:28:38,835 --> 03:28:40,533
I think he's just been kind of gradually

3970
03:28:40,533 --> 03:28:44,116
bringing her around to the realization that

3971
03:28:45,003 --> 03:28:47,559
he's not getting better and I think it's

3972
03:28:47,559 --> 03:28:50,084
one of those things where he's been telling her

3973
03:28:50,084 --> 03:28:52,392
that and she hasn't been hearing it and finally

3974
03:28:52,392 --> 03:28:55,947
she's started to hear it, yeah, she's started to hear it.

3975
03:28:55,947 --> 03:28:56,780
And so,

3976
03:28:57,933 --> 03:29:00,183
we're just gonna, you know,

3977
03:29:01,044 --> 03:29:05,107
stop the antibiotics and stop lab work.

3978
03:29:05,107 --> 03:29:07,752
- Good, no labs. - I think no labs, yeah.

3979
03:29:07,752 --> 03:29:09,613
I think no blood gases and no labs.

3980
03:29:09,613 --> 03:29:11,432
- No vent setting changes, no--

3981
03:29:11,432 --> 03:29:12,265
- Yeah.

3982
03:29:14,332 --> 03:29:15,165
- Wow.

3983
03:29:16,280 --> 03:29:19,602
- It's appropriate in my mind.

3984
03:29:19,602 --> 03:29:23,685
- Oh yeah, it's just tragic. - Yeah, it really is.

3985
03:29:34,692 --> 03:29:36,834
Okay Mr. Cabra, I'll start by telling you

3986
03:29:36,834 --> 03:29:38,897
his status because that was the most significant

3987
03:29:38,897 --> 03:29:41,887
event of yesterday and that is that after

3988
03:29:41,887 --> 03:29:45,508
a long talk yesterday between Dr. Shuleman and Mrs. Cabra,

3989
03:29:45,508 --> 03:29:47,675
it was decided to actually

3990
03:29:48,680 --> 03:29:51,929
withdraw antibiotics from Mr. Cabra

3991
03:29:51,929 --> 03:29:53,846
and to not use pressers

3992
03:29:54,790 --> 03:29:57,778
to eliminate any blood drawing

3993
03:29:57,778 --> 03:30:01,945
and actually just maintain him on a ventilator and

3994
03:30:03,205 --> 03:30:07,884
continue to give him his TPN, give him nutrition.

3995
03:30:07,884 --> 03:30:09,717
But that was about it.

3996
03:30:12,695 --> 03:30:15,195
So that's his new disposition.

3997
03:30:16,645 --> 03:30:18,890
Basically comfort measures only,

3998
03:30:18,890 --> 03:30:21,258
he's on morphine as required.

3999
03:30:21,258 --> 03:30:22,951
- [Scott] I think Leonard made the right decision.

4000
03:30:22,951 --> 03:30:26,890
I think that it's been hopeless for a long time and

4001
03:30:26,890 --> 03:30:28,925
nothing we could really do here.

4002
03:30:28,925 --> 03:30:33,008
It's a tragedy but I mean that's the way it goes.

4003
03:30:46,434 --> 03:30:49,012
- If she is competent to make a decision,

4004
03:30:49,012 --> 03:30:51,549
then her decision has to be respected,

4005
03:30:51,549 --> 03:30:53,851
whatever her private physician or her

4006
03:30:53,851 --> 03:30:56,649
husband or what anyone else wants to do.

4007
03:30:56,649 --> 03:30:59,232
Those wishes become essentially

4008
03:31:00,161 --> 03:31:03,328
irrelevant both legally and ethically.

4009
03:31:04,746 --> 03:31:07,861
It's hospital policy, there's no question about it.

4010
03:31:07,861 --> 03:31:12,454
Her wishes get respected if there is agreement that

4011
03:31:12,454 --> 03:31:16,998
she can understand her situation and make a decision.

4012
03:31:16,998 --> 03:31:19,863
There may be disagreement about that, I don't know but--

4013
03:31:19,863 --> 03:31:21,354
- There wasn't this morning but I guess

4014
03:31:21,354 --> 03:31:23,223
if you ever look back at the past notes

4015
03:31:23,223 --> 03:31:25,596
and you read under her neurological status,

4016
03:31:25,596 --> 03:31:27,461
that not everybody always agrees that she

4017
03:31:27,461 --> 03:31:30,218
has been alert or awake or-- - But the question is--

4018
03:31:30,218 --> 03:31:31,340
- To even ask her.

4019
03:31:31,340 --> 03:31:32,809
- [Male Doctor] Now when she makes the decision,

4020
03:31:32,809 --> 03:31:34,796
she has now made the decision or expressed

4021
03:31:34,796 --> 03:31:36,512
a decision and if everybody agrees that

4022
03:31:36,512 --> 03:31:39,929
she was with it to make it sufficiently--

4023
03:31:40,835 --> 03:31:43,116
- Then there's no dilemma. - Yeah, there's no dilemma.

4024
03:31:43,116 --> 03:31:44,572
- [Female Doctor] All right.

4025
03:31:44,572 --> 03:31:46,299
- [Anne-Louise] Well then let's think of another one

4026
03:31:46,299 --> 03:31:48,192
because we gotta come up with something, right?

4027
03:31:48,192 --> 03:31:50,223
- There should be no dilemma. - Right.

4028
03:31:50,223 --> 03:31:51,969
- Have people ever sat down in the room

4029
03:31:51,969 --> 03:31:53,751
with her and with her husband and with

4030
03:31:53,751 --> 03:31:55,785
the attending together and discussed this?

4031
03:31:55,785 --> 03:31:57,032
Because that sounds like the problem.

4032
03:31:57,032 --> 03:31:58,778
- That's today's issue. - That's the next issue.

4033
03:31:58,778 --> 03:32:00,375
- [Anne-Louise] That's what I've been dealing with today.

4034
03:32:00,375 --> 03:32:02,158
- But that sounds like that's, no matter what

4035
03:32:02,158 --> 03:32:03,814
you're gonna decide if you haven't gotten all

4036
03:32:03,814 --> 03:32:08,042
the people together but this is a very different kind of

4037
03:32:08,042 --> 03:32:10,530
tone of a discussion than the Ethics Advisory Board

4038
03:32:10,530 --> 03:32:12,704
is sort of set up for which isn't supposed to be

4039
03:32:12,704 --> 03:32:14,351
complaining about whether one person

4040
03:32:14,351 --> 03:32:16,300
or another has handled this right.

4041
03:32:16,300 --> 03:32:18,039
- [Male Doctor] This is political rather than ethical.

4042
03:32:18,039 --> 03:32:21,288
- [Anne-Louise] I see what you mean.

4043
03:32:21,288 --> 03:32:23,163
- Ethical would be you know,

4044
03:32:23,163 --> 03:32:24,687
some more question as to whether

4045
03:32:24,687 --> 03:32:26,865
or not we really can do this

4046
03:32:26,865 --> 03:32:27,698
and

4047
03:32:28,637 --> 03:32:30,340
I don't think at this point

4048
03:32:30,340 --> 03:32:33,340
in time in our hospital and with our

4049
03:32:35,510 --> 03:32:38,291
counsel from the hospital lawyer and all,

4050
03:32:38,291 --> 03:32:40,473
there's no question that we can do it.

4051
03:32:40,473 --> 03:32:42,475
We not only can do it, we have to do it.

4052
03:32:42,475 --> 03:32:43,814
- [Anne-Louise] Right, right, all right.

4053
03:32:43,814 --> 03:32:45,846
Well then we gotta think of another one.

4054
03:32:45,846 --> 03:32:47,580
- What about the woman with

4055
03:32:47,580 --> 03:32:49,500
breast cancer that we were talking about?

4056
03:32:49,500 --> 03:32:50,786
- Do you remember her, Kim?

4057
03:32:50,786 --> 03:32:54,262
She was the woman that had the tumor growing on the outside

4058
03:32:54,262 --> 03:32:58,017
and I used to put that bark liquid stuff,

4059
03:32:58,017 --> 03:33:00,742
some herbal, I don't know what it was but anyway.

4060
03:33:00,742 --> 03:33:02,889
Yeah and she didn't want to be extubated.

4061
03:33:02,889 --> 03:33:04,841
Meanwhile there was nothing-- - Oh yes.

4062
03:33:04,841 --> 03:33:06,007
- Do you remember her?

4063
03:33:06,007 --> 03:33:07,869
She was in room six. - She was my primary, yeah.

4064
03:33:07,869 --> 03:33:09,828
- Young woman, had never gone to a physician

4065
03:33:09,828 --> 03:33:12,515
until her tumor was growing outwards.

4066
03:33:12,515 --> 03:33:13,920
- And she refused chemo.

4067
03:33:13,920 --> 03:33:16,747
- and she refused chemo and then she was on the vent

4068
03:33:16,747 --> 03:33:19,786
and was probably ready to start to do something

4069
03:33:19,786 --> 03:33:22,157
with the vent and she didn't want anything

4070
03:33:22,157 --> 03:33:24,692
different to be supported. - And her family--

4071
03:33:24,692 --> 03:33:25,889
- [Male Doctor] She didn't want to be extubated.

4072
03:33:25,889 --> 03:33:28,424
- Right, she wanted to stay as she was.

4073
03:33:28,424 --> 03:33:29,757
- That to me is,

4074
03:33:30,653 --> 03:33:32,399
that's an ethical issue.

4075
03:33:32,399 --> 03:33:36,387
That actually with maybe that other woman, do you remember?

4076
03:33:36,387 --> 03:33:38,055
- That woman a couple of months ago,

4077
03:33:38,055 --> 03:33:41,133
the one who said she wanted to live as long

4078
03:33:41,133 --> 03:33:42,880
as she could but the minute she went into

4079
03:33:42,880 --> 03:33:45,117
pulmonary edema and needed to be intubated

4080
03:33:45,117 --> 03:33:47,063
would scream "Leave me alone, leave me alone."

4081
03:33:47,063 --> 03:33:51,450
She had a mental status score of 13 out of like 130

4082
03:33:51,450 --> 03:33:55,065
and the family wanted to make her a DNR but every time

4083
03:33:55,065 --> 03:33:57,769
we would go in to talk to her...

4084
03:33:57,769 --> 03:34:00,494
- That's kinda getting more, this to me is actually,

4085
03:34:00,494 --> 03:34:04,019
this is still a sticky point for me as to

4086
03:34:04,019 --> 03:34:07,374
there was another woman down in bed 11

4087
03:34:07,374 --> 03:34:11,659
back in July who had disseminated endometrial cancer

4088
03:34:11,659 --> 03:34:14,891
or something that, it wasn't traditional endometrial

4089
03:34:14,891 --> 03:34:17,514
cancer but it was some sarcomatous cancer

4090
03:34:17,514 --> 03:34:19,502
that was totally untreatable and everybody

4091
03:34:19,502 --> 03:34:22,419
decided that it was untreatable and

4092
03:34:23,734 --> 03:34:28,475
she was gonna be sent to a chronic care hospital

4093
03:34:28,475 --> 03:34:33,076
from Five South and then arrested unexpectedly

4094
03:34:33,076 --> 03:34:34,409
and came up here

4095
03:34:35,637 --> 03:34:38,266
and was intubated briefly,

4096
03:34:38,266 --> 03:34:41,130
actually got extubated fairly quickly and then

4097
03:34:41,130 --> 03:34:43,153
there was a big discussion about what should be done

4098
03:34:43,153 --> 03:34:47,320
and her, she said "I don't want to die" basically.

4099
03:34:49,152 --> 03:34:51,400
And when people went in and asked her if she

4100
03:34:51,400 --> 03:34:53,889
wanted to be resuscitated, she said "I don't wanna die."

4101
03:34:53,889 --> 03:34:56,285
But in fact, she had a bowel obstruction and nobody

4102
03:34:56,285 --> 03:34:59,681
was proposing to operate on the bowel obstruction

4103
03:34:59,681 --> 03:35:02,672
and the issue was what can you do in that situation?

4104
03:35:02,672 --> 03:35:05,412
What are you obligated to do?

4105
03:35:05,412 --> 03:35:07,769
And it kind of strikes at the same question

4106
03:35:07,769 --> 03:35:11,260
as the woman with breast cancer which is

4107
03:35:11,260 --> 03:35:13,299
in the situation when we kind of decide

4108
03:35:13,299 --> 03:35:16,303
that someone is terminal in a sense, even if they

4109
03:35:16,303 --> 03:35:20,115
wish to keep on going, how much further do you go?

4110
03:35:20,115 --> 03:35:22,402
And the question is what is terminal?

4111
03:35:22,402 --> 03:35:26,267
If someone can live for two months on a ventilator

4112
03:35:26,267 --> 03:35:31,017
even with no therapy, no chemotherapy, are they terminal?

4113
03:35:32,070 --> 03:35:35,237
The woman with the endometrial cancer,

4114
03:35:36,710 --> 03:35:40,627
when I went in and said you're dying basically,

4115
03:35:41,506 --> 03:35:43,896
she was aware of that and really

4116
03:35:43,896 --> 03:35:46,407
what she wanted was to be kept comfortable.

4117
03:35:46,407 --> 03:35:49,471
We essentially told her that there was nothing more that we

4118
03:35:49,471 --> 03:35:54,471
could do for her and therefore resuscitation was irrelevant.

4119
03:35:55,445 --> 03:35:58,883
How can you resuscitate somebody if there is no therapy?

4120
03:35:58,883 --> 03:36:02,466
And this is actually a more kind of naughty

4121
03:36:03,721 --> 03:36:07,861
ethical dilemma to me is everybody talks about care of the

4122
03:36:07,861 --> 03:36:11,758
terminally ill but there's no blood test for terminality.

4123
03:36:11,758 --> 03:36:13,925
What is, what is terminal?

4124
03:36:15,253 --> 03:36:18,765
And you read all these things, it's kinda like competence.

4125
03:36:18,765 --> 03:36:20,684
Everybody says determine competence

4126
03:36:20,684 --> 03:36:24,172
and there's no litmus test for competence.

4127
03:36:24,172 --> 03:36:27,089
- All these articles talk about the

4128
03:36:28,494 --> 03:36:31,075
medical care decisions for the hopelessly ill

4129
03:36:31,075 --> 03:36:34,387
or the terminally ill and they never define what it is.

4130
03:36:34,387 --> 03:36:36,637
So you don't know whether--

4131
03:36:38,526 --> 03:36:40,350
- What is hopeless or terminal?

4132
03:36:40,350 --> 03:36:44,996
Because in a sense if you decide that it's hopeless,

4133
03:36:44,996 --> 03:36:47,680
the issue is moot, I mean resuscitation

4134
03:36:47,680 --> 03:36:50,967
becomes an irrelevant concept almost.

4135
03:36:50,967 --> 03:36:52,415
But at what point?

4136
03:36:52,415 --> 03:36:55,110
Given the fact that with a lot of these diseases,

4137
03:36:55,110 --> 03:36:58,261
we're talking about a one in 100 chance of surviving anyway,

4138
03:36:58,261 --> 03:36:59,800
what is hopeless?

4139
03:36:59,800 --> 03:37:03,991
- So what if the title for the session next week is

4140
03:37:03,991 --> 03:37:08,436
something along the lines of when is a terminal illness

4141
03:37:08,436 --> 03:37:12,716
really terminal or something, some question along

4142
03:37:12,716 --> 03:37:16,497
those lines and then we can maybe even have both,

4143
03:37:16,497 --> 03:37:20,830
when does a terminal illness really become terminal?

4144
03:37:43,393 --> 03:37:45,552
- Andy, I said "How is he?"

4145
03:37:45,552 --> 03:37:49,238
And Andy said "Well, he says things like

4146
03:37:49,238 --> 03:37:50,808
"she never should've had the chemo,

4147
03:37:50,808 --> 03:37:52,721
"she never should've had the portecab.

4148
03:37:52,721 --> 03:37:57,721
"If she hadn't had any of that, this wouldn't be happening."

4149
03:37:59,609 --> 03:38:00,859
- [Scott] Well,

4150
03:38:02,723 --> 03:38:03,556
you know,

4151
03:38:04,511 --> 03:38:07,386
is five good months better than--

4152
03:38:07,386 --> 03:38:09,588
- [Doctor] I don't know.

4153
03:38:09,588 --> 03:38:10,662
- Eight months of hell,

4154
03:38:10,662 --> 03:38:14,220
that's what it boils down to a lot of the time.

4155
03:38:14,220 --> 03:38:16,007
- [Doctor] What we're planning to do right now

4156
03:38:16,007 --> 03:38:18,554
is a sub-max ETT valve in the echo--

4157
03:38:18,554 --> 03:38:20,583
- You can't blame him for being,

4158
03:38:20,583 --> 03:38:24,069
it's a lot healthier to be angry at the doctors.

4159
03:38:24,069 --> 03:38:25,569
- [Doctor] Oh yes.

4160
03:38:27,577 --> 03:38:30,261
- I mean who else can you be angry at?

4161
03:38:30,261 --> 03:38:31,707
You can't blame it on the kids.

4162
03:38:31,707 --> 03:38:33,108
- There isn't anybody tangible

4163
03:38:33,108 --> 03:38:36,190
to be angry at other than the doctor.

4164
03:38:38,447 --> 03:38:40,030
Better us than her.

4165
03:38:42,998 --> 03:38:46,665
- [Scott] I'm sure he's plenty angry at her.

4166
03:38:52,368 --> 03:38:53,777
- [Doctor] Well I hope that

4167
03:38:53,777 --> 03:38:57,074
this is fast one way or the other.

4168
03:38:57,074 --> 03:38:58,730
But I have a feeling it won't be fast.

4169
03:38:58,730 --> 03:39:00,681
- God decides.

4170
03:39:00,681 --> 03:39:03,098
God decides, we don't decide.

4171
03:39:05,127 --> 03:39:07,790
These things have a life of their own.

4172
03:39:07,790 --> 03:39:09,940
They really do you know, I mean they really do.

4173
03:39:09,940 --> 03:39:12,440
They have a life of their own.

4174
03:39:17,628 --> 03:39:18,904
He could go for two,

4175
03:39:18,904 --> 03:39:20,580
three days like that easy. - They all ask that question.

4176
03:39:20,580 --> 03:39:22,262
If we had done it earlier,

4177
03:39:22,262 --> 03:39:23,833
if we had found, caught it earlier.

4178
03:39:23,833 --> 03:39:25,641
- Sure, because it's guilt you know?

4179
03:39:25,641 --> 03:39:28,147
That's guilt, that's saying it's my fault.

4180
03:39:28,147 --> 03:39:32,642
If I had done this, if I had been a good patient.

4181
03:39:32,642 --> 03:39:35,170
If I had known what to do,

4182
03:39:35,170 --> 03:39:38,003
would it have made any difference?

4183
03:39:40,145 --> 03:39:42,172
And the answer is always the same.

4184
03:39:42,172 --> 03:39:45,180
Even if it's true that they should've come in earlier,

4185
03:39:45,180 --> 03:39:48,004
the answer that you give the patient is always the same.

4186
03:39:48,004 --> 03:39:51,132
No, you did everything you could.

4187
03:39:51,132 --> 03:39:54,215
The families already feel so bad that

4188
03:39:56,530 --> 03:40:00,114
what's the point of making them feel worse?

4189
03:40:02,431 --> 03:40:03,922
- I hope the swan goes all right.

4190
03:40:03,922 --> 03:40:05,447
I mean that was the scary thing,

4191
03:40:05,447 --> 03:40:07,096
when he said "Do you know her history?

4192
03:40:07,096 --> 03:40:10,803
"She has complications with everything."

4193
03:40:10,803 --> 03:40:14,326
- [Scott] Well it may not go all right.

4194
03:40:14,326 --> 03:40:16,438
But you see that's why, I mean--

4195
03:40:16,438 --> 03:40:19,096
- I think you spelled it out exactly right.

4196
03:40:19,096 --> 03:40:20,627
- Knowing that is helpful though

4197
03:40:20,627 --> 03:40:23,990
in terms of the way you view the procedure.

4198
03:40:23,990 --> 03:40:27,490
Knowing that, that influences the way you,

4199
03:40:28,978 --> 03:40:32,389
you get a little bit less enthusiastic for it.

4200
03:40:32,389 --> 03:40:35,627
- Well you can't go cavalierly putting them in but if

4201
03:40:35,627 --> 03:40:40,127
anybody needs one, she needs one, that's what I think.

4202
03:40:41,041 --> 03:40:43,951
Because I think we are gonna be managing her

4203
03:40:43,951 --> 03:40:46,542
for awhile and its numbers might be helpful.

4204
03:40:46,542 --> 03:40:48,645
- I guess the question is

4205
03:40:48,645 --> 03:40:51,171
are we managing a chance to live

4206
03:40:51,171 --> 03:40:53,823
or are we managing her death?

4207
03:40:53,823 --> 03:40:55,901
If we're managing her death, I'm not sure we need it.

4208
03:40:55,901 --> 03:40:58,118
If we're managing her

4209
03:40:58,118 --> 03:41:00,769
with a chance to live, then maybe we need it.

4210
03:41:00,769 --> 03:41:02,716
- [Doctor] I'm managing her chance to live.

4211
03:41:02,716 --> 03:41:05,299
- Right but I'm not sure he is.

4212
03:41:08,958 --> 03:41:11,341
- That may be. (phone ringing)

4213
03:41:11,341 --> 03:41:13,211
- I think he's on the fence about that.

4214
03:41:13,211 --> 03:41:15,390
- He's trying very hard, well I think he's trying.

4215
03:41:15,390 --> 03:41:17,294
He's on one side and I think he's

4216
03:41:17,294 --> 03:41:21,535
trying very hard to prepare himself for it.

4217
03:41:21,535 --> 03:41:24,234
Andy said he was already talking about

4218
03:41:24,234 --> 03:41:26,851
how am I gonna raise the kids, what am I gonna do with them?

4219
03:41:26,851 --> 03:41:30,797
What is this gonna mean to me, do I have to quit my job?

4220
03:41:30,797 --> 03:41:32,833
He was already, you know,

4221
03:41:32,833 --> 03:41:35,917
Andy said 10 pages ahead of the book.

4222
03:41:38,408 --> 03:41:39,825
You may be right.

4223
03:41:41,536 --> 03:41:42,369
But...

4224
03:41:48,490 --> 03:41:51,137
- I don't know but I know one thing,

4225
03:41:51,137 --> 03:41:54,529
I'm glad I only do this one month a year.

4226
03:41:54,529 --> 03:41:56,429
- [Doctor] I don't know how nurses stay here all the time.

4227
03:41:56,429 --> 03:42:00,262
- I don't either, I don't know how they do it.

4228
03:42:02,909 --> 03:42:04,489
- I think it's the pregnancy part

4229
03:42:04,489 --> 03:42:07,716
that makes it the horrifying thing.

4230
03:42:07,716 --> 03:42:10,716
I mean aged it's awful and you know,

4231
03:42:12,369 --> 03:42:15,608
healthy its awful and then to do this while you're pregnant.

4232
03:42:15,608 --> 03:42:18,508
- [Scott] Certainly the circumstances of it are

4233
03:42:18,508 --> 03:42:19,925
far worse than...

4234
03:42:23,360 --> 03:42:28,277
Incredible kind of nightmare scenarios that get played out.

4235
03:42:36,134 --> 03:42:39,551
(distant sirens blaring)

4236
03:42:59,970 --> 03:43:03,140
- Is he gonna make it? - No, I don't think.

4237
03:43:03,140 --> 03:43:06,890
- It's white coat day, I see your white coat.

4238
03:43:07,782 --> 03:43:09,991
- What's a white coat?

4239
03:43:09,991 --> 03:43:12,324
- White sweater, white coat.

4240
03:43:13,304 --> 03:43:16,856
- By the way, Mr. Cabra died yesterday at about five p.m.

4241
03:43:16,856 --> 03:43:20,107
- Was his wife here? - Yes, very close.

4242
03:43:20,107 --> 03:43:22,937
- Was his wife here? - Yes, she was here

4243
03:43:22,937 --> 03:43:24,937
and actually it was her,

4244
03:43:26,050 --> 03:43:27,983
the feeling of the family was that this was

4245
03:43:27,983 --> 03:43:31,283
going much too long and it was really hard for them

4246
03:43:31,283 --> 03:43:34,063
and they talked to Dr. Shuleman about turning

4247
03:43:34,063 --> 03:43:38,473
his FIO2 down, so we turned it down to 40%

4248
03:43:38,473 --> 03:43:42,537
and he flat-lined a little while after that.

4249
03:43:42,537 --> 03:43:46,113
- [Scott] It probably wasn't related to that, but...

4250
03:43:46,113 --> 03:43:47,186
Who knows?

4251
03:43:47,186 --> 03:43:50,519
- There was like 10 family members here.

4252
03:43:52,276 --> 03:43:53,810
So,

4253
03:43:53,810 --> 03:43:55,175
and she was really--

4254
03:43:55,175 --> 03:43:56,770
- [Scott] They don't get any tougher than that one.

4255
03:43:56,770 --> 03:43:57,603
- Yeah.

4256
03:43:59,089 --> 03:44:02,672
She said you know, if there's anything that

4257
03:44:03,685 --> 03:44:05,705
can be learned out of this, then that's

4258
03:44:05,705 --> 03:44:07,869
what he would want and that's what I want.

4259
03:44:07,869 --> 03:44:11,530
- She was very mature. - She was very cooperative.

4260
03:44:11,530 --> 03:44:13,030
So anyways. - Okay.

4261
03:44:24,838 --> 03:44:27,838
(metallic clanking)

4262
03:44:40,696 --> 03:44:44,183
- Let me do it, you release here.

4263
03:44:44,183 --> 03:44:46,455
No I can get it, move your hands, I got it.

4264
03:44:46,455 --> 03:44:48,859
Is this low enough, guys?

4265
03:44:48,859 --> 03:44:50,653
We cuddly? - Yes.

4266
03:44:50,653 --> 03:44:53,246
- You want to go on three? - Yeah.

4267
03:44:53,246 --> 03:44:54,579
One, two, three.

4268
03:44:56,900 --> 03:44:57,936
- One,

4269
03:44:57,936 --> 03:44:58,969
two.

4270
03:44:58,969 --> 03:44:59,802
- Three.

4271
03:45:06,033 --> 03:45:08,518
Who would like to come down with me?

4272
03:45:08,518 --> 03:45:11,935
- [Nurse] Are these the personal effects?

4273
03:45:14,692 --> 03:45:17,928
- Do you have a thing for me outside?

4274
03:45:17,928 --> 03:45:20,345
Are they outside of the door?

4275
03:47:44,083 --> 03:47:47,309
- All right, usually what we do is just put the legs there.

4276
03:47:47,309 --> 03:47:50,021
The head or the legs come first.

4277
03:47:50,021 --> 03:47:51,588
- Okay.

4278
03:47:51,588 --> 03:47:53,505
- Just hold this. - Yep.

4279
03:47:56,895 --> 03:47:57,978
- He's heavy.

4280
03:48:01,218 --> 03:48:02,655
- Do we need a fourth person? - Yeah.

4281
03:48:02,655 --> 03:48:04,348
- [Mortician] Can we have a fourth person to help us?

4282
03:48:04,348 --> 03:48:05,303
- You need help? - Yeah.

4283
03:48:05,303 --> 03:48:06,970
- Or a fifth. - Yeah.

4284
03:48:10,318 --> 03:48:12,216
- Which side you want me to help, this one?

4285
03:48:12,216 --> 03:48:13,429
- Yeah. - Yeah.

4286
03:48:13,429 --> 03:48:15,333
We wanna go in there.

4287
03:48:15,333 --> 03:48:16,699
No, no, no, no.

4288
03:48:16,699 --> 03:48:19,866
We want to move him in there. - I know.

4289
03:48:22,545 --> 03:48:24,295
- Help her out there.

4290
03:48:26,545 --> 03:48:27,833
- We'll be okay.

4291
03:48:27,833 --> 03:48:28,986
- [Mortician] One,

4292
03:48:28,986 --> 03:48:29,903
two, three.

4293
03:48:37,217 --> 03:48:40,384
Thank you very much. - You are welcome.

4294
03:49:08,614 --> 03:49:11,447
- What? Sorry. - Just string it on.

4295
03:49:16,693 --> 03:49:17,526
Yeah.

4296
03:49:20,129 --> 03:49:23,080
- [Mortician] We need to sign that?

4297
03:49:23,080 --> 03:49:26,734
- I think just leave it. - Oh, okay.

4298
03:49:26,734 --> 03:49:28,331
- We're gonna get everything out of here?

4299
03:49:28,331 --> 03:49:31,248
- [Mortician] Yep, we're gonna try.

4300
03:49:41,863 --> 03:49:43,530
- He's a 33 year old

4301
03:49:45,024 --> 03:49:48,639
white male who presented in December with aortitis

4302
03:49:48,639 --> 03:49:51,461
and had a course of antibiotics and subsequent to that

4303
03:49:51,461 --> 03:49:55,364
course of antibiotics was found to have a testicular mass.

4304
03:49:55,364 --> 03:49:59,435
He underwent a biopsy which showed embryonal cell CA

4305
03:49:59,435 --> 03:50:02,748
and he had a retroperitoneale lymph node dissection which

4306
03:50:02,748 --> 03:50:06,167
showed five out of seven nodes positive for embryonal CA.

4307
03:50:06,167 --> 03:50:08,907
- He had a biopsy? - He had an orchiectomy

4308
03:50:08,907 --> 03:50:10,843
with biopsy showing it. - A biopsy.

4309
03:50:10,843 --> 03:50:12,293
- Yeah.

4310
03:50:12,293 --> 03:50:15,101
Yeah right, he had the orchiectomy and it was documented

4311
03:50:15,101 --> 03:50:17,272
then and then he had the retroperitoneale

4312
03:50:17,272 --> 03:50:19,476
lymph dissection at the same time.

4313
03:50:19,476 --> 03:50:23,366
Five out of seven nodes positive and he received

4314
03:50:23,366 --> 03:50:26,963
four courses of chemotherapy including Bleomycin,

4315
03:50:26,963 --> 03:50:29,318
was considered to have an excellent response.

4316
03:50:29,318 --> 03:50:32,164
However a month later presented with shortness of breath.

4317
03:50:32,164 --> 03:50:36,380
Had a lung biopsy which showed pulmonary fibrosis

4318
03:50:36,380 --> 03:50:39,749
and his course from there was of

4319
03:50:39,749 --> 03:50:42,082
deteriorating lung function.

4320
03:50:42,916 --> 03:50:46,166
He presented to another hospital about,

4321
03:50:48,077 --> 03:50:51,059
let's see, it must have been,

4322
03:50:51,059 --> 03:50:52,926
it was September,

4323
03:50:52,926 --> 03:50:55,139
he presented at another hospital with acute

4324
03:50:55,139 --> 03:50:57,088
shortness of breath, had a respiratory arrest.

4325
03:50:57,088 --> 03:50:59,412
Was found to have tension pneumothorax.

4326
03:50:59,412 --> 03:51:01,317
A chest tube was placed, he was transferred

4327
03:51:01,317 --> 03:51:03,394
to this hospital to the Intensive Care Unit

4328
03:51:03,394 --> 03:51:05,815
where he remained for a month and his course

4329
03:51:05,815 --> 03:51:09,795
there was of slow degeneration of pulmonary function.

4330
03:51:09,795 --> 03:51:13,636
He remained on a respirator, required very high settings.

4331
03:51:13,636 --> 03:51:17,542
Loss of sedation, his peak pressures were often in the 70s.

4332
03:51:17,542 --> 03:51:21,231
He had lots of barotrauma besides the one pneumothorax.

4333
03:51:21,231 --> 03:51:23,637
He had a pneumoperitoneum.

4334
03:51:23,637 --> 03:51:25,463
He had some infectious complications

4335
03:51:25,463 --> 03:51:29,380
with very resistant gram-negative organisms and

4336
03:51:31,119 --> 03:51:34,190
he required high oxygen FIO2s

4337
03:51:34,190 --> 03:51:36,271
in the 50 to 70% range for

4338
03:51:36,271 --> 03:51:39,271
most of the time he was in the unit.

4339
03:51:40,126 --> 03:51:43,126
His family and his wife specifically

4340
03:51:45,390 --> 03:51:49,188
followed his course over all this time and eventually

4341
03:51:49,188 --> 03:51:51,188
she made the decision to

4342
03:51:52,585 --> 03:51:55,695
not have CPR performed if that was the case

4343
03:51:55,695 --> 03:51:57,525
and following that decision,

4344
03:51:57,525 --> 03:52:01,725
about a week later she came to the decision to

4345
03:52:01,725 --> 03:52:05,038
decrease his FIO2 and he expired shortly after that.

4346
03:52:05,038 --> 03:52:07,766
- So the questions for the autopsy were

4347
03:52:07,766 --> 03:52:09,625
going back to the original process,

4348
03:52:09,625 --> 03:52:13,357
what is the extent of the tumor with that autopsy?

4349
03:52:13,357 --> 03:52:16,176
Of course, 10 or 20 years ago he

4350
03:52:16,176 --> 03:52:19,993
would've died of metastatic and embryonal carcinoma.

4351
03:52:19,993 --> 03:52:23,101
Another question is to document the nature

4352
03:52:23,101 --> 03:52:25,672
of the pulmonary process to determine if

4353
03:52:25,672 --> 03:52:29,226
in fact it was an irreversible process

4354
03:52:29,226 --> 03:52:32,682
likely related to the Bleomycin treatment

4355
03:52:32,682 --> 03:52:35,140
and the subsequent treatment and finally

4356
03:52:35,140 --> 03:52:38,315
to look for unexpected processes that might've

4357
03:52:38,315 --> 03:52:41,780
helped to explain some of his clinical course.

4358
03:52:41,780 --> 03:52:42,614
Go ahead.

4359
03:52:42,614 --> 03:52:45,411
- So the autopsy is a large gentleman

4360
03:52:45,411 --> 03:52:49,902
and on careful dissection of the retroperitoneum,

4361
03:52:49,902 --> 03:52:52,472
we revealed multiple adhesions but

4362
03:52:52,472 --> 03:52:56,609
no gross evidence of tumor in the lymph nodes.

4363
03:52:56,609 --> 03:53:01,609
He also had a history apparently of a congenital absence of

4364
03:53:01,705 --> 03:53:05,811
a left testis or atrophy and there was no evidence of that.

4365
03:53:05,811 --> 03:53:08,724
He had had a right orchiectomy,

4366
03:53:08,724 --> 03:53:11,639
so the right testis was also gone.

4367
03:53:11,639 --> 03:53:13,299
- [Male Doctor] Basically there was no

4368
03:53:13,299 --> 03:53:16,257
evidence in the gross of any residual tumor.

4369
03:53:16,257 --> 03:53:18,900
- [Female Doctor] No microscopic evidence.

4370
03:53:18,900 --> 03:53:20,934
The most remarkable evidence

4371
03:53:20,934 --> 03:53:23,622
was found in the thoracic cavity.

4372
03:53:23,622 --> 03:53:25,039
He had 100 CCs of

4373
03:53:26,104 --> 03:53:28,687
serosanguinous plural effusions

4374
03:53:29,546 --> 03:53:34,379
bilaterally and both of his lungs weighed about 800 grams.

4375
03:53:36,612 --> 03:53:39,061
- [Bill] You really should feel these, put on gloves.

4376
03:53:39,061 --> 03:53:41,062
- Three times normal. - Important to feel it.

4377
03:53:41,062 --> 03:53:42,846
- [Doctor] Virtually no homeostasis in here.

4378
03:53:42,846 --> 03:53:44,510
- [Bill] Yeah, looking at them it isn't

4379
03:53:44,510 --> 03:53:47,166
evident how fibrotic they are but to touch,

4380
03:53:47,166 --> 03:53:49,616
it's a very woody consistency.

4381
03:53:49,616 --> 03:53:51,397
- [Female Doctor] I think too there was extensive

4382
03:53:51,397 --> 03:53:55,359
fibrosis and there seemed to be a superimposed--

4383
03:53:55,359 --> 03:53:58,319
- [Scott] There's a band of fibrosis right there.

4384
03:53:58,319 --> 03:54:01,873
- [Female Doctor] Abscesses, small focus abscesses

4385
03:54:01,873 --> 03:54:04,159
and post-mortem cultures were positive

4386
03:54:04,159 --> 03:54:07,792
for gram-negatives and staph epidermis.

4387
03:54:07,792 --> 03:54:11,701
- Some seminiferous change. - Bronchiectasis.

4388
03:54:11,701 --> 03:54:14,490
- Plural on the other side. - A little.

4389
03:54:14,490 --> 03:54:17,036
I think that fits in with the fibrosis.

4390
03:54:17,036 --> 03:54:19,879
Of course at this stage, any of a number

4391
03:54:19,879 --> 03:54:22,868
of things can present a picture like this but

4392
03:54:22,868 --> 03:54:25,783
it is completely consistent with Bleomycin-

4393
03:54:25,783 --> 03:54:30,471
induced fibrosis perhaps with a component of ARDS as well.

4394
03:54:30,471 --> 03:54:32,554
Diffused cellular damage.

4395
03:54:34,451 --> 03:54:36,567
I think when the clinicians come, we'll take

4396
03:54:36,567 --> 03:54:39,224
the opportunity to mention how posts were

4397
03:54:39,224 --> 03:54:43,577
important in characterizing this form of toxicity.

4398
03:54:43,577 --> 03:54:46,780
So there really were no surprises at autopsy.

4399
03:54:46,780 --> 03:54:51,613
- This is an example of curing the tumor but that the cure

4400
03:54:52,789 --> 03:54:53,706
was deadly.

4401
03:54:55,074 --> 03:54:58,404
The therapeutic index is very low.

4402
03:54:58,404 --> 03:55:01,458
- Unfortunately we only see these patients at this point

4403
03:55:01,458 --> 03:55:04,792
but I think it's significant to mention that only

4404
03:55:04,792 --> 03:55:08,654
a real small percentage of the patients have toxicity

4405
03:55:08,654 --> 03:55:12,052
to Bleomycin and this kind of a cancer has an 80

4406
03:55:12,052 --> 03:55:16,412
to 90% cure rate and unfortunately there's 1%

4407
03:55:16,412 --> 03:55:21,412
or a small percentage of patients that get drug toxicity.

4408
03:55:21,964 --> 03:55:24,714
- Okay, why don't we do the next?

4409
03:55:55,472 --> 03:55:58,222
(sirens blaring)

4410
03:56:42,657 --> 03:56:45,740
(electronic beeping)

4411
03:56:56,718 --> 03:57:00,635
- He's going under right now. - Full anesthesia?

4412
03:57:01,866 --> 03:57:04,149
- One set. - Just one set.

4413
03:57:04,149 --> 03:57:06,718
- Is that his vital signs? - Mr. Sporiza?

4414
03:57:06,718 --> 03:57:11,145
- Finish his blood pressure. - Has anesthesia been called?

4415
03:57:11,145 --> 03:57:13,039
Call 'em, he needs to be intubated.

4416
03:57:13,039 --> 03:57:15,456
- [Nurse] Does anybody have a

4417
03:57:16,405 --> 03:57:17,988
tourniquet on them?

4418
03:57:21,792 --> 03:57:25,695
- The other way around. - Do you have a tourniquet?

4419
03:57:25,695 --> 03:57:27,862
- Check the second drawer.

4420
03:57:34,674 --> 03:57:37,818
- [Nurse] Gonna try and get a line in.

4421
03:57:37,818 --> 03:57:39,345
Do you need any drugs, Suzanne?

4422
03:57:39,345 --> 03:57:41,176
- Yeah, can you get me the intubation,

4423
03:57:41,176 --> 03:57:43,207
get me all the drugs from the kit.

4424
03:57:43,207 --> 03:57:45,940
I don't have anything in here.

4425
03:57:45,940 --> 03:57:48,764
- He's on the wrong one.

4426
03:57:48,764 --> 03:57:50,456
- He's just like not breathing.

4427
03:57:50,456 --> 03:57:51,905
- He just suddenly stop breathing.

4428
03:57:51,905 --> 03:57:53,317
- Were you in the room or what?

4429
03:57:53,317 --> 03:57:55,136
- [Suzanne] Yeah, he went into a weird rhythm

4430
03:57:55,136 --> 03:57:57,516
so I went to get an EKG and just started

4431
03:57:57,516 --> 03:58:01,404
dropping his pressure and turning blue.

4432
03:58:01,404 --> 03:58:03,571
Neo, single strength tube.

4433
03:58:08,601 --> 03:58:11,510
(chattering, overlapping voices)

4434
03:58:11,510 --> 03:58:14,956
- [Technician] Get the MG tube with the suction, please.

4435
03:58:14,956 --> 03:58:16,527
- [Nurse] Over on that side,

4436
03:58:16,527 --> 03:58:18,725
can somebody turn on the MG tube?

4437
03:58:18,725 --> 03:58:21,012
The suction over there.

4438
03:58:21,012 --> 03:58:25,096
Okay, I'll get over there. - It's around the back.

4439
03:58:28,176 --> 03:58:31,176
Can I have a needle for this? - Okay.

4440
03:58:33,674 --> 03:58:36,007
- [Nurse] Saline's going in.

4441
03:58:36,929 --> 03:58:40,012
Gloves, here's gloves, big and small.

4442
03:58:43,282 --> 03:58:45,104
Got it? - Nope.

4443
03:58:45,104 --> 03:58:47,604
- No? - Blood pressure's at 70.

4444
03:58:48,815 --> 03:58:51,315
- Can we put him under? - Yeah.

4445
03:58:52,541 --> 03:58:54,949
- [Nurse] You know what, brush him off.

4446
03:58:54,949 --> 03:58:56,985
- [Nurse] Can someone mix up his dopamine please?

4447
03:58:56,985 --> 03:58:58,542
Dopamine.

4448
03:58:58,542 --> 03:59:01,274
- [Nurse] I'm just gonna try this one.

4449
03:59:01,274 --> 03:59:04,094
(electronic beeping)

4450
03:59:04,094 --> 03:59:05,669
- You get it? - Yeah, we'll go again.

4451
03:59:05,669 --> 03:59:07,726
- I'm moving the head down. - Okay.

4452
03:59:07,726 --> 03:59:09,095
- Take care of him.

4453
03:59:09,095 --> 03:59:13,233
- [Nurse] Just trying to put a line in here.

4454
03:59:13,233 --> 03:59:15,228
Don't, no, just wait a minute.

4455
03:59:15,228 --> 03:59:18,132
- [Nurse] He had a tube right here.

4456
03:59:18,132 --> 03:59:19,579
- [Nurse] Can you just

4457
03:59:19,579 --> 03:59:22,764
unplug that amidone to top it out, Josh?

4458
03:59:22,764 --> 03:59:24,042
It's about seven.

4459
03:59:24,042 --> 03:59:25,856
- [Doctor] Rachel's taking care of him

4460
03:59:25,856 --> 03:59:27,665
and I'm gonna go finish rounds.

4461
03:59:27,665 --> 03:59:29,849
- [Nurse] Well that's gonna look good in about five minutes.

4462
03:59:29,849 --> 03:59:31,845
Do we have a triple bowman thing?

4463
03:59:31,845 --> 03:59:33,753
- Yeah, right here. - Oh good.

4464
03:59:33,753 --> 03:59:36,670
Just open it up, place it on there.

4465
03:59:39,287 --> 03:59:40,204
Looks good.

4466
03:59:41,486 --> 03:59:42,319
Gas?

4467
03:59:47,268 --> 03:59:50,768
- Do you want a quarter, what do you want?

4468
03:59:52,413 --> 03:59:56,397
- Do we still want this fluid running wide open?

4469
03:59:56,397 --> 03:59:58,565
- Neo, please. - What, Karen?

4470
03:59:58,565 --> 03:59:59,933
- Neo. - Neo.

4471
03:59:59,933 --> 04:00:01,874
- Did we get any back the other day at all?

4472
04:00:01,874 --> 04:00:03,204
- [Nurse] Nothing.

4473
04:00:03,204 --> 04:00:04,540
That suction draws up his tube to the back.

4474
04:00:04,540 --> 04:00:06,114
- [Nurse] Use this to push through here,

4475
04:00:06,114 --> 04:00:07,665
where is the dopamine?

4476
04:00:07,665 --> 04:00:09,921
- It's the central line. - Dopamine flowing.

4477
04:00:09,921 --> 04:00:12,421
- Yep, wide open, 500 an hour.

4478
04:00:15,584 --> 04:00:19,136
Saline is wide open. - We have some more saline?

4479
04:00:19,136 --> 04:00:22,727
- Blood pressure is 60. - We have an atropine ready?

4480
04:00:22,727 --> 04:00:25,144
- [Nurse] Atropine is coming.

4481
04:00:27,199 --> 04:00:29,242
- Put that on wide open neo. - Wide open neo.

4482
04:00:29,242 --> 04:00:30,572
- [Nurse] Wide open neo,

4483
04:00:30,572 --> 04:00:31,771
wide open dope and wide open fluids.

4484
04:00:31,771 --> 04:00:33,878
Is that correct? - That's correct.

4485
04:00:33,878 --> 04:00:38,238
- Obliterate 50. - Pulse is definitely better.

4486
04:00:38,238 --> 04:00:41,905
- Just gonna turn it on. - Who's got the neo?

4487
04:00:43,956 --> 04:00:45,539
- [Nurse] Dopamine.

4488
04:00:46,456 --> 04:00:47,577
No.

4489
04:00:47,577 --> 04:00:49,028
The two port is saline.

4490
04:00:49,028 --> 04:00:52,881
- [Nurse] All right good, we need saline.

4491
04:00:52,881 --> 04:00:55,381
(overlapping voices)

4492
04:00:55,381 --> 04:00:57,750
- [Nurse] I can do it, I can do it.

4493
04:00:57,750 --> 04:01:00,000
- I'm the one who'll do it.

4494
04:01:02,241 --> 04:01:05,195
Please? - Okay doctor, go to it.

4495
04:01:05,195 --> 04:01:08,995
- Bags 302, seven. - 100 more grams of lido.

4496
04:01:08,995 --> 04:01:11,495
- Okay. - 100 of lido going in.

4497
04:01:12,605 --> 04:01:14,724
- There's one. - I got it.

4498
04:01:14,724 --> 04:01:18,759
- [Nurse] So you wanna put him in sync mode at 50.

4499
04:01:18,759 --> 04:01:20,745
- [Suzanne] You wanna zap him out of this?

4500
04:01:20,745 --> 04:01:21,812
[Nurse] All right, here we go.

4501
04:01:21,812 --> 04:01:23,576
- Is it charged at all? - You can charge there.

4502
04:01:23,576 --> 04:01:25,649
- Consistent blood pressure. - Clear.

4503
04:01:25,649 --> 04:01:27,315
- Clear. - Clear.

4504
04:01:27,315 --> 04:01:29,184
- [Nurse] Jeff, you're still touching the metal bed.

4505
04:01:29,184 --> 04:01:32,065
- Yeah, charged. - Right leg back.

4506
04:01:32,065 --> 04:01:33,518
- [Jeff] Clear.

4507
04:01:33,518 --> 04:01:35,595
- [Nurse] You gotta hold it 'cause it's sinking.

4508
04:01:35,595 --> 04:01:37,678
- Okay. - Flow right away.

4509
04:01:38,832 --> 04:01:41,655
Now you've got-- - Something...

4510
04:01:41,655 --> 04:01:44,115
- Now we've got-- - We've got the--

4511
04:01:44,115 --> 04:01:46,389
- Kind of ventricular-- - Ventricular.

4512
04:01:46,389 --> 04:01:49,503
- No, it's awful slow. - I know.

4513
04:01:49,503 --> 04:01:52,196
- We have a good blood pressure.

4514
04:01:52,196 --> 04:01:54,600
- [Nurse] He's got a better blood pressure with it,

4515
04:01:54,600 --> 04:01:56,350
he is to 70, hold on.

4516
04:01:57,414 --> 04:01:58,414
Don't shock.

4517
04:01:59,733 --> 04:02:03,566
- [Nurse] Looks like a flutter almost up here.

4518
04:02:04,648 --> 04:02:06,595
There you go, that's better.

4519
04:02:06,595 --> 04:02:09,881
- [Jeff] You've got a blood pressure of 80.

4520
04:02:09,881 --> 04:02:13,821
- It's a narrow complex now. - Yeah and it's a long, yeah.

4521
04:02:13,821 --> 04:02:16,739
- [Jeff] Narrow complex with inverted teeth.

4522
04:02:16,739 --> 04:02:18,441
- [Nurse] It looks like he's switching

4523
04:02:18,441 --> 04:02:20,636
bundles or something, can you tell up there?

4524
04:02:20,636 --> 04:02:23,421
- [Nurse] Some bundle and a little pacer.

4525
04:02:23,421 --> 04:02:26,432
- The P-waves aren't much. - Blood pressure's better.

4526
04:02:26,432 --> 04:02:29,027
- [Jeff] That looks like P-waves with a bundle.

4527
04:02:29,027 --> 04:02:31,483
- Just turn the amplitude up a little bit, Sue.

4528
04:02:31,483 --> 04:02:33,039
So that it picks up the heart rate.

4529
04:02:33,039 --> 04:02:35,579
Thanks. (electronic beeping)

4530
04:02:35,579 --> 04:02:38,246
- [Nurse] Did it flutter, three?

4531
04:02:39,148 --> 04:02:41,448
- I think it might be sinus. - Sinus.

4532
04:02:41,448 --> 04:02:43,064
- [Nurse] See those spikes you're seeing?

4533
04:02:43,064 --> 04:02:44,550
That's the offender.

4534
04:02:44,550 --> 04:02:45,633
- [Nurse] 62.

4535
04:02:49,631 --> 04:02:51,862
(overlapping voices)

4536
04:02:51,862 --> 04:02:54,913
That neo and dopamine's still wide open.

4537
04:02:54,913 --> 04:02:58,649
- Why don't you start that? - He's 70 systolic right now.

4538
04:02:58,649 --> 04:03:00,515
- That's better. - You know why he's

4539
04:03:00,515 --> 04:03:02,478
probably hypotensive now or

4540
04:03:02,478 --> 04:03:04,096
one of the reasons he may be-- - His bladder.

4541
04:03:04,096 --> 04:03:06,591
- No, I think that one of the major reasons

4542
04:03:06,591 --> 04:03:09,121
is that we may have blown off his CO2 too much

4543
04:03:09,121 --> 04:03:10,938
and I think it would be a good idea before

4544
04:03:10,938 --> 04:03:13,463
we start pouring a lot of drugs into the guy

4545
04:03:13,463 --> 04:03:18,063
to get another gas and see where you are because

4546
04:03:18,063 --> 04:03:20,480
his baseline PCO2 is like 60,

4547
04:03:21,512 --> 04:03:25,623
70 and I'd slow down actually a little bit, Frank.

4548
04:03:25,623 --> 04:03:27,494
Because oxygenation was the main,

4549
04:03:27,494 --> 04:03:31,525
and I think that just his pH could be 755, 76

4550
04:03:31,525 --> 04:03:34,794
and that could be all that's going on here.

4551
04:03:34,794 --> 04:03:36,167
So-- - Okay.

4552
04:03:36,167 --> 04:03:39,121
- I just, I can take responsibility for this one guys.

4553
04:03:39,121 --> 04:03:41,618
When I saw him this morning, I should've

4554
04:03:41,618 --> 04:03:44,474
told you to go ahead and intubate him right then.

4555
04:03:44,474 --> 04:03:49,391
That's the, no he was not breathing this morning very well.

4556
04:03:50,665 --> 04:03:52,787
- [Doctor] He wasn't moving a lot of air.

4557
04:03:52,787 --> 04:03:56,507
- I think the problem is that he was so down

4558
04:03:56,507 --> 04:03:59,888
mentally because he's been that way, you know?

4559
04:03:59,888 --> 04:04:02,971
But I think that, I would not make a big thing

4560
04:04:02,971 --> 04:04:05,623
about not putting a central line in him like last night.

4561
04:04:05,623 --> 04:04:07,787
I mean a central line is not the answer to the guy's

4562
04:04:07,787 --> 04:04:10,001
problems but if anybody made a mistake, I made

4563
04:04:10,001 --> 04:04:12,531
the mistake this morning in not suggesting

4564
04:04:12,531 --> 04:04:14,601
that we go ahead and intubate him electively.

4565
04:04:14,601 --> 04:04:16,752
So I think that's where the error was.

4566
04:04:16,752 --> 04:04:18,783
- [Doctor] I think something happened between the time--

4567
04:04:18,783 --> 04:04:22,185
- I don't know, I don't think, I'm not sure.

4568
04:04:22,185 --> 04:04:23,881
- He's just quit breathing. - He's just out.

4569
04:04:23,881 --> 04:04:26,055
- [Scott] He just pooped out, I mean he was pooping,

4570
04:04:26,055 --> 04:04:29,791
he was pooping over 24 hours. - Within 15 minutes.

4571
04:04:29,791 --> 04:04:32,542
- He was pooping out over 24 hours, know what I mean?

4572
04:04:32,542 --> 04:04:34,748
He didn't look good yesterday in the evening

4573
04:04:34,748 --> 04:04:37,704
and he sorta gradually didn't look good

4574
04:04:37,704 --> 04:04:40,434
all night, so I think that's basically

4575
04:04:40,434 --> 04:04:42,505
what happened and I think it's just

4576
04:04:42,505 --> 04:04:45,005
a question of a guy being dry,

4577
04:04:46,005 --> 04:04:47,005
infected and

4578
04:04:48,672 --> 04:04:50,836
not waking up from the ad van

4579
04:04:50,836 --> 04:04:52,866
and not having a great respiratory drive.

4580
04:04:52,866 --> 04:04:54,936
- Charlie, can you hear me?

4581
04:04:54,936 --> 04:04:55,769
Charlie?

4582
04:04:56,835 --> 04:04:59,404
He's not very responsive.

4583
04:04:59,404 --> 04:05:01,311
Thank you, you guys.

4584
04:05:01,311 --> 04:05:02,644
Thanks everyone.

4585
04:05:03,704 --> 04:05:06,537
- You wanna keep this on? - No, go.

4586
04:05:07,406 --> 04:05:10,479
- I think that now pretty clearly he's

4587
04:05:10,479 --> 04:05:12,977
gonna go down to a valvuloplasty on a ventilator

4588
04:05:12,977 --> 04:05:15,006
and maybe it'll make him better and maybe

4589
04:05:15,006 --> 04:05:17,339
it won't but we don't even know after all

4590
04:05:17,339 --> 04:05:19,783
is said and done what sort of a brain

4591
04:05:19,783 --> 04:05:22,475
we've got here after all of this stuff.

4592
04:05:22,475 --> 04:05:24,309
We're gonna have to reevaluate the whole

4593
04:05:24,309 --> 04:05:28,564
situation after we sorta get him stabilized.

4594
04:05:28,564 --> 04:05:31,713
The thing that's tough is you get a case like that

4595
04:05:31,713 --> 04:05:35,365
and you've got a one in 100 chance of pulling

4596
04:05:35,365 --> 04:05:37,277
the guy through and you work like hell and you

4597
04:05:37,277 --> 04:05:39,902
stay up all night and you're almost there,

4598
04:05:39,902 --> 04:05:42,091
you think like he's gonna make it

4599
04:05:42,091 --> 04:05:44,466
and then he goes down the tubes again.

4600
04:05:44,466 --> 04:05:47,048
But like I say, you do your best and that's

4601
04:05:47,048 --> 04:05:50,631
all you can do and I think that aside from,

4602
04:05:51,907 --> 04:05:54,482
I mean everything would've been fine if Scott

4603
04:05:54,482 --> 04:05:56,800
Weiss had said look, we gotta call anesthesia

4604
04:05:56,800 --> 04:05:59,739
and get them over here and intubate him electively.

4605
04:05:59,739 --> 04:06:02,389
I think that was a mistake on my part.

4606
04:06:02,389 --> 04:06:03,635
I don't think that anything that you

4607
04:06:03,635 --> 04:06:05,486
guys did last night did or didn't matter.

4608
04:06:05,486 --> 04:06:07,103
If you look at the course of events,

4609
04:06:07,103 --> 04:06:11,131
he was sorta dribbling a little bit as we went along.

4610
04:06:11,131 --> 04:06:13,200
Let's finish up and see the rest of these people real quick.

4611
04:06:13,200 --> 04:06:15,882
There's enough stuff to do here to

4612
04:06:15,882 --> 04:06:18,549
keep everybody going for awhile.

4613
04:06:20,638 --> 04:06:21,971
- [Doctor] Okay.

4614
04:06:25,239 --> 04:06:26,989
- I mean the tendency

4615
04:06:28,263 --> 04:06:30,838
here is for all of us,

4616
04:06:30,838 --> 04:06:32,984
I mean certainly for Woody and for me,

4617
04:06:32,984 --> 04:06:36,234
the tendency is in general to say stop.

4618
04:06:37,209 --> 04:06:38,986
- [Nurse] We have a warped sense of looking at things.

4619
04:06:38,986 --> 04:06:40,867
- That's right.

4620
04:06:40,867 --> 04:06:43,763
That's right, I mean that's exactly it.

4621
04:06:43,763 --> 04:06:45,420
That's right and that's why I think

4622
04:06:45,420 --> 04:06:48,170
that because that's the tendency,

4623
04:06:50,159 --> 04:06:55,159
it's very important to give 'em the benefit of the doubt.

4624
04:06:55,312 --> 04:06:58,385
So Mr. Cabra got an extra 10 days on

4625
04:06:58,385 --> 04:07:01,006
the ventilator before he died. - I agree with you.

4626
04:07:01,006 --> 04:07:03,737
I am a big believer that everybody deserves a chance.

4627
04:07:03,737 --> 04:07:06,280
I don't care what you have, go great guns.

4628
04:07:06,280 --> 04:07:08,263
But then when you're working on the month,

4629
04:07:08,263 --> 04:07:10,122
the two month, the three month,

4630
04:07:10,122 --> 04:07:12,288
there comes a time when you gotta realize

4631
04:07:12,288 --> 04:07:14,448
we've offered everything we can.

4632
04:07:14,448 --> 04:07:19,031
- I think the other thing is I have never had a problem

4633
04:07:20,047 --> 04:07:24,274
ever in dealing with a family about any of this stuff.

4634
04:07:24,274 --> 04:07:26,150
No, no, no, I've had plenty of problems with families.

4635
04:07:26,150 --> 04:07:28,805
As long as I was able to establish

4636
04:07:28,805 --> 04:07:30,840
a relationship, we'd get there.

4637
04:07:30,840 --> 04:07:34,986
The problem is you get into the situation where--

4638
04:07:34,986 --> 04:07:37,516
- You guys switch around. - Certain, you know,

4639
04:07:37,516 --> 04:07:39,712
stuff has been done before they come here.

4640
04:07:39,712 --> 04:07:41,041
- [Nurse] They come with a lot of

4641
04:07:41,041 --> 04:07:42,861
baggage already, I know what you're saying.

4642
04:07:42,861 --> 04:07:44,808
- There have been a few situations, really crazy

4643
04:07:44,808 --> 04:07:49,543
families where no matter what you did, you could never--

4644
04:07:49,543 --> 04:07:51,872
- [Nurse] Gypsies and stuff like that.

4645
04:07:51,872 --> 04:07:56,101
- I don't know about gypsies but I think in general

4646
04:07:56,101 --> 04:07:58,166
if you have a good relationship with them and you

4647
04:07:58,166 --> 04:07:59,902
sort of are honest with them about what's going on

4648
04:07:59,902 --> 04:08:02,586
and say look you know, your father or whatever is dying--

4649
04:08:02,586 --> 04:08:03,950
- But that's why I think we have

4650
04:08:03,950 --> 04:08:05,767
more problems with asking people here.

4651
04:08:05,767 --> 04:08:07,504
It's house staff, it's changing

4652
04:08:07,504 --> 04:08:10,114
and we want to keep getting to know the family.

4653
04:08:10,114 --> 04:08:11,692
How do you feel, what do you think?

4654
04:08:11,692 --> 04:08:13,307
Have you ever talked about this?

4655
04:08:13,307 --> 04:08:15,609
Where in community hospitals, other hospitals,

4656
04:08:15,609 --> 04:08:17,515
there's an attending and there's a family whose probably

4657
04:08:17,515 --> 04:08:19,913
taken care of 'em for years or knows the situation--

4658
04:08:19,913 --> 04:08:22,145
- Where my sister practices-- - Right.

4659
04:08:22,145 --> 04:08:24,495
- She's taking care of these people,

4660
04:08:24,495 --> 04:08:26,428
yeah and she doesn't, she doesn't,

4661
04:08:26,428 --> 04:08:31,145
I can tell you, if somebody comes into a hospital there,

4662
04:08:31,145 --> 04:08:32,395
she doesn't say

4663
04:08:34,295 --> 04:08:35,701
"What do you think?"

4664
04:08:35,701 --> 04:08:37,601
She say-- - This is it.

4665
04:08:37,601 --> 04:08:40,479
- Your father's dying. - Right.

4666
04:08:40,479 --> 04:08:42,518
- If you don't know somebody and you've

4667
04:08:42,518 --> 04:08:45,458
never seen 'em before, it's very cavalier to say--

4668
04:08:45,458 --> 04:08:48,405
- [Nurse] To say oh, well I know more than you do.

4669
04:08:48,405 --> 04:08:52,501
- Check out, I'm sorry but-- - It's all over.

4670
04:08:52,501 --> 04:08:55,864
- You end up, and clearly I mean,

4671
04:08:55,864 --> 04:08:58,780
clearly the house staff's sense of,

4672
04:09:02,476 --> 04:09:04,845
if you haven't seen 10,000 patients,

4673
04:09:04,845 --> 04:09:06,961
even if you have seen 10,000 patients,

4674
04:09:06,961 --> 04:09:09,908
I'm not ever sure, you know what I mean?

4675
04:09:09,908 --> 04:09:12,744
I'll tell you, Mrs. Pergolin, there is a good example.

4676
04:09:12,744 --> 04:09:15,491
I'd never seen that lady before, she shows up here.

4677
04:09:15,491 --> 04:09:18,278
All the stuff that went through my mind was

4678
04:09:18,278 --> 04:09:20,347
you know, has she,

4679
04:09:20,347 --> 04:09:22,923
have they really established a diagnosis?

4680
04:09:22,923 --> 04:09:25,968
What else could she possibly have?

4681
04:09:25,968 --> 04:09:28,521
And I started asking myself all these questions.

4682
04:09:28,521 --> 04:09:31,653
You still get uncomfortable about,

4683
04:09:31,653 --> 04:09:34,258
I mean I'd never seen her before

4684
04:09:34,258 --> 04:09:37,280
and yes, they say she refused chemotherapy in New York.

4685
04:09:37,280 --> 04:09:39,125
But did she really and what were

4686
04:09:39,125 --> 04:09:42,547
the circumstances and what was she told?

4687
04:09:42,547 --> 04:09:44,130
So I mean you know,

4688
04:09:45,401 --> 04:09:47,700
if you're cavalier about somebody like that,

4689
04:09:47,700 --> 04:09:49,561
then you oughta get outta the business.

4690
04:09:49,561 --> 04:09:51,559
- [Nurse] Did your best friend get diagnosed with

4691
04:09:51,559 --> 04:09:54,341
similar things and die two weeks after chemo, you know?

4692
04:09:54,341 --> 04:09:56,291
- [Nurse] Part of the job is unfortunately

4693
04:09:56,291 --> 04:09:58,830
like you said to take responsibility for it.

4694
04:09:58,830 --> 04:10:00,487
To also ignore that.

4695
04:10:00,487 --> 04:10:03,008
I think a lot of people because they have difficulty with it

4696
04:10:03,008 --> 04:10:06,100
almost like, especially certain, like an attending physician

4697
04:10:06,100 --> 04:10:09,011
almost puts it onto say the attending of the unit

4698
04:10:09,011 --> 04:10:12,035
or they have the relationship with the patient because--

4699
04:10:12,035 --> 04:10:13,979
- [Nurse] In her case that wasn't true.

4700
04:10:13,979 --> 04:10:17,602
I think you're right, what you're saying is that--

4701
04:10:17,602 --> 04:10:19,133
- [Nurse] Because it's a hard thing to deal with.

4702
04:10:19,133 --> 04:10:21,426
- In a situation like her,

4703
04:10:21,426 --> 04:10:24,377
they would take all of those uncertainties and it

4704
04:10:24,377 --> 04:10:26,038
would make them very nervous and then they would

4705
04:10:26,038 --> 04:10:28,644
just abdicate and say "You gotta make a decision."

4706
04:10:28,644 --> 04:10:31,265
But I think you gotta be very, very sure.

4707
04:10:31,265 --> 04:10:35,015
There are few situations though in life where

4708
04:10:36,016 --> 04:10:38,504
the critical meaning of what you say and how you say it

4709
04:10:38,504 --> 04:10:42,032
has as much ramifications as it does around this issue.

4710
04:10:42,032 --> 04:10:43,365
- How you doing?

4711
04:10:45,653 --> 04:10:47,718
More bad news. - What?

4712
04:10:47,718 --> 04:10:49,246
- I said there's more bad news,

4713
04:10:49,246 --> 04:10:53,586
one thing after another with what's been going on.

4714
04:10:53,586 --> 04:10:58,586
Right now there's no change since I spoke with you but

4715
04:10:58,774 --> 04:11:01,524
this latest set of episodes has--

4716
04:11:02,737 --> 04:11:04,689
- It's not different?

4717
04:11:04,689 --> 04:11:08,000
- Not from when we spoke on the telephone but

4718
04:11:08,000 --> 04:11:10,484
he hasn't shown any recovery from that.

4719
04:11:10,484 --> 04:11:12,304
They're giving him some other medication now

4720
04:11:12,304 --> 04:11:14,843
to try to help his heart pump a little more

4721
04:11:14,843 --> 04:11:18,843
effectively and to see if that could be helpful.

4722
04:11:20,361 --> 04:11:23,947
- There's been a whole series of one problem after another.

4723
04:11:23,947 --> 04:11:25,818
- Why, he's been coming here so long.

4724
04:11:25,818 --> 04:11:28,480
He never had these problems.

4725
04:11:28,480 --> 04:11:29,647
What happened?

4726
04:11:30,511 --> 04:11:32,757
- I'm not sure we have the complete answer to that.

4727
04:11:32,757 --> 04:11:35,367
But you know the attempt to see how we'd do

4728
04:11:35,367 --> 04:11:39,151
in getting him off the breathing machine,

4729
04:11:39,151 --> 04:11:41,362
it looked like things were getting better and better

4730
04:11:41,362 --> 04:11:43,390
and he was remaining stable. - He was good.

4731
04:11:43,390 --> 04:11:48,037
- But he was in such a precarious situation that

4732
04:11:48,037 --> 04:11:51,650
we've seen some of the things that can happen from that.

4733
04:11:51,650 --> 04:11:53,302
I don't have an answer for you as

4734
04:11:53,302 --> 04:11:55,261
to why it was that it happened now.

4735
04:11:55,261 --> 04:11:57,300
It's possible that there may have been some

4736
04:11:57,300 --> 04:11:59,581
additional injury that happened either to his

4737
04:11:59,581 --> 04:12:01,663
heart or elsewhere that we haven't detected yet

4738
04:12:01,663 --> 04:12:05,580
and that may be the thing that caused all this.

4739
04:12:06,694 --> 04:12:08,915
- Is he holding his own now?

4740
04:12:08,915 --> 04:12:12,186
- Well, I guess it's fair to say barely.

4741
04:12:12,186 --> 04:12:13,842
I think in the last hour or two,

4742
04:12:13,842 --> 04:12:16,322
his blood pressure has been a little better

4743
04:12:16,322 --> 04:12:19,676
and his heart rhythm had gotten a little bit stronger.

4744
04:12:19,676 --> 04:12:21,826
His heart rhythm had been irregular

4745
04:12:21,826 --> 04:12:24,159
and it's now more stable but

4746
04:12:25,857 --> 04:12:30,366
I think the big picture still looks very grave.

4747
04:12:30,366 --> 04:12:31,199
Excuse me.

4748
04:12:36,357 --> 04:12:39,896
- Are you telling me that he doesn't have too much hope?

4749
04:12:39,896 --> 04:12:42,748
- Well I think there's always hope.

4750
04:12:42,748 --> 04:12:46,448
We don't know for sure how to predict the future but

4751
04:12:46,448 --> 04:12:49,553
I think these things all make us concerned about

4752
04:12:49,553 --> 04:12:52,044
and make us wonder, we don't know.

4753
04:12:52,044 --> 04:12:55,949
But each one of these things that happens is more

4754
04:12:55,949 --> 04:12:59,321
bad news and more for him to contend with if

4755
04:12:59,321 --> 04:13:01,811
he's gonna have any sort of meaningful recovery.

4756
04:13:01,811 --> 04:13:04,414
- Didn't he respond at all? - No.

4757
04:13:04,414 --> 04:13:06,728
But we don't know if that's because there's an

4758
04:13:06,728 --> 04:13:10,360
underlying problem that's causing him not to respond or

4759
04:13:10,360 --> 04:13:13,683
whether it's still a lingering effect from the sedatives.

4760
04:13:13,683 --> 04:13:16,293
Even off of it for a couple of days,

4761
04:13:16,293 --> 04:13:18,666
his kidneys have been not doing well

4762
04:13:18,666 --> 04:13:20,578
and his liver has been not doing well

4763
04:13:20,578 --> 04:13:21,953
and those are the things which

4764
04:13:21,953 --> 04:13:23,994
get rid of the sedative from his body.

4765
04:13:23,994 --> 04:13:27,258
So then it's possible that some of the effect

4766
04:13:27,258 --> 04:13:31,014
of him not waking up was from the medication.

4767
04:13:31,014 --> 04:13:33,576
But I think we also have to consider the possibility

4768
04:13:33,576 --> 04:13:37,523
that even once the medication's gone that we may find an

4769
04:13:37,523 --> 04:13:41,675
underlying problem that's responsible for him not waking up.

4770
04:13:41,675 --> 04:13:45,508
- He was always complaining about his kidneys.

4771
04:13:52,164 --> 04:13:54,164
I just feel so terrible.

4772
04:13:57,592 --> 04:13:59,092
He was so unhappy.

4773
04:14:01,853 --> 04:14:04,271
He was so sure he was gonna die

4774
04:14:04,271 --> 04:14:08,104
and I think that that's uppermost in his mind.

4775
04:14:09,155 --> 04:14:11,240
- That he was sure he was gonna die?

4776
04:14:11,240 --> 04:14:13,407
- Yes, that's all he said.

4777
04:14:19,864 --> 04:14:21,913
Of course I said "Gee darling,

4778
04:14:21,913 --> 04:14:25,185
"you've been doing pretty good."

4779
04:14:25,185 --> 04:14:27,711
He managed around the house but

4780
04:14:27,711 --> 04:14:30,423
the last week before we came in here,

4781
04:14:30,423 --> 04:14:34,840
he couldn't even go from the bedroom to the bathroom.

4782
04:14:37,761 --> 04:14:38,594
Well,

4783
04:14:39,674 --> 04:14:42,095
I'll put it in the hands of God.

4784
04:14:42,095 --> 04:14:45,762
There's nothing I can say or do except pray.

4785
04:14:50,567 --> 04:14:52,224
Can we go in the room?

4786
04:14:52,224 --> 04:14:53,843
- [Bill] Let me check with the nurse

4787
04:14:53,843 --> 04:14:56,270
to make sure that it's okay.

4788
04:14:56,270 --> 04:14:58,437
I'll be right back. - Okay.

4789
04:15:05,900 --> 04:15:08,983
- [Dr. Brisol] The technique is poor.

4790
04:15:18,532 --> 04:15:21,782
- She really feeling it? - Yeah, she is.

4791
04:15:53,353 --> 04:15:57,520
- [Suzanne] That's probably the smart thing to do.

4792
04:15:59,562 --> 04:16:01,224
- Has he talked to you at all?

4793
04:16:01,224 --> 04:16:02,961
- A little bit.

4794
04:16:02,961 --> 04:16:05,413
A little bit, not much but I had to give him some

4795
04:16:05,413 --> 04:16:10,063
medicine to put him to sleep again to keep him comfortable.

4796
04:16:10,063 --> 04:16:11,925
- Can we sit here quietly?

4797
04:16:11,925 --> 04:16:12,758
Okay.

4798
04:16:17,201 --> 04:16:20,742
- We have chairs here, we have chairs.

4799
04:16:20,742 --> 04:16:23,694
You can talk to him if you want.

4800
04:16:23,694 --> 04:16:26,527
You never know, he might hear you.

4801
04:16:30,588 --> 04:16:31,755
Way down here.

4802
04:16:38,540 --> 04:16:39,373
- Charlie.

4803
04:16:40,393 --> 04:16:41,226
Charlie.

4804
04:16:43,744 --> 04:16:46,313
Why have you got the tape on his eyes?

4805
04:16:46,313 --> 04:16:48,337
- Because his eyes were wide open,

4806
04:16:48,337 --> 04:16:50,618
he wasn't keeping 'em closed by himself.

4807
04:16:50,618 --> 04:16:52,509
So I didn't want them to get dried out.

4808
04:16:52,509 --> 04:16:55,092
It's more comfortable this way.

4809
04:17:19,644 --> 04:17:23,144
Hi Charlie, Charlie, do you hear me honey?

4810
04:17:25,062 --> 04:17:26,343
Do you hear me?

4811
04:17:26,343 --> 04:17:27,994
- [Suzanne] Do you understand what happened today?

4812
04:17:27,994 --> 04:17:29,665
- [Mrs. Sperazza] No.

4813
04:17:29,665 --> 04:17:32,855
- Well he was doing about the same as usual

4814
04:17:32,855 --> 04:17:36,092
and then he just got pooped out from breathing.

4815
04:17:36,092 --> 04:17:41,092
He just suddenly tired out completely and stopped breathing.

4816
04:17:41,295 --> 04:17:43,984
- He stopped breathing? - He stopped breathing,

4817
04:17:43,984 --> 04:17:44,901
completely.

4818
04:17:46,569 --> 04:17:48,580
So we had to put him back on the ventilator

4819
04:17:48,580 --> 04:17:50,774
but his heart at the same time had

4820
04:17:50,774 --> 04:17:53,180
started to go into a funny rhythm

4821
04:17:53,180 --> 04:17:55,282
and he dropped his blood pressure too.

4822
04:17:55,282 --> 04:17:56,775
He's on a lot of medications

4823
04:17:56,775 --> 04:17:59,525
for his blood pressure right now.

4824
04:18:02,076 --> 04:18:06,243
- I don't understand, he wasn't this sick at home.

4825
04:18:07,402 --> 04:18:09,683
Do you suppose it was coming on?

4826
04:18:09,683 --> 04:18:11,266
- It was coming on.

4827
04:18:13,134 --> 04:18:16,134
It might just be his time, you know?

4828
04:18:18,557 --> 04:18:22,127
He has a sick heart, he has a pretty sick heart.

4829
04:18:22,127 --> 04:18:23,294
- Yeah? - Yeah.

4830
04:18:24,808 --> 04:18:29,088
- He never got treated for that or had any problems or--

4831
04:18:29,088 --> 04:18:32,803
- Well he was on Keptakrel, that was for his heart.

4832
04:18:32,803 --> 04:18:34,125
- Oh was it? - Yeah.

4833
04:18:34,125 --> 04:18:36,786
He was on a couple heart medications at home

4834
04:18:36,786 --> 04:18:40,424
and that's why his lungs kept getting bad this year.

4835
04:18:40,424 --> 04:18:42,327
It's because his heart wasn't pumping right,

4836
04:18:42,327 --> 04:18:45,902
so the fluid was backing up into his lungs.

4837
04:18:45,902 --> 04:18:46,735
Yeah.

4838
04:18:58,884 --> 04:19:00,241
- [Mrs. Sperazza] How can you tell

4839
04:19:00,241 --> 04:19:02,598
if he's doing better or not?

4840
04:19:02,598 --> 04:19:07,367
- [Suzanne] We watch his blood pressure and his heart rate.

4841
04:19:07,367 --> 04:19:09,683
- That lets you know, that's good.

4842
04:19:09,683 --> 04:19:11,296
- [Suzanne] Just his numbers,

4843
04:19:11,296 --> 04:19:14,129
that's all we can go by right now.

4844
04:19:17,606 --> 04:19:20,182
He has gotten better over the last hour.

4845
04:19:20,182 --> 04:19:21,055
- Really?

4846
04:19:21,055 --> 04:19:22,876
- He's gotten a little bit better.

4847
04:19:22,876 --> 04:19:24,708
His blood pressure's gotten better,

4848
04:19:24,708 --> 04:19:26,360
his heart rate's come down.

4849
04:19:26,360 --> 04:19:28,223
We've taken him off some of the medication,

4850
04:19:28,223 --> 04:19:30,591
so he's getting better.

4851
04:19:30,591 --> 04:19:33,617
But he had a pretty touch-and-go-morning.

4852
04:19:33,617 --> 04:19:36,284
- I called last night about 8:30

4853
04:19:37,556 --> 04:19:39,473
and Allison said to me,

4854
04:19:40,885 --> 04:19:44,550
"He's had a little trouble breathing."

4855
04:19:44,550 --> 04:19:47,205
So he must've started getting bad last night.

4856
04:19:47,205 --> 04:19:49,365
- He started getting bad last night.

4857
04:19:49,365 --> 04:19:51,061
His breathing was okay but his heart

4858
04:19:51,061 --> 04:19:54,024
went into a real fast rhythm. - Oh.

4859
04:19:54,024 --> 04:19:56,558
And they had to zap him, cardiovert him around

4860
04:19:56,558 --> 04:19:59,012
five in the morning to get him out of the rhythm.

4861
04:19:59,012 --> 04:20:00,619
- Oh.

4862
04:20:00,619 --> 04:20:04,372
- He was stable for about four hours and then his

4863
04:20:04,372 --> 04:20:08,149
heart just kinda slowed down and he stopped breathing.

4864
04:20:08,149 --> 04:20:09,436
So we had to put him back on

4865
04:20:09,436 --> 04:20:12,769
the machine and we had to zap him again.

4866
04:20:18,845 --> 04:20:21,875
- I don't believe it, he was a tiger.

4867
04:20:21,875 --> 04:20:26,625
If you knew how I used to beg him about those cigarettes.

4868
04:20:29,289 --> 04:20:31,956
Can't blame it on any one thing.

4869
04:20:43,880 --> 04:20:46,377
We're gonna stay around if you don't mind.

4870
04:20:46,377 --> 04:20:47,210
We won't,

4871
04:20:48,200 --> 04:20:50,700
you know-- - Come on over here.

4872
04:20:52,819 --> 04:20:55,565
Did Dr. Taylor talk to you?

4873
04:20:55,565 --> 04:20:59,390
Well at this point if his heart were to go

4874
04:20:59,390 --> 04:21:03,408
into a bad rhythm or if it was to stop again,

4875
04:21:03,408 --> 04:21:06,222
we can give him drugs and we can shock him,

4876
04:21:06,222 --> 04:21:09,583
we can try to save him or if you think that he's gone

4877
04:21:09,583 --> 04:21:12,457
through enough, you can decided for us to not do that.

4878
04:21:12,457 --> 04:21:14,202
To just keep everything we're doing

4879
04:21:14,202 --> 04:21:17,722
right now but not start anything else.

4880
04:21:17,722 --> 04:21:20,381
If you think you've been through enough with him--

4881
04:21:20,381 --> 04:21:22,577
- [Mrs. Sperazza] Oh no, I'd want him to have every chance.

4882
04:21:22,577 --> 04:21:24,989
- [Suzanne] You want him to have every chance, okay, okay.

4883
04:21:24,989 --> 04:21:29,236
We have to ask you that and that's very reasonable for you.

4884
04:21:29,236 --> 04:21:32,583
Okay so we can pass along, I'll tell Dr. Taylor that

4885
04:21:32,583 --> 04:21:34,999
or if he doesn't ask you, I'll pass that along.

4886
04:21:34,999 --> 04:21:36,193
- Okay, thank you.

4887
04:21:36,193 --> 04:21:38,050
- [Suzanne] That we'll do everything for him, okay?

4888
04:21:38,050 --> 04:21:40,159
- Everything, every conceivable thing.

4889
04:21:40,159 --> 04:21:42,076
- [Suzanne] Okay, okay.

4890
04:21:43,280 --> 04:21:45,398
- You've been so good, Suzanne.

4891
04:21:45,398 --> 04:21:48,300
- [Suzanne] I know this is difficult for you.

4892
04:21:48,300 --> 04:21:51,444
- I don't know what else they can do.

4893
04:21:51,444 --> 04:21:53,694
He's my life, he's my life.

4894
04:22:10,856 --> 04:22:14,439
I was so afraid I'd go and leave him alone.

4895
04:22:34,740 --> 04:22:36,157
- [Nurse] Really?

4896
04:22:49,258 --> 04:22:51,926
- [Doctor] So you can come in any time.

4897
04:22:51,926 --> 04:22:52,836
All right?

4898
04:22:52,836 --> 04:22:54,003
Okay, bye-bye.

4899
04:23:19,008 --> 04:23:23,520
- I didn't even drive in today because I was afraid.

4900
04:23:23,520 --> 04:23:27,770
We had to wait three quarters of an hour for a cab.

4901
04:23:32,090 --> 04:23:35,178
I don't think I should be driving when I feel like this.

4902
04:23:35,178 --> 04:23:38,011
- [Bill] Yeah, I think it's smart.

4903
04:23:39,258 --> 04:23:41,665
When's your next appointment to come in and see me?

4904
04:23:41,665 --> 04:23:42,498
- 23rd.

4905
04:23:44,284 --> 04:23:46,635
Charlie had an appointment with you too.

4906
04:23:46,635 --> 04:23:48,540
- [Bill] Yeah I remember, we set that up.

4907
04:23:48,540 --> 04:23:49,582
- Yeah.

4908
04:23:49,582 --> 04:23:50,903
- [Bill] I'll see you sooner

4909
04:23:50,903 --> 04:23:53,673
if you think that would be useful.

4910
04:23:53,673 --> 04:23:58,590
- While Charlie's still here, I'm not thinking of anything.

4911
04:24:01,260 --> 04:24:02,667
- [Bill] What's your sense with

4912
04:24:02,667 --> 04:24:04,789
what's going on with him now? - My son?

4913
04:24:04,789 --> 04:24:06,112
- [Dr Taylor] What's your sense

4914
04:24:06,112 --> 04:24:07,673
of what's going on with him now?

4915
04:24:07,673 --> 04:24:10,340
- I think he's in bad condition.

4916
04:24:12,040 --> 04:24:13,609
- [Bill] Do you feel like you have an understanding

4917
04:24:13,609 --> 04:24:17,894
of what's happening to him as much as you want to have?

4918
04:24:17,894 --> 04:24:22,061
- Not really, I can't understand why he's so sick.

4919
04:24:23,171 --> 04:24:26,754
I mean you're mentioning liver and kidneys.

4920
04:24:27,949 --> 04:24:30,276
How did they all enter the picture?

4921
04:24:30,276 --> 04:24:32,897
- [Bill] Well what happens from whatever

4922
04:24:32,897 --> 04:24:35,468
the original cause is, when the heart is not pumping

4923
04:24:35,468 --> 04:24:38,868
efficiently and the blood pressure goes down,

4924
04:24:38,868 --> 04:24:41,577
the circulation to every organ is affected.

4925
04:24:41,577 --> 04:24:44,182
Part of what the heart does is supply

4926
04:24:44,182 --> 04:24:46,786
every organ with oxygen.

4927
04:24:46,786 --> 04:24:48,575
When the lungs aren't working well,

4928
04:24:48,575 --> 04:24:51,244
not as much oxygen gets in and then when the heart

4929
04:24:51,244 --> 04:24:54,650
is not pumping well, every organ can be affected

4930
04:24:54,650 --> 04:24:57,686
by the poor circulation and I'm afraid that's what

4931
04:24:57,686 --> 04:25:00,914
he's been through is that the heart problems and the

4932
04:25:00,914 --> 04:25:05,596
lung problems have probably set everything else off.

4933
04:25:05,596 --> 04:25:08,365
His kidneys are not working well at all.

4934
04:25:08,365 --> 04:25:10,599
His liver is not working well.

4935
04:25:10,599 --> 04:25:12,838
His blood sugar is out of control.

4936
04:25:12,838 --> 04:25:14,831
As we discussed on the phone, we have questions

4937
04:25:14,831 --> 04:25:17,168
about whether he might've had any brain damage

4938
04:25:17,168 --> 04:25:19,365
from what had gone on in the few days before

4939
04:25:19,365 --> 04:25:21,623
and we were hoping that once we could stop

4940
04:25:21,623 --> 04:25:24,110
the sedatives when he was off the machine

4941
04:25:24,110 --> 04:25:25,885
that we could see if he would wake up

4942
04:25:25,885 --> 04:25:28,461
at all as a sign that his brain was doing okay.

4943
04:25:28,461 --> 04:25:31,490
So we have, everywhere we turn--

4944
04:25:31,490 --> 04:25:33,323
- There's an obstacle.

4945
04:25:38,217 --> 04:25:41,884
You know he said all week before he came in,

4946
04:25:42,898 --> 04:25:46,065
he screamed, he said "I'm going crazy.

4947
04:25:46,915 --> 04:25:48,415
"I'm going crazy."

4948
04:25:51,182 --> 04:25:53,244
It's just like you know, the girl that

4949
04:25:53,244 --> 04:25:56,448
used to take care of him that went to California,

4950
04:25:56,448 --> 04:25:59,768
he said "I feel worse than when she was here."

4951
04:25:59,768 --> 04:26:01,827
- When Dr. Gartol left? - Yeah.

4952
04:26:01,827 --> 04:26:03,441
- Yeah, that was a big loss for him.

4953
04:26:03,441 --> 04:26:05,774
- It was a big loss for him.

4954
04:26:06,814 --> 04:26:08,931
He didn't particularly take to

4955
04:26:08,931 --> 04:26:10,907
the doctor that took her place.

4956
04:26:10,907 --> 04:26:12,690
- Well I think any time there's a close

4957
04:26:12,690 --> 04:26:16,007
relationship as he had with that psychiatrist,

4958
04:26:16,007 --> 04:26:18,183
finding a replacement is very difficult.

4959
04:26:18,183 --> 04:26:19,016
- I know.

4960
04:26:22,820 --> 04:26:24,989
What can I do, Dr. Taylor?

4961
04:26:24,989 --> 04:26:26,466
- Well I think to be here the way

4962
04:26:26,466 --> 04:26:28,893
you are is probably the most important thing.

4963
04:26:28,893 --> 04:26:31,855
We don't think that he's able to sense much

4964
04:26:31,855 --> 04:26:33,719
in terms of what's going on around him.

4965
04:26:33,719 --> 04:26:36,481
But we never know and I think your presence,

4966
04:26:36,481 --> 04:26:40,363
your visits are probably the most important thing.

4967
04:26:40,363 --> 04:26:43,761
- My son came in last night, much against his will.

4968
04:26:43,761 --> 04:26:45,344
He just can't bear,

4969
04:26:46,527 --> 04:26:51,527
and he's so good but sickness just does something to him,

4970
04:26:51,936 --> 04:26:54,910
to just see somebody under these conditions.

4971
04:26:54,910 --> 04:26:58,887
- [Bill] Would it be useful for him to talk with me?

4972
04:26:58,887 --> 04:27:01,055
- I don't think so because

4973
04:27:03,548 --> 04:27:05,422
I'd say almost he was a Christian

4974
04:27:05,422 --> 04:27:08,554
Scientist if I didn't know better.

4975
04:27:08,554 --> 04:27:12,303
He won't go to a doc himself, he has the Harvard plan.

4976
04:27:12,303 --> 04:27:14,094
If he hurts himself someway,

4977
04:27:14,094 --> 04:27:17,511
he'll go to a doctor but other than that,

4978
04:27:18,381 --> 04:27:20,199
he heals himself.

4979
04:27:20,199 --> 04:27:22,075
- You might mention to him if you would that I'm

4980
04:27:22,075 --> 04:27:25,473
available if he thinks it might be useful for us to talk.

4981
04:27:25,473 --> 04:27:27,000
Even if it doesn't mean coming in,

4982
04:27:27,000 --> 04:27:29,294
we can even speak on the phone.

4983
04:27:29,294 --> 04:27:32,333
- I will if you don't mind because

4984
04:27:32,333 --> 04:27:34,612
I kinda talk to him about breaking down

4985
04:27:34,612 --> 04:27:36,930
and then he gets upset when I break down

4986
04:27:36,930 --> 04:27:41,512
and I don't want to do it, I don't do it intentionally.

4987
04:27:45,372 --> 04:27:46,895
- Well it's not necessarily a bad

4988
04:27:46,895 --> 04:27:50,312
thing for him to know how you're feeling.

4989
04:27:58,976 --> 04:28:01,678
One of the big questions from a medical point

4990
04:28:01,678 --> 04:28:05,716
of view is whether we should go ahead with this

4991
04:28:05,716 --> 04:28:08,118
procedure that we've talked about doing

4992
04:28:08,118 --> 04:28:09,819
where they put the balloon in and try to

4993
04:28:09,819 --> 04:28:13,176
open up the blockage in the heart valve.

4994
04:28:13,176 --> 04:28:16,769
It's a very, very difficult issue because

4995
04:28:16,769 --> 04:28:21,061
on the one hand with all the difficulty that he's having,

4996
04:28:21,061 --> 04:28:23,828
we don't want to subject him to the further difficulty that

4997
04:28:23,828 --> 04:28:27,145
could come if there were a complication from the procedure.

4998
04:28:27,145 --> 04:28:30,587
Because on the one hand, if it would offer him something

4999
04:28:30,587 --> 04:28:34,199
and the chance of a more meaningful opportunity to recover,

5000
04:28:34,199 --> 04:28:36,405
we certainly don't want to withhold that from him.

5001
04:28:36,405 --> 04:28:38,150
- No. - On the other hand,

5002
04:28:38,150 --> 04:28:40,973
if it means putting him through one more procedure

5003
04:28:40,973 --> 04:28:42,929
for no purpose, if it's not gonna help him

5004
04:28:42,929 --> 04:28:44,889
have a more meaningful chance of recovery,

5005
04:28:44,889 --> 04:28:47,113
we hate to subject him to it.

5006
04:28:47,113 --> 04:28:49,109
Not only from what the procedure does

5007
04:28:49,109 --> 04:28:51,179
but in case there could be any

5008
04:28:51,179 --> 04:28:54,129
complications from it or any problems because

5009
04:28:54,129 --> 04:28:57,151
although it's a relatively safe procedure,

5010
04:28:57,151 --> 04:29:00,684
there are complications-- - You explained it to me.

5011
04:29:00,684 --> 04:29:02,467
- And in his condition,

5012
04:29:02,467 --> 04:29:05,867
the possibility of complications always goes up.

5013
04:29:05,867 --> 04:29:07,823
When there are so many things--

5014
04:29:07,823 --> 04:29:10,679
- [Mrs. Sperazza] What does that leave you with, nothing?

5015
04:29:10,679 --> 04:29:13,035
- Well I don't know, I think it leaves watching,

5016
04:29:13,035 --> 04:29:15,481
trying to do the best we can to stabilize him

5017
04:29:15,481 --> 04:29:17,425
and then to keep making this judgment as

5018
04:29:17,425 --> 04:29:19,943
best we can with the best input we can get.

5019
04:29:19,943 --> 04:29:21,840
Dr. Morgan has known him for awhile.

5020
04:29:21,840 --> 04:29:22,877
- Oh yes.

5021
04:29:22,877 --> 04:29:24,860
- [Bill] He's very thoughtful and careful

5022
04:29:24,860 --> 04:29:26,848
about giving advice about these things

5023
04:29:26,848 --> 04:29:28,580
and I think his opinion is gonna be

5024
04:29:28,580 --> 04:29:30,826
a real important one in terms of

5025
04:29:30,826 --> 04:29:33,071
whether he thinks this might be helpful.

5026
04:29:33,071 --> 04:29:35,012
Because you know back when he was evaluated,

5027
04:29:35,012 --> 04:29:37,410
when Charlie was evaluated in July,

5028
04:29:37,410 --> 04:29:39,641
it didn't look like the heart valve

5029
04:29:39,641 --> 04:29:41,894
was causing the primary problem.

5030
04:29:41,894 --> 04:29:44,864
- I know, that's why I don't understand this.

5031
04:29:44,864 --> 04:29:46,562
- [Bill] Well one of the things

5032
04:29:46,562 --> 04:29:50,535
that that says to me is that we have to be

5033
04:29:50,535 --> 04:29:52,864
careful, we don't want to rush ahead

5034
04:29:52,864 --> 04:29:55,306
and subject him to something unless we're

5035
04:29:55,306 --> 04:29:58,877
pretty sure that he's likely to stand to gain from it.

5036
04:29:58,877 --> 04:30:01,830
In the meantime, every additional problem

5037
04:30:01,830 --> 04:30:05,308
that develops is another strike against him

5038
04:30:05,308 --> 04:30:08,756
in terms of what we're all hoping for.

5039
04:30:08,756 --> 04:30:13,723
The possibility of some meaningful recovery from this.

5040
04:30:13,723 --> 04:30:18,127
- Is it possible that medication will help him?

5041
04:30:18,127 --> 04:30:20,023
- Well he's on medication. - Yes, I know.

5042
04:30:20,023 --> 04:30:21,632
- We're trying different ones to see

5043
04:30:21,632 --> 04:30:24,243
if we can find the best combination for him.

5044
04:30:24,243 --> 04:30:28,453
So we're doing what can be done with that

5045
04:30:28,453 --> 04:30:32,142
and not giving up in terms of trying to be helpful.

5046
04:30:32,142 --> 04:30:35,038
But I think to try to be realistic at the same time,

5047
04:30:35,038 --> 04:30:38,720
the more this goes on, the more complications that develop

5048
04:30:38,720 --> 04:30:42,194
in spite of doing everything that's being done,

5049
04:30:42,194 --> 04:30:43,938
the worse it looks.

5050
04:30:43,938 --> 04:30:45,856
- He's not suffering, is he? - No.

5051
04:30:45,856 --> 04:30:47,615
To the best of our knowledge, he's not.

5052
04:30:47,615 --> 04:30:50,094
When he's been resisting the tube or

5053
04:30:50,094 --> 04:30:52,470
looking like he's at all uncomfortable,

5054
04:30:52,470 --> 04:30:54,889
he has gotten the sedative medication to

5055
04:30:54,889 --> 04:30:58,427
try to take the edge off of that and try to make sure,

5056
04:30:58,427 --> 04:31:01,319
I believe since this tube has had to go back in

5057
04:31:01,319 --> 04:31:04,543
that he hasn't required much in the way of the sedative

5058
04:31:04,543 --> 04:31:07,362
either because there's still some in his bloodstream

5059
04:31:07,362 --> 04:31:11,509
or because he's so sick that he's not able to--

5060
04:31:11,509 --> 04:31:13,244
- To fight. - To fight it or to

5061
04:31:13,244 --> 04:31:14,775
experience it.

5062
04:31:14,775 --> 04:31:17,940
- So what do you think, wait and see?

5063
04:31:17,940 --> 04:31:19,844
- [Bill] That's all we can do.

5064
04:31:19,844 --> 04:31:23,718
I think in the meantime we have to keep assessing

5065
04:31:23,718 --> 04:31:25,582
what's our goal for all this?

5066
04:31:25,582 --> 04:31:27,276
- Yeah, that's what I want to know.

5067
04:31:27,276 --> 04:31:29,485
- If there is some hope for some meaningful recovery,

5068
04:31:29,485 --> 04:31:33,261
we want to do everything to help him to achieve that.

5069
04:31:33,261 --> 04:31:35,739
If it reaches the point where that

5070
04:31:35,739 --> 04:31:38,539
isn't really possible, then we're gonna

5071
04:31:38,539 --> 04:31:41,276
have to reassess and say is it the right

5072
04:31:41,276 --> 04:31:43,878
thing to do to subject him to all this,

5073
04:31:43,878 --> 04:31:46,405
to all the tubes and the machines and the medications

5074
04:31:46,405 --> 04:31:49,470
and everything that goes on here in Intensive Care

5075
04:31:49,470 --> 04:31:51,678
if it's not gonna be for some purpose

5076
04:31:51,678 --> 04:31:55,348
in terms of him being able to recover from this?

5077
04:31:55,348 --> 04:31:57,960
And at this point I think we don't know,

5078
04:31:57,960 --> 04:32:01,123
we never know for sure but the longer it goes

5079
04:32:01,123 --> 04:32:03,492
with more and more complications, the less he

5080
04:32:03,492 --> 04:32:06,703
responds to all the different things that are being done.

5081
04:32:06,703 --> 04:32:08,310
- Couldn't it be just the opposite,

5082
04:32:08,310 --> 04:32:10,549
that he will start responding?

5083
04:32:10,549 --> 04:32:12,632
- [Bill] That's the hope.

5084
04:32:18,186 --> 04:32:19,603
- Oh, Dr. Taylor.

5085
04:32:35,897 --> 04:32:36,730
Well,

5086
04:32:38,773 --> 04:32:41,440
I'm gonna go along with the hope

5087
04:32:45,712 --> 04:32:48,379
that something will be resolved.

5088
04:32:50,403 --> 04:32:52,051
- [Bill] Let's stay in close touch.

5089
04:32:52,051 --> 04:32:53,227
You know how to reach me anytime.

5090
04:32:53,227 --> 04:32:55,405
- Oh yeah, I called you yesterday

5091
04:32:55,405 --> 04:32:58,360
and Paige had you on the line so long and then I

5092
04:32:58,360 --> 04:33:01,340
just hung up and I tried Dr. Morgan and I got him.

5093
04:33:01,340 --> 04:33:03,953
- [Bill] Good, sometimes when they

5094
04:33:03,953 --> 04:33:06,320
page me, the beeper doesn't go off.

5095
04:33:06,320 --> 04:33:07,271
- Oh yeah?

5096
04:33:07,271 --> 04:33:09,822
- Call and page again when that happens.

5097
04:33:09,822 --> 04:33:11,196
- Oh. - Okay?

5098
04:33:11,196 --> 04:33:13,846
- I thought maybe you weren't on page, you know?

5099
04:33:13,846 --> 04:33:15,794
- [Bill] No, they'll know that if they tell you

5100
04:33:15,794 --> 04:33:18,294
that I'm not on page, ask them for a number where you

5101
04:33:18,294 --> 04:33:20,752
can leave a message for me and then I can call you back.

5102
04:33:20,752 --> 04:33:22,533
There's always, if I can't be paged,

5103
04:33:22,533 --> 04:33:24,180
there's always a place where you can leave a message.

5104
04:33:24,180 --> 04:33:26,347
- Oh, I didn't know that, thank you.

5105
04:33:26,347 --> 04:33:27,379
- [Bill] Tomorrow I'll be

5106
04:33:27,379 --> 04:33:29,289
here all day and on page all day.

5107
04:33:29,289 --> 04:33:31,077
So you can speak to me later today through

5108
04:33:31,077 --> 04:33:33,783
the page operator or tomorrow, I'll be here.

5109
04:33:33,783 --> 04:33:38,651
- [Mrs. Sperazza] Dr. Morgan was very nice, he spoke to me.

5110
04:33:38,651 --> 04:33:41,831
I don't know what that doctor's name was.

5111
04:33:41,831 --> 04:33:44,207
He told me the most horrifying things

5112
04:33:44,207 --> 04:33:46,572
that can happen with that procedure.

5113
04:33:46,572 --> 04:33:49,145
- Yeah. - But of course I,

5114
04:33:49,145 --> 04:33:52,308
I imagine that they have to do that, you know?

5115
04:33:52,308 --> 04:33:53,847
- That they have to do which?

5116
04:33:53,847 --> 04:33:55,105
- [Mrs. Sperazza] Tell you all

5117
04:33:55,105 --> 04:33:56,597
the bad things that can happen.

5118
04:33:56,597 --> 04:33:58,414
- Yeah, I'm afraid they do.

5119
04:33:58,414 --> 04:34:01,448
Because the last thing that you'd want to have happen

5120
04:34:01,448 --> 04:34:03,103
is to have him go through it and have something

5121
04:34:03,103 --> 04:34:06,053
happen that you never even realized could occur.

5122
04:34:06,053 --> 04:34:07,910
So they want you to sort of have your eyes open.

5123
04:34:07,910 --> 04:34:09,855
- They've only done 140 of these.

5124
04:34:09,855 --> 04:34:11,338
- [Bill] It's a brand new procedure.

5125
04:34:11,338 --> 04:34:12,952
Most hospitals, my understanding is

5126
04:34:12,952 --> 04:34:14,756
most hospitals don't have it available.

5127
04:34:14,756 --> 04:34:17,126
We're fortunate to have people here who

5128
04:34:17,126 --> 04:34:19,819
are skilled in it but it's brand new, so

5129
04:34:19,819 --> 04:34:22,306
doing it has its hazards even though they

5130
04:34:22,306 --> 04:34:24,211
appear to be small and we also don't

5131
04:34:24,211 --> 04:34:28,010
really know about the long term effect.

5132
04:34:28,010 --> 04:34:30,080
- That's what he said and you also

5133
04:34:30,080 --> 04:34:31,983
don't know if that's what he really needs.

5134
04:34:31,983 --> 04:34:35,922
- That's the key, that's what we're trying to sort out.

5135
04:34:35,922 --> 04:34:38,627
My own view is that we need to hold off on that

5136
04:34:38,627 --> 04:34:41,121
right now and see if we can start to show some

5137
04:34:41,121 --> 04:34:44,188
signs of turning the corner, being stabilized,

5138
04:34:44,188 --> 04:34:47,339
looking like there's some chance of meaningful recovery.

5139
04:34:47,339 --> 04:34:49,655
Because I would hate to subject him to it

5140
04:34:49,655 --> 04:34:52,190
and have it be for no purpose or even worse,

5141
04:34:52,190 --> 04:34:55,378
to have it be something that causes him additional problems.

5142
04:34:55,378 --> 04:34:58,359
So if it looks like he's able to hold his own,

5143
04:34:58,359 --> 04:35:01,717
he is able to start to show some signs of recovery,

5144
04:35:01,717 --> 04:35:04,587
I think we'd have to assess whether it might be worth doing

5145
04:35:04,587 --> 04:35:07,462
and as I say, I'll depend very heavily on Dr. Morgan

5146
04:35:07,462 --> 04:35:10,234
and the rest of the cardiologists about whether--

5147
04:35:10,234 --> 04:35:12,433
- [Mrs. Sperazza] Will Dr. McKay be in on this?

5148
04:35:12,433 --> 04:35:14,675
- Yeah, well Dr. McKay is the one with

5149
04:35:14,675 --> 04:35:17,750
Dr. Safien who are the experts on doing it.

5150
04:35:17,750 --> 04:35:18,949
- [Mrs. Sperazza] Oh, I see.

5151
04:35:18,949 --> 04:35:21,019
- Dr. Morgan's consulting with him all the time

5152
04:35:21,019 --> 04:35:24,589
about whether it's something that would be useful for him

5153
04:35:24,589 --> 04:35:28,455
or whether it should be done soon or we should hold off.

5154
04:35:28,455 --> 04:35:31,873
Just what would be the best sort of plan.

5155
04:35:34,487 --> 04:35:37,907
- I don't know what I'd do without her.

5156
04:35:37,907 --> 04:35:38,739
I mean,

5157
04:35:40,565 --> 04:35:43,877
she walks my dog in the morning.

5158
04:35:43,877 --> 04:35:46,592
Poor dog doesn't know where Charlie is.

5159
04:35:46,592 --> 04:35:51,092
He keeps going and looking at the bed and he's so sad.

5160
04:35:53,398 --> 04:35:56,262
He leaves a hole everywhere.

5161
04:35:56,262 --> 04:35:59,086
You know Charlie from here,

5162
04:35:59,086 --> 04:36:00,919
Charlie is one of the,

5163
04:36:02,057 --> 04:36:04,317
I mean greatest, that's all I can say.

5164
04:36:04,317 --> 04:36:07,932
The kids adore him when they see him coming down the street.

5165
04:36:07,932 --> 04:36:10,724
If your Daniel saw him, he'd fly in his arms.

5166
04:36:10,724 --> 04:36:13,491
That's the way he is. - I know that about him.

5167
04:36:13,491 --> 04:36:15,658
- Yeah, he loves children.

5168
04:36:19,012 --> 04:36:20,915
And the kids have all asked me,

5169
04:36:20,915 --> 04:36:23,773
yesterday they gave me drawings to put in his room.

5170
04:36:23,773 --> 04:36:25,974
They were horrible, I didn't dare

5171
04:36:25,974 --> 04:36:28,555
tell the little girl what I thought it was.

5172
04:36:28,555 --> 04:36:30,461
I thought it was a candle.

5173
04:36:30,461 --> 04:36:33,527
She said it was a Christmas tree.

5174
04:36:33,527 --> 04:36:37,695
- She's working on it. - She's working on it, yeah.

5175
04:36:39,154 --> 04:36:41,021
- [Bill] Maybe the spirit of what's behind that--

5176
04:36:41,021 --> 04:36:42,271
- That's right.

5177
04:36:43,456 --> 04:36:45,661
- [Bill] Well I'll be around later today as I say

5178
04:36:45,661 --> 04:36:48,196
and tomorrow as well, so let's stay in close touch.

5179
04:36:48,196 --> 04:36:51,149
- Oh yes, I may go home for a little while,

5180
04:36:51,149 --> 04:36:54,152
straighten the dog out, lock up the house.

5181
04:36:54,152 --> 04:36:57,619
But I'll be back, I'll get a ride back, I won't drive.

5182
04:36:57,619 --> 04:37:00,464
- [Bill] Good, that's the right thing to do.

5183
04:37:00,464 --> 04:37:05,464
- Thank you so much for your time and your kindness.

5184
04:37:05,556 --> 04:37:07,556
- Thank you, Dr. Taylor.

5185
04:37:13,532 --> 04:37:15,190
- So,

5186
04:37:15,190 --> 04:37:18,874
I just you know tried to explain to the wife

5187
04:37:18,874 --> 04:37:21,186
in pretty simple terms the scenario of things.

5188
04:37:21,186 --> 04:37:25,249
She's aware that he is doing very poorly.

5189
04:37:25,249 --> 04:37:27,416
But she still very strongly feels

5190
04:37:27,416 --> 04:37:29,719
that she wants everything done for him.

5191
04:37:29,719 --> 04:37:32,897
- [Nurse] Did someone bring it up and she definitely said--

5192
04:37:32,897 --> 04:37:35,675
- I said to her if his heart stops

5193
04:37:35,675 --> 04:37:39,383
or if he goes into a bad rhythm I said we can shock

5194
04:37:39,383 --> 04:37:42,004
him and we can give him drugs, is this what you want?

5195
04:37:42,004 --> 04:37:44,938
And she said "Oh God yes, I want everything done."

5196
04:37:44,938 --> 04:37:46,679
- [Nurse] Okay.

5197
04:37:46,679 --> 04:37:49,501
- But the sister I think has a little bit more realistic

5198
04:37:49,501 --> 04:37:52,983
view of the situation and she's not as emotionally involved.

5199
04:37:52,983 --> 04:37:56,587
- She might just need time to accept this.

5200
04:37:56,587 --> 04:37:59,726
- And that's what the sister said and I said to her,

5201
04:37:59,726 --> 04:38:01,895
I said I would not be surprised if something sudden

5202
04:38:01,895 --> 04:38:03,758
happened and I said I really don't want to mention

5203
04:38:03,758 --> 04:38:07,255
this to her but just don't leave her alone at home.

5204
04:38:07,255 --> 04:38:10,042
I said you know, just be prepared that something

5205
04:38:10,042 --> 04:38:13,792
could happen and that he's doing very poorly.

5206
04:38:15,322 --> 04:38:17,002
She seems a lot more reasonable.

5207
04:38:17,002 --> 04:38:19,049
- Go through the sister to approach.

5208
04:38:19,049 --> 04:38:21,078
- That's what I figured, you know?

5209
04:38:21,078 --> 04:38:24,155
The wife, she's really heartbroken.

5210
04:38:24,155 --> 04:38:25,890
She really loves Charlie.

5211
04:38:25,890 --> 04:38:27,501
She doesn't know what she's gonna do without him.

5212
04:38:27,501 --> 04:38:28,991
She knows now he's gonna die.

5213
04:38:28,991 --> 04:38:30,800
- She's very sick since he's been sick.

5214
04:38:30,800 --> 04:38:34,039
She comes in here and she's been dizzy.

5215
04:38:34,039 --> 04:38:35,728
- Has she really? - Yeah.

5216
04:38:35,728 --> 04:38:37,061
- Oh, wonderful.

5217
04:38:40,877 --> 04:38:43,205
Thanks for getting me lunch, Ken.

5218
04:38:43,205 --> 04:38:45,500
I haven't eaten yet either you know.

5219
04:38:45,500 --> 04:38:46,332
God.

5220
04:38:47,641 --> 04:38:49,336
- But you're going home.

5221
04:38:49,336 --> 04:38:51,250
You're going home now. - Absolutely.

5222
04:38:51,250 --> 04:38:54,757
- I'm going home now too. - I'm going to the bar now.

5223
04:38:54,757 --> 04:38:56,529
And that's all.

5224
04:38:56,529 --> 04:38:58,436
And who is it?

5225
04:38:58,436 --> 04:39:01,086
Taylor has spent time--

5226
04:39:01,086 --> 04:39:03,866
- He's very good, he's very realistic.

5227
04:39:03,866 --> 04:39:06,713
He sees them every day and he was saying we shouldn't

5228
04:39:06,713 --> 04:39:11,012
valvoplasty if this man mentally is not with it.

5229
04:39:11,012 --> 04:39:12,591
If he's had a stroke or whatever

5230
04:39:12,591 --> 04:39:14,046
that we haven't discovered yet.

5231
04:39:14,046 --> 04:39:16,114
- He was on the list for valvoplasty tomorrow and they

5232
04:39:16,114 --> 04:39:18,967
canceled him and they're possibly gonna do it on Monday.

5233
04:39:18,967 --> 04:39:21,382
You know they're not gonna take him.

5234
04:39:21,382 --> 04:39:25,736
There's no way he's stable enough to go down for that.

5235
04:39:25,736 --> 04:39:26,569
So,

5236
04:39:27,775 --> 04:39:29,942
just have to wait and see.

5237
04:39:32,555 --> 04:39:34,481
I need that Blue Book big time,

5238
04:39:34,481 --> 04:39:36,683
you can go ahead and see it first.

5239
04:39:36,683 --> 04:39:40,704
I'm gonna go down and get something to eat.

5240
04:39:40,704 --> 04:39:42,371
- All right, thanks.

5241
04:39:44,763 --> 04:39:45,680
Okay, okay.

5242
04:39:47,081 --> 04:39:49,737
- He must be upset, his blood pressure's 153.

5243
04:39:49,737 --> 04:39:51,520
- That's good though.

5244
04:39:51,520 --> 04:39:56,103
At least it might mean his kidneys are a little better.

5245
04:39:58,413 --> 04:39:59,864
- The DC.

5246
04:39:59,864 --> 04:40:01,404
I think the real problem is we need to

5247
04:40:01,404 --> 04:40:03,554
get together with Jim again and sort of

5248
04:40:03,554 --> 04:40:06,099
thing about whether there's anything that,

5249
04:40:06,099 --> 04:40:09,016
I don't really know why he crumped.

5250
04:40:09,889 --> 04:40:12,040
The history of it is much more

5251
04:40:12,040 --> 04:40:14,925
consistent with a respiratory thing.

5252
04:40:14,925 --> 04:40:19,925
From his heart, he was as maximal as we could make him.

5253
04:40:20,228 --> 04:40:23,011
I think he was well diagnosed and he looked pretty good.

5254
04:40:23,011 --> 04:40:25,784
I think that he had a high white count and it may be that

5255
04:40:25,784 --> 04:40:29,563
just the combination of the sedation and whatever infection

5256
04:40:29,563 --> 04:40:33,596
he had, he just gradually went downhill over 36 hour period.

5257
04:40:33,596 --> 04:40:35,772
So it was more a respiratory decompensation

5258
04:40:35,772 --> 04:40:38,751
but what bothers me is his lungs are so bad

5259
04:40:38,751 --> 04:40:40,827
and his heart is so bad, we got his heart

5260
04:40:40,827 --> 04:40:42,652
to the best we could get it and we still

5261
04:40:42,652 --> 04:40:44,573
couldn't keep him off the ventilator and that

5262
04:40:44,573 --> 04:40:47,221
doesn't bode very well for a valvuloplasty.

5263
04:40:47,221 --> 04:40:49,499
What that says is even with a valvuloplasty,

5264
04:40:49,499 --> 04:40:51,238
I can't get him off the ventilator.

5265
04:40:51,238 --> 04:40:53,383
So I think we just need to sorta sit tight for

5266
04:40:53,383 --> 04:40:56,900
a day and see what happens because he's got some ATN.

5267
04:40:56,900 --> 04:40:59,348
He's non-oliguric probably and it looks

5268
04:40:59,348 --> 04:41:01,132
like he's starting to pee now that we've

5269
04:41:01,132 --> 04:41:02,788
got everything metabolically under control.

5270
04:41:02,788 --> 04:41:04,107
The guy's being ruled out,

5271
04:41:04,107 --> 04:41:05,639
there's a whole bunch of other things

5272
04:41:05,639 --> 04:41:07,216
but then I think we have to sorta sit down

5273
04:41:07,216 --> 04:41:09,432
with Jim and I mean I just, I'd be very

5274
04:41:09,432 --> 04:41:12,042
pessimistic that a valvuloplasty would do anything.

5275
04:41:12,042 --> 04:41:16,061
But I also don't think I'm gonna get him off the ventilator.

5276
04:41:16,061 --> 04:41:18,977
- But to do a valvuloplasty that's not gonna help,

5277
04:41:18,977 --> 04:41:22,644
there's not a reason-- - That's what I think.

5278
04:41:23,669 --> 04:41:25,242
- Well Jim knows him well, so--

5279
04:41:25,242 --> 04:41:27,058
- I think we need to just sorta touch base with

5280
04:41:27,058 --> 04:41:30,524
him about that and say okay look, is there any,

5281
04:41:30,524 --> 04:41:34,857
because my feeling would be forget it at this point.

5282
04:41:35,751 --> 04:41:38,434
But then I think we'd both have to

5283
04:41:38,434 --> 04:41:41,208
talk to his wife and explain to her what the situation is.

5284
04:41:41,208 --> 04:41:43,814
I think we may get him to the point again

5285
04:41:43,814 --> 04:41:46,542
where we can try to extubate him but if we do that,

5286
04:41:46,542 --> 04:41:48,155
I'd be in favor of not putting him

5287
04:41:48,155 --> 04:41:49,863
back on if he didn't fly probably.

5288
04:41:49,863 --> 04:41:53,600
- Yeah, the question is also what--

5289
04:41:53,600 --> 04:41:56,993
- Yeah, well I mean I think then it would be hopeless.

5290
04:41:56,993 --> 04:41:58,604
There wouldn't be any chance

5291
04:41:58,604 --> 04:42:00,529
except sort of prolonging his death.

5292
04:42:00,529 --> 04:42:02,212
- I'll talk to her some more today.

5293
04:42:02,212 --> 04:42:04,805
- Yeah, talk to Jim and then we'll see.

5294
04:42:04,805 --> 04:42:06,750
I don't think we have to make any sudden

5295
04:42:06,750 --> 04:42:10,109
moves over the next, you know the weekend.

5296
04:42:10,109 --> 04:42:12,859
See what happens. - Thanks, Scott.

5297
04:42:26,285 --> 04:42:27,746
The question is gonna come up if

5298
04:42:27,746 --> 04:42:30,413
we are able to take out the tube

5299
04:42:31,710 --> 04:42:34,204
and see how he does,

5300
04:42:34,204 --> 04:42:36,405
what happens if he does not do well?

5301
04:42:36,405 --> 04:42:38,348
Certainly if we take it out, it will be our

5302
04:42:38,348 --> 04:42:40,089
hope and we'll do everything we possibly

5303
04:42:40,089 --> 04:42:43,163
can to see that he does well without it.

5304
04:42:43,163 --> 04:42:48,068
But if his breathing becomes a problem off the tube again,

5305
04:42:48,068 --> 04:42:50,941
we're gonna have to face the issue of whether

5306
04:42:50,941 --> 04:42:53,524
to put the tube back in or not.

5307
04:42:58,828 --> 04:42:59,661
Excuse me?

5308
04:43:03,250 --> 04:43:04,695
Well that's the question,

5309
04:43:04,695 --> 04:43:07,945
I think it can only be used essentially

5310
04:43:10,291 --> 04:43:12,811
for the kind of support that he's getting now.

5311
04:43:12,811 --> 04:43:14,559
We would hope that in the long run

5312
04:43:14,559 --> 04:43:17,214
that he'd be able to manage without it.

5313
04:43:17,214 --> 04:43:18,832
If we have to put it back in again,

5314
04:43:18,832 --> 04:43:21,864
the question is for what, what sort of a recovery

5315
04:43:21,864 --> 04:43:25,036
might he have if he's unable to breathe

5316
04:43:25,036 --> 04:43:28,453
except to have the machine do it for him?

5317
04:43:32,155 --> 04:43:34,322
Are you gonna be in today?

5318
04:43:41,730 --> 04:43:42,563
Uh-huh.

5319
04:43:44,508 --> 04:43:45,341
Yes.

5320
04:43:48,386 --> 04:43:49,219
Uh-huh.

5321
04:43:51,614 --> 04:43:52,936
Yeah.

5322
04:43:52,936 --> 04:43:57,176
Well would you rather talk about this sorta stuff in person?

5323
04:43:57,176 --> 04:43:58,711
Yeah, all righty.

5324
04:43:58,711 --> 04:44:00,516
Well when you come in, why don't you ask

5325
04:44:00,516 --> 04:44:02,625
the Unit Coordinator up here in the Intensive Care

5326
04:44:02,625 --> 04:44:06,116
Unit to page me and I'll come and we'll speak then.

5327
04:44:06,116 --> 04:44:08,614
Because I think the issue that we started to talk

5328
04:44:08,614 --> 04:44:13,447
about is one that'll be important to talk about some more.

5329
04:44:17,010 --> 04:44:20,119
Well we'll talk about it together, I think

5330
04:44:20,119 --> 04:44:22,881
you have to understand as best you can

5331
04:44:22,881 --> 04:44:26,521
the medical situation and it's my job to try to

5332
04:44:26,521 --> 04:44:29,326
tell you as best I can about that and then together

5333
04:44:29,326 --> 04:44:34,321
we'll try to figure out what's the best plan and what to do.

5334
04:44:34,321 --> 04:44:37,738
Okay, I'll speak to you later, take care.

5335
04:44:53,800 --> 04:44:56,980
- [Scott] I think if we're gonna do a valvuloplasty,

5336
04:44:56,980 --> 04:44:58,807
we've gotta do it while he's intubated.

5337
04:44:58,807 --> 04:45:00,711
I don't think we oughta try to extubate him.

5338
04:45:00,711 --> 04:45:02,415
At the moment it's not clear at all to me

5339
04:45:02,415 --> 04:45:04,242
that he could come off the ventilator.

5340
04:45:04,242 --> 04:45:06,017
- It's also not clear either that he stands

5341
04:45:06,017 --> 04:45:08,168
to benefit a wit from the valvuloplasty.

5342
04:45:08,168 --> 04:45:09,900
- Right but those are the questions we gotta,

5343
04:45:09,900 --> 04:45:11,861
I guess the other question to put to Jim is

5344
04:45:11,861 --> 04:45:14,522
whether, what do you think is the right cardioversion

5345
04:45:14,522 --> 04:45:17,755
since we've got his rate controlled but you know,

5346
04:45:17,755 --> 04:45:20,712
he may not be able to hold cardioversion and obviously--

5347
04:45:20,712 --> 04:45:23,406
- He's been repeatedly in rhythm, right?

5348
04:45:23,406 --> 04:45:24,936
- No, he's in AF. - He's in AF now.

5349
04:45:24,936 --> 04:45:26,927
- He hasn't been in and out of AF?

5350
04:45:26,927 --> 04:45:28,582
- [Nurse] Pretty much been in the last

5351
04:45:28,582 --> 04:45:30,406
couple days but he does go in and out.

5352
04:45:30,406 --> 04:45:32,834
- He's digitalized now, so his rate is controlled.

5353
04:45:32,834 --> 04:45:34,699
Anyway I'm not,

5354
04:45:34,699 --> 04:45:37,155
I'm not big on either one of those but--

5355
04:45:37,155 --> 04:45:39,896
- We can do more and more technologically but

5356
04:45:39,896 --> 04:45:41,342
the question is for what?

5357
04:45:41,342 --> 04:45:44,439
Like if he can't be maintained off the respirator,

5358
04:45:44,439 --> 04:45:48,561
the big for what becomes sorta written in large letters.

5359
04:45:48,561 --> 04:45:51,873
- If we take him off and he doesn't fly,

5360
04:45:51,873 --> 04:45:55,147
I'm loath to put him back on. - Yeah, I agree with that.

5361
04:45:55,147 --> 04:45:57,086
She's coming in around three and I asked her

5362
04:45:57,086 --> 04:45:58,979
to give me a call, so maybe we'll keep the plan

5363
04:45:58,979 --> 04:46:01,657
as it is right now, speak to Jim and then

5364
04:46:01,657 --> 04:46:03,967
see if we can evolve something towards that.

5365
04:46:03,967 --> 04:46:05,588
- Good, okay.

5366
04:46:05,588 --> 04:46:06,838
- [Nurse] Okay?

5367
04:46:08,545 --> 04:46:11,242
- Can you close her door. - What did he say?

5368
04:46:11,242 --> 04:46:13,864
- He says he doesn't think it, it's not,

5369
04:46:13,864 --> 04:46:16,114
this is more technology for

5370
04:46:17,639 --> 04:46:19,556
unclear benefit. - Okay.

5371
04:46:20,554 --> 04:46:23,339
- [Mrs. Sperazza] What do you think?

5372
04:46:23,339 --> 04:46:24,882
- [Bill] Well I think that if that tube

5373
04:46:24,882 --> 04:46:28,607
could come out, it would be a big step forward.

5374
04:46:28,607 --> 04:46:30,959
There's still all the other problems

5375
04:46:30,959 --> 04:46:34,959
that haven't gone away since we spoke last time.

5376
04:46:36,153 --> 04:46:37,805
But

5377
04:46:37,805 --> 04:46:39,683
they've been relatively stable and

5378
04:46:39,683 --> 04:46:43,594
that gives us reason to be hopeful I think.

5379
04:46:43,594 --> 04:46:46,577
It's still an incredibly grave and difficult situation

5380
04:46:46,577 --> 04:46:49,790
but I think if he could come off of that tube,

5381
04:46:49,790 --> 04:46:51,572
it would be a big step forward

5382
04:46:51,572 --> 04:46:55,072
and clearly if he's gonna be alert at all,

5383
04:46:56,391 --> 04:46:59,255
it's gonna be hard for him with that tube in place.

5384
04:46:59,255 --> 04:47:00,910
He has to get sedated in order

5385
04:47:00,910 --> 04:47:03,140
to have it be tolerable for him.

5386
04:47:03,140 --> 04:47:05,899
So that's a difficult situation for him

5387
04:47:05,899 --> 04:47:08,625
either to be a little bit more alert but have

5388
04:47:08,625 --> 04:47:11,676
the discomfort of it or to be sedated

5389
04:47:11,676 --> 04:47:14,359
and not really be able to participate.

5390
04:47:14,359 --> 04:47:18,609
- I wouldn't want to see him go back into the sedation.

5391
04:47:18,609 --> 04:47:21,836
- No, I wouldn't either. - I really wouldn't.

5392
04:47:21,836 --> 04:47:24,297
Because he's not there at all. - Right.

5393
04:47:24,297 --> 04:47:27,359
And yet with the tube in place, without the sedation,

5394
04:47:27,359 --> 04:47:29,341
he appears to be quite uncomfortable.

5395
04:47:29,341 --> 04:47:30,174
So I think

5396
04:47:31,275 --> 04:47:33,144
if it can happen safely,

5397
04:47:33,144 --> 04:47:36,208
what we want to have happen is what we're making

5398
04:47:36,208 --> 04:47:39,438
progress toward again which is to try to get that tube

5399
04:47:39,438 --> 04:47:43,358
removed and to get him off of the breathing machine.

5400
04:47:43,358 --> 04:47:47,941
If that goes well, we'll have a lot to be thankful for.

5401
04:47:48,958 --> 04:47:52,508
We have to also plan if it does happen,

5402
04:47:52,508 --> 04:47:56,425
what if he has another breathing problem again?

5403
04:47:57,736 --> 04:48:00,385
Are we gonna subject him to the tube

5404
04:48:00,385 --> 04:48:03,135
and the machine for a third time?

5405
04:48:04,245 --> 04:48:05,939
And we'd have to ask ourselves

5406
04:48:05,939 --> 04:48:07,898
what would the purpose of that be?

5407
04:48:07,898 --> 04:48:10,438
Hopefully this isn't anything we're gonna face.

5408
04:48:10,438 --> 04:48:12,628
Hopefully he'll come off that tube

5409
04:48:12,628 --> 04:48:14,940
and we'll see some improvement.

5410
04:48:14,940 --> 04:48:17,688
But the fact that he's had so much difficulty,

5411
04:48:17,688 --> 04:48:19,843
that there's been so much trouble with

5412
04:48:19,843 --> 04:48:23,074
so many different things as we've talked about

5413
04:48:23,074 --> 04:48:25,353
makes us have to have our eyes open

5414
04:48:25,353 --> 04:48:27,686
even at the same time that we're hopeful

5415
04:48:27,686 --> 04:48:30,599
to the possibility that things aren't gonna go well

5416
04:48:30,599 --> 04:48:33,581
and I think we have to plan for that at the same time

5417
04:48:33,581 --> 04:48:36,664
that we're trying to do everything to

5418
04:48:37,681 --> 04:48:40,953
help him move in the right direction.

5419
04:48:40,953 --> 04:48:44,019
My own view would be, and hearing from you people

5420
04:48:44,019 --> 04:48:48,421
about this is gonna be crucial but my own view would be

5421
04:48:48,421 --> 04:48:51,787
that if we're able to get him off the tube successfully,

5422
04:48:51,787 --> 04:48:54,684
that gives him the maximum chance of seeing

5423
04:48:54,684 --> 04:48:58,938
whether there's any possibility for meaningful recovery.

5424
04:48:58,938 --> 04:49:01,053
That we do everything we possibly can

5425
04:49:01,053 --> 04:49:02,962
to get him off the tube, we do everything

5426
04:49:02,962 --> 04:49:04,797
once he's off the tube to try to keep him

5427
04:49:04,797 --> 04:49:07,880
off of it but that we make a decision

5428
04:49:08,973 --> 04:49:11,248
not to put the tube back in again if that's

5429
04:49:11,248 --> 04:49:13,692
something that you people are comfortable with

5430
04:49:13,692 --> 04:49:16,041
and the reason for that would be the notion

5431
04:49:16,041 --> 04:49:18,869
that putting the tube back in would be for

5432
04:49:18,869 --> 04:49:22,619
no purpose in the sense that if he deteriorates

5433
04:49:22,619 --> 04:49:25,036
to the point where he needs it again,

5434
04:49:25,036 --> 04:49:27,306
that the likelihood for any meaningful kind of

5435
04:49:27,306 --> 04:49:30,011
recovery would be so remote that we'd say

5436
04:49:30,011 --> 04:49:33,200
why are we putting him through all of this?

5437
04:49:33,200 --> 04:49:35,661
I don't know if, that's a lot to hear

5438
04:49:35,661 --> 04:49:37,403
and to think about, I don't know if that

5439
04:49:37,403 --> 04:49:39,310
makes sense to you or if you have questions

5440
04:49:39,310 --> 04:49:42,554
about it but I think that's the sense that I have.

5441
04:49:42,554 --> 04:49:45,160
I've spoken to Dr. Sands, the intern,

5442
04:49:45,160 --> 04:49:47,418
I've spoken Dr. Weiss, the attending in

5443
04:49:47,418 --> 04:49:49,533
the Medical Intensive Care Unit and I've

5444
04:49:49,533 --> 04:49:53,140
spoken to the nursing staff and to Dr. Morgan,

5445
04:49:53,140 --> 04:49:55,132
the cardiologist this morning,

5446
04:49:55,132 --> 04:49:57,706
I've spoken to all of those people

5447
04:49:57,706 --> 04:50:01,314
and they all believe that this would be

5448
04:50:01,314 --> 04:50:04,676
a reasonable way to try to maximize the chance for

5449
04:50:04,676 --> 04:50:08,532
a meaningful recovery and yet if things don't go well,

5450
04:50:08,532 --> 04:50:12,050
to minimize the chance that we're gonna be doing

5451
04:50:12,050 --> 04:50:14,040
needless things to him that are gonna be

5452
04:50:14,040 --> 04:50:16,947
difficult for him really for no purpose.

5453
04:50:16,947 --> 04:50:20,646
We're on the edges of that. - Did you ever have a case

5454
04:50:20,646 --> 04:50:22,646
where this was reversed?

5455
04:50:24,766 --> 04:50:25,599
- I...

5456
04:50:27,466 --> 04:50:30,919
I've been involved in cases where people have looked

5457
04:50:30,919 --> 04:50:35,624
desperately sick and where they fooled us and recovered.

5458
04:50:35,624 --> 04:50:37,801
But I have to tell you that that

5459
04:50:37,801 --> 04:50:40,219
is extremely rare and I don't think that

5460
04:50:40,219 --> 04:50:43,152
I've ever been involved with someone as sick

5461
04:50:43,152 --> 04:50:47,165
with as many strikes against him as Mr. Sperazza

5462
04:50:47,165 --> 04:50:50,347
has where I've seen a meaningful recovery.

5463
04:50:50,347 --> 04:50:52,383
But that doesn't mean it doesn't happen.

5464
04:50:52,383 --> 04:50:54,466
It's just extremely rare.

5465
04:50:55,322 --> 04:50:58,599
We have hope, we are doing what we can to try to see if

5466
04:50:58,599 --> 04:51:02,405
that's possible but I think it's at the level where if he

5467
04:51:02,405 --> 04:51:07,150
were to recover from this, it would be close to a miracle.

5468
04:51:07,150 --> 04:51:08,502
- Really? - Yeah.

5469
04:51:08,502 --> 04:51:10,402
- What is the extent of damage right now?

5470
04:51:10,402 --> 04:51:11,910
- Well some of that's hard to assess.

5471
04:51:11,910 --> 04:51:14,553
The most crucial thing of course is his brain

5472
04:51:14,553 --> 04:51:17,877
and how much he's able to recover in terms of

5473
04:51:17,877 --> 04:51:21,948
his mental functioning and with the medical complications

5474
04:51:21,948 --> 04:51:25,390
that he's had plus with the sedatives he's had to receive,

5475
04:51:25,390 --> 04:51:27,414
we can't tell for sure. - So you don't know.

5476
04:51:27,414 --> 04:51:28,489
- We don't know.

5477
04:51:28,489 --> 04:51:30,216
- What about the other vital organs?

5478
04:51:30,216 --> 04:51:33,624
- I could give you a list of the things that are in trouble.

5479
04:51:33,624 --> 04:51:36,033
The main things where the difficulty's been

5480
04:51:36,033 --> 04:51:38,978
have been his lungs with respiratory failure

5481
04:51:38,978 --> 04:51:42,284
which has required the machine and his heart with

5482
04:51:42,284 --> 04:51:46,798
congestive heart failure that has complicated the situation.

5483
04:51:46,798 --> 04:51:48,652
He's had irregular heart beating,

5484
04:51:48,652 --> 04:51:52,911
which has made the heart pump less effectively

5485
04:51:52,911 --> 04:51:56,944
and he's got this problem with a blocked heart valve which

5486
04:51:56,944 --> 04:51:58,980
we've been going round and round on

5487
04:51:58,980 --> 04:52:01,641
whether that may be contributing to this.

5488
04:52:01,641 --> 04:52:03,807
The best assessment we have currently is while

5489
04:52:03,807 --> 04:52:05,797
that's not good, that that's probably not making

5490
04:52:05,797 --> 04:52:09,288
a major contribution to how poorly he's doing.

5491
04:52:09,288 --> 04:52:14,218
The other big organ system difficulty is his kidneys.

5492
04:52:14,218 --> 04:52:16,507
He's been, his kidneys have been producing

5493
04:52:16,507 --> 04:52:19,394
very little urine over the last few days

5494
04:52:19,394 --> 04:52:21,394
and added to the list of

5495
04:52:22,775 --> 04:52:26,214
questionable failure related to his brain,

5496
04:52:26,214 --> 04:52:28,117
respiratory failure.

5497
04:52:28,117 --> 04:52:30,649
Heart failure, I think we have to

5498
04:52:30,649 --> 04:52:32,671
add kidney failure to the list.

5499
04:52:32,671 --> 04:52:36,441
So in that setting, the notion of some sort of

5500
04:52:36,441 --> 04:52:40,858
meaningful recovery is extremely remote but you know,

5501
04:52:42,915 --> 04:52:45,514
we don't know for sure and that's the reason to

5502
04:52:45,514 --> 04:52:48,065
continue to try to support him.

5503
04:52:48,065 --> 04:52:49,431
- So if you remove the tube,

5504
04:52:49,431 --> 04:52:52,439
that will allow you to do this surgical procedure?

5505
04:52:52,439 --> 04:52:54,774
- Well that's looking off to the future.

5506
04:52:54,774 --> 04:52:57,861
I think the first step is to see if he can manage

5507
04:52:57,861 --> 04:52:59,717
without the tube. - The removal of the tube.

5508
04:52:59,717 --> 04:53:01,832
So you're not taking it any further than that.

5509
04:53:01,832 --> 04:53:04,182
- No, we were wondering whether that,

5510
04:53:04,182 --> 04:53:05,828
what you call the surgical procedure where

5511
04:53:05,828 --> 04:53:07,903
they'd use the balloon to open up that heart valve,

5512
04:53:07,903 --> 04:53:11,017
whether that might help him to improve his heart function

5513
04:53:11,017 --> 04:53:13,520
because everything is so related to everything else

5514
04:53:13,520 --> 04:53:15,887
that if we can intervene in one place and make him

5515
04:53:15,887 --> 04:53:18,697
a little better, sometimes that can have implications.

5516
04:53:18,697 --> 04:53:21,682
But the current think is that that's probably not

5517
04:53:21,682 --> 04:53:24,175
a major contributor to how poorly he's doing.

5518
04:53:24,175 --> 04:53:27,470
- So the real question is all you want to do,

5519
04:53:27,470 --> 04:53:30,005
you want to see what removal of the tube will do

5520
04:53:30,005 --> 04:53:33,233
and the secondary question is if he can't survive

5521
04:53:33,233 --> 04:53:36,838
without that tube, should you re-insert the tube?

5522
04:53:36,838 --> 04:53:40,518
And that's a decision for the family to make, is that right?

5523
04:53:40,518 --> 04:53:41,915
- Well it's a decision that we

5524
04:53:41,915 --> 04:53:44,120
all have to participate in together.

5525
04:53:44,120 --> 04:53:46,813
In a sense you could say it's a medical decision.

5526
04:53:46,813 --> 04:53:49,590
If there's no medical hope or the hope is so

5527
04:53:49,590 --> 04:53:54,317
remote that it really is just ridiculously unlikely,

5528
04:53:54,317 --> 04:53:56,983
can we medically subject him to that?

5529
04:53:56,983 --> 04:53:58,970
On the other hand, you could say it's a decision for the

5530
04:53:58,970 --> 04:54:02,000
family because it's really making a decision to terminate

5531
04:54:02,000 --> 04:54:04,864
life-support because that's what that tube involves.

5532
04:54:04,864 --> 04:54:07,410
- It's a gray area here where both of those things

5533
04:54:07,410 --> 04:54:11,602
come into play and I think if medically we come to

5534
04:54:11,602 --> 04:54:15,096
a decision that from the point of view of your role

5535
04:54:15,096 --> 04:54:18,250
in the family looking out for his best interest,

5536
04:54:18,250 --> 04:54:21,087
you're comfortable with too, then I think we don't

5537
04:54:21,087 --> 04:54:24,608
have to sort out sort of what's on which side of it.

5538
04:54:24,608 --> 04:54:27,605
But if we don't see it exactly the same way,

5539
04:54:27,605 --> 04:54:29,590
then we can't really move forward with a plan.

5540
04:54:29,590 --> 04:54:32,033
We want a plan that everybody feels is

5541
04:54:32,033 --> 04:54:34,410
medically best for him but also looking at

5542
04:54:34,410 --> 04:54:37,820
the big picture of what he would want and what

5543
04:54:37,820 --> 04:54:40,370
you want for him that's consistent with your views.

5544
04:54:40,370 --> 04:54:42,650
- Charlie would want to live but

5545
04:54:42,650 --> 04:54:45,928
I wouldn't want to see him suffer.

5546
04:54:45,928 --> 04:54:46,761
You know?

5547
04:54:53,636 --> 04:54:57,469
- [Charlie] When would you need that decision?

5548
04:55:00,179 --> 04:55:01,666
- [Bill] It's possible that he may

5549
04:55:01,666 --> 04:55:03,684
be moving today or tomorrow towards a point

5550
04:55:03,684 --> 04:55:07,017
where we may be able to remove the tube.

5551
04:55:08,655 --> 04:55:09,488
I would

5552
04:55:11,725 --> 04:55:15,143
ideally like to have, by the time that tube can come out,

5553
04:55:15,143 --> 04:55:17,681
it would be nice if we were all at a place where we

5554
04:55:17,681 --> 04:55:21,119
were comfortable with a plan of what to do from there.

5555
04:55:21,119 --> 04:55:25,619
- If you take out the tube and you see he can make it,

5556
04:55:26,960 --> 04:55:29,594
every day is a good day that they live.

5557
04:55:29,594 --> 04:55:31,493
- [Bill] Yep, then there's no question.

5558
04:55:31,493 --> 04:55:33,951
Then I think there's no, we don't face this--

5559
04:55:33,951 --> 04:55:35,201
- That's right.

5560
04:55:38,201 --> 04:55:39,976
You know I'll always go by your

5561
04:55:39,976 --> 04:55:43,324
decision on what's good for Charlie.

5562
04:55:43,324 --> 04:55:45,969
- He's asking you for it. - I know.

5563
04:55:45,969 --> 04:55:47,302
I say medically,

5564
04:55:50,258 --> 04:55:52,436
he wouldn't want Charlie to suffer.

5565
04:55:52,436 --> 04:55:54,769
- [Charlie] No, I know that.

5566
04:56:00,061 --> 04:56:02,500
- It's so hard. - It is hard.

5567
04:56:02,500 --> 04:56:04,167
- It really is hard.

5568
04:56:08,246 --> 04:56:12,629
Don't you think that we could make more of a commitment

5569
04:56:12,629 --> 04:56:15,521
once you take the tube out?

5570
04:56:15,521 --> 04:56:17,391
- [Bill] I'm not sure I understand.

5571
04:56:17,391 --> 04:56:18,224
- Well,

5572
04:56:19,385 --> 04:56:21,789
what if you take the tube out and you

5573
04:56:21,789 --> 04:56:25,206
find that he more or less rallies around,

5574
04:56:27,191 --> 04:56:30,358
anything I say doesn't mean, you know,

5575
04:56:31,720 --> 04:56:36,387
she's given me permission to say that's it but you know,

5576
04:56:37,435 --> 04:56:41,435
you're gonna do the best for him and I know that

5577
04:56:45,001 --> 04:56:48,317
and if there isn't any hope or if he's gonna,

5578
04:56:48,317 --> 04:56:49,900
medically you know,

5579
04:56:51,943 --> 04:56:55,275
I would never want him to suffer, never.

5580
04:56:57,372 --> 04:57:01,576
- I think that if the tube comes out and he shows

5581
04:57:01,576 --> 04:57:05,620
an ability to rally with the best that we can do for him,

5582
04:57:05,620 --> 04:57:08,779
then we're all comfortable that we'd do everything

5583
04:57:08,779 --> 04:57:12,712
to support that and I think if I hear you correctly,

5584
04:57:12,712 --> 04:57:17,116
that we're also at a point where if we are able to take

5585
04:57:17,116 --> 04:57:21,772
the tube out and yet things take a turn for the worse--

5586
04:57:21,772 --> 04:57:26,065
- I don't want the tube back. - It doesn't do him any good.

5587
04:57:26,065 --> 04:57:29,898
- But you understand-- - I understand, Charlie.

5588
04:57:31,416 --> 04:57:33,278
The tube bothers him.

5589
04:57:33,278 --> 04:57:35,577
If he has the tube in him,

5590
04:57:35,577 --> 04:57:37,727
then he's gonna be sedated all over again

5591
04:57:37,727 --> 04:57:39,680
because he can't tolerate the tube.

5592
04:57:39,680 --> 04:57:41,677
- [Bill] If he has the tube in him, it's not living.

5593
04:57:41,677 --> 04:57:45,007
- [Mrs. Sperazza] It's not living, he's existing.

5594
04:57:45,007 --> 04:57:46,913
- We'd also face the issue then

5595
04:57:46,913 --> 04:57:48,701
of sort of where do we go from there?

5596
04:57:48,701 --> 04:57:50,436
Because then would we try again to

5597
04:57:50,436 --> 04:57:52,472
remove it and put him through that again?

5598
04:57:52,472 --> 04:57:55,464
Would we try to keep him on it on a long term basis which

5599
04:57:55,464 --> 04:57:58,438
would be miserable for him and as you say from a certain

5600
04:57:58,438 --> 04:58:01,380
point of view, right, it's not the kind of life that--

5601
04:58:01,380 --> 04:58:04,569
- No, and he wouldn't want it that way either.

5602
04:58:04,569 --> 04:58:07,986
Charlie would never want to be like that.

5603
04:58:09,335 --> 04:58:13,000
I'm not thinking of me because me,

5604
04:58:13,000 --> 04:58:14,750
for me it's lonesome.

5605
04:58:19,560 --> 04:58:22,322
He's suffered terribly the last two months.

5606
04:58:22,322 --> 04:58:24,025
Maybe, would it have made

5607
04:58:24,025 --> 04:58:26,135
a difference if he'd come in sooner?

5608
04:58:26,135 --> 04:58:28,042
- [Bill] I don't think that it would have.

5609
04:58:28,042 --> 04:58:29,625
No, I really don't.

5610
04:58:36,595 --> 04:58:39,841
- He kept saying the last month,

5611
04:58:39,841 --> 04:58:43,466
Charlie was a bit of a crybaby, you know that.

5612
04:58:43,466 --> 04:58:47,466
He gets scared of everything, every little pain.

5613
04:58:48,775 --> 04:58:53,775
He's like the little boy that cried wolf once too often.

5614
04:58:54,096 --> 04:58:57,295
He kept saying "I'm gonna die.

5615
04:58:57,295 --> 04:58:59,795
"I feel like I'm going crazy."

5616
04:59:01,725 --> 04:59:04,746
When we came in here that Sunday morning

5617
04:59:04,746 --> 04:59:08,829
at four o'clock in the morning, he was screaming.

5618
04:59:13,662 --> 04:59:14,745
I don't know.

5619
04:59:24,292 --> 04:59:26,875
I want whatever's best for him.

5620
04:59:28,274 --> 04:59:29,860
- [Bill] I think we all want that and I think

5621
04:59:29,860 --> 04:59:31,866
we've done a little bit of work toward defining that

5622
04:59:31,866 --> 04:59:36,033
in a way that we're all comfortable with together.

5623
04:59:38,720 --> 04:59:41,175
I'm gonna be around for the rest of the day

5624
04:59:41,175 --> 04:59:44,309
and if you talk some more and want to be in touch again,

5625
04:59:44,309 --> 04:59:46,392
they know how to call me.

5626
04:59:47,493 --> 04:59:49,235
- [Charlie] The way you feel right now,

5627
04:59:49,235 --> 04:59:51,899
the tube has to be removed, we understand that right?

5628
04:59:51,899 --> 04:59:55,230
- They're gonna try to do that within the next day anyway.

5629
04:59:55,230 --> 04:59:57,057
- [Bill] If things go well in that regard,

5630
04:59:57,057 --> 04:59:59,307
we'll be able to remove it.

5631
05:00:00,934 --> 05:00:05,205
- In the event you can't remove it, then we'll have to--

5632
05:00:05,205 --> 05:00:07,538
- We'll face a different set of issues then.

5633
05:00:07,538 --> 05:00:09,651
It's much more difficult, if we can see that

5634
05:00:09,651 --> 05:00:12,505
kind of improvement, there's a lot more reason

5635
05:00:12,505 --> 05:00:15,377
to be hopeful if he can manage without it.

5636
05:00:15,377 --> 05:00:17,365
That's really our hope for the next couple

5637
05:00:17,365 --> 05:00:19,238
of days is to move in that direction.

5638
05:00:19,238 --> 05:00:22,086
I think if a couple days from now

5639
05:00:22,086 --> 05:00:23,946
we're not able to do that, we'll have

5640
05:00:23,946 --> 05:00:26,126
to talk some more and take it from there.

5641
05:00:26,126 --> 05:00:29,126
But I think it's so complicated that

5642
05:00:29,972 --> 05:00:32,821
it's hard enough with the one step at a time approach.

5643
05:00:32,821 --> 05:00:34,981
- But you're moving towards the whole issue of

5644
05:00:34,981 --> 05:00:38,766
if there's any chance whatsoever, the tube has to be removed

5645
05:00:38,766 --> 05:00:43,258
and that hope is as slight as it may be and you can't even

5646
05:00:43,258 --> 05:00:46,299
move beyond what will happen once they remove the tube.

5647
05:00:46,299 --> 05:00:49,244
You just feel and I would agree with you by the way,

5648
05:00:49,244 --> 05:00:51,620
I understand what you're saying that if there's

5649
05:00:51,620 --> 05:00:54,236
to be any chance, the tube has to be removed.

5650
05:00:54,236 --> 05:00:55,486
- Right. - Okay.

5651
05:01:00,098 --> 05:01:01,181
- Dr. Taylor,

5652
05:01:02,620 --> 05:01:03,870
what can I say?

5653
05:01:11,821 --> 05:01:13,854
I wasn't gonna keep my appointment

5654
05:01:13,854 --> 05:01:16,161
Friday but I think I better come in.

5655
05:01:16,161 --> 05:01:19,828
- Yeah, I think it would be good to see you.

5656
05:01:20,841 --> 05:01:24,830
- He's my friend, he's not only a doctor, he's my friend.

5657
05:01:24,830 --> 05:01:26,146
- [Charlie] It's good that you have confidence.

5658
05:01:26,146 --> 05:01:28,479
That support. - I do, utmost.

5659
05:01:29,544 --> 05:01:34,087
Well thank you Dr. Taylor and I'm sorry I took so much time.

5660
05:01:34,087 --> 05:01:38,102
- I'm here for you. - Thank you for explaining.

5661
05:01:38,102 --> 05:01:39,313
- [Bill] I'll call you tomorrow

5662
05:01:39,313 --> 05:01:40,718
if I don't see you later today.

5663
05:01:40,718 --> 05:01:43,885
All right, thank you. - Just stay here.

5664
05:01:47,118 --> 05:01:49,106
While you're in the room with him.

5665
05:01:49,106 --> 05:01:52,773
- [Mrs. Sperazza] Why don't you ask him now?

5666
05:02:07,355 --> 05:02:11,184
- I think he's got anoxic brain damage personally

5667
05:02:11,184 --> 05:02:14,420
and I think he's had everything there.

5668
05:02:14,420 --> 05:02:16,587
But I mean there's no way to really assess that.

5669
05:02:16,587 --> 05:02:19,318
The neurology people wouldn't help us.

5670
05:02:19,318 --> 05:02:21,329
We did want to get a head CT to sort of rule

5671
05:02:21,329 --> 05:02:23,587
on any structural lesion but I think it's unlikely,

5672
05:02:23,587 --> 05:02:26,986
the chances that that's gonna show anything are

5673
05:02:26,986 --> 05:02:28,643
I would think one in 10,000.

5674
05:02:28,643 --> 05:02:30,756
I think it's mostly the guy with aortic stenosis

5675
05:02:30,756 --> 05:02:32,625
who dropped his blood pressure, had a sustained

5676
05:02:32,625 --> 05:02:35,629
episode when his blood pressure was running around 70,

5677
05:02:35,629 --> 05:02:38,510
had an episode of hypotension when he went on the ventilator

5678
05:02:38,510 --> 05:02:43,260
the first time and has a bad ticker and that's all taped.

5679
05:02:45,534 --> 05:02:48,586
So I mean, but you could also implicated the Fentanyl,

5680
05:02:48,586 --> 05:02:51,010
the Ativan, et cetera, et cetera, et cetera.

5681
05:02:51,010 --> 05:02:54,330
So I mean you never know but I mean

5682
05:02:54,330 --> 05:02:56,777
you don't breathe up here, you breathe down here.

5683
05:02:56,777 --> 05:02:59,538
So this can be all gone and you breathe fine,

5684
05:02:59,538 --> 05:03:01,568
so that's the experience up here.

5685
05:03:01,568 --> 05:03:03,038
- But he isn't. - But he isn't.

5686
05:03:03,038 --> 05:03:04,402
- He could've had an event.

5687
05:03:04,402 --> 05:03:06,565
- He could've had an event there but I doubt it.

5688
05:03:06,565 --> 05:03:09,583
I think the reason he's not breathing relates more

5689
05:03:09,583 --> 05:03:12,410
to the fact that his lungs and his heart are so terrible

5690
05:03:12,410 --> 05:03:13,942
and then I think we're gonna have to address

5691
05:03:13,942 --> 05:03:17,045
the issue with his wife, what do we do at that point?

5692
05:03:17,045 --> 05:03:18,319
- Yeah.

5693
05:03:18,319 --> 05:03:19,969
But you haven't give up on the idea that

5694
05:03:19,969 --> 05:03:22,733
he might be able to be weaned? - No, no, not yet.

5695
05:03:22,733 --> 05:03:25,387
But I think that I probably would still get him,

5696
05:03:25,387 --> 05:03:28,387
even if we, I would get him optimal.

5697
05:03:30,150 --> 05:03:32,070
The fact that he didn't wean with INB yesterday

5698
05:03:32,070 --> 05:03:33,896
doesn't mean that much either because there's increased

5699
05:03:33,896 --> 05:03:36,895
resistance to the tubing and the circuitry and so forth.

5700
05:03:36,895 --> 05:03:39,164
When we took him off the last time,

5701
05:03:39,164 --> 05:03:42,446
the sensorimotor force was only 50 to 100.

5702
05:03:42,446 --> 05:03:44,104
Now that may have been one of the reasons

5703
05:03:44,104 --> 05:03:46,018
that he failed with the weaning attempt but

5704
05:03:46,018 --> 05:03:47,842
on the other hand it's also true that he was

5705
05:03:47,842 --> 05:03:50,165
actually doing pretty well for a couple days there.

5706
05:03:50,165 --> 05:03:51,665
- Yeah, but now we're seeing

5707
05:03:51,665 --> 05:03:54,026
no spontaneous respiratory effort.

5708
05:03:54,026 --> 05:03:57,473
That puts it in a little different category maybe.

5709
05:03:57,473 --> 05:03:59,511
- Maybe, yeah. - All righty.

5710
05:03:59,511 --> 05:04:00,545
- Anyway,

5711
05:04:00,545 --> 05:04:04,487
we got a little fine-tuning to do first before we--

5712
05:04:04,487 --> 05:04:06,102
- Before you can see. - Yep.

5713
05:04:06,102 --> 05:04:08,435
- All righty, thanks. - Okay.

5714
05:04:34,376 --> 05:04:35,745
So what's the long range plan,

5715
05:04:35,745 --> 05:04:38,147
what do you see as the long range plan?

5716
05:04:38,147 --> 05:04:41,375
- We're gonna diverse him back down to his weight of 75,

5717
05:04:41,375 --> 05:04:43,588
we're gonna pull out the tubes and give

5718
05:04:43,588 --> 05:04:47,088
it a try and it's probably not gonna work.

5719
05:04:48,565 --> 05:04:50,709
- [Scott] I agree, no that's exactly--

5720
05:04:50,709 --> 05:04:52,278
- [Nurse] We're not gonna re-intubate him?

5721
05:04:52,278 --> 05:04:53,474
- Yeah. - We will not re-intubate him.

5722
05:04:53,474 --> 05:04:57,199
- I think that's the long range plan.

5723
05:04:57,199 --> 05:04:58,532
I mean you know,

5724
05:04:59,769 --> 05:05:02,288
it makes me angry, we worked so hard on this guy

5725
05:05:02,288 --> 05:05:06,564
and it looks so, so grim, I mean it's just

5726
05:05:06,564 --> 05:05:09,716
really discouraging but I don't see any,

5727
05:05:09,716 --> 05:05:11,915
we just gotta get him to the point where we optimize

5728
05:05:11,915 --> 05:05:16,106
everything and then see if we can get him to fly here.

5729
05:05:16,106 --> 05:05:17,596
We've got a few more days.

5730
05:05:17,596 --> 05:05:19,926
The big thing is if he doesn't,

5731
05:05:19,926 --> 05:05:23,356
if you can't keep him negative kilo,

5732
05:05:23,356 --> 05:05:27,001
don't hesitate to start to dobutamine and dopamine back up.

5733
05:05:27,001 --> 05:05:29,747
Because he's on a negative inotrope now he wasn't on before.

5734
05:05:29,747 --> 05:05:31,239
- His pressures have been real good.

5735
05:05:31,239 --> 05:05:32,769
Dopamine alone plus diuretics

5736
05:05:32,769 --> 05:05:34,765
will probably stand him in good stead.

5737
05:05:34,765 --> 05:05:36,681
The last couple of times he's gotten diuretics--

5738
05:05:36,681 --> 05:05:38,342
- Go back and check on him after rounds,

5739
05:05:38,342 --> 05:05:40,412
check on his urine output-- - What is it makes him pee?

5740
05:05:40,412 --> 05:05:43,577
200 and 200? - Yeah, 200 or 250.

5741
05:05:43,577 --> 05:05:45,994
- 250 of diarol. - 250 diarol.

5742
05:05:47,075 --> 05:05:49,767
- [Nurse] So pretty much you just have to keep an eye

5743
05:05:49,767 --> 05:05:54,282
on his urine output and when it drops below like 160.

5744
05:05:54,282 --> 05:05:55,850
He was on a renal organotrope,

5745
05:05:55,850 --> 05:05:59,430
we'd like to reconstruct that again.

5746
05:05:59,430 --> 05:06:01,644
- [Scott] Keep an eye on his potassium, the other thing.

5747
05:06:01,644 --> 05:06:03,519
- [Nurse] And the other thing on the protein is

5748
05:06:03,519 --> 05:06:06,781
just the nap but he's got an elevated pattern in the nap.

5749
05:06:06,781 --> 05:06:08,936
So just keep an eye on that. - He may have too much,

5750
05:06:08,936 --> 05:06:13,531
be a little bit too much sort of where the levels are.

5751
05:06:13,531 --> 05:06:15,531
- Okay. - He's been fine.

5752
05:06:50,128 --> 05:06:52,719
- [Doctor] The goal is to wean him down,

5753
05:06:52,719 --> 05:06:55,619
maybe even drop his breaths one more tonight.

5754
05:06:55,619 --> 05:06:57,277
See how he does. - Tonight?

5755
05:06:57,277 --> 05:07:00,025
- Maybe, I kind of discouraged that.

5756
05:07:00,025 --> 05:07:02,486
And try and get him off tomorrow.

5757
05:07:02,486 --> 05:07:05,319
- He should rest overnight. - Yeah.

5758
05:07:07,402 --> 05:07:10,028
I talked to the intern, he says he wants to go

5759
05:07:10,028 --> 05:07:12,591
and talk to the wife and make sure that she

5760
05:07:12,591 --> 05:07:15,149
is really adamant about not re-intubating him.

5761
05:07:15,149 --> 05:07:18,839
- He's not to be re-intubated? - That's the plan as of now.

5762
05:07:18,839 --> 05:07:20,614
They feel that we've done everything

5763
05:07:20,614 --> 05:07:23,448
medically that can be done with this patient.

5764
05:07:23,448 --> 05:07:27,531
We dried him out, we buffed him up nutritionally.

5765
05:07:28,803 --> 05:07:32,082
He doesn't have an infection right now.

5766
05:07:32,082 --> 05:07:34,470
We've done everything we can and the aortic

5767
05:07:34,470 --> 05:07:37,983
stenosis may be so severe, we won't be able to--

5768
05:07:37,983 --> 05:07:39,853
- [Nurse] You're not gonna take him for the valvuloplasty?

5769
05:07:39,853 --> 05:07:41,388
- No. - Why is that?

5770
05:07:41,388 --> 05:07:46,033
- I don't believe that he's a good risk at all right now.

5771
05:07:46,033 --> 05:07:48,291
- Is he DNR? - Yeah.

5772
05:07:48,291 --> 05:07:49,208
No pressers

5773
05:07:50,616 --> 05:07:53,023
and as it stands now, we will not re-intubate.

5774
05:07:53,023 --> 05:07:55,881
However he's waking up a little bit more

5775
05:07:55,881 --> 05:08:00,048
right now and the wife seems really very happy and

5776
05:08:02,391 --> 05:08:04,259
I'm just afraid that she'll say

5777
05:08:04,259 --> 05:08:07,676
"Well, I do want to re-intubate him now."

5778
05:08:08,882 --> 05:08:10,746
So whoever's gonna talk to her today,

5779
05:08:10,746 --> 05:08:14,236
Paul, he's gonna talk to her tonight and really

5780
05:08:14,236 --> 05:08:16,830
try to explain that we have done everything we could

5781
05:08:16,830 --> 05:08:19,648
and he's a 73 year old man with a very severe disease

5782
05:08:19,648 --> 05:08:22,799
and does she really want him to live on a ventilator?

5783
05:08:22,799 --> 05:08:24,297
Which I think has to be said too.

5784
05:08:24,297 --> 05:08:27,223
I think she has to be told in very plain language

5785
05:08:27,223 --> 05:08:28,962
what's going on because I'm afraid that

5786
05:08:28,962 --> 05:08:32,870
she's gonna see him a little bit more alert,

5787
05:08:32,870 --> 05:08:36,016
responding to her and will say "Oh, I do want him to live.

5788
05:08:36,016 --> 05:08:39,433
"I do want you to do everything you can."

5789
05:08:40,474 --> 05:08:42,256
That just, you know,

5790
05:08:42,256 --> 05:08:44,256
came up rather recently.

5791
05:08:46,068 --> 05:08:47,791
- [Nurse] Anne-Louise, you have a call on line five.

5792
05:08:47,791 --> 05:08:49,286
- [Doctor] She might look at this and say gee,

5793
05:08:49,286 --> 05:08:51,156
I want everything done again. - Uh-huh.

5794
05:08:51,156 --> 05:08:55,736
- [Nurse] So that, he went from 10 to 12 to 16.

5795
05:08:55,736 --> 05:08:57,063
- [Doctor] Do you feel like we

5796
05:08:57,063 --> 05:08:58,930
can do anything more for him right now?

5797
05:08:58,930 --> 05:09:01,868
- [Bill] No, I think the key is to see how he does and to--

5798
05:09:01,868 --> 05:09:04,678
- Extubate him, yeah. - Yeah.

5799
05:09:04,678 --> 05:09:06,972
- [Doctor] Because that was definitely

5800
05:09:06,972 --> 05:09:09,389
what I got from rounds today.

5801
05:09:10,328 --> 05:09:11,732
- I can't imagine that there's much we

5802
05:09:11,732 --> 05:09:14,101
have to offer him by getting him weaned

5803
05:09:14,101 --> 05:09:16,345
and then having him back on the ventilator.

5804
05:09:16,345 --> 05:09:19,526
The question is can he fly? - He has normal looking urine.

5805
05:09:19,526 --> 05:09:22,013
So is his blood sugar. - Well he's buffed.

5806
05:09:22,013 --> 05:09:23,800
I don't think there's any question that he's dry,

5807
05:09:23,800 --> 05:09:25,873
he's almost a little bit too dry.

5808
05:09:25,873 --> 05:09:27,736
His blood pressure's been down today.

5809
05:09:27,736 --> 05:09:29,161
- How down?

5810
05:09:29,161 --> 05:09:32,004
- It's been down as low as 104

5811
05:09:32,004 --> 05:09:35,029
and it only goes up to 140 whereas

5812
05:09:35,029 --> 05:09:38,446
two days ago it was going up to 200, 180.

5813
05:09:39,413 --> 05:09:43,530
And his sodium's up a little bit too, 152.

5814
05:09:43,530 --> 05:09:45,069
- Well this may be as good as he

5815
05:09:45,069 --> 05:09:48,319
can be to see how he does off the tube.

5816
05:09:51,739 --> 05:09:54,770
He's having some spontaneous respirations up to about 10?

5817
05:09:54,770 --> 05:09:58,596
- Yeah, pretty poor quality but there's some.

5818
05:09:58,596 --> 05:10:00,962
Obviously they're oxygenating him well enough.

5819
05:10:00,962 --> 05:10:02,204
His gases have been good,

5820
05:10:02,204 --> 05:10:03,690
I don't know if you've seen the blue chart.

5821
05:10:03,690 --> 05:10:06,259
His gas is retaining a little bit more CO2 but

5822
05:10:06,259 --> 05:10:11,259
besides that the oxygenation's okay, the O2's at about 92%.

5823
05:10:12,303 --> 05:10:14,714
Can't get much better than that.

5824
05:10:14,714 --> 05:10:17,194
What's his baseline gas?

5825
05:10:17,194 --> 05:10:19,809
One of the nurses just asked me, I wasn't sure.

5826
05:10:19,809 --> 05:10:23,134
- [Bill] I'd have to check, I think it's around 50-50.

5827
05:10:23,134 --> 05:10:25,717
- What you'd expect then, okay.

5828
05:10:50,588 --> 05:10:51,918
- In here? - Yeah.

5829
05:10:51,918 --> 05:10:53,592
They may throw us out of the room.

5830
05:10:53,592 --> 05:10:55,788
- [Mrs. Sperazza] What about the brain scan?

5831
05:10:55,788 --> 05:10:59,020
- [Bill] Preliminary result on that scan is that it's okay.

5832
05:10:59,020 --> 05:11:00,489
The couldn't get as good a study as they'd

5833
05:11:00,489 --> 05:11:04,063
like to get because he was moving a little bit.

5834
05:11:04,063 --> 05:11:07,831
But with everything they could see, it looked fine.

5835
05:11:07,831 --> 05:11:10,038
As near as we could tell from that,

5836
05:11:10,038 --> 05:11:13,577
no problems apparent on that. - Thank God for that.

5837
05:11:13,577 --> 05:11:18,156
But the nurse said they're not sedating him as much

5838
05:11:18,156 --> 05:11:21,690
because are you thinking of doing the,

5839
05:11:21,690 --> 05:11:23,309
getting him off the respirator?

5840
05:11:23,309 --> 05:11:25,725
- That's the hope, we're hoping if things continue

5841
05:11:25,725 --> 05:11:28,592
to go the way they have been today that maybe by

5842
05:11:28,592 --> 05:11:32,842
tomorrow, he'll be able to come off the respirator.

5843
05:11:33,813 --> 05:11:36,274
- You think he'll be able to breathe on his own?

5844
05:11:36,274 --> 05:11:37,797
- We're not gonna take him off of it

5845
05:11:37,797 --> 05:11:39,545
unless there's a good sign that he can.

5846
05:11:39,545 --> 05:11:41,449
What'll happen after that, we don't know.

5847
05:11:41,449 --> 05:11:44,345
But right now things seem to be in the optimal

5848
05:11:44,345 --> 05:11:46,974
situation to maximize the chance that

5849
05:11:46,974 --> 05:11:50,325
he will be able to manage off of it

5850
05:11:50,325 --> 05:11:51,910
and that's clearly the best time

5851
05:11:51,910 --> 05:11:54,555
to work toward getting him off.

5852
05:11:54,555 --> 05:11:57,757
- You mean this doesn't mean that he's coming off?

5853
05:11:57,757 --> 05:12:00,049
- No, it means he's moving in that direction.

5854
05:12:00,049 --> 05:12:02,965
If he has continued improvement the way he has today

5855
05:12:02,965 --> 05:12:05,385
that he should be able to have the tube

5856
05:12:05,385 --> 05:12:07,792
come out and he off the respirator tomorrow.

5857
05:12:07,792 --> 05:12:11,023
But it's still critical enough that it's still

5858
05:12:11,023 --> 05:12:15,881
one of these one step at a time kinda situations.

5859
05:12:15,881 --> 05:12:18,372
- What does it actually do?

5860
05:12:18,372 --> 05:12:20,907
I mean if he comes off of it...

5861
05:12:20,907 --> 05:12:23,274
- The respirator is breathing for him.

5862
05:12:23,274 --> 05:12:26,524
It's doing the breathing and right now,

5863
05:12:27,371 --> 05:12:29,536
he's taking some breaths but

5864
05:12:29,536 --> 05:12:32,489
not enough to maintain enough oxygen.

5865
05:12:32,489 --> 05:12:33,811
- Oh, I see.

5866
05:12:33,811 --> 05:12:35,792
- But yesterday he was taking

5867
05:12:35,792 --> 05:12:39,073
virtually no breaths on his own.

5868
05:12:39,073 --> 05:12:41,523
So if he can take more and more as

5869
05:12:41,523 --> 05:12:43,763
we turn the respirator down and down,

5870
05:12:43,763 --> 05:12:46,775
if he takes more and more so that he can maintain

5871
05:12:46,775 --> 05:12:49,974
an adequate amount of oxygen in his blood, then we can

5872
05:12:49,974 --> 05:12:53,113
turn off the machine but we have to do one step at a time.

5873
05:12:53,113 --> 05:12:56,161
We turn the machine down and down and down and watch

5874
05:12:56,161 --> 05:12:59,137
and see if he can as it's being turned down respond

5875
05:12:59,137 --> 05:13:01,907
by breathing a little bit more and a little bit more.

5876
05:13:01,907 --> 05:13:04,793
He has to be able to breathe enough himself

5877
05:13:04,793 --> 05:13:07,261
to supply himself with enough oxygen.

5878
05:13:07,261 --> 05:13:10,170
- You know what puzzles me, Dr. Taylor?

5879
05:13:10,170 --> 05:13:14,837
- He was in here three weeks before that or around that.

5880
05:13:16,034 --> 05:13:18,989
Nothing of this could be detected.

5881
05:13:18,989 --> 05:13:21,720
- Well what was detected is what was known about

5882
05:13:21,720 --> 05:13:25,455
for years which is that he had very serious lung disease.

5883
05:13:25,455 --> 05:13:28,641
- Yeah but I mean I'm talking about the heart.

5884
05:13:28,641 --> 05:13:31,332
- No his heart actually, it seems that what's

5885
05:13:31,332 --> 05:13:34,400
happened is a combination of all these different things

5886
05:13:34,400 --> 05:13:38,030
that all together have pushed him to the side of

5887
05:13:38,030 --> 05:13:40,433
this critical illness that he's got.

5888
05:13:40,433 --> 05:13:43,463
The largest contribution is probably his lungs.

5889
05:13:43,463 --> 05:13:45,199
Another contribution is his heart,

5890
05:13:45,199 --> 05:13:47,305
another contribution is his kidneys.

5891
05:13:47,305 --> 05:13:49,581
All these different things that are in trouble

5892
05:13:49,581 --> 05:13:52,059
are all contributing to how poorly he's doing.

5893
05:13:52,059 --> 05:13:55,308
But his heart, you know in July just a few months ago,

5894
05:13:55,308 --> 05:13:58,539
he had the most sophisticated heart evaluation we know

5895
05:13:58,539 --> 05:14:01,948
how to do and at that time his heart did not look too bad.

5896
05:14:01,948 --> 05:14:03,842
I mean there were problems, we knew about them.

5897
05:14:03,842 --> 05:14:06,788
We needed to assess how bad were they?

5898
05:14:06,788 --> 05:14:08,466
But they weren't-- - And the kidneys.

5899
05:14:08,466 --> 05:14:10,034
He never had kidney trouble.

5900
05:14:10,034 --> 05:14:11,408
- That's really a complication

5901
05:14:11,408 --> 05:14:13,443
of everything else getting into trouble.

5902
05:14:13,443 --> 05:14:15,199
When the blood pressure goes down,

5903
05:14:15,199 --> 05:14:17,420
when the heart isn't pumping effectively, when the--

5904
05:14:17,420 --> 05:14:20,001
- Oh you mean these things cause this?

5905
05:14:20,001 --> 05:14:22,168
- Yeah. - Oh, I understand.

5906
05:14:23,092 --> 05:14:26,829
It just puzzled me because I said if he had these, he's

5907
05:14:26,829 --> 05:14:30,203
always, you know how he is about coming for his check-ups.

5908
05:14:30,203 --> 05:14:32,071
- Yeah, I know.

5909
05:14:32,071 --> 05:14:35,738
- I know a couple times he had back trouble.

5910
05:14:36,704 --> 05:14:39,320
- Yeah, that was for the urinary tract infection.

5911
05:14:39,320 --> 05:14:41,180
- Nothing to do with his kidneys?

5912
05:14:41,180 --> 05:14:42,256
- No. - I see.

5913
05:14:42,256 --> 05:14:44,547
- Well I say no, probably that infection

5914
05:14:44,547 --> 05:14:46,717
was just in his bladder and certainly

5915
05:14:46,717 --> 05:14:48,583
he didn't have any kidney damage from that.

5916
05:14:48,583 --> 05:14:50,908
So that seems to be totally unrelated

5917
05:14:50,908 --> 05:14:55,678
to the kidneys not working that we've seen recently.

5918
05:14:55,678 --> 05:14:58,428
- If he comes off the respirator,

5919
05:14:59,918 --> 05:15:02,668
is it something that could recur?

5920
05:15:03,709 --> 05:15:06,363
- Could he need the respirator again in terms of--

5921
05:15:06,363 --> 05:15:07,734
- In the future?

5922
05:15:07,734 --> 05:15:10,554
- Well we don't know, that's a real important question

5923
05:15:10,554 --> 05:15:12,420
and that's what we talked about a couple days ago

5924
05:15:12,420 --> 05:15:14,532
when we talked about if he comes off of it,

5925
05:15:14,532 --> 05:15:17,430
should we subject him to it again if he needs it?

5926
05:15:17,430 --> 05:15:20,263
He could be in the situation where

5927
05:15:21,859 --> 05:15:26,859
his breathing on his own is inadequate to support his life

5928
05:15:27,134 --> 05:15:30,574
and that's the issue that we have to be sure that we're

5929
05:15:30,574 --> 05:15:33,882
all comfortable with or as comfortable as you can be

5930
05:15:33,882 --> 05:15:37,685
in terms of a decision because the decision that

5931
05:15:37,685 --> 05:15:40,893
we talked about a couple days ago was that when he

5932
05:15:40,893 --> 05:15:43,870
comes off of that respirator as we hope that he will,

5933
05:15:43,870 --> 05:15:46,613
that we'll do everything to maximize the chance

5934
05:15:46,613 --> 05:15:50,190
that he can stay off it it and what we had come to together

5935
05:15:50,190 --> 05:15:55,059
before was that if he then takes a turn for the worse,

5936
05:15:55,059 --> 05:15:56,883
that we're not gonna subject him to the

5937
05:15:56,883 --> 05:15:59,425
tube and the respirator again. - I don't wanna do that.

5938
05:15:59,425 --> 05:16:01,584
- Well I think it's the right decision from

5939
05:16:01,584 --> 05:16:04,120
a medical point of view because I can't imagine

5940
05:16:04,120 --> 05:16:06,703
a situation if he did take that sort of a turn for

5941
05:16:06,703 --> 05:16:09,776
the worse from which he could have some sort of a recovery.

5942
05:16:09,776 --> 05:16:13,776
- No, Charlie wouldn't want that kind of a life.

5943
05:16:15,953 --> 05:16:18,018
- Well it's terrible to have to be facing

5944
05:16:18,018 --> 05:16:22,140
that issue at the same time that we have the hope

5945
05:16:22,140 --> 05:16:25,202
that comes from seeing him doing a little better.

5946
05:16:25,202 --> 05:16:27,851
He's taken one step forward.

5947
05:16:27,851 --> 05:16:30,456
There are many, many more steps to go in order

5948
05:16:30,456 --> 05:16:33,983
for him to have any sort of recovery from this but

5949
05:16:33,983 --> 05:16:36,094
it's a wonderful thing-- - But it could be?

5950
05:16:36,094 --> 05:16:38,111
- We don't know, that's right.

5951
05:16:38,111 --> 05:16:40,397
And before we were looking at even if he had

5952
05:16:40,397 --> 05:16:43,923
a day without further problems, that was a plus.

5953
05:16:43,923 --> 05:16:47,662
Now he's had a day where he's actually made progress.

5954
05:16:47,662 --> 05:16:52,162
Although the hope is as thin as a thread, there's hope

5955
05:16:54,671 --> 05:16:57,097
and we're doing everything that can be done to try

5956
05:16:57,097 --> 05:17:00,761
to maximize the chance for some sort of a recovery

5957
05:17:00,761 --> 05:17:04,320
and as you suggested with the question that you asked,

5958
05:17:04,320 --> 05:17:06,400
it's gonna be a critical time,

5959
05:17:06,400 --> 05:17:08,576
if we can get him off the machine,

5960
05:17:08,576 --> 05:17:11,037
it's a critical time to see if he can

5961
05:17:11,037 --> 05:17:13,918
maintain some sort of improvement because if he

5962
05:17:13,918 --> 05:17:16,521
takes a turn for the worse at that point,

5963
05:17:16,521 --> 05:17:20,593
there probably will be nothing that we can do.

5964
05:17:20,593 --> 05:17:21,426
- Well,

5965
05:17:22,502 --> 05:17:24,335
I can understand that.

5966
05:17:34,793 --> 05:17:38,293
I just don't know how these things happen.

5967
05:17:40,543 --> 05:17:44,361
He's like a boy that cried wolf once too often.

5968
05:17:44,361 --> 05:17:46,861
He was not a hypochondriac but

5969
05:17:48,235 --> 05:17:53,152
he always worried about little things, you know how he was.

5970
05:17:55,033 --> 05:17:55,866
But

5971
05:17:57,618 --> 05:18:00,974
I never saw him like this, never

5972
05:18:00,974 --> 05:18:03,832
and Charlie's been in and out of hospitals.

5973
05:18:03,832 --> 05:18:06,499
Never have I seen him like this.

5974
05:18:07,333 --> 05:18:09,414
- [Bill] This is the worst it's been, I'm afraid.

5975
05:18:09,414 --> 05:18:10,247
- Yeah.

5976
05:18:11,197 --> 05:18:14,191
What does Dr. Morgan think, the same as you?

5977
05:18:14,191 --> 05:18:15,759
- [Bill] Yeah well he's been very helpful

5978
05:18:15,759 --> 05:18:18,269
in terms of making suggestions about adjusting things

5979
05:18:18,269 --> 05:18:21,936
from the point of view of helping his heart.

5980
05:18:22,945 --> 05:18:27,528
- Well, thank you very much for answering my questions.

5981
05:18:29,294 --> 05:18:31,152
- [Bill] I'm gonna see you in the office tomorrow.

5982
05:18:31,152 --> 05:18:33,384
- Yeah, I canceled

5983
05:18:33,384 --> 05:18:35,618
Charlie's appointment and the

5984
05:18:35,618 --> 05:18:38,400
first time I laughed in a long time.

5985
05:18:38,400 --> 05:18:41,400
I don't know who the girl I got was.

5986
05:18:43,738 --> 05:18:47,480
But I said to her you know, I was gonna cancel.

5987
05:18:47,480 --> 05:18:50,198
He's in Intensive Care in the hospital there.

5988
05:18:50,198 --> 05:18:54,972
She says does that mean he wants to cancel his appointment?

5989
05:18:54,972 --> 05:18:57,043
Well that did me in, you know?

5990
05:18:57,043 --> 05:18:58,993
- I said "Yeah, I think it does."

5991
05:18:58,993 --> 05:19:00,733
- There's somebody new down in the desk there.

5992
05:19:00,733 --> 05:19:01,983
- Must've been.

5993
05:19:03,603 --> 05:19:05,258
I didn't think you'd roll him up from

5994
05:19:05,258 --> 05:19:07,348
here down there to give him an appointment.

5995
05:19:07,348 --> 05:19:09,292
- I roll myself up here to see him instead.

5996
05:19:09,292 --> 05:19:10,125
- Right.

5997
05:19:10,992 --> 05:19:14,492
Thank you, thank you very much Dr. Taylor.

5998
05:19:18,374 --> 05:19:19,903
- You need to go look at him.

5999
05:19:19,903 --> 05:19:21,821
I'm told that he's more awake

6000
05:19:21,821 --> 05:19:24,708
and indeed was responding to commands.

6001
05:19:24,708 --> 05:19:27,147
- Great. - That therapeutic head CT.

6002
05:19:27,147 --> 05:19:30,049
- That's right, that's all it takes

6003
05:19:30,049 --> 05:19:32,824
and Lorraine really lightened up on the--

6004
05:19:32,824 --> 05:19:35,864
- Did you get any mechanics today, or?

6005
05:19:35,864 --> 05:19:38,141
- No, he's breathing a little bit.

6006
05:19:38,141 --> 05:19:39,569
I didn't ask him to try to do mechanics.

6007
05:19:39,569 --> 05:19:41,234
- So we'll do those first thing in the morning then.

6008
05:19:41,234 --> 05:19:42,983
- [Scott] I think we're gonna try to

6009
05:19:42,983 --> 05:19:44,967
pull his tooth tomorrow.

6010
05:19:44,967 --> 05:19:47,580
- Dr. Taylor was just talking to his wife, so.

6011
05:19:47,580 --> 05:19:49,621
Hi, Mr. Sperazza.

6012
05:19:49,621 --> 05:19:51,461
Good morning.

6013
05:19:51,461 --> 05:19:53,544
How are you this morning?

6014
05:19:56,859 --> 05:19:59,846
Mr. Sperazza, squeeze my hand.

6015
05:19:59,846 --> 05:20:02,679
Squeeze it again, can you squeeze?

6016
05:20:06,511 --> 05:20:10,594
Mr. Sperazza, squeeze my hand, squeeze over here.

6017
05:20:12,159 --> 05:20:13,482
Good. - Today's the day.

6018
05:20:13,482 --> 05:20:16,482
We're gonna get that tube out today.

6019
05:20:19,150 --> 05:20:20,317
Big day today.

6020
05:20:22,475 --> 05:20:27,058
We're gonna take a listen to your heart and your lungs.

6021
05:20:29,135 --> 05:20:33,498
- [Nurse] Administrative answering page on line five.

6022
05:20:33,498 --> 05:20:37,081
Administrating answering page on line five.

6023
05:20:40,183 --> 05:20:43,100
- [Scott] That really looks better.

6024
05:20:44,228 --> 05:20:46,145
It's okay rhythm. - Yes.

6025
05:20:51,445 --> 05:20:55,278
- [Nurse] That's what we discussed last night.

6026
05:21:03,890 --> 05:21:05,390
- Squeeze my hand.

6027
05:21:06,480 --> 05:21:08,544
You know it's me.

6028
05:21:08,544 --> 05:21:09,961
You know it's me.

6029
05:21:14,997 --> 05:21:18,914
Charlie, you're breathing on your own you know.

6030
05:21:20,729 --> 05:21:22,229
What's the matter?

6031
05:21:28,412 --> 05:21:31,162
I was downstairs with Dr. Taylor.

6032
05:21:59,481 --> 05:22:00,314
Charlie.

6033
05:22:02,596 --> 05:22:04,096
Julie's coming in.

6034
05:22:05,360 --> 05:22:07,277
Do you wanna see Julie?

6035
05:22:08,345 --> 05:22:10,428
Squeeze my hand, Charlie.

6036
05:22:23,176 --> 05:22:25,593
Wanna get up and take a walk?

6037
05:22:31,982 --> 05:22:34,337
Why is he breathing so heavy?

6038
05:22:34,337 --> 05:22:36,911
- He's got secretions in his throat after

6039
05:22:36,911 --> 05:22:39,734
we pulled out the tube, so it's gonna take awhile.

6040
05:22:39,734 --> 05:22:43,234
We've been suctioning him quite a bit, so.

6041
05:22:56,011 --> 05:22:58,428
- Here I am, here I am honey.

6042
05:23:02,073 --> 05:23:03,972
I didn't drive in,

6043
05:23:03,972 --> 05:23:08,183
Debbie drove me in and she's coming up here.

6044
05:23:08,183 --> 05:23:10,516
She was with you last night.

6045
05:23:19,653 --> 05:23:21,819
What's the matter, honey?

6046
05:23:21,819 --> 05:23:23,319
What's the matter?

6047
05:23:27,440 --> 05:23:30,773
I know you don't like that tube up there

6048
05:23:32,015 --> 05:23:36,265
but it's better than the one you had in your mouth.

6049
05:23:48,751 --> 05:23:50,405
Is he breathe,

6050
05:23:50,405 --> 05:23:51,905
breathe, you know?

6051
05:23:53,940 --> 05:23:55,391
- He's breathing all right,

6052
05:23:55,391 --> 05:24:00,291
he's breathing kind of rapidly, yeah but he's okay.

6053
05:24:00,291 --> 05:24:02,480
Taking nice big deep breaths, so.

6054
05:24:02,480 --> 05:24:03,730
- Is he? - Yeah.

6055
05:24:10,947 --> 05:24:15,697
Looks like I'll have to go on a diet to compete with you.

6056
05:24:17,943 --> 05:24:21,526
You wanted to lose weight, now you lost it.

6057
05:24:23,943 --> 05:24:25,360
Okay honey, okay.

6058
05:24:43,615 --> 05:24:46,068
- I had to go to a trustee dinner last night.

6059
05:24:46,068 --> 05:24:48,888
Mitch has these dinners with the trustees.

6060
05:24:48,888 --> 05:24:50,829
- Yeah, good eats or not?

6061
05:24:50,829 --> 05:24:52,361
- No.

6062
05:24:52,361 --> 05:24:57,028
- To show off the professor. - The rubber chicken, no no.

6063
05:24:57,993 --> 05:25:02,109
He does this to sorta get the trustees to

6064
05:25:02,109 --> 05:25:03,978
be more educated about the hospital but

6065
05:25:03,978 --> 05:25:06,450
the topic that we had to discuss was

6066
05:25:06,450 --> 05:25:09,729
how to cut the hospital budget three to 5% to

6067
05:25:09,729 --> 05:25:14,061
accommodate the decrease in revenues associated with

6068
05:25:16,359 --> 05:25:19,323
you know, the lack of healthcare legislation

6069
05:25:19,323 --> 05:25:23,433
and the state anticipate a $5 million deficit.

6070
05:25:23,433 --> 05:25:26,019
So basically I think the businessmen and I,

6071
05:25:26,019 --> 05:25:27,837
the trustees and I were the only

6072
05:25:27,837 --> 05:25:30,670
people who manage our own budgets.

6073
05:25:32,431 --> 05:25:34,511
I said three to 5%, no problem.

6074
05:25:34,511 --> 05:25:36,325
You can cut three to 5% out of virtually

6075
05:25:36,325 --> 05:25:38,606
any budget and you won't have any problem.

6076
05:25:38,606 --> 05:25:41,564
But that doesn't really solve the problem because

6077
05:25:41,564 --> 05:25:46,231
the problem is how do you explain to the American public

6078
05:25:47,189 --> 05:25:51,848
that if they want to have everything done for everybody

6079
05:25:51,848 --> 05:25:54,335
that it's not only gonna cost what it costs now but it's

6080
05:25:54,335 --> 05:25:58,416
gonna go up every year as the number of older people go up.

6081
05:25:58,416 --> 05:26:00,911
Two-thirds of all your healthcare costs

6082
05:26:00,911 --> 05:26:03,890
are incurred during the final 21 days of life

6083
05:26:03,890 --> 05:26:06,792
and I thought that it was two-thirds in the final,

6084
05:26:06,792 --> 05:26:08,917
or half in the final year, its even worse than that.

6085
05:26:08,917 --> 05:26:11,917
It's two-thirds in the final 21 days

6086
05:26:12,952 --> 05:26:15,153
and the problem is we can't tell

6087
05:26:15,153 --> 05:26:18,737
who's gonna make it and who's not.

6088
05:26:18,737 --> 05:26:19,820
All right so,

6089
05:26:21,999 --> 05:26:23,666
shoot. - Mr. Sperazza

6090
05:26:25,074 --> 05:26:27,396
had a relatively good day yesterday.

6091
05:26:27,396 --> 05:26:31,015
As I gather you heard, there was a period where he

6092
05:26:31,015 --> 05:26:33,834
apparently recognized his wife and would respond

6093
05:26:33,834 --> 05:26:36,231
to commands to nursing and indeed at one point when I

6094
05:26:36,231 --> 05:26:40,411
went in, he would squeeze and release my hand on command

6095
05:26:40,411 --> 05:26:41,828
and was attentive

6096
05:26:43,018 --> 05:26:44,018
to his name.

6097
05:26:44,875 --> 05:26:47,288
So some improvement.

6098
05:26:47,288 --> 05:26:49,538
Mr. Sperazza, good morning.

6099
05:26:50,417 --> 05:26:52,084
How are you feeling?

6100
05:26:54,237 --> 05:26:56,237
Can you squeeze my hand?

6101
05:26:57,366 --> 05:26:59,449
Come on, squeeze it hard.

6102
05:27:00,922 --> 05:27:02,672
- Did he do it? - Yep.

6103
05:27:04,800 --> 05:27:07,996
Can you wiggle your toes, Mr. Sperazza?

6104
05:27:07,996 --> 05:27:11,279
Let's see you wiggle your toes.

6105
05:27:11,279 --> 05:27:12,696
Great, good work.

6106
05:27:25,901 --> 05:27:30,068
- [Female Doctor] You're doing good, Mr. Sperazza.

6107
05:27:36,577 --> 05:27:38,795
- You get him out of bed at all?

6108
05:27:38,795 --> 05:27:40,327
- Pardon me? - He get out of bed at all?

6109
05:27:40,327 --> 05:27:42,744
- Yeah. - He sat in the chair.

6110
05:28:18,304 --> 05:28:21,711
- [Bill] Squeeze my hand, Mr. Sperazza.

6111
05:28:21,711 --> 05:28:22,794
Mr. Sperazza?

6112
05:28:25,986 --> 05:28:28,736
Squeeze my hand, can you do that?

6113
05:28:32,999 --> 05:28:35,377
Okay, I'm gonna let you get some rest

6114
05:28:35,377 --> 05:28:38,377
and I'll come back to see you again.

6115
05:28:45,942 --> 05:28:49,208
- See they're questioning pneumonia in the right bay.

6116
05:28:49,208 --> 05:28:51,405
- He should probably actually go on chest PT again

6117
05:28:51,405 --> 05:28:53,795
but I'm sure they'll have more to say about that.

6118
05:28:53,795 --> 05:28:55,125
- That's when he died last time.

6119
05:28:55,125 --> 05:28:55,958
- Yeah.

6120
05:28:56,994 --> 05:29:00,850
- Chest PT and he stopped breathing, okay.

6121
05:29:00,850 --> 05:29:04,446
- His rate's been a little higher than it was, 38 to 40.

6122
05:29:04,446 --> 05:29:06,433
He definitely looks labored.

6123
05:29:06,433 --> 05:29:07,843
He looks like he did before

6124
05:29:07,843 --> 05:29:09,572
he respiratory arrested last time.

6125
05:29:09,572 --> 05:29:11,006
- He's using his belly and stuff?

6126
05:29:11,006 --> 05:29:15,339
- Yeah, asynchronous breathing and that kinda stuff.

6127
05:29:18,202 --> 05:29:19,700
- So if he just stops breathing,

6128
05:29:19,700 --> 05:29:21,857
we just let him stop breathing?

6129
05:29:21,857 --> 05:29:24,107
- Mm hmm. - That's so weird.

6130
05:29:42,540 --> 05:29:44,290
- Can you squeeze it?

6131
05:29:45,240 --> 05:29:46,573
Squeeze my hand?

6132
05:30:07,272 --> 05:30:10,396
- I've seen people come back from this.

6133
05:30:10,396 --> 05:30:14,243
It's just that the odds are really against him

6134
05:30:14,243 --> 05:30:16,766
in terms of his coming back from it and there's still

6135
05:30:16,766 --> 05:30:19,014
a possibility that some of this could be metabolic things.

6136
05:30:19,014 --> 05:30:22,875
But I have seen some people come back from it.

6137
05:30:22,875 --> 05:30:23,792
I mean not,

6138
05:30:25,855 --> 05:30:29,706
the chances are with all of his problems,

6139
05:30:29,706 --> 05:30:32,212
you're looking at a less than

6140
05:30:32,212 --> 05:30:35,614
5% six month survival at the very best

6141
05:30:35,614 --> 05:30:39,177
and probably much worse than that.

6142
05:30:39,177 --> 05:30:40,335
(phone ringing)

6143
05:30:40,335 --> 05:30:43,085
- [Nurse] Medical Intensive Care.

6144
05:30:56,105 --> 05:30:59,105
- Okay, just gonna do this side now.

6145
05:30:59,993 --> 05:31:02,993
I'm gonna put your oxygen over here.

6146
05:31:03,882 --> 05:31:05,465
Can you look at me?

6147
05:31:08,842 --> 05:31:09,675
Sorry.

6148
05:31:15,094 --> 05:31:16,094
Cough it up.

6149
05:31:20,681 --> 05:31:21,882
There's your oxygen.

6150
05:31:21,882 --> 05:31:25,965
Now don't shake it off, just keep it right there.

6151
05:31:31,264 --> 05:31:34,316
No, don't taste it, it tastes gross.

6152
05:31:34,316 --> 05:31:36,899
Keep your tongue in your mouth.

6153
05:31:39,842 --> 05:31:40,842
- Ow. - What?

6154
05:31:41,963 --> 05:31:43,380
Put your chin up.

6155
05:31:49,968 --> 05:31:52,507
This tube hurts, huh? - Yeah.

6156
05:31:52,507 --> 05:31:54,243
- Yeah, I know.

6157
05:31:54,243 --> 05:31:55,076
Good.

6158
05:32:25,051 --> 05:32:25,968
- You know,

6159
05:32:27,084 --> 05:32:29,489
this is where sort of clinical epidemiology

6160
05:32:29,489 --> 05:32:31,616
and clinical medicine sorta don't intersect.

6161
05:32:31,616 --> 05:32:33,616
If you take 1,000 people

6162
05:32:34,682 --> 05:32:39,682
and you do these incredibly dangerous interventions to them,

6163
05:32:40,280 --> 05:32:43,105
statistically a rare one or two

6164
05:32:43,105 --> 05:32:45,938
or three end up with a bad outcome

6165
05:32:48,219 --> 05:32:51,464
without any apparent, because it's high risk.

6166
05:32:51,464 --> 05:32:54,831
Think about the stuff that we're doing.

6167
05:32:54,831 --> 05:32:57,593
Taking away somebody's bone marrow and then

6168
05:32:57,593 --> 05:33:00,664
giving them mega-doses of chemotherapy and then

6169
05:33:00,664 --> 05:33:04,811
infusing it back into them or giving them six

6170
05:33:04,811 --> 05:33:09,302
toxic chemotherapeutic agents in sequence and

6171
05:33:09,302 --> 05:33:11,660
watching their white count disappear and sure,

6172
05:33:11,660 --> 05:33:15,577
you may get away with it 900 times or 990 times

6173
05:33:16,528 --> 05:33:20,027
out of 1,000 but there are gonna be a few people

6174
05:33:20,027 --> 05:33:24,602
who are gonna have an incredibly, and the other thing,

6175
05:33:24,602 --> 05:33:27,424
the other thing is the way a lot of

6176
05:33:27,424 --> 05:33:30,412
chemotherapy is presented to people too.

6177
05:33:30,412 --> 05:33:32,906
Take a guy with cell carcinoma in the lungs,

6178
05:33:32,906 --> 05:33:35,579
you can say to that person well,

6179
05:33:35,579 --> 05:33:37,900
we can double your life expectancy.

6180
05:33:37,900 --> 05:33:40,380
We can take you from living three months

6181
05:33:40,380 --> 05:33:43,053
with no chemotherapy to living six months

6182
05:33:43,053 --> 05:33:46,123
with chemotherapy but for that six months,

6183
05:33:46,123 --> 05:33:47,993
you won't be able to swallow anything because your

6184
05:33:47,993 --> 05:33:51,543
mouth will be raw, you'll be constantly in the hospital

6185
05:33:51,543 --> 05:33:55,543
and infected and, but you'll live twice as long.

6186
05:33:56,966 --> 05:33:59,546
But that's not the way it's presented.

6187
05:33:59,546 --> 05:34:01,160
You don't present it to a person,

6188
05:34:01,160 --> 05:34:03,476
well yeah, we're gonna have you live twice

6189
05:34:03,476 --> 05:34:06,276
as long but there's a morbidity associated with

6190
05:34:06,276 --> 05:34:11,275
living twice as long or you can live short and sweet and--

6191
05:34:11,686 --> 05:34:14,394
- That's a fallacy, it isn't short and sweet.

6192
05:34:14,394 --> 05:34:16,211
That man with cell carcinoma

6193
05:34:16,211 --> 05:34:18,372
is in marked respiratory distress.

6194
05:34:18,372 --> 05:34:20,544
I mean I buy your argument-- - Maybe he gets two months

6195
05:34:20,544 --> 05:34:22,206
and then you give him morphine but--

6196
05:34:22,206 --> 05:34:23,860
- That may be.

6197
05:34:23,860 --> 05:34:25,390
- [Scott] You know--

6198
05:34:25,390 --> 05:34:27,223
- But I mean you know,

6199
05:34:28,165 --> 05:34:30,111
it's not like you live well with

6200
05:34:30,111 --> 05:34:33,083
untreated cancer until the day you die.

6201
05:34:33,083 --> 05:34:38,083
You're in horrible pain and worsening respiratory status.

6202
05:34:38,576 --> 05:34:42,751
- There may be pain, maybe not, you can treat the pain.

6203
05:34:42,751 --> 05:34:43,584
But

6204
05:34:47,185 --> 05:34:50,852
no risk is zero, no risk in medicine is zero

6205
05:34:52,777 --> 05:34:56,694
and the problem you see is that the culture,

6206
05:34:56,694 --> 05:35:00,260
we blind ourselves to all of that stuff because we have to.

6207
05:35:00,260 --> 05:35:02,950
Because you have to be a true believer,

6208
05:35:02,950 --> 05:35:04,986
you have to believe in this stuff to do it.

6209
05:35:04,986 --> 05:35:08,531
If you didn't believe that this stuff would work,

6210
05:35:08,531 --> 05:35:10,891
why would you do it?

6211
05:35:10,891 --> 05:35:14,495
Faced with Larry Shuleman's dilemma,

6212
05:35:14,495 --> 05:35:17,275
a 38 year old woman with three kids,

6213
05:35:17,275 --> 05:35:19,907
well you have a choice of doing nothing and watching

6214
05:35:19,907 --> 05:35:24,212
her die over the course of a year or doing something--

6215
05:35:24,212 --> 05:35:27,285
- [Doctor] For a small chance of survival.

6216
05:35:27,285 --> 05:35:29,273
- Right, I mean you know--

6217
05:35:29,273 --> 05:35:32,095
- [Doctor] I agree with his choice.

6218
05:35:32,095 --> 05:35:34,565
- Well it's hard not to do the other thing

6219
05:35:34,565 --> 05:35:36,652
but I think the problem is when you do do that,

6220
05:35:36,652 --> 05:35:41,402
then you sometimes end up shortening some people's lives.

6221
05:35:44,940 --> 05:35:47,773
So it's a no-win because it's not,

6222
05:35:48,691 --> 05:35:50,217
it's manipulating things when you don't

6223
05:35:50,217 --> 05:35:52,929
really have an awful lot to manipulate.

6224
05:35:52,929 --> 05:35:55,213
In the short term-- - We always--

6225
05:35:55,213 --> 05:35:58,446
- Who's got the better prognosis, Mrs. Factor or--

6226
05:35:58,446 --> 05:36:00,817
- Or an AIDS patient? - No, this lady.

6227
05:36:00,817 --> 05:36:01,978
- [Doctor] In the short term,

6228
05:36:01,978 --> 05:36:04,010
Mrs. Factor has a better prognosis.

6229
05:36:04,010 --> 05:36:05,522
On the other hand I believe ICUs are

6230
05:36:05,522 --> 05:36:08,060
for this lady, not for Mrs. Factor frankly.

6231
05:36:08,060 --> 05:36:09,423
- [Scott] But why?

6232
05:36:09,423 --> 05:36:12,246
- It's an age-prejudice that I cannot beat.

6233
05:36:12,246 --> 05:36:15,531
- That's ageist. - It is ageist.

6234
05:36:15,531 --> 05:36:19,523
It isn't age though, it's just her disease.

6235
05:36:19,523 --> 05:36:22,177
- [Scott] Right it's an emotional response to the situation.

6236
05:36:22,177 --> 05:36:25,120
Here's this 38 year old lady, she's got three kids.

6237
05:36:25,120 --> 05:36:26,113
- [Doctor] No no no,

6238
05:36:26,113 --> 05:36:29,188
but I don't believe Mrs. Factor can never be cured.

6239
05:36:29,188 --> 05:36:32,736
I cannot fix hypertrophic cardiomyopathy and bad lungs.

6240
05:36:32,736 --> 05:36:35,554
- Pleural mesothelioma can never be cured either.

6241
05:36:35,554 --> 05:36:37,924
- Unless you believe as oncologists believe

6242
05:36:37,924 --> 05:36:41,300
that she has a one in a million chance of survival

6243
05:36:41,300 --> 05:36:45,215
with this chemo surgery plan for her.

6244
05:36:45,215 --> 05:36:47,243
- [Scott] But you see I think it's important--

6245
05:36:47,243 --> 05:36:49,916
- You can't say that there's absolutely no hope for her.

6246
05:36:49,916 --> 05:36:52,044
- Yes, I would say that there is no hope for her.

6247
05:36:52,044 --> 05:36:54,525
In fact that her hope is less than Mrs. Factor

6248
05:36:54,525 --> 05:36:57,679
and in fact I think that borders on the same kind of

6249
05:36:57,679 --> 05:37:02,512
religious faith that you know, I happen to believe in God.

6250
05:37:03,861 --> 05:37:08,474
I have very strong faith in a Supreme Being and yet

6251
05:37:08,474 --> 05:37:10,141
I'd have to say that

6252
05:37:11,726 --> 05:37:16,393
belief in that is exactly the same sort of blind faith--

6253
05:37:17,464 --> 05:37:20,303
- [Doctor] Some mesothelioma patients are cured.

6254
05:37:20,303 --> 05:37:23,886
- Yes but much more commonly pleural, sure.

6255
05:37:25,659 --> 05:37:28,054
But you have to think about what kind of cases.

6256
05:37:28,054 --> 05:37:30,050
They're not pleuro mesotheliomas like this.

6257
05:37:30,050 --> 05:37:33,692
- If you really believe that there's no hope,

6258
05:37:33,692 --> 05:37:37,051
then this chemo is a farce and cruel

6259
05:37:37,051 --> 05:37:39,534
and this ICU stay is a farce and cruel.

6260
05:37:39,534 --> 05:37:41,525
- [Scott] Well...

6261
05:37:41,525 --> 05:37:43,442
- I can't believe that.

6262
05:37:44,962 --> 05:37:46,502
- [Scott] Right, I mean I think--

6263
05:37:46,502 --> 05:37:49,280
- I cannot stay up all night with this lady and plug her

6264
05:37:49,280 --> 05:37:51,774
and get excited about DIC improving and all this stuff--

6265
05:37:51,774 --> 05:37:53,179
- [Scott] You cannot do what you have to do--

6266
05:37:53,179 --> 05:37:54,524
- That's right. - If you believe that.

6267
05:37:54,524 --> 05:37:56,099
That's exactly what I'm saying, you have to believe in it.

6268
05:37:56,099 --> 05:38:00,429
- And I can't actually be a doctor for most of my patients

6269
05:38:00,429 --> 05:38:02,012
because you know...

6270
05:38:02,924 --> 05:38:05,341
- That's part of the problem.

6271
05:38:10,114 --> 05:38:11,984
I think that's part of the problem because

6272
05:38:11,984 --> 05:38:15,139
I really do believe that from the moment that diagnosis

6273
05:38:15,139 --> 05:38:19,749
was made, it's like in Treasure Island you know when

6274
05:38:19,749 --> 05:38:22,706
the old Captain gets handed the black spot,

6275
05:38:22,706 --> 05:38:25,206
she got handed the black spot.

6276
05:38:26,279 --> 05:38:29,971
She was called and we're minor actors--

6277
05:38:29,971 --> 05:38:32,696
- So therefore we shouldn't put active--

6278
05:38:32,696 --> 05:38:34,354
- [Scott] I don't say you shouldn't do it.

6279
05:38:34,354 --> 05:38:37,045
I think that it's important to recognize that look,

6280
05:38:37,045 --> 05:38:39,574
I said put in the swan.

6281
05:38:39,574 --> 05:38:42,682
But I think it's important to recognize the reality

6282
05:38:42,682 --> 05:38:46,020
of what the situation is. - Oh yeah.

6283
05:38:46,020 --> 05:38:49,603
When you first diagnose a patient like her,

6284
05:38:50,489 --> 05:38:51,945
you know--

6285
05:38:51,945 --> 05:38:53,981
- I think that doctors-- - Your heart sinks.

6286
05:38:53,981 --> 05:38:56,399
But you can't just give up on her.

6287
05:38:56,399 --> 05:39:00,282
You aren't doing her a favor by giving up on her either.

6288
05:39:00,282 --> 05:39:04,610
- See you say it's giving up, you say it's giving up on her.

6289
05:39:04,610 --> 05:39:06,911
Well maybe it is giving up on her.

6290
05:39:06,911 --> 05:39:08,949
That's one view of it.

6291
05:39:08,949 --> 05:39:12,935
That view would suggest that we have something to offer.

6292
05:39:12,935 --> 05:39:15,508
But what I'm saying is that it's

6293
05:39:15,508 --> 05:39:18,425
not clear we have anything to offer

6294
05:39:19,422 --> 05:39:22,172
and in fact what, for the system,

6295
05:39:23,371 --> 05:39:26,708
because you know I think I very well might

6296
05:39:26,708 --> 05:39:28,902
have done the same thing that Larry did but

6297
05:39:28,902 --> 05:39:30,933
I think it's important to recognize

6298
05:39:30,933 --> 05:39:32,506
that the system probably shortened her life.

6299
05:39:32,506 --> 05:39:36,971
There are some things that are just bigger than us

6300
05:39:36,971 --> 05:39:40,881
and doctors in this day and age are extremely

6301
05:39:40,881 --> 05:39:44,275
reluctant to say "We can't do anything for that.

6302
05:39:44,275 --> 05:39:47,227
"We have no way to help that yet."

6303
05:39:47,227 --> 05:39:49,977
I don't know you know, it's hard.

6304
05:39:52,423 --> 05:39:55,340
But I mean so much of this stuff is

6305
05:39:59,025 --> 05:40:02,693
heavy flail for relatively small to no gain.

6306
05:40:06,970 --> 05:40:10,595
I mean a number of people, having built this thing,

6307
05:40:10,595 --> 05:40:14,178
I have serious questions as to its utility.

6308
05:40:15,282 --> 05:40:17,532
- Oh yeah, I mean you know,

6309
05:40:18,444 --> 05:40:21,305
in all the months that I've been here,

6310
05:40:21,305 --> 05:40:25,731
three years in a row, there aren't very many patients

6311
05:40:25,731 --> 05:40:29,582
who you actually sort of help save their life,

6312
05:40:29,582 --> 05:40:31,582
make a major difference.

6313
05:40:33,159 --> 05:40:35,022
- We know that everybody who rolls

6314
05:40:35,022 --> 05:40:38,154
through that door looks bad, they look bad.

6315
05:40:38,154 --> 05:40:41,978
They could go anytime but we can't tell you when.

6316
05:40:41,978 --> 05:40:43,561
That's the problem.

6317
05:40:45,441 --> 05:40:50,274
I don't know, there's nothing more discouraging than this.

6318
05:40:52,041 --> 05:40:56,541
The psychological toll on us and on the family is just

6319
05:41:00,183 --> 05:41:01,183
really grim.

6320
05:41:21,257 --> 05:41:24,790
- Wish I had somewhere to put this.

6321
05:41:24,790 --> 05:41:28,540
I'm gonna put this on top here, is that okay?

6322
05:41:32,257 --> 05:41:35,612
Yeah just, yeah can you hold onto that?

6323
05:41:35,612 --> 05:41:37,195
Yeah, okay hold it.

6324
05:41:47,779 --> 05:41:49,841
Now okay, I can put it up here.

6325
05:41:49,841 --> 05:41:52,581
We can take a table with us too.

6326
05:41:52,581 --> 05:41:53,498
Here we go.

6327
05:41:54,773 --> 05:41:55,606
Okay.

6328
05:42:03,436 --> 05:42:05,436
Can you get that? - Yeah.

6329
05:42:09,530 --> 05:42:12,780
(patient moans) - What?

6330
05:42:31,587 --> 05:42:32,825
Okay.

6331
05:42:32,825 --> 05:42:35,408
(loud buzzing)

6332
05:42:51,323 --> 05:42:53,739
(chattering)

6333
05:43:02,573 --> 05:43:05,845
- [Doctor] Otherwise it's a pretty simple situation.

6334
05:43:05,845 --> 05:43:10,684
- [Scott] Right but as with everything you do, there's

6335
05:43:10,684 --> 05:43:15,267
the potential that this is gonna be counter-beneficial.

6336
05:43:20,028 --> 05:43:24,361
- [Doctor] But then I would settle more on an x-ray.

6337
05:43:25,541 --> 05:43:27,708
- [Scott] Agree with that.

6338
05:43:37,179 --> 05:43:40,717
- Other issues, substantial metabolic alkalies have

6339
05:43:40,717 --> 05:43:45,384
switched, it seemed to be reaching and well-compensated.

6340
05:43:46,676 --> 05:43:50,759
- [Nurse] Medical Intensive Care, can I help you?

6341
05:44:12,543 --> 05:44:13,876
- Open this bag.

6342
05:44:20,012 --> 05:44:21,585
- [Technician] Did you get ahold of the funeral home?

6343
05:44:21,585 --> 05:44:23,010
- Yes I did.

6344
05:44:23,010 --> 05:44:25,593
Yes I did, thank you very much.

6345
05:44:34,858 --> 05:44:39,658
- [Technician] Keep it on that side, just take the sheets.

6346
05:44:39,658 --> 05:44:40,991
One, two, three.

6347
05:44:49,569 --> 05:44:51,061
Check the tag.

6348
05:44:51,061 --> 05:44:53,265
- Oh yeah, it's the right one.

6349
05:44:53,265 --> 05:44:55,389
- [Technician] You don't wanna get home and find out--

6350
05:44:55,389 --> 05:44:57,914
- Find out I got the wrong body.

6351
05:44:57,914 --> 05:44:59,081
Dorothy. - Yep.

6352
05:45:23,658 --> 05:45:25,408
- That's good. - Good.

6353
05:45:27,731 --> 05:45:32,564
- [Technician] She's gonna have to come down a little bit.

6354
05:45:36,607 --> 05:45:38,774
- The zipper doesn't work.

6355
05:45:40,814 --> 05:45:44,814
- You got your pins? - No, I don't have anything.

6356
05:45:53,004 --> 05:45:55,587
We're gonna go that way. - Okay.

6357
05:46:35,625 --> 05:46:37,835
Okay. - Take care, see ya.

6358
05:46:37,835 --> 05:46:39,364
- We'll see ya. - All set with your paperwork?

6359
05:46:39,364 --> 05:46:40,829
- Yeah, I got all my papers yeah.

6360
05:46:40,829 --> 05:46:42,996
Thank you very much, yeah.


